Morgellons Research
Foundation
The MorgellonsResearch
Foundation
Leitao created
the MorgellonsResearch Foundation (MRF) and
its associated web site in 2002 to promote awareness of the
disease and to raise money for research. The Morgellons
Research Foundation (MRF) is a non-profit organization
dedicated to raising awareness and research funding for
the illness “Morgellons disease“.
The Morgellons Research
Foundation has adopted a draft Case Definition developed by
their Medical Advisory Board that is intended to be refined as
new information is available. Researchers from the Morgellons
Research Foundation consider Morgellons a distinct and novel
disease.
For a few years, the
Morgellons Research Foundation (MRF) has been registering
people who think they have symptoms of Morgellons. As of
February 2006, more than 2,000 reports of the disease have been
reported on the Foundation's website. The foundation raises
public awareness of Morgellons via web and press campaigns;
conducts letter writing campaigns to state
officials.
The Morgellons Research Foundation states that
Morgellons has been reported in every American state, and
15 other countries.
The Foundation's website states, "This
non-profit foundation is dedicated to finding the cause of
an emerging infectious disease, which mimics
scabies and
lice.
In addition, "according to statistics from the
Morgellons Research Foundation (MRF), the majority (95%)
of affected patients also report symptoms of disabling
fatigue and self-described "brain fog" or problems with
attention.
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