Morgellons Pictures
Morgellons Pictures
Morgellons is a disease that is fairly new as diseases go. It was first reported around 2001 and to this day nobody can determine its cause, how to cure it, or even what it is. It’s characterized by itchy rashes, strange fibers that protrude from the skin, lethargy, the feeling of bugs crawling under their flesh and more. Some people have mild cases of Morgellons and some have extreme cases; but both groups have something in common: They don’t have the answers they seek. The medical community for the most part, dismisses them.
Many doctors say it’s all in the patient’s head. The fibers, they say, came from your bed or something similar . Yet these “fibers” don’t look or feel like regular thread at all. The symptoms, the experts say, are all manifested in the patient’s mind. Yet everyone who suffers from Morgellons stresses otherwise. They are suffering, and they want help that they’re not getting. Only recently did the CDC begin seriously investigating this horrible affliction. The only thing these people can do is take pictures and hope there’s a community out there of others just like them.
Morgellons pictures are appearing on the internet at an ever increasing rate. That’s because the disease seems to be spreading. Yet the CDC hasn’t yet characterized it as a disease, let alone an infectious one. So these people who have no idea what’s going on with their bodies take pictures of their symptoms. They’ll take pictures of the rashes, the odd fibers that are coming from their skin. What they can’t capture through photographs is the pain they feel, the feeling that there are insects under their skin, and the utter lack of hope because nobody has any answers.
You can find morgellons pictures with a Google search. People have started blogs and forums strictly for other Morgellons sufferers so that others can find hope in the fact that someone else is going through what they are. These pictures are then picked up by Google. When you search for pictures, you have to do so with an open mind and a strong stomach. The sores and the fibers and the other symptoms the sufferers experience are disturbing. One can only imagine what a person goes through when they have those sores and don’t know how to get rid of them.
When something like Morgellons appears and nobody seems to have any answers, the internet gives people an opportunity to find others like them. These forums and blogs filled with horror stories and pictures that have popped up all over the internet, have allowed others to see that they’re not alone. And that’s very important. That’s why, if you think you’re suffering from Morgellons, you should get online. Search for Morgellons or Morgellons pictures and hopefully you’ll find others just like you, so that you don’t think you have to endure this horrible disease all by yourself.
I have MORGELLONS Disease and nobody believes me or will test me or help! What do I do?
If you have insurance, please go to a wound clinic. They can monitor your lesions weekly and see how they progress. Please put diluted Miracle Mineral Solution several hours before you go to the doctor. This will allow the fibers and other debris to be visible to them. We need to make it easier for the doctors to observe what is really there.
If you can afford a hand held device called Tanda, a red light therapy is very soothing and promotes healing to the skin.
Bandages that you can get from the wound clinic that are very helpful at draining the lesions are Aquagel AC Silver bandages, Puracol silver with collagen and also Tough pads that are made by Johnson and Johnson that you can purchase at drugstore.
Please eliminate sugar and any junk food and package foods. Add probiotics, grapefruit seed extract tablets, green drinks (I love Amazing Grass green drink).
Soaking in Borax in tube is great, and wash with Dr. Bonners Peppermint soap. It is less expensive at Trader Joes.
Remember that God loves you, and you can make it one day at a time!!
Rhonda
Hi, I just wanted to say THANK YOU for posting about this horrible (for lack of a stronger word) disease because, honest to God, if it were not for coming across this post, I would still be desperately searching and researching for an answer, diagnosis, or ANYTHING pertaining to what I’ve been suffering from for almost a year now. I have constantly questioned my own sanity more times than I could count. I tried to talk to a few close friends about it, even showing them the “fibers” and sores up close, but caught that hidden “Wow…You’re really losing it!” expression and look, making me feel completely hopeless and desperate for someone (ANYONE!) to understand or have an answer. Every time I’ve had an “attack” (as I call it when I feel and see the fibers), I’ve told myself that I was going to the doctor about it, I’ve talked myself out of the idea, merely terrified that he would think I’m crazy. I’ve had SO many “attacks” that I came to a point just yesterday that I knew I had to start looking for answers and I found it in you, which I am eternally grateful for. Just knowing that there are others and that I am not enduring this alone gives me a great sense of peace, and I am now prepared to try to do something about it. I wanted to ask you if you had any information about whether sufferers of Morgellons are needed or wanted for research because I’ve come to know this disease incredibly well, which is all one can do while suffering alone, far too ashamed, embarrassed, or simply scared to ask for help. Since I came across your post yesterday, I’ve researched all I possibly could find on Morgellons, basically coming across the same information with every search. I’ve seen repeatedly the same symptoms, but there are plenty more horrible symptoms and aspects to this disease that I have experienced on numerous occasions that I would love to report to researchers in hopes of AT LEAST proving that we are not imagining these horrible, near constant, symptoms. One example of one of these symptoms that I have not seen on-line, and is definitely one of the worst for me, is teeth. These “fibers” don’t discriminate between locations of the body. Even with almost constantly brushing and using mouthwash, they get in the mouth, surrounding teeth at the gum line and somehow you quickly-yet-gradually notice tiny cavities forming. You can see them clearly around the teeth before and about 5 minutes or so after brushing. I often feel little white pieces of appear suddenly on my tongue that could be mistaken for food residue that might have been stuck in a toth after eating, but please trust me when I tell you it is definitely NOT food. I know this because at one point I had a stomach virus and could NOTHING for nearly two straight days, only drinking water, and yet I was spitting these small white particles out the whole time. This is the kind of information I can offer science, along with MANY more gruesome details and I owe it to myself as well as the other people suffering from this affliction to help in any way possible to further be educated and show people that it’s truly not “all in our heads.” So, if you have any further information or contacts, please e-mail me. Once again, thank you so much for showing us support and I hope to hear from you…
i have the same thing with my teeth going on. I have it worst in my hair follicles. I had to cut all of my hair off. Do you know of anything that helps. Email me if you have a chance!
Best,
Nicolette
Nicolette
I”ve delt with my Morgellons a few years back and I’ve learned a great deal. Mine was dental toxicity. Recearch DAMS or IOAMT to see if it addresses any of your issues. Feel free to e-mail me.
Tim
Interesting what you say about hair follicles. 2 nights ago, clumps of my hair were falling out. I was letting them fall into the sink in front of me & saw the hairs move on their own, tangling up in each other. i tried to take video (so I could review myself later & show to others that this is happening FOR REAL! Unfortunately the light in the bathroom was too dim. I did get video of what appeared to be “dust bunnies” on my ceiling doing the EXACT SAME THING! Oddly, the closer I moved to it with the camera-THE MORE ACTIVE IT GOT! When the ache in my sores was worsening that night, it felt like static electriciy. I
I think this is a mold spore or bacteria that replicates via biolfilm & quorum sensing. I see yellow globs of goo w/the little black specks in it on my walls, in the mold in the house, & that’s what the “scabs” on my sores appears to be. little globs of that yellow “goo” were coming out of my gums that night as well!
I believe this disease & the attacks are a result of mold in my apt. I’ve had a leaky kitchen sink that was broken BEFORE I moved in LAST DEC! After this skin problem started cropping up, I started seeing mold spores growing in small patches EVERYWHERE in this apt.! they are spontaneously growing on things you wouldn’t even think COULD grow mold on them-glass, plastic, etc. It showed up on an unopened sour cream container I’d only bought the night before-exp date 10/11! So, I think this is a cutaneous mold infection. the Dr. told me I’m nuts & that can’t happen. Well, according to the background research I’ve done, it certainly CAN-albeit rarely! I’m contacting an infectious disease specialist today.
Did you ever contact the infectious disease specialist and if so, what was the response?
alright i have to tell you all what i did . short of setting my hands on fire with lighter fluid an a match,i would clap my hands and fibers would fly out. my shower walls filled with blue and red fibers . i would OCD all night and day with a razor blade tweezers and scotch tape to capture a nd prove their existence.skin on my hands turned thick and calloused,and im a woman, it was awful. i would por household bleach on them and in a fit smacked down my hands on the counter and a winged bug came out. i freaked. i went to the drug store and ate an entire pkg of dog dewormer. it seemed to help, im cleared and that was 7 years ago. mine started in 2000.before anybody had ever uttered the word morgellons in 300 years. i lived in exruciating pain al around my finger nails . felt like razor cuts aound and under my nails dipped in rubbing alchol. it took my breath away. i was a hair dresser and couldnt touch my clients. lost my job. lost my mind ended up homeless. morgellons ruined my life for 5 years.
i’m ready to go homeless i hate living alone with this problem but everyone i tell says i’m crszy but i know i’m not if i can help you please email me i’ll do the best i can good luck.m3
I’ve been seeing a dermatologist from Mayo Clinic, Rochester, MN. He’s been having me take light therapy (phototherapy), taking minocycline. I also put antibiotic cream on the sores after baths, and showers. The sores are finally healing after a horrible bout of infection. I did mention to him that I self-diagnosed morgellons. A different derm had diagnosed me with prurigo nodularis so this derm said he didn’t know which he’d diagnose me with but either way, I’d be treated the same. I mentioned about the fibers and he, like others, said since the sores are sticky, fibers from clothing are probably sticking to them. He did a biopsy and nothing showed. No infection, no infestation, nothing.
I have had this for 2 years off and on and this past summer in South Florida was the worst. I went online and bought a Digital Blue QX5 USB Microscope 10x, 60, 200x and let me tell you I have been compiling all my data for about a year now and I have proof now. I have contacted and sent the CDC my info and they keep telling me to wait. I have been to many dermatologists and I was basically told I am crazy and go rub some Tussin on it. I have been to Cleveland Clinic and many other reputable people and no one will listen. I have hundreds of movies & pictures time lapsed showing these balls of fuzz growing and morphing into other things. My bed linens are washed at least weekly and I have fuzz balls that are non human nor man made its like synthetic nano tubes or something. I am 31 and recently started losing hair in spots and now have boils on my head and facial follicles have eggs attached when I remove the pimple looking hairs. I do not know what else to say but something better come out soon because I cannot stay reclusive like this much longer I haven’t been on a date in 2 years and I am a good looking guy I just do not want to harm anyone I keep making excuses to not be around people socially the toll is horrible. Just my two cents. But I have evidence to prove any skeptics wrong from nose mucus to toe peeling its just insane the spectrum of issues and I am not OCD nor a delusional this is for real and the mental anguish I am going through is worse than words can describe. Best wishes to all just keep helping each other. I do not have any remedies yet still just doing my analysis since no one else will.
Andrew,
I have had this for 10 years. I was diagnosed with mixed connective tissue disease.
I was on drugs to suppress immune system, but caused low blood counts.
Scalpacin works well on lesions on the head.
Red light therapy ( I bought a Tanda from dermadoctor.com)
Aquacel AG silver bandages (Wound Clinic) are very effective. Also Silvasorb perforated sheet (Wound Clinic) and Puracol plus collagen dressings (Wound clinic) are very helpful.
Johnson and Johnson Tough Pads (Wallmart) are very helpful.
Orajel topically for pain is very helpful.
Lamisil cream topically, Muprocin topically, Zovirax topical anti viral is helpful.
MMS diluted straight on the lesion is very helpful in drawing it to the surface. If you want doctors to SEE what you bare FEELING put this on and let it soak before doc appt.
Domeboro is a product available at Wallgreens, very helpful at draining lesions, using Lamisil after is helpful at softening thick biofilm.
Using a mixture of strong green tea (about a teaspoon) mixed with thick greek yogurt for a mask is very soothing and healing. Using an egg white is very helpful for draining lesions and removing built up debris on face. Especially useful after hot shower.
Using Dr. Bonners peppermint soap and body and face is very useful. Cheapest at Trader Joes.
Using cleansing milk type skin care to clean is helpful. Using more than one type of cleanser is necessary. Usually in combination with a cleanser such as Nuetrogena Grapefruit cleanser with scrubbing beads.
Try not to over scrub or break the skin.
Keep your sinuses clean. Neil Sinus Rinse is very helpful.
Taking probiotics, grapefruit seed extract, garlic and drinking apple cider vinegar in water is very cleansing and healing. I also take a green drink called Amazing Grass (Supersupplements), this is truly amazing. I highly recommend glyconutrients. I have used Mannatech. It is expensive, so look for something else if you can’t afford it. Keeping your colon clean is essential I use ColonClenz from Walmart. Used in conjunction with Metamucil caps is very cleansing.
I am on a gluten free, sugar free (I use Xylitol in baking), dairy free and preservative free diet. I don’t do it perfectly but I aim there and it is very helpful.
Using red sauna lamps (for bathroom showers) is effective. Just put it in infra red light holder found at pet stores. I also us infra red light that is used for keeping lizards warm in there tanks. I attached it to a floor lamp purchased at Lowes.
Please purchase a hand held microscope from Radio Shack so you can see what is coming out of your skin.
I take hydrocodone for pain. I am currently on IV Vanco 2 times a day (about a month), Cephalexin 500 mg 4 times a day. I am on Lamisil tabs 1 times a day. I am hoping to do 6 months of the Vanco and other meds long term as well.
Micro Retin A is very helpful in keeping skin on face exfoliated. and generic Hydoroquinone USP 4% helps with skin discoloration.
Bathing in Borax is very cleansing. Use it on your carpet and in your laundry as well.
I don’t think there is one protocol or one drug that will work for everyone. Try as many things as you can and see what works for you.
I have many.doctors and good insurance. I am just now discovering what is really going on. I am trying to help the doctors discover it themselves. It is important that people go to the doctor and have something for the docs to see. Please order MMS, you can order the powder in bulk and mix it yourself. It is the only way the docs will SEE what you are feeling.
Please go to a Wound Clinic where they can weekly monitor your progress.
I
I have had this for 10 years and have been diagnosed with mixed connective tissue disorder, low thyroid, and celiac disease.
I just got a diagnosis last Wed. for Morgellons. I believe it is because I put Miracle Mineral Solution directly on the wounds the night before my appointment and the doctor could see what was really there. For some reason the MMS causes things to be visible.
Don’t give up!
I have had this for years, and can tell you what has worked for me is taking fish oil pills daily, and using steri fab on all the fabrics in my home. bedding, drapes, rugs, clothes, etc…I have used dog flea shampoo when it gets really bad at times. I think that morgellons works in stages like termite bugs work. there are fibers, black biting specks, colored fibers, hair like fibers, etc…the live inside and outside the body depending on what stage they are in.Also, when I sleep at night, the hair looking fibers try to enter my body through my eye sockets, nose, or mouth. They are looking for moisture to continue their cycle. thats where the steri fab (found on e-bay) is helpful in the bedding.
I wouldn’t mind going to a support group to meet with others to compare notes and see the evidence first hand.
Have a biopsy.
A biopsy why? I had a biopsy it proved nothing.
I feel like I’ve been experiencing many of the symptoms of moregellons, but I feel as if the cycles is not being completed. I’ve been experiencing this for about 6 monthes now. It began two weeks after swimming in what I think was contaminated water in a man made lake located on a plantation. After two weeks of swimming I began to get very sick (with genital itching and eye itching, and eating certain foods would make my skin and stomach cramp up and I would become extremely gassy) I started to cope drinking alcohol so I could sleep at night but that only made matters worse. Since then I have completely changed my diet and am focusing on eating alkaline foods (foods that after the body begins to digest the food the ‘ash’ left behind is considered alkaline – so this would include citrus fruits like lemons, but not foods like red meat – which is alkaline before digestion) I also am losely following a candidasis diet mixed with the idealogy of eating 90% vegetable, some fruit, and little to no meat or processed foods. Essentially I am trying to bring my body to a more alkaline state in which it is impossible for any disease, parasite, or anything foreign survive in the body. Whenever I eat something that seems to upset the morgellons, I drink a teaspoon of Diatomaceous Earth Food grade. I have been taking it on and off daily for 5 of these 6 monthes. It has seemed to absorb many toxins from my body and expelled many of the morgellons. It felt crazy, I bombed the house because I thought we had flees, but it was actually the bugs leaving my body and bc I didn’t realize that I thought things were biting, stinging, and crawling all over me. The Diatomaceous is what stops my symptoms, but I have to continue to take it in small doses. When I was drinking the alcohol, I was taking a heaping tablespoon before breakfast lunch and dinner, now I just take it when I’ve accidentally eaten sugar, yeast, alcohol, or very starchy foods like processed foods. Otherwise, the alkaline diet, fruits, vegetables, Oh and EXERCISE. after sweating my skin is much calmer for longer, no matter what I eat. I suppose its the sweat or rise in body temperature that kills some of them too. Which would make sense if these bugs have different stages. Which is what I read in one of the earlier posts. So eventhough I’m still dealing with this and even had a colonscopy and endoscopy on the 17th of Jan and the biopsy and stool smaples all came back normal- yet I still have these unexplained fibers coming out of me, I am at least happy that I am not alone and I have found some non-medicaded and non-embarass yourself in front of the doctor and of course their collegues bc there is no way they’re not laughing at me after I leave the office based on the looks I get. So don’t get frustrated, be proactive. If we all can try to set our bodies back to neutral as possible, these things won’t want to stay in you because your body will them become inhabitable for foreign organisms.
Hello,
Thank you I think I will try it too!
Annie
Since my comments are still awaiting approval, could you please remove my e-mail address and this post and the last post – only leavig the first post. I ended up going off on a rant and I realised today I don’t really want people e-mailing me bc I’m not a doctor of any sort and I only know what works for me. Thank you for your time and patience.
When I treat myself for fungus, my lesions go away. I have had these lesions for about four years now and they go away completely when I remove fungus and the foods that feed fungus from my diet. They also get worse when I incorporate them back into my diet. Whether this condition is caused by mold and fungus, parasites, lyme disease or probably a combination of factors, at least try treating for fungus. Do your research on the net to get complete antifungal regimines.
Try eliminating grains (except organic brown rice), corn and corn products, potatos, grapes, raisins, yeast, sugars, peanuts, vinegar and alchohol from your diet for a month or two to see if there is any improvement. These either have fungus in them or contribute to their growth. Add foods such as non starchy vegetables (the starch converts to sugar which feeds fungus), root vegetables such as garlic, onions, carrots (they grow in the ground and have developed anti fungal compunds). Eat fruits that are low in sugar and tree nuts as they have anti-inflamatory oils in them which may help with the inflamatory pain.
Try taking supplements that are anti fungal such as probiotics, oil of wild oregano (a very powerful anti microbial), olive leaf, astragulis, pau d’arco, aged garlic and fish oil ( an anti-inflammatory). Most of these anti fungals are also anti parisitic, which is likely a component in the syndrome.
Get a high quality airfilter to remove spores from the air. If you breathe them in, you’ll reinfest yourself again and again. As to the filament growth, I have a theory. Maybe your bodies are trying to get rid of the teflon and plastics that have been ingested over the years. It might be that your immune system is combining these foreign materials into fibers and is extruding them through the skin. I don’t know, it’s just speculation.
Try using hydrocortizone to help with the itching and cover with bandages if possible as a physical barrier to scratching. I know its hard but the last thing you want is to keep opening up the sores. When they do begin to heal you might try putting a drop of oil of oregano on the sore as it can help kill off any pathogens that may be in them. Be careful though because it can cause irritation.
Find friends to talk to about this, they can help deal with the frustration and depression that can accompany, and get professional help if you need it. Keep in mind that you are not alone. There are a lot of people out there with this.
God bless you in your healing.
Hi,
My mum has been sick for too many years and she is at the point where no doctor will look at her and she lives her life in bed. She is only 54 years old.
At the age of 30 she had a fish poisoning that attached her central nervous system. She survived but it has left her with many on going health issues. Then around 10 years ago her hands flared up with what some doctors described as dermatitis. But she has these funny black pips that were coming out of the blisters. Not one doctor could identify these black pips.
!0 years on and mum sufferes miragrane, nuropathic headaches, constant nusea, heartburn, depression, anxiety, OCD, blistering hands, and she walks with a gait. She is on a concusion of drugs and has had nerarly every test know to man.
A friend of our has suggested Morgellons. Has anyone suffered with Morgellons for this long. By the way her hands still blister but she doesn’t have the fibres anymore.
Any advice or help would be greatly appreciated.
Some of these symptoms may be something else. The American warble fly lays eggs under the skin, and the bug flies out of your skin when mature
Hi, about 1 month ago I felt my arm itching. When I looked there were some strange bugs attached to it. I had to use pliers to rip them off and several crawled under my skin to get away. These were not tick’s, I am very familiar with them. Since then I have developed lesions on my arm’s, leg’s and to a lesser extent on my torso and face, The worst place is my head. Bugs come out of these sores. It started with springtails and I also found about 4 or 5 different kinds of mite looking things, other thing’s like threads and fuzzballs come out as well. My mind has been on overdrive and I have constantly been searching the net for a remedy for this. I started to get scared one day when I pee’d bug’s, This continued for 2 day’s along with some fiber’s and a black fuzz which looked like a mold or fungus. I quickly knocked out the most of the bug’s but can’t quite get them all. No more in my urine for 4 day’s. I have tried several thing’s, I really cleaned my house top to bottom with chlorox cleaner and caulked all cracks and gaps I could find. The house is 99 year’s old there were alot. I’m getting ready to paint now. I tried several thing’s on the sores. Triple antibiotic cream did nothing, I kept my head doused with mineral oil for 2 straight day’s a got alot of relief but not all the lesion’s and sore are gone. I still get a couple of bug’s every day off of my head, alway’s in a sore. I tried chlorox cleaner, no help,clove oil, nothing, wart remover made the 2 lesions I tried it on look much better for some reason and they had no bug’s attached to them today. the best thing I tried was an anti fungal cream, cheap generic.{equate} The bug’s that are left are incredible, the take on the color of whatever they are on, I’ve seen them from white on kleenex to black. They can shoot out a thing like a spider’s web but much skinnier that must have an acid in it cause it burn’s, They can just sink down into your skin and you can watch the trail as they go to another area, several have sunk into the top of my computer desk where I put them while searching for more to pry off. I dug them out with a knife. I have seen them “throw ” out a white ball when I try to get them, I think this is an egg. I am also attracting fuzzballs and fiber’s. I have some kind of really weird electric thing going on, At times my body hair is normal, at times it is pressed down really tight against me but mostly I notice I am full of electric. My hair stands up and I can see stuff fly and stick to me or my clothes. Now this will really sound strange, one of my cat’s brushed against my sweats leg during a stand up hair period and some of her hair melted to my pant’s leg. She avoids me most of the time now. I showed my wife bugs, fuzzball’s,fiber’s and the pant’s but she think’s I’m crazy. Is this morgellans or am I a nutjob? Any advise on how to kill the rest of the bug’s?
BTW this started 3 day’s after cleaning out my shed, half the roof blew off in nov. and I was too lazy to replace it in the cold. I collect,buy sell mostly mid 20th century glass item’s and it was full of cardboard boxes with stuff wrapped in newspaper. Everything was slimey, moldy and lot’s of mold, fungus stuff was growing on everything, the color’s were from blue and green to black. I think these bug’s are a parasite. I believe I have some scent or something that causes them to recognize me as food. I found pic’s of them and the site said they eat rotten wood, I found pic’s of colored string’s and it said they were some kind of nematoed or something. It showed them mating and they looked just like the fuzzballs. Do any of you think you were exposed to mold or fungus? I think there is something growing on or in me I can’t see or smell. Several times when I got hot shopping for thing’s to sell I distinctly smelled rotten moldy wood. I thought it was the bug’s because I could smell it when I started cleaning my house, now I think it is me.
Thanks
Dave
Thanks
Dave
Hey Dave,
Sounds like it. I had the same from living in a moldy apartment. Seems best to treat for all the things you’ve mentioned and rotate treatments, but above check to make certain you remain alkaline. Email if you want. spokeoaholes@gmail.com
Best, Sophia
Hi,
I have a friend that was diagnosed with this a few months ago..he s using sulfur soap and it seem s to be helping…you can find this type of soap in a botanic,a cvs or walgreens…hope it helps!
mite birds
I have to my surprise been reading recently about other sufferers for this bizarre, painful, embarrassing, disfiguring disease…which primarily affects my skin, mouth, lips and even fingernails… things like what Jeri said re clapping her hands and ‘stuff’ popping out. If some of this disgusting debris comes out of intact skin, in typically doesnt hurt other than possibly a quick sharp pain or intense itch (an itch that can only be described as “from the inside out”) The weird debris exiting from lesions can be very painful….from sharp and intense to a slow burning sensation. I, too, suffered the emotional pain, feelings of helplessness and embarrassment after consulting a horrible, ‘holier than thou’, dermatologist who basically accused me of being some sort of drug addict mutilating myself. The ‘stuff’ that exits my skin is in several forms, but never varies from those now very recognizable forms. My first symptoms showed up in about the year 2000, literally overnight, were very severe and very scary. I lived with that misery for about 3 years when it started clearing up for reasons unknown to me….tho leaving me with covered with white scars of varying shapes, mostly roundish, but some long and very thin. I hated those ugly scars, especially those on my face. I’d never had a ‘skin’ condition before in my life. However, relieved to be rid of the painful sores that would take up to a year to heal, I learned to deal with the scars. Then about 6 years after I thought I was “healed”, it popped up again and I’ve been having to go thru the frustrating misery of dealing with the sores and debris, the itching and burning and pain. It is my opinion, after much research and observation, that this horrifying condition is somehow related to some sort of living organism…..something akin to a mold, fungus or bacterium with properties similar to fungus. I know how crazy this sounds, but from the very beginning, I had the feeling/notion that ‘something’ was actually growing in/under my skin…..like using me for a growing medium. With my first traumatic experiences, I didn’t visually notice the ‘fibers’ but much of the time had a sensation of having run into a spiderweb. The sort of thing that primarily presents itself (after exiting) is varying sizes of something black and hard and rather sharp, additionally some black material is very flat and is at times white/pale green on the opposite side, some flat and green similar to the lichen that grow on tree bark. Sometimes the debris is dry and at times exits ‘wet’ which definitely give it the appearance of plant material…sort of like sea weed. Some black material is very tiny and with some difficulty can be brushed off my skin or tweezed away as it at times still under the very outer layer of skin cells. If I use a sterile tweezers and try to grasp the tiny black thing I can much of the time audibly hear a crunching sound…it seems that coming along with the tiny black ‘things’ seems to be a crunchy clear crystal-like material……which will adhere itself to my hair…and won’t come off unless ‘scraped’ off….although it seems to get removed from my hair when I color my hair….I keep my hair blonde. The chemicals in the haircolor seem to dissolve the ‘crap’ that sticks to my hair. Another very odd thing I noticed from the beginning (and only now reading that others are noticing the same thing) is that the crystal-like stuff that sticks to my hair, seems to have some sort of magnetic charge…If there is a glittery crystal thing (really tiny) shining on my face (which i think mite be adhering to facial hair), certain hairs from my head begin to wave around and move toward the crystal thing and finally stick to it. I can feel the hair touch my skin, pull out the strand from the root on my head and the end still sticks to my face…when I pull the hair away from my face it appears to “pop” loose from something…..and one feels a very fine, for lack of a better word, ‘spray’, on the skin which has that cobweb sensation. Mostly I notice the bigger particles/debris, but on close observation it is obvious that most of whatever this crap is, is really really small…almost invisible to the naked eye. I could go on and on and on…..this is so disgusting. One more thing I do want to mention is that after my first ‘attack’, the hair on my arms totally changed. I had many many lesions on my arms. Prior to being afflicted with this, the hair on my arms grew smooth and soft, all the same direction, lying down relatively flat next to my skin. Now the hair on my arms looks sort of wiry, breaks easily and sticks up, around and every which direction. Recently a rather large piece of green looking material came flying out of the tip of my nose after I tweezed out (with great difficulty), what looked like a small piece of white dry skin. I inspected this green ‘thing’ closely. To the naked eye, it looked much like a tiny leaf or piece of a leaf, but on closer inspection with magnification, it, tho in the shape of a tiny leaf, it was a conglomeration of some kind of somewhat hardened ‘goo’ filled with black specs and covered in a few places with a sticky looking whitish yellow substance. This is just way too wierd and I simply cannot understand why a laboratory cannot identify the makeup of some of this debris. After all, if science can identify the composition of distant stars, asteroids, and meteorites, WHY CAN’T THEY IDENTIFY THIS STUFF? Even if they don’t know what “the blob” is exactly, there’s no logical reason why the components of said “blob” can’t be identified. This is maddening, depressing, frustrating and life altering…..and then the medical community passes one off as a ”mental case”…..treating people with unacceptable disrespect. Imagine a person with untreated leprosy being told that there’s really nothing wrong with them and they should just go on with their lives and quit obsessing about their fingers or the end of their nose falling off. There’s so much I could say about this *%#**# condition. I guess I need to start a blog. Thanks for listening. ? Blessings and comfort to all of you going thru this misery.
@ Rach, Sulfur sounds like a logical ‘remedy’ to try….. so ….. off I go on a ‘sulfur hunt” ! Thank you for sharing your information.
i know there are many illnesses the doctors are saying is psychosamatic or all in a patients mind its always good to know that nothing was really done to research it until some person in congress got it and those in congress spent almost a million dollars on it and still they havnt found out anything they claim its all in a persons mind how would you feel if you went to your dr. and said its no disease it all in your mind ???????????????