Let's hit congress

[lftipton]

Dear Congressman or Congresswoman,
I pray this message is actually viewed and thoughtfully read by you. I am speaking to you on behalf of thousands of concerned and suffering people. Some type of pathogen is attacking over 9000 (registered families) in the United States and probably countless others around the world. I have come to understand this is an unknown pathogen or agent. Many, many people who are suffering with this condition are afraid to be public because of the inevitable social and economic ramifications of a diagnoses of unknown disease. There is a vast and active grassroots type internet community that is desperately and humanely trying to assist one another in the treatment of this disorder. The afflicted public has been pleading with the CDC for a number of years with completely insufficient response. The following are the CDC's responses to this possible infectious epidemic:
October 2003:Senior staff of the Infectious Diseases Branch of the California Dept of Health Services confers with CDC about cases of Morgellons disease in California, after being alerted to apparent clusters of the disease in the state. These two agencies conclude that no public health investigation is warranted, and patients are told to see their physicians.

May 2004:The Infectious Disease Epidemiology and Surveillance Unit of the Texas Department of State Health Services (DSHS) confers with CDC about reports of Morgellons disease in Texas, after US Senator for John Cornyn asks TX DSHS to investigate. These two agencies conclude that no public health investigation is warranted, and patients are told to see their physicians.

June 2004:CDC director begins responding to US Senators inquiring about assistance for their constituents with Morgellons disease, and assures dozens Senators that there is no cause for alarm.

April 2005:CDC director responds to request for meeting from MRF to discuss the Morgellons situation and admits she is concerned. CDC director confirms that CDC is actively working with dermatologists to establish a case definition.

October 2005:MRF Medical Advisory Board and Board of Directors officially requests a conference call with CDC to discuss reports of Morgellons disease in the U.S. CDC asks MRF Board for available conference dates. MRF then receives email from CDC stating that CDC is not willing to participate in this conference call.

November 29, 2005raft case definition of Morgellons disease, developed by physicians on MRF Medical Advisory Board, sent to CDC.

February 14, 2006:Revised case definition of Morgellons disease, sent to CDC by MRF Medical Advisory Board.

April 2006:US Senator for California, Dianne Feinstein, writes strongly worded letter to CDC Director
stating the need for CDC to take more aggressive action on surveillance, prevention and treatment of this disease.

April 2006:CDC Director begins directly contacting Morgellons patients, in response to requests for help for these patients from US Senators. CDC director informs these patients that CDC would develop a multi-disciplinary work group to address the issue.

May 2006:California Dept of Health Services asks CDC for help investigating reports of Morgellons disease in California.

This disease has invaded my home and I can assure you it is a very real and present danger. I am a normal, college educated, Christian, tax paying, American citizen and as such deserve to be heard. I have no background of mental disorders. I am attempting to get help from my area medical community but am failing. Apparently, whenever a patient presents "samples" to a physician he or she is automatically deemed delusional due to the teaching in medical schools about "match box syndrome". The dermatologists have diagnosed me, as well as thousands of patients, as DOP. Meanwhile, I and many others, have been taking salt and peroxide baths and using lactic acid lotion, a protocol (discovered by trial and error) that many afflicted are finding some relief with. I must add at this point that many of the "home treatments" American citizens are concocting in desperate attempts to self- medicate are dangerous and most probably life threatening.
This conditions is characterized by:
1. Skin lesions, both (a) spontaneously appearing and (b) self-generated, often with pain or intense itching. The former (a) may initially appear as “hive-like”, or as “pimple-like” with or without a white center. The latter (b) appear as linear or “picking” excoriations. Even when not self-generated (as in unreachable regions of babies’ skin), lesions often progress to open wounds that heal incompletely (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.). Evidence of lesions persist visually for years if not for life.

2. Movement sensations, both beneath and on the skin surface. Sensations are often described by the patient as intermittent moving, stinging or biting. Involved areas can include any skin region (such as over limbs or trunk), but may be limited to the scalp, nasal passages, ear canals, or face.

3. “Filaments” are reported in and on skin lesions and at times extruding from intact-appearing skin. White, blue, red, and black are common among described fiber colors. Size is near microscopic, and good clinical visualization requires 10-30 X. Patients frequently describe ultraviolet light generated fluorescence. They also report black or white granules, similar in size and shape to sand grains, on or in their skin or on clothing. Most clinicians willing to invest in a simple hand held commercial microscope have thus far been able to consistently document the filaments.

4. Musculoskeletal Effect is usually present, manifest in several ways. Pain distribution is broad, and can include joint(s), muscles, tendons and connective tissue. Both vascular and “pressure” headaches and vertebral pain are particularly common, the latter usually with premature (e.g., age 20) signs of degeneration of both discs and vertebrae.

5. Aerobic limitation is universal and significant enough to interfere with the activities of daily living. Most patients meet the Fukuda Criteria for Chronic Fatigue Syndrome as well (Fukuda, Ann. Int. Med., 1994).

6. Cognitive dysfunction, includes frontal lobe processing signs interfering with logical thinking as well as short-term memory and attention deficit. All are measurable by Standard Psychometric Test batteries.

7. Emotional effects are present in most patients. Character typically includes loss or limitation of boundary control (as in bipolar illness) and intermittent obsessional state. Degree varies greatly from virtually absent to seriously life altering. Noteworthy is the newfound strong possibility that emotional presentation does not precede “cause”, but rather that both emotional and physical effects stem from cytokine effects on neurotransmitter levels and receptor number (Buchsbaum, Schizoph. Bull. 199

As for myself, there is a sore on my arm that is chancre like. As stated, this disorder is characterized by chancre type wounds that do not heal or heal very slowly and abnormally and deep piercing random body pain. It is also characterized by a distinct feeling of movement on the skin. This is a systemic attack of some kind with mental acuity being affected rapidly and severely. I suddenly am having extraordinary trouble even spelling with dyslexia type symptoms. Typing this letter has been quite a struggle and I have always been a "word warrior" of sorts, writing and communicating with fluency. I have contacted the CDC and been greeted by their pat answering machine which states "We are not taking calls due to the influx of calls being received regarding this subject". May I suggest that the influx of calls the CDC is receiving is an indication that there really is a clear and present danger of something occuring to the health of citizens of the UNITED STATES OF AMERICA whom are reporting so. I also have contacted the research office of Dr Wyman at the University of Oklahoma. Dr. Wyman is apparently the only funded researcher at this time. I next, will contact my local Health Department, all elected officials possible and all departments of our government possible, since ethically I cannot withhold these facts.
So, I close this letter with sincere appreciation for your attention. The glad news is that the "grass roots" treatments being made up in our kitchen laboratories are making headway and our "home treatments" are helping... some to lesser or greater degree... but the sad news and indictment on our country is that we NEED the help of the medical and scientific community IMMEDIATELY but are being ignored or even worse accused of delusion. As I understand it, an eyewitness testimony will prosecute a person in our American court system. I like many others would gladly pay for unbiased, objective help and be willing to testify as an eyewitness to this real and present threat to the health and wellbeing of American citizens.
On behalf of Many Afflicted,
Your constituent,


I am personally sending this letter to every congressman in the US
Here's contact info:
The Surgeon General
Office of the Surgeon General
5600 Fishers Lane
Room 18-66
Rockville, MD 20857
Fax: (301) 443-3574

http://www.visi.com/juan/congress/

[lftipton]

Dear Congressman or Congresswoman,
I pray this message is actually viewed and thoughtfully read by you. I am speaking to you on behalf of thousands of concerned and suffering people. Some type of pathogen is attacking over 9000 (registered families) in the United States and probably countless others around the world. I have come to understand this is an unknown pathogen or agent. Many, many people who are suffering with this condition are afraid to be public because of the inevitable social and economic ramifications of a diagnoses of unknown disease. There is a vast and active grassroots type internet community that is desperately and humanely trying to assist one another in the treatment of this disorder. The afflicted public has been pleading with the CDC for a number of years with completely insufficient response. The following are the CDC's responses to this possible infectious epidemic:
October 2003:Senior staff of the Infectious Diseases Branch of the California Dept of Health Services confers with CDC about cases of Morgellons disease in California, after being alerted to apparent clusters of the disease in the state. These two agencies conclude that no public health investigation is warranted, and patients are told to see their physicians.

May 2004:The Infectious Disease Epidemiology and Surveillance Unit of the Texas Department of State Health Services (DSHS) confers with CDC about reports of Morgellons disease in Texas, after US Senator for John Cornyn asks TX DSHS to investigate. These two agencies conclude that no public health investigation is warranted, and patients are told to see their physicians.

June 2004:CDC director begins responding to US Senators inquiring about assistance for their constituents with Morgellons disease, and assures dozens Senators that there is no cause for alarm.

April 2005:CDC director responds to request for meeting from MRF to discuss the Morgellons situation and admits she is concerned. CDC director confirms that CDC is actively working with dermatologists to establish a case definition.

October 2005:MRF Medical Advisory Board and Board of Directors officially requests a conference call with CDC to discuss reports of Morgellons disease in the U.S. CDC asks MRF Board for available conference dates. MRF then receives email from CDC stating that CDC is not willing to participate in this conference call.

November 29, 2005raft case definition of Morgellons disease, developed by physicians on MRF Medical Advisory Board, sent to CDC.

February 14, 2006:Revised case definition of Morgellons disease, sent to CDC by MRF Medical Advisory Board.

April 2006:US Senator for California, Dianne Feinstein, writes strongly worded letter to CDC Director
stating the need for CDC to take more aggressive action on surveillance, prevention and treatment of this disease.

April 2006:CDC Director begins directly contacting Morgellons patients, in response to requests for help for these patients from US Senators. CDC director informs these patients that CDC would develop a multi-disciplinary work group to address the issue.

May 2006:California Dept of Health Services asks CDC for help investigating reports of Morgellons disease in California.

This disease has invaded my home and I can assure you it is a very real and present danger. I am a normal, college educated, Christian, tax paying, American citizen and as such deserve to be heard. I have no background of mental disorders. I am attempting to get help from my area medical community but am failing. Apparently, whenever a patient presents "samples" to a physician he or she is automatically deemed delusional due to the teaching in medical schools about "match box syndrome". The dermatologists have diagnosed me, as well as thousands of patients, as DOP. Meanwhile, I and many others, have been taking salt and peroxide baths and using lactic acid lotion, a protocol (discovered by trial and error) that many afflicted are finding some relief with. I must add at this point that many of the "home treatments" American citizens are concocting in desperate attempts to self- medicate are dangerous and most probably life threatening.
This conditions is characterized by:
1. Skin lesions, both (a) spontaneously appearing and (b) self-generated, often with pain or intense itching. The former (a) may initially appear as “hive-like”, or as “pimple-like” with or without a white center. The latter (b) appear as linear or “picking” excoriations. Even when not self-generated (as in unreachable regions of babies’ skin), lesions often progress to open wounds that heal incompletely (e.g., heal very slowly with discolored epidermis or seal over with a thick gelatinous outer layer.). Evidence of lesions persist visually for years if not for life.

2. Movement sensations, both beneath and on the skin surface. Sensations are often described by the patient as intermittent moving, stinging or biting. Involved areas can include any skin region (such as over limbs or trunk), but may be limited to the scalp, nasal passages, ear canals, or face.

3. “Filaments” are reported in and on skin lesions and at times extruding from intact-appearing skin. White, blue, red, and black are common among described fiber colors. Size is near microscopic, and good clinical visualization requires 10-30 X. Patients frequently describe ultraviolet light generated fluorescence. They also report black or white granules, similar in size and shape to sand grains, on or in their skin or on clothing. Most clinicians willing to invest in a simple hand held commercial microscope have thus far been able to consistently document the filaments.

4. Musculoskeletal Effect is usually present, manifest in several ways. Pain distribution is broad, and can include joint(s), muscles, tendons and connective tissue. Both vascular and “pressure” headaches and vertebral pain are particularly common, the latter usually with premature (e.g., age 20) signs of degeneration of both discs and vertebrae.

5. Aerobic limitation is universal and significant enough to interfere with the activities of daily living. Most patients meet the Fukuda Criteria for Chronic Fatigue Syndrome as well (Fukuda, Ann. Int. Med., 1994).

6. Cognitive dysfunction, includes frontal lobe processing signs interfering with logical thinking as well as short-term memory and attention deficit. All are measurable by Standard Psychometric Test batteries.

7. Emotional effects are present in most patients. Character typically includes loss or limitation of boundary control (as in bipolar illness) and intermittent obsessional state. Degree varies greatly from virtually absent to seriously life altering. Noteworthy is the newfound strong possibility that emotional presentation does not precede “cause”, but rather that both emotional and physical effects stem from cytokine effects on neurotransmitter levels and receptor number (Buchsbaum, Schizoph. Bull. 199

As for myself, there is a sore on my arm that is chancre like. As stated, this disorder is characterized by chancre type wounds that do not heal or heal very slowly and abnormally and deep piercing random body pain. It is also characterized by a distinct feeling of movement on the skin. This is a systemic attack of some kind with mental acuity being affected rapidly and severely. I suddenly am having extraordinary trouble even spelling with dyslexia type symptoms. Typing this letter has been quite a struggle and I have always been a "word warrior" of sorts, writing and communicating with fluency. I have contacted the CDC and been greeted by their pat answering machine which states "We are not taking calls due to the influx of calls being received regarding this subject". May I suggest that the influx of calls the CDC is receiving is an indication that there really is a clear and present danger of something occuring to the health of citizens of the UNITED STATES OF AMERICA whom are reporting so. I also have contacted the research office of Dr Wyman at the University of Oklahoma. Dr. Wyman is apparently the only funded researcher at this time. I next, will contact my local Health Department, all elected officials possible and all departments of our government possible, since ethically I cannot withhold these facts.
So, I close this letter with sincere appreciation for your attention. The glad news is that the "grass roots" treatments being made up in our kitchen laboratories are making headway and our "home treatments" are helping... some to lesser or greater degree... but the sad news and indictment on our country is that we NEED the help of the medical and scientific community IMMEDIATELY but are being ignored or even worse accused of delusion. As I understand it, an eyewitness testimony will prosecute a person in our American court system. I like many others would gladly pay for unbiased, objective help and be willing to testify as an eyewitness to this real and present threat to the health and wellbeing of American citizens.
On behalf of Many Afflicted,
Your constituent,


I am personally sending this letter to every congressman in the US
Here's contact info:
The Surgeon General
Office of the Surgeon General
5600 Fishers Lane
Room 18-66
Rockville, MD 20857
Fax: (301) 443-3574

http://www.visi.com/juan/congress/

[hilly]

Iftipton.... brilliant letter, well done...

[hilly]

Iftipton.... brilliant letter, well done...

[browncircles]

It's a great letter but it's Dr. Wymore. Like Way More Wymore.

[browncircles]

It's a great letter but it's Dr. Wymore. Like Way More Wymore.

[deluded]

Originally Posted by browncircles

It's a great letter but it's Dr. Wymore. Like Way More Wymore.

browncircles...it may be his, but.....Still...Absolute great post that definitely needs to be sent by each and every one of us...I plan to do so...the hardest part will be finding new words to use to change the letter...hard to do in just every day language...real hard to do in a professional type letter, or I guess it doesn't have to be professional, would just need to make a little sense...which is sometimes hard these days...not giving an excuse, because I am definitely going to do it, but just stating the obvious with all the symptoms and all....thanks for the post....+1 for you for putting it in front of our faces, so we can take more action...still want to march on down to their office though, (CDC) and camp out with all our parasites and fibers...give them great big hugs...or great "BUG HUGS"... ...I amuse myself so easily...Kentucky haze

I am modifying this post, or rather adding to it...I misread the posted letter and thought that browncircles posted it and I just noticed that Iftipton posted it, so I accidently gave you a karma point, browncircles...but I gave one to Iftipton too...I am not quite sure what you meant by that about Dr. Wymore, browncircles...care to elaborate? Anyway, even though we could all have pulled it up to alter and send it, sometimes it takes someone else putting it right in front of you to read again, and do something about it...I just think it is a great letter, it gives us dates and a timeline about how unresponsive the CDC has been, and when they were supposed to act on this matter...keeps me from having to search for the info myself...just good to know...and a real "firestarter" if you will....KY haze

[deluded]

Originally Posted by browncircles

It's a great letter but it's Dr. Wymore. Like Way More Wymore.

browncircles...it may be his, but.....Still...Absolute great post that definitely needs to be sent by each and every one of us...I plan to do so...the hardest part will be finding new words to use to change the letter...hard to do in just every day language...real hard to do in a professional type letter, or I guess it doesn't have to be professional, would just need to make a little sense...which is sometimes hard these days...not giving an excuse, because I am definitely going to do it, but just stating the obvious with all the symptoms and all....thanks for the post....+1 for you for putting it in front of our faces, so we can take more action...still want to march on down to their office though, (CDC) and camp out with all our parasites and fibers...give them great big hugs...or great "BUG HUGS"... ...I amuse myself so easily...Kentucky haze

I am modifying this post, or rather adding to it...I misread the posted letter and thought that browncircles posted it and I just noticed that Iftipton posted it, so I accidently gave you a karma point, browncircles...but I gave one to Iftipton too...I am not quite sure what you meant by that about Dr. Wymore, browncircles...care to elaborate? Anyway, even though we could all have pulled it up to alter and send it, sometimes it takes someone else putting it right in front of you to read again, and do something about it...I just think it is a great letter, it gives us dates and a timeline about how unresponsive the CDC has been, and when they were supposed to act on this matter...keeps me from having to search for the info myself...just good to know...and a real "firestarter" if you will....KY haze

[lftipton]

HEY EVERYONE MY BAD....RANDY WYMORE IS THE RESEARCHER. PLEASE REVISE. THANKS FOR CALLING MY ATTENTION TO THIS. I ALREADY SENT THIS TO MY SENATORS AND CONGRESSMEN. WILL SENT COPY TO SURGEON GENERALS OFFICE TOO.

[lftipton]

HEY EVERYONE MY BAD....RANDY WYMORE IS THE RESEARCHER. PLEASE REVISE. THANKS FOR CALLING MY ATTENTION TO THIS. I ALREADY SENT THIS TO MY SENATORS AND CONGRESSMEN. WILL SENT COPY TO SURGEON GENERALS OFFICE TOO.