How do you guys do it?

[trz103]

This has been going on for months and with every week that passes I feel myself slipping farther and the symptoms intensifying. I did a detox which helped but two weeks later is worse than before. I have not a single person that believes me that I can talk to. I work six days a week 10 hours a day and lately its a challenge to even get through the day. I know this job is making it worse on me but what am I to do? I cant afford to change jobs and not be able to pay my bills or lose my insurance even if its temporary. I tell myself every day its going to be ok, that this is going to go away but it doesnt and this is where the mental aspect in this is rough. People tell you nothing is wrong and you know its there, you just feel so alone as if there isnt a single thing you can do but pray and hope. I dont even want to see any other physicians..why waste my money and risk a mental diagnosis that could strip me of everything I have worked for. That is the only solace I get right now is knowing I am still living a somewhat productive life praying it doesnt get to a point where that stops. May god bless all of us.

[Pollyringworm]

What are your symptoms? Maybe someone can give some advice. Youre definitely not alone now that youve found us

[sportsman1969]

Trz103, Polly's right! We're here for you!

You've come to the right place here on MDR

There are many of us sharing information and suport for one another.

I don't want to point out my posts specifically, but you should read some of them, as well as many others from other members, especially senior members who have been battling with this longer than 8.

Here you will find guidance which may save you time and money in addition to aggravation or unneccessary suffering.

Sorry you have this but glad your here.

Godspeed!

[trz103]

Originally Posted by Pollyringworm

What are your symptoms? Maybe someone can give some advice. Youre definitely not alone now that youve found us

Itching, biting, crawling (mostly on legs and hair but also arms, ears, nose, eyebrows,etc) have noticed hair falling out on pillow with white dots attached to the end, sinus problems, dry cough, dull ache/tightness in lower lung area, confusion (comes and goes quickly), coordination/balance problems with feet and legs (also comes and goes quickly), have pulled fibers out of fingertips and watched them curl/move. The flying lint is all over my home, car, clothing (watched one fly off pants after pulling them out of dryer..had wing like formation), depression, anxiety. The one thing I dont have yet is the lesions though I do have the tiny red dot marks (entry points??). Also see tiny flying gnats or whatever they are fly off my skin at night with a flashlight. I dont post a lot but I read a lot here and have pretty much the same things everyone else talks about. Oh and some days I wake up with sorta flu like symptoms (mainly the face feeling flush with chills everywhere else if anyone can relate).

[Steve Frey]

Originally Posted by trz103

This has been going on for months and with every week that passes I feel myself slipping farther and the symptoms intensifying. I did a detox which helped but two weeks later is worse than before. I have not a single person that believes me that I can talk to. I work six days a week 10 hours a day and lately its a challenge to even get through the day. I know this job is making it worse on me but what am I to do? I cant afford to change jobs and not be able to pay my bills or lose my insurance even if its temporary. I tell myself every day its going to be ok, that this is going to go away but it doesnt and this is where the mental aspect in this is rough. People tell you nothing is wrong and you know its there, you just feel so alone as if there isnt a single thing you can do but pray and hope. I dont even want to see any other physicians..why waste my money and risk a mental diagnosis that could strip me of everything I have worked for. That is the only solace I get right now is knowing I am still living a somewhat productive life praying it doesnt get to a point where that stops. May god bless all of us.

If you have confirmed the presence of the typical morgellons fibers, since they are a definitive symptom, then my suggestion would be to stay away from any doctor who refuses to open his/her eyes and acknowledge this condition for what it is, only see doctors that know the truth.

[Pollyringworm]

Your hair has yeast on it. Dermarest shampoo for psoriasis helps for this. Products with salicylic acid have been lifesavers for us. Theraneem lotion and mineral oil have proven useful for me to rid my skin of white fibers and junk. Most people advocate salt baths every night. Diet has been important. Avoid gmo food and eat as much organic as you can.

Sportsman recommends moldstat for the environment. They make an enzyme formula that im going to try. You can get the basic stuff at home depot. Dusting with the vacuum and attachments has helped cut down the dust a bit., but its still a pain in the butt.

What else, guys?

[Ghettogirl]

Hi trz103,
Sorry to hear about what you are going through. You are in good hands with this website. We all understand where you are coming from. Support is the greatest attribute, I feel, this website offers.
Talking to others that are not inflicted with morgellons usually doesn't go well. Best to be careful of what you say and to whom, for these ignorant people could use it against you. Besides, with all that you are going through, a "head trip" is not what you need from others. (Morgellons alone does a good job of that)
The symptoms you are suffering from are very familiar. We all have/had them and more. I say this so you realize that you are not alone. Many of us are going through the same thing... as you read other posts you will see that your story is similar to many.
Actually your symptoms sound exact to mine. I haven't had any lesions either. But the red spots are plenty.
The tricky thing about morgellons is you have to rid your body of it at the same time as ridding your environment. NOT AN EASY TASK! I sure haven't been able to accomplish that, but many have.
Eating healthy is necessary in order to battle these little devils (morgellons).
To start with, no fast food, no box food. Think of it like going on a diet, vegetables, whole wheat, stuff like that. Oh and no sugar. (that one has been a real tough one)
Your environment may seem like a never ending battle.... mine sure is. If you are able to do a really good clean up job and have some "tools" on hand you can stay up on it.
Baths can end up being your best friend when you are having one of those days. Never wear the same outfit twice, wash all after use.
Here is a list of items that will help you feel better and help with your environment:
epson salt
tea tree oil (all kinds of essential oils help )
baking powder
organic products (for hygiene no sulfates)
gloves (disposable)
hair caps
coconut oil
paper towels (use in stead of cloth, disposable is good)
plastic containers with lids for dirty clothes and clean clothes
mattress cover (plastic) and pillow covers
Those are just a few items. Please go through some of the posts here for more helpful suggestions.
I hope some of what I said will be of help to you. I know it's not very detailed, but I thought a starting point for you. You will understand what I mean as you read other posts, etc. There is many other products that have helped others, everyone is different what works for one may not for another. All you can do is try and learn.
Take care of yourself and keep praying,
Ghettogirl

[jeff33]

Sounds like we've all hade the same situation. Everybody thanks where crazy. But we know where not. It got so bad I was ready to do anything to stop the symptoms of morgellons. I was itching al like things where crawling all over my head. And I lost control of my legs a few tim.the doctors where no help. So I knew I was on my own. with this. I had to try something. Anything . So I needed somthing to get into my systom so I went to my bathroom. I took everything that i had out that I could drink. I know. This sounds crazy but its worked for me. So I picked Scope. Everyday I brush my teeth srplash some scope around in my mouth and spit it out . ( then I drank about 3 tablespoons of scope ) on the 4th day of doing this I had no symptoms.not one. I even tested this to make sure it was working. I stoped drinking the scope and the very next day it was back. I did this 3 times and It came back every time. So I do this everyday now and I've been symptom free for about 9 week now.my eye sight has returned
To normal as well. I hope and pray that this will works for any and all that try this it works just as good.

This is what I do. ( brush my teeth, splash some scope around and spit it out. Then I drink about 3 teaspoons of scope. I don't claim that this will work for everybody
But it works great for me.

[jeff33]

Sounds like we've all hade the same situation. Everybody thanks where crazy. But we know where not. It got so bad I was ready to do anything to stop the symptoms of morgellons. I was itching al like things where crawling all over my head. And I lost control of my legs a few tim.the doctors where no help. So I knew I was on my own. with this. I had to try something. Anything . So I needed somthing to get into my systom so I went to my bathroom. I took everything that i had out that I could drink. I know. This sounds crazy but its worked for me. So I picked Scope. Everyday I brush my teeth srplash some scope around in my mouth and spit it out . ( then I drank about 3 tablespoons of scope ) on the 4th day of doing this I had no symptoms.not one. I even tested this to make sure it was working. I stoped drinking the scope and the very next day it was back. I did this 3 times and It came back every time. So I do this everyday now and I've been symptom free for about 9 week now.my eye sight has returned
To normal as well. I hope and pray that this will works for any and all that try this it works just as good.

This is what I do. ( brush my teeth, splash some scope around and spit it out. Then I drink about 3 teaspoons of scope. I don't claim that this will work for everybody
But it works great for me.

[scabdraggr]

Save the flying insect off your arms as I will pay you for it as I need it for the record keeping and documentation of this disease.PLEASSSSSE!