Has anyone ever survived a hyperinfection of Morgellons?

[MeaganM]

I was told I have a hyperinfection by a Nautropathic doctor who is hesitant on treating me because of complications as she lives too far away. I didn't even know I had Morgellons until I took Albenza (only 2 times) a month ago for something else and it almost killed me.

I have CFS, IST and POTS (autonomic dysfunction). I thought I would try just taking the Doxycicline. Took two in the last day and I don't think I am going to survive this. It's not the moving/crawling and spewing of bacteria even thought that is horrible, it's that my heart feels like it's going to explode. My tongue/throat is so swollen and there appears to be something sticking out of my tongue on the right side that's determined to get out and keeps spewing these black things in my teeth. It's splitting my tongue open. I cannot sleep or eat because I can't breath and my tongue is bleeding/swelling. My head hurts so bad and I have things coming out of my lips where they are splitting open. My eyesight is the worst it's ever been and my eyes hurt like crazy. I told my family that I love them before they left for school/work. My heart rate is 165 even with the medication I take. I don't want to die but either way, this thing is killing me. I don't think I can survive it without being in a hospital for treatment.

I gave this thing to my 10 yr old son and our dog. It makes me sick to think about it. My husband seems fine and he's the one who was in the military for 20yrs. There are fibers everywhere in my house because of them coming out of us like crazy and I've been too sick in the past two days to even get out of bed (only the baths).

Please tell me that someone with a hyperinfection has survived this. Did they get treatment in a hospital? Is that even possible? When I went to the hospital ER a month ago because I didn't know what was going on with me after taking the Albenza, they diagnosed me with DOP so I refuse to go back. They almost admitted me into a mental institution but I talked them out of it. Maybe I should have agreed. The doctor even picked a growing fiber off my finger and flicked it away.

I am only 42yrs old and love my life. I have been so sick for the past 5 yrs. I just want my life back. I was determined to find an answer and fix it. Well, I found my answer and now I don't think I am going to survive even today. I think I saw my son for the last time this morning before he left for school. Today is 10 times worst than yesterday and I thought yesterday was bad.

I know I'm new here but I really need help. I live in Tucson, AZ. Does anyone know a doctor that will treat this under supervision, possibly with IV fluids in a hospital?

[tcmgpt13]

Hi Meagan, I am sorry you are having such a difficult time. You might check this thread to see if you can find a doctor close to you who might help in the future:

Finding A Doctor To Help

Meanwhile, today, if you feel that bad I suggest going to the ER, but do not mention parasites or Morgellons. Just discuss as calmly as possible your symptoms and let them take it from there. At least you will get the help you need now. Maybe try a different hospital where your other ER visit is not charted? Or even better, do you have one of those walk in emergency clinics in your area? I used one when I got an intestinal blockage from the parasites last winter. Just don't mention parasites, fibers or morgellons. Let them do their doctor thing and do not disagree with anything they say. I got an ultrasound which showed blockage and then took my diagnosis to be treated TCM style.

I know symptoms of M can be quite terrifying and can make your heart race due to excess adrenaline caused by extreme panic and fright from what you are experiencing. Hang in here though, you can make it through this.

I had a bad case at the beginning and had a close friend who helped me with TCM. I am still here.

You will get better. There's many good treatment suggestions under the Morgellons treatment section.

Take good care of yourself and let us know how it goes. We have all been there at some point. There's help here and support.

Best of luck to you,

tcm

[Jo]

Hi Meagan

- taking antibiotics maybe too much of a toxic shock for your body. You need to push them out and using natural treatments is often a better strategy long term. Here's some ideas if you aren't using a similar protocol yet:

Living with Morgellons-Treatment Suggestions

Drink lots of water and go back to ER if you're heart rate persists.

I know of several people who sound as if they were in a similar boat to you - still alive and alot better.

You could email the Charles Holman foundation regarding any Drs near you. Info@theCEHF.org

Please keep us posted.

Jo

[Baraka Obam]

That heart rate is not good 165, holly cow, what is your Blood Pressure, you need to find out, NOW.

Really you should be in a hospital, do not spew words of parasitic infection, PLEASE, show them all your symptoms but do not diagnose or tell them ANYTHING except what is going on.

Let them become interested in your condition, not run off by your SUPPOSED dulusions of parasites. Do not drive them off with these words, PARASITES, bugs and MORGELLONS.

Also say nothing of itching, if you do you might have well handed them your hard earned money for nothing, better to check in to a hotel, you get a better room for a lot less money. For $400 a day you can stay in a five star hotel and people will be nice to you, nice is not the right word, they kiss your ***.

[Katinka]

Dear Meagan, please seek medical attention IMMEDIATELY!

[MeaganM]

Thank you all so much for the responses and the support. I am doing a little better than this morning. I took about a 2 hr detox bath and my heart has calmed down. I know 165 seems high but it's not the first time for me since I developed the Postural Orthostatic Tachycardia (POTS) over a year ago. It's just the first time it's ever happened since starting the medication to control it. I do believe that the Morgellons has caused this problem with my heart and CFS. I think I've had it for many years. Over the years, I've taken many different medications including steroids which I think has contributed to my hyperinfection.

I am still having a really hard time with my throat. It really feels like it's full of fibers or something and it's so swollen that I cannot eat even watermelon or apple sauce. I can't drink anything but water. It makes me choke. I thought about going to the ER but, I went to the Urgent Care yesterday when it wasn't even this bad and they didn't see anything. (I didn't mention anything about Morgellons or bugs) and my chest x-ray was normal. He thought maybe Valley Fever but, they don't test for it there. He wanted to give me steroids but I told him I was allergic. I'm worried that the ER will do the same.

I don't know what to do. I'm hacking up these balls of gel sacs with what looks like eggs in them and my sinuses are full of the same clogging both ends. I have tried nasal washes and antihistamines but they don't seem to work at all. Has anyone ever heard of fibers or parasites in the tongue. That thing that was there last night is gone now but usually my severe symptoms don't start until 4pm and I'm afraid it will come back. It also feels like fibers in my throat spitting out the bacteria or something.

One question... I stopped taking the Doxy after only taking these two doses. Will this cause superbugs or them to have a resistance?

Thank you for the links but I still cannot find a doctor in AZ and we cannot afford to both travel and pay for the doc.

[tcmgpt13]

I am not saying that infectious disease doctors are always good or will help us, but here's a list of ID doctors from one of the links in that thread about finding a doctor. All of them are in the Tuscon area:

Infectious Disease Physicians in Tucson (AZ Infectious Disease)

You can check names of doctors against what perhaps someone may have posted about them on these sites (not every doctor will be rated):

http://www.ratemds.com

Doctor Reviews, Find a Doctor, Review Doctors, Find & Rate MDs - Vitals.com

HealthGrades > Find a Doctor | Doctor Reviews | Hospital Ratings

You may register with this lyme site and get three names per every 30 days. Usually it's best to enter the state name as most states have few doctors who belong to this organization:

About

There's a lot of doctors who are more alternative (and often more expensive) on this site. Most AZ doctors are in the Phoenix area I think. You are not that far from Phoenix right?:

Physician+Link (Find a Doctor) - American College for Advancement in Medicine

Anyway, if funds are really limited and you have no insurance I would try to go through the extensive list of ID doctors in Tuscon. Sometimes you have to search long and hard to find a doctor. Googling names of doctors will also sometimes bring up comments about doctors by other patients. I saw an infectious disease doctor for a time and this is how I found him. I found a letter he had written and he sounded nice, plus several patients said he was good at diagnosis and a nice person. Well as long as it's not morgs LOL I will agree with that as he found two viral infections adding to my symptoms and treated them. Still over time I even got him to prescribe ivermectin. I have heard mixed reviews about ID doctors from others here, but I think if you search you may find one who sounds approachable from other patient comments. All you can do is try. And always avoid the words they do not want you to utter, Morgellons, parasite, fibers and, as bo said, itching.

Also at your health food stores in the area there may be someone who works there that knows of a decent herbalist who does not charge too much. Or they may have a bulletin board where sometimes alternative practitioners advertise. While I am not convinced herbs will cure severe cases of M, particularly if the infection is parasitic, you might at least get some relief for some of your symptoms.

Or try the salt bath outlined here (if high blood pressure or kidney disease is not an issue). Very cheap, especially when you go to the discount stores and buy pure pool salt (do not get one which has additives--it should say pure salt):

hurt feet, numb feet and fingers,hurt everywhere? (permalink 15)

Some warn not to try this if you have a septic tank as it could ruin the drainage field by killing off too many of the bacteria and enzymes needed to work correctly. Also some warn that the Chinese bathtubs in many homes today may rust out eventually from the high salt content.

[jeanlong]

Find a TCM practitioner and ask for ChuanXinLian. It will help clear your throat problem.That will not help everything, but get you past this feeling of emergency. The throat problem is high risk if it swells up too much. What town are you near? Is there a chinatown pharmacy there or a TCM expert that sells PlumFlower's chuanxinlian? I hate to say this because I'll probably get all these accusatory posts saying I'm here to sell stuff, but that brand of this herb will help the immediate problem. A quick search on the source website shows several people in Scottsdale that can offer this item. There may be retail outlets in your town too.

You might do better going to the ER too, depending on who is there on duty.

Use that nasal saline method, a netti pot and rinse out your sinus cavity too.

I like TCM remedies since I have used them for most of my life. But I also remember Dad had an emergency when his throat swelled up once. We had to take him to the hospital and the MD said if we had not his airway would have been swollen shut within an hour....

Originally Posted by MeaganM

Thank you all so much for the responses and the support. I am doing a little better than this morning. I took about a 2 hr detox bath and my heart has calmed down. I know 165 seems high but it's not the first time for me since I developed the Postural Orthostatic Tachycardia (POTS) over a year ago. It's just the first time it's ever happened since starting the medication to control it. I do believe that the Morgellons has caused this problem with my heart and CFS. I think I've had it for many years. Over the years, I've taken many different medications including steroids which I think has contributed to my hyperinfection.

I am still having a really hard time with my throat. It really feels like it's full of fibers or something and it's so swollen that I cannot eat even watermelon or apple sauce. I can't drink anything but water. It makes me choke. I thought about going to the ER but, I went to the Urgent Care yesterday when it wasn't even this bad and they didn't see anything. (I didn't mention anything about Morgellons or bugs) and my chest x-ray was normal. He thought maybe Valley Fever but, they don't test for it there. He wanted to give me steroids but I told him I was allergic. I'm worried that the ER will do the same.

I don't know what to do. I'm hacking up these balls of gel sacs with what looks like eggs in them and my sinuses are full of the same clogging both ends. I have tried nasal washes and antihistamines but they don't seem to work at all. Has anyone ever heard of fibers or parasites in the tongue. That thing that was there last night is gone now but usually my severe symptoms don't start until 4pm and I'm afraid it will come back. It also feels like fibers in my throat spitting out the bacteria or something.

One question... I stopped taking the Doxy after only taking these two doses. Will this cause superbugs or them to have a resistance?

Thank you for the links but I still cannot find a doctor in AZ and we cannot afford to both travel and pay for the doc.

[Jo]

Thanks for updating us Meagan.

Menthol crystal vapour is a good one to inhale. Just need to drop a crystal in a mug of steaming water and breathe in. You can also stick the crystals in your pillowcase at night.
- You should be able to buy in a pharmacy or online cheaply.

I found out a year ago that if my throat is feeling swollen or sore, eating a small amount of raw red onion seems to do the trick. I've not had a cold or sniffle since doing this. Whatever morgellons is - they HATE sulphur.

With the saline - are you using warm water, as it's best to open up the pores to draw the buggers out.

Jo

[Baraka Obam]

GRAPEFRUITE SEED EXTRACT on your pinky stuck up into the nostril, OR a nasal sprayer filled with water and some GSE, the GSE mixture must be strong enough to start you to sneezing.

I have to laugh as one day I did this before I had to go somewhere and I was sneezing and my sinus were running like a river, I could hardly drive, still I was on a mission, LOL.

Do not try to hold your sneeze it is not good, enjoy that sneeze it feels good, keep some hankies close, when your done your sinus will be more than clear, please do not do this while your heart is beating at 165, your dam near a humming bird at that heart rate.

I can now easily take a qtip cover it with GSE stick it up my nose and it will not bother me at all, gues what, my sinus issues are nill.

Some times I do have dry sinus.