New to forum....have questions!

[jsim1]

Hello everyone,
I don't have a lot of time so I have to be brief, so excuse the brevity. To get to the point, I need to know a couple of things. Has anyone else noticed these "enviromental" (for lack of a better word) symptoms?
1. When you go shopping for clothes, do you seem to collect morgellons type fibers on the bottom of your shoes?
2. When you get into a small space, do you almost seem to wreck the place immediately with lint (Noticed large green one on the wall today, with additional pink and clear colored fibers everywhere.)?
3. Does anyone have kidney and lower abdominal pain?
4. Has anyone passed a large black and grey like worm in stool?
5. When you flush the toliet, has anyone watched the chrome immediately turn blue and green?

And finally, and most importantly, why is my blood work and urine comming back normal everytime?

I notice C shapes a lot, and honestly thought that I was losing my goddamned mind. Considered checking self into psychiatric institution. But this happens everywhere I go. I also seem to attract all manner of insects-flies, moths, and some type of beetle. Could this be Myiasis? And how do I get help? At first I told my family, as I did not want to get them sick. But they all think I am crazy (as I would) so I have stopped talking about it completely.

Does anyone notice it getting worse at night?

I know that this is a full load, but I am desperate. This has devestated my life in the course of six months.

Also, I notice salt "sticks" to these creatures, but tends to kick them up in the air, hence making it worse.

I can hardly hear anything anymore, nor can I taste or smell much untill I take a shower, but that only seems to spread it to other things in my house. Please help.


*****Also, has anyone noticed that it likes plastic bags, and twists them into weird shapes?

I know I sound crazy, but I have witnessed this time and time again. Six months ago, I was ready to start grad school. Now I hardly leave my apartment. I have no history of psychosis or agoraphobia, nor have I ever been a germaphobe. Don't believe in consipiracy theories either.

If anyone has answers or suggestions, they would be greatly appreciated!

Many thanks,
J

[carla]

I moved your post because it deserved more attention than it would have got in that thread.
You ask some good questions which we have all asked ourselves at some point.
I've noticed it likes plastic bags too.
Is there anything it doesn't thrive on?

[Katinka]

Just wanted to mention, Nanobacteria eats/feeds on plastic!

Nanobacteria..post #35

Welcome to the forum jsim1!

Kat

[Jo]

Welcome JSIM1 !

Pretty much 'yes' from me to every one of your questions.

The blue/green stain on your toilet, also happens on my porcelain toilet - so its not the chrome. I think it would be a good idea to get some pH paper and test urine. This colour stain occurs with either acidic pH or chrysocolla (copper mineral) deposits.

- hey Lamb - do you get blue/green staining on your toilet?? cuz you mentioned your urine being extremely acidic???

- my black/grey worms look very much like certain species of fungus gnat larvae...thats the research I'm working on re micro-myiasis.

cheers

Jo

[lamb]

Why yes Miss Jo, I do! Have alot of green staining even though I have Clorox bleach tabs in all of my potties. Hope that helps. Welcome Newbie, lots of good folks. You are not crazy... I swear if someone else says that to me I am a gonna punch them in the nose!

[Kritters]

I love you Lamb. xoxo ;-) you're the sweetest!

[Sadsack]

jsim1 -

I feel horrible reading posts like yours...another bright, young person just beginning your life having to deal with something that NO ONE should ever have to deal with.

You are NOT crazy, though "we" have every right to be. This stuff is NUTZ and tests the will and strength of the best of us!!

Despite the most horrific forms in my stool, it came back negative for ova and parasites. I was floored. How could this be possible??

And the bloodwork...well, it's because you have not been tested for the right things. There is no definitive test for Morgellons, but there are some common findings and you would have to go to a doctor who was well versed in Morgellons (yeah, one of the - what - five??) to be tested appropriately.

Do you have good health insurance? There are a few doctors who know what to test for (Lyme, Herpes complex, and others). Some of the doctors who are good at this do not take insurance, so you would have to pay cash for them. But then there are others, like Dr. Kolb in Atlanta, who do.

Sometimes the best we can get is validation. I would recommend Dr. Kolb for that because she has seen many, many people with Morgellons and can diagnose it quickly. Same with Ginger Savely in San Fransisco. Dr. Kolb offers two protocols - western medicine, and natural healing.

Please don't give in to this. I can tell you are strong and smart. I fought this like nothing I have ever done in my life, and was virtually symptom-free in under six months. I have remained that way for 20 months so far.

I would recommend the natural course, unless something else is diagnosed that has a good treatment outcome. But I wouldn't recommend throwing lots of different meds at it, hoping something will stick.

What state do you live in? Maybe we can help you find someone close to you.

SS

[lamb]

Kritts... LOL!! No one has EVER told me that I was sweet!!! Except the bugs of course.. at the rate things are going, they too, will likely have the ability to TALK soon!

[Daughter]

Sadsack,
I was pleased to read "I fought this like nothing I have ever done in my life, and was virtually symptom-free in under six months. I have remained that way for 20 months so far."
I have read seen similar comments on the internet by other people, and notice that they also say " virtually" symptom free, or "almost" symptom free, and was wondering if there was one common symptom that that remained persistent, and if so would that symptom be an important clue into the mystery of the disease?
Daughter

[Sadsack]

Daughter -

I don't know what the "residual" is for others, except JWF who said one time that he, once in a great while, will see a fiber.

My remaining symptoms are, like JWF, an occasional tiny white lint-looking thing peeking out of my skin, which I scratch out easily leaving no aftereffect. The other is that I get a sting now and then in my feet.

Since none of us really knows what any of these symptoms actually are, I couldn't begin to speculate about causality based on mine.

For the first year I went after this thing with the attitude that I would KILL it or BE killed by it. I didn't care which way it went, I just felt I couldn't tolerate what I was experiencing....and most of that was the emotional/psychological effects.

I have come to a place where what I experience is minimal, though I still get scared once in awhile thinking about it. And I now accept that I can live with what remains. I have something of a maintenance protocol that includes remaining chemical-free (as far as is possible), various supplements, and FarInfrared.

I wish someone reading this who has a lot of money would make a major contribution to OSU. Dr. Wymore has been researching this on his own time for over five years, and is trying to raise enough money to hire a full time assistant for one year. I think we could make significant strides if that happened.

SS