Tylee

[Kritters]

Tylee....I've compiled some things you'd told us into one spot. You have so much going on with you and you keep coming up with other things you remember and I'll tell ya....there are so many things it could be. So hopefully when our gang reads these things in one place, we can put our heads together and help in some way. I have some questions.

"I fear I have this and am going nuts with the crawling all over me. Yesterday I vertually had no symptoms and now tongiht after eating my dinner, egs, steamed veg adn some apricots dried i am freaking out again all over and pubicly the crawling is freaking me out."

Maybe someone might know an association with sulphur ???(eggs and dried apricots)


"........ The lyme disease center gave me tabs for a parasitic infectiion/tapewrms and it helped somewhat and I hae been showering in tea tree oil shampoo and laundering every day and now its all back again. "

Why did they do that? Did they find any parasites, or was it cautionary?....Now WHAT is back again? What tablets did they give you, how long did you take them and how long after you stopped taking them did 'this' come back? (itching and crawling?)

Question: Do you have any fibers coming out of your body?

Question: Do you have any mold in your home or live near wastewater treatment plant or have old plumbing in your home?


"...SOME B12 DEFICIENTY AS NOTED IN MY TESTS. I am waiting on blood adn dstool tests to come back from lyme disease place....
Ih ave had 3 colonoscopies odne over a 5 year period dur to anoter condition etc and i was on polyethylene drinks...."

WHAT other condition?

"3 in my moms family have dies of stomach, prostrate and colon/intestinal cancer...................."

Can you go into more detail about that? Over how long a period between them? Were they blood relatives? Did they live together as children? Did they live in old houses?

"....i have a low B!@ deficiecky and some of my docs are saying it might be this etc....."

You've mentioned this before and just so you know, B deficiencies are common in parasitic infections. They take it to help themselves survive. So have the 'docs' given you prescriptions for the B's???

"I am off to take my polyethyelen drink for my clonoscly tomorrow and I am sick just knowing this drink is poly which is part of the fibers."

I didn't read that you had fibers...did I miss that? Just so you know, many people with Morgellons did not take that drink for a colonoscopy.

"I have been sick for 4 years on antibiotics, multiple colonoscopies, fast food, microwaved fast meals, ALOT OF MEDICATIONS OVER 150 BUT ABOUT 25 in different types, depression from the injury over 4 years and lonliness and not working and not knowing anyone......

OH plus...breast srugery 3 years ago and pelvic hysterectomy 5 months ago, root canal one month before all of this........."

What injury over four years (ago)? What were the antibiotics for? 150 medications?????

a ROOT canal, breast surgery, pelvic hysterectomy????

And the doctors can't find anything wrong with you???why the hysterectomy?

YOU HAVE SOME SERIOUS PARASITES IN YOUR BODY AND YOU NEED A SERIOUSLY COMPETENT NATUROPATHIC MEDICAL DOCTOR TO FIGURE THIS OUT FOR YOU. YOU HAVE TO TELL THIS NEW DOCTOR YOU FIND EVERYTHING YOU HAVE TOLD US HERE PLUS WHATEVER ELSE YOU FORGOT.

WHAT DOES EVERYONE HERE THINK? START WITH THE MEGA C AND SALT? DIATOMACEOUS EARTH? CELL FOOD?

KRITTS

[Kritters]

Good morning all.....

Didn't ANYONE have anything to offer in the way of thoughts or help for Tylee?

Kritters

[Katinka]

Hi Tylee,
while reading all of your symptoms and taking all of these meds you have mentioned...wow...it doesn't wonder me a bit you are having problems with your colon.
All these antibiotics destroy not only 'bad' bacteria but also 'good' bacteria in our intestines in order to function properly and provide immune defense.

IMO you should take pro-biotics to build up your intestinal wall with good bacteria and to fight off parasites...

I am not sure about the Salt/Vitamin C protocol..which worked 'wonders' not only for me in the initial phase but for many others here... due to your colon problems. DE could be a better way to detox your body..but be sure to drink a lot of fluids to avoid constipation.

I am not aware of the efficiency of Cell Power as I have never used this...but some members here have had tremendous results. Maybe our Meg280 can help you here?

Hope this was a little helpful.

Katinka

[Kritters]

Thanks, Katinks!!!

[Tylee]

Tylee Symptoms and timelines 2005-2009 p1

First I would like to know how you all got diagnosed and what drs. Are helping you all. Mine are dismissing parasites or morgellons and I have lost 3 drs. Now I have none as they do not know what to do or dismiss my symptoms.

2005---Pelvic Injury Nerve Damage. 3 years treatment and pain tabs and vaginal injections etc.
2006—Breast Lump removed.
2008-Hysterctomy due to endometriosis and additional pelvic pain.
2009—Moved boxes in basement after 3 years during my recovery. Full of clothes etc. a lot of physical moving, a lot of boxes.
2009—2 weeks later. Wrist pain and swelling at Ulna bone.
2009-Increase in pain and Ulna bone protruding.
2009—Right wrist starting the same. Very painful at times in both wrists during driving etc.
2009. Started clearing boxes and sorting and packing etc.
2009--2009--Had root canal due to pain. Root canal redone again same tooth.
2009—Went to aquarium and put hands in pool of fish that looked like stingray like type fish. Public were allowed to do this and touch these fish.
2009--Pain from my hysterectomy incision starts up again. Sharp stingy pain.
2009—Had large amount of shrimp with cocktail sauce at dinner. Bad abdominal pain and diaharrea. Pain lingered for about a few days. Had blood in stool during the week with dark brown mucus.
2009--Noticed nits in my hair really bad. No idea how I got this. This was the start of all this this is when it really took a turn for the worst and all that followed. Treated 3 times nightmare--treated pubic area also due to the extreme crawling there.
2009—Continuing with sorting and opening boxes. At closet one day and got bitten 3 times and several more over a 1-2 week period . ( I presumed they were bites). Large with red centers----blistering around some and others just plain bites. Hurt really bad upon bite. I have photos of all my bites and skin swellings etc.
2009—Vacuumed apt. Emptied canister into plastic bag. Approx 20 mins later all knuckles and other finger joints skin
on both hands swelled up and veins were very prominent. Blueish red at these sites. Fingertips underneath turned a blueish. Felt like hands were stinging all over.Welts came up on all finger joint knuckles in about 4 mins. Still the same have has not changed but flares up. Oblong looking welts raised that fit the shaped outline of knuckles and skin.
2009—Started to experience crawling on my forehead at night in bed. Though bed bugs or dust mites or something.
2009—Went to dr. told me I was hallucinating and I “probably” had scabies don’t know but gave me a “catch all” cream permethrin. Gave me worse symptoms of severe deep crawling, sunburn type rashes, sharp stings in body. Feet especially. Blue red lines under my skin. Fingers, eyebrow.
2009—He referred me another dr. and she said probably “formication” or related to your HRT patch. Gave me creams to use but no help and tabs to sleep etc.
2009—Said she would contact me to help with my symptoms. Never heard back from her.
2009—Concern about my hands went to a new dr. and the bites etc. Brought samples of grains or unusual things I found around the apt. or on my skin. Just things I had not seen before. Maybe something ---maybe nothing. He did not look at them he just told me they were just bits from clothing and my problem is my apt. and a bug problem. Leave it. Reffered to Rehumatology/Immunology about wrist. Told to wear brace and not type on wrong ergonomic table, over use of wrist injury of some sort.
2009—Went to dermatology re: finger welts etc mentioned “M” was told do not believe in that gave me something to sleep and help with any inflammation in the body.
2009—Got strange pimple on breast with line of dots next to it he said I scratched myself.

2009—Had blood tests etc including for LUPUS and other immune stuff all came back NEGATIVE.
2009—Getting retested for Lupus. Was given fluconazole for
2009—My symptoms are the following internally and physically over the past 2 months:

--Crawling sensations and biting stings in feet, pubic area.
--Crawling sensations on face, forehead, tingling tounge, crawling sensations in ears, nose stuffy with grains.
--Tounge has red spots on it, very thick white covered with a hole, furrow that has gotten bigger and bigger. (noticed after eating wild salmon and mixing a strong probiotic powder into some veg. same night)
--White patches on skin. One has a dark blue line next to it inside of my eye corner.
--Lips had white thing protruding on right side. Slightly larger lip now on right side change in appearance slightly.
Tingling tounge.
--Notice white protrusions on skin, like small papercuts others just skin protruding. Very small.
--Left wrist ULNA bone very prominent with swelling. 4th and 4th fingers have distinct loss of tissue at the knuckle in between these two. Only happened over the last week. Hands getting very boney.
--Feel like bits in my eyes, dust or something. Only happens in my apt.
--White grains in my underwear.
-- Loss of eybrows falling out. Very thin and loss on one so far with itchy eyebrow.
--White grains in my apt. My apt. gets very very dusty---dust mites?
--Black specs on countertops.
_Oblong specs in bed—possibly bedbug droppings? Was told had not bed bugs but they found one.

--i ONLY SEEM TO GO THROUGH ALL OF THIS IN MY APT. especially the itchy grainy eyes and stuffy nose with grains and my ears all n my apt. only ONLY.....SO FAR....

I KNOW THIS IS A LOT BUT I HAVE FOUND NO ONE TO HELP ME YET EXCEPT THE LYME PLACE WHO KNOW
OF SOME OF MY SYMPTOMS. WHERE DO I GO FROM HERE. I GET MY RESULTS FOR ANY TICK BORNE OR ANYTHING ELSE FROM THE BITES I GOT. I BROUGHT UP MORGELLONS TO HER AND SHE SAID MAYBE. SO SHE DID NOT DISMISS IT. DO I STILL GO TO GINGER SAVLEY . LIVE IN THE SAN FRAN –PALO ALTO AREA.----Tylee

[gigi22]

Tylee -

I have not gotten diagnosed.. but I don't need to. I know what I got. It would be nice to find a doc around here to diagnose me so my husband can believe me, but I really don't know what a regular doc could do for me, honestly. It would be good for me to get tested for lyme and co-infections, but I honestly would be afraid to go on antibiotics.. they almost killed me last time I took them.

I do have a naturopath, who is new to morgellons, but she is helping me. I say go ahead and seek out a morgellons-literate doc.. but please, please.. you have to help yourself .....don't wait around for a doc... you feel worse in your apartment because your apartment is infested. You need to give it a good cleaning. Please follow this link and treatment steps, especially the environmental cleaning.. and you should start to feel better:

Living with Morgellons-Treatment Suggestions

I think the baths are very important - I usually do 1 5-6 times a week.
I usually use epsom salts, sea salt, baking soda, and alfalfa tablets in my bath water -- I purge a lot through the skin this way. I also have done DE body masks, and this brings a lot out too. I find that when I'm doing regular baths, I do not find black and white specks scattered through the house.

You can also search on the threads to find out what to do for the eyes. I use a boric acid eye wash found at the pharmacy and it works well...

Tylee, you can do this! Start doing the treatment protocol and you should start to feel better soon!

[gigi22]

Can anyone else give some advice to Tylee?

[Tylee]

Well I am now fully depressed and crying................last night my right eybrow is almost half gone and my eyelashes are now falling out. My tongue is worse with red spots (strawberry tongue infection) and today I found tons of cream colored grains in my undies and one what like a small white worm.......
HOLY ****!!!!-------------I am falling apart everyone. I am gong to take the epson salt bath now and put some alfapha tabs in and see what happens!!!

God this is a nightmare..............I wonder if the lYme place will put me on antibiotics but the last time I was on antibiotics I got C. Difficile from a particular antibiotic and I cannot remember its name but it causes C. Difficule my dr. told me.--------------
I am also upset about Michael Jackson. I was a and still am a huge fan. I used to watch him since I was about 10 years old or so. I love his song "You are not alone" the german concert version and the original version where his hair is short! both great!!-----I used to watch this on you tube while during my 3 year recovery from my pelvic injury--it helped me stay strong is some respects....................
My eyebrows are so so itchy with red spots and the hair is falling out!!!!
I currently am going to 2 dr.s in the hope one will not drop me but i need to stick to one of them..........I guess I will know tomorrow after my 1;30pm appt. what I have contracted.I am off to take a bath and see what happens!!!!!
Thanks for the house info. but I cannot hardly use my hands and this typing is making my condiiton worse but You guys are all I have now!!!!!!!!!!!! I will pray for you all please pray I do not have this M thing........god!!!
Tylee---Literallly scared to death as I am not working and my savings is now paying for my apt and bills. I only have about 3 months money left and all is gone and i will have to sell my car and then what?------I will have no way to treat myself with this condition anymore.................Tylee Desperate and extremely lonely!!--------------

[gigi22]

Tylee -

STAY STRONG....and calm down. Your anxiety will just make this worse !! The baths are VERY important (I believe.. I get the most out of my skin this way..).. You can use epsom salts+baking soda or vinegar and regular salt or a hostful of other things. The alfalfa does definitely work for me. Do this every day or twice a day for now. Epsom salts and salt and baking soda are really cheap. The other thing you should do is find some food-grade DE - you will see a thread on this on the forum. This is very cheap too.. you can use this like a mask and it will draw all kinds of stuff out of the skin.

Brush with baking soda and a little hydrogen peroxide. I always use listerine as a follow up.. this will help the mouth.

As for the "nether" region - I've been having problems here too.. I use a product that is a capsule that contains boric acid and probiotic.. it works. Here is a link on curing natural yeast infections - many of these suggestions will kill the stuff in there too (apple cider vinegar, boric acid, etc).
Natural Cures Remedies | Yeast Infection

You can use some selsun blue on the scalp - you can also add some salt to your shampoo as well. If you can get the DE - you can put this on the scalp also.

There are a lot of supplements you can start taking to help - DE taken internally (food grade only) has helped so many... also, the salt/vitamin C protocol is something so cheap and simple to do .. and it's helped so many - these things hate salt!!!! please look at all of the helpful suggestions here.

Tylee - if it makes you feel any better.. I read a story about a woman who was way far worse than a lot of people here.. She got well by taking baths with loads of salt every single night... It's not an immediate fix, but over time, you will get better and better.

You do not need a doctor to tell you that you have this. You need to start getting well! Do it now!!!!!!! Where is your fight? It's in there somewhere.. you got to fight this, and fight it hard!! You can do this!!!!!!!!!!!
We are here for you...

[Kritters]

gigi....

You're awesome. Thank you for helping Tylee. Your advise is right on.

Tylee...we're here for you. Stay strong.

xoxoxo
Kritts