Lots of love to you morgie sufferers!!!

[xodustrance]

Hello from SE USA!

I just wanted to pop in and say hello. I have been a long time morgellon's follower due to an issue I experienced -

I was searching my symptoms one day, and i came across morgellons. I had the biting itching - crawling sensations. I would look down at my arm and be like WTF. I feel my hair spinning in the folicle.

Needless to say, I had several symptoms but not the sores. I went blind a few months later, and it turned out to be a brain tumor. Tumor was removed and all symtpoms went away.

Point being, I still never forgot about you guys even though I am better. I have lots of love for you guys and gals, and endless sympathy.

I was called crazy by my doctor when I asked him about the biting and crawling sensations. Instead of listening to me and testing my hormones, I was blown off. And I almost died when they did neuro-surgery. I was pre-stroke and they had to drain all the fluid around my brain to lower my pressure. I just wished someone would have listened to me months before I went blind.

So hang in there, I know all of you are great people and deserve attention. I do know some of what youre feeling, but I also know I havent had to suffer as long.

God bless, and if anyone needs a friend to help them through this, let me know. I am here.

[sarothra]

Hello Xod,

Wow, what a story with an amazingly wonderful ending! I'm so glad you got your sight back. That must have been so scary. I'm so glad you're OK.

Thanks for sharing your story with us.

sar

[xodustrance]

Originally Posted by sarothra

Hello Xod,

Wow, what a story with an amazingly wonderful ending! I'm so glad you got your sight back. That must have been so scary. I'm so glad you're OK.

Thanks for sharing your story with us.

sar

Yes, it was pretty amazing. I once was blind, but now I can see. And they went through my nose, so I dont have any scaring!!! yay!!

But what really presses on me if all of the morgellons sufferers. That is why I posted about my story, to relate that I do know what its like to be called crazy.

After reading all the stories for nearly two years, I became emotionally attached to many of them.

I wish I could help, I want to help in some way. Having a brain tumor (benign, and gone for good!!) has taught me the true fear when something is seriously wrong with your body. It compelled me even more to the Morgellon sufferers.

I have about 1 year two months left working on my masters. If I can do anything to help the movement - in school or out, please advise. If anyone needs a friend to talk to, I am here. If anyone needs assistance and is local to me, I will help.

I absolutely hate how most of the world simply seems to not give a sh*t.

I just wish I could do something to help alleviate everyone's pain and fear, I know it nearly wrecked my life. I thought about suicide many, many times.

Anyhow, I hope everyone knows you are not forgotten. Each and everyone one of you are human beings with real suffering. Suffering that just makes my heart bleed. My support is unconditional - please let me know if I can do anything for anyone.

[Kritters]

Dear XO...

What wonderful news to read. I'm sure everyone here feels as Saro and I that it's great to read about someone who went through hell and is thinking of others when she came back.

If you don't mind (we do a lot of research and ask questions) a question or two (if you do mind don't worry..just don't reply...I understand)...

I, for one anyway, believe that tumors, cysts, granulomas etc are encapsuled critters of whatever sort that the body is trying to isolate because it cannot remove or that are juvenile forms of critters that are incubating and protecting themselves as a factory.

Did you have any other symptoms besides the itching, etc....? Did you have fibers? Were you ever tested for any kind of parasite (Lyme, etc.)?

I'd love to hear more about your journey, but if it's too painful and you just want to come and offer friendship and support, that sure works in itself!!!

Again, welcome to the forum,
Kritters

[Sadsack]

XO -

I, too, have questions. Do you think you had Morgellons, or do you think symptoms of the tumor? Do you feel completely well?
Also, what state in SE US do you live??

SS