Completely at a loss as to what to do!

[posey]

I need some direction support really bad. I can't get myself organized regarding my own hygeine, washing my clothes, and keeping my home clean.

To start with, I have severe spinal issues and Fibro. This makes it nearly impossible to do what I need to do in order to try and rid myself of this filthy disease. Years ago when I worked tons of hours a day I use to say I wished I had an "Aunt Bee". Now I feel like need an "Aunt Bee" or a nursing home. I can so worn down I get to the point of not caring if I wake up when I go to sleep at night.

I am always out of clothes. Then, thinking I won't have any until I soak them for at least 5-6 hours before even washing them means I am stuck with the dirty ones I have on and can not even leave my house. I am talking underwear, socks, pants, tops, just everything.

Which brings to mind another stressor. Every store I go into has these fibers hanging all over. Especially in the socks area. What do others here wear for clothes? I hate the thicker cotton socks, yet my feet are freezing. I bought some and when I took them off, all these fibers were between/on my toes and feet. I don't know what to buy for underwear or any clothing article. Seems warm flannel PJs are awful fiber holders. Is it possible after soaking them in a fungicide that maybe some dead fibers are left? Sometimes I just don't look because I don't want to see.

I would sincerely and deeply accept all suggestion as to what others do. I am going to take a look at the Housekeeping Tips Forum after I post this but I wanted to ask this right away since I feel so desperate.

Does everyone use the DSP for washing their clothes or is there another tried and true fungicide which works? I am out of the DSP laundry detergent so now I am soaking my clothes in: 1 cup Pinesol-1 cup Lysol Deep Reach Toilet Bowl Cleaner-and 1 cup Tilex Mold & Mildew Remover. That's for a full load.

Thanks in advance for any help. I feel so lost and helpless. The strength I rely on is my faith in God. Without this I believe I couldn't handle it. Although some days I get pretty down. I have shaved my head and intend to keep it shaved until those weird things hopefully stop growing.

Thanks so much for a place to come. I know you all can imagine how I am feeling. I need to get some structure in my daily routine. I think it would help alot, but I can't seem to do it myself.

Your friend,
Posey

[Sadsack]

Posey -
I might be going out on a limb here, but I think you are WAY overdoing the laundry issue. First, there is absolutely NO agreement that this is a fungal issue. In fact, the leading scientists don't think it is at all.
You are using dangerous chemicals that you are inhaling and overloading your body's ability to deal with this nightmare.
Use Borax and Oxiclean with Arm and Hammer. If it makes you feel better, you can stop the machine for 1/2 hour (to soak) then resume the cycle with an extra rinse. Dry for about an hour. No matter what, they will be better than re-wearing clothes.
Compromising is key here, because none of us can do it all.
In the beginning I focused primarily on the environment and secondarily on myself. It was only till I switched to myself first and the environment second that I made progress.
By self, I mean soaking in dead sea salts, epsom salts, peroxide, etc. Then find an body cream or lotion without chemicals in it but with essential oils (esp if you can find one that has an oxygen boost - Opaline.com lists some). Rub that stuff in well. I take the Opaline dry oxy caps (have for a year) and highly recommend them.
Eat lots of vegetables, and as close to natural/organic as your money allows. Take internal cleanses - there are many options out there. I recommend that one bottle of Citrate of Magnesium taken a week after starting another cleanse will "blow out" toxins, etc, that are in your colon. But be aware that you will have an "explosive" reaction to the Citrate.
Take a good vitamin/mineral supplement; some recommend doubling what the label says for a little while because we are likely deficient and it takes a little while to get caught up.
If you can afford an ezyme cleaner for the environment (for ex "Safe Solutions") that will be enough. Safe Solutions goes for about $130 a gallon, but it is concentrated and you mix it with water and can get about 60 gallons of cleaning from it - so it is actually economical.
Do what you can to rest and make yourself comfortable, but don't get it into your head that you are going to be able to do it all or solve it over night. Just take it step by step. You know the expression, "the journey of as thousand miles starts with the first step".
Good luck to you...
SS

[pat]

I have been wearing a polyester base layer made by 5 seasons which the klingons don't cling to and can be washed by hand and dried in 10 mins.Look for the silky polyester type of clothing.
The knicker question is totally unanswerable.The munchers ate all my cotton ones at a rate of knots.So i got silk but they are very much full of holes too.Maybe going commando is the answer.LOL.Then again maybe not-no telling what the munchkins will do .What about paper ones?
I have had consistently for a long time now green algae/moss all over the garden and yard.Also house full of black specks which colonised my washer.It turned one wall black inside the house.I can smell mould upstairs even though I have a dehumidifier going 24/7 the bed underneath the sheet is full of the specks daily.I rather wish the leading scientists would come here and tell me this isn't fungus but that my friends and I are having delusions.
I watch this green stuff spreading all over the area I live and am getting fed up hearing stories of people in this neck of the woods who seem to be suffering strange serious illnesses.Even non morgies are realising that something strange is happening.PART of this morg job is most certainly fungus.I have fungus knats all over the garden which attack my scalp en masse,stinging as they go.
Posey try anything with oxy in to clean the laundry.That seems to work well.Also ladycolorado has posted many helpful things in the past on this type of topic.

[Sadsack]

My dear Pat -
You do not have delusions, but I am afraid your bed and garden do.
SS

[pat]

I think many people here have the fungal problem carla certainly knows about it.Wonder if her bed and garden are having delusions too?? Please do not patronise me...I am not anyones 'dear pat'

[browncircles]

Nylon underpanties are the best.

[Kritters]

Although I'm sure we don't all have the same thing...maybe different variations of strains or whatever....I know many of us have mold problems. And I know that I have fungal problems. I've identified them under my scope. In fact, a few different kinds of fungi. Heck, I'm a regular fungal factory! I've got so much fungus in me (how much fungus, Kritts?) I call mushrooms distant relatives LOL.

Based on all my research and that of others here, I think, non-scientist that I am, fungus could be involved in some way. and nothing should be dismissed as a possible connection. So many of us have mold probems, or some connection with sewar sludge or treated water or BOTH that we cannot just off-handedly dismiss it. Until they find out what it is we have to keep on keeping on with the possibilities. If this is mycoplasma fermentans, or if it is somehow connected, hopefully we will find out. The world of micro-organisms is extraordinarily complex as we all know by now.

We're all just people trying to figure things out. We're not going to stop. I think people who respond to anti-fungals means what they have is a fungus. People who respond to anti-biotics means they have a possibility of several things and one by one, we can at least figure out how to help each other by our experiences and experimental treatments.

Kritters

[weredIgo]

Hi Posey and Friends,
Once again I can relate. I have had severe spinal issues too for many years. This added to it can really do you in. If you are not emashiated like me you have better chance. Hang in there. Funny about the Aunt Bea thing. I was the same as you years ago, thought I could do it all, and did. I always used to say I needed a wife.

I've read a few times about people saying the had green mold or fungus outside. I'd say the last maybe ten years I lived in my home we had this green mold or fungus that grew on the back side of our house. Even the screens were green. We would pay fifty dollars from time to time to have it pressure cleaned off. Now you ladies say you have this in your gardens. Odd thing is after that nothing would grow in my yard. I don't know if it is connected but before that things grew like crazy. Oh yes, we also had to have the entire house tore out and redone because of mold. We lived and cooked on our tarped carport, slept in a borrowed leaky extremely small camper for eight months. Boy what an experience that was. Does seem as though there is a mold, fungal thing going on with this.

Well I'm glad you've come here and hope you find the help you need.The biggest help for me here is people listening, understanding and caring kind words.

Claudia

[carla]

Posey , I think you have to chill out a little . We don't even know if clothes can reinfect us yet.
I think soaking them for hours gets you nowwhere.
Throw a cup of white vinegar in the drawer with the soap powder and leave for 10 mins before you start the wash.
Anybits that are left on after drying get vaccumed off. My kids are my guinea pigs and if they don't
The most important thing in this fight is your state of mind and your immune system.
Get as much green tea down you as possible too.
Has anyone tried Rose Tea?It is said to clean your blood.

Pat,
My garden has a worse case of Morgs than I do.It is funny we both live next to government/council owned fields.
The ones by me where being converted from a landfill site to a nature reserve right when myself and a few others first got this .
It is down to Monsanto roundup Sadsack.
No doubt about it .
xx

[posey]

Thanks to all of you. I appreciate everyone's input and please don't even worry about going out on a limb or stepping on my feet. I appreciate, want, and can sincerely understand constructive criticism.

Regarding my laundry and the soaking, I got this idea from Marc N.'s site, which I thought this forum was related to. Maybe I am wrong. I have decided that I am going to get me a hand held HEPA for my own personal use. I have just received $25.00 in Rewards from Amazon so I all put that towards one. I have used our home one on myself and clothes.

I know I have to chill out. This is a HUGE issue in any illness as far as getting better.I try to keep this in mind, knowing that stress is hard on immune system. Sometimes I try to think to myself that if it hasn't killed me as of yet, so as long as it doesn't do that I can put up with it until hopefully it will be more understood via research and a cure developed. Most likely one where the pills will be $30.00 or more a piece from Big Pharma.

I am going to heed the advice I am been given here regarding laundry. I can't keep up with what I am doing. I also will use the undies advice and all other advice. I realize that most of you have been dealing with this much longer than I and know so much more about what may work for some and what works for others. God knows there is no Derm nearby willing to even think of helping. I believe there are Derms that believe in it but because they work for an institution they have t keep their thoughts to themselves in fear of being ridiculed or worse, losing their job. My pain Dr. (D.O.) works for himself and is a firm believer in Morgellons. He is the most absolute wonderful Dr. I have ever known in my life.

This has been going on with my facial skin for about 5 years. Thickened patches of skin, hair all over my face, but it was lying flat under my skin. It wasn't until late last October (200 that I started feeling things on my face which eventually went to tickling feelings on my scalp and "hair" tickling my face. My hair on my head just kept getting worse. More and more of this stuff wrapped itself around my hair(s), and by my ears it was beginning to look like fuzz or matted hair you sometimes see on the back end of a dog.

Just to add a little humor : I have had pelvic prolapse surgery a few yeas back and the Dr. explained to me the 3 different types of material to use for the pelvic floor, with pig skin being the best. So as nature has it, we all want the best and I chose the pigskin. Maybe, just maybe, I am now literally growing pigtails.

We have mold issues around our home also. Basement and our deck right off the dining room. When it rains in the summer the deck is slimy. So slimy you can slip and fall. Derm took a chest x-ray but must have been OK since he didn't call back.

That's enough out of me for now. I never like to get posts too long (and this is there already). We all have meaningful limited time and I wouldn't expect anyone to read a book I could sit here and type out.

However, I will be back due to the all of you here.

Best wishes today,

posey