Have or have nots

[jonsi]

I wish there was a filter, a test to keep all the people who do not have Morgellons off this site! They pretend to have symptoms, come on board to try to sell us something when they have NO idea what this "M" disease feels like.

How can anyone suggest a protocol if they have never experienced Morgellons?

These people are disrupting this site. I don't respond to threads because I see certain "members" who will criticize anything that disagrees with their agenda. Some of these threads had really good info at the beginning and are taken over.

I'm going to stay put here. I want the new people who have discovered that they might have "Morgellons" to know that many of us have gotten through the worst of "M" & we are here to support you. I hope everyone new will please share history...we welcome you.

In the white light,
~jonsi

[cynical]

Jonsi,

I 100% agree with you! You can tell the difference between someone saying this helped me and someone obviously pushing a device or protocol over and over again.

People have pretended to be sick when they were not.

We already have trust issues from the way many of us have been treated. Many have spent a lot of money trusting others with the promise of a cure or on doctors that call them delusional. I quite frankly am tired of being called names for standing up for what I believe is out right fraud.

Ok that is my Rant! Sorry Jonsi if I crossed the line there.

Cyn

[jonsi]

No, Cyn you didn't cross the line here!

This is the rant board.

Not that anyone has noticed, but I have not posted much lately because of the disagreements and name-calling. I try not to respond to the negative posts. If we all ignored the negative & hateful posts/threads they would eventually be buried.

I'm not a part of anyone's "camp". I'm going to leave it up to Franky & Carla to ban someone. I voted no on that vote because I don't believe in witch hunts, even with preponderance of the evidence... I have a very common name. I have mentioned several products that have helped me. I know several ppl that say some of those products really helped.

Back to my original rant, I know it's impossible to have a yes/no questionnaire because this "M" is different for everyone...

Peace, love to you & everyone here on this board. Please leave us alone if you are trying to sell us something!!!!

In the white light,
~jonsi

[cynical]

Hi Jonsi,

I simple made a statement about why some were not interested in the CDC rally. Look what took place from that moment on.... My name was used saying I had no time for teens taking there lives and so on. Anyone not interested in this cause has been made to look like someone who does not care about others taking their lives. I am outraged at this behavior!

I do have a problem when people come here using scare tactics to sell a product. That has been my main problem from the very beginning of this mess. I have stated that was my problem with it clearly over and over again.

The Witch hunt hmmm I think that has been going on, on more then one side.

Peace, love to you & everyone here on this board. Please leave us alone if you are trying to sell us something!!!!

Agreed!

Cyn

[jonsi]

Yes Cyn, I saw that going on... don't quite understand it at all. It's unfair.

As far as scare tactics go, I would hope ppl would do research b4 they buy anything. There are a lot of harmful protocols out there that might work temporarily but cause major damage in the long run.

For example, I started taking selenium supplements 2 years because I read that we don't get enough of it from the dirt. I started having the worst back pain, worse than labor pains! Obviously my body didn't need SE.

I think that any pharmaceutical drug will not work long term on the "M" and will cause worse symptoms in the long run.

This disease is different for everyone...

Sorry you were attacked on the CDC issue. I totally didn't understand why you were attacked. Hopefully that person will get organized and quit being so defensive.

RANT!!!! I HATE SPRING WINDS!

In the white light,
~jonsi

[cynical]

Hi Jonsi,

RANT!!!! I HATE SPRING WINDS!

Me too! Back to showering before bed and adding a nasal rinse to my nightly regimen. Apparently I have been snoring

[paddel]

Ah, yes. I have known that there are many on this site that really dont have Morgellons. Anyone thinking about using MMS is doing a disservice to themselves cause in the long run they are just making "M"s worse. Anyhow, is there anyone here that has had any relief from the m symptoms with any products?? probably not. Baking soda and cheap things like GSE will probably treat this just as well as the other more expensive DSP creams and everything else. The symptoms for me personally have not abated one bit in the last four years.

Hope everyone has a good memorial day weekend coming up!!

[belle9]

Thank you jonsi for posting this. What is a DSP cream? Also thanks for the tip on the hibicleanse (sp). It is helping me sleep by stopping a lot of the itching. I still pollinate after every shower though. Baraka told me that I have to get over my absolute horror of what I call "the swimmers." They are translucent things that swim back toward me in the bath water. I have poured rubbing alcohol on them and they really react. I am going to try what people here whom I trust recommend. I hope my budget can stand it.

[belle9]

Paddel,
What is GSE? You experienced guys should PLEASE explain the acronyms for us newbies.

[tcmgpt13]

I have had some relief with using internal products. My latest herbs seem very helpful, but could not be used by all.

GSE is grapefruit seed extract Belle. Baraka talks about it all the time.

DSP (short for divine skin protection) is the essential oil cream the German fellow Marc Neumann made to help Morgellons skin symptoms. I have had better results with sunspot es and also curaderm bec5 though the latter one is very expensive. I am not sure if Marc is still in business.

A happy memorial day weekend to you paddel.