New NIH Study on Parasitic Diseases

[commonsense]

Sadsack,

As long as you didn't put all your eggs in one basket.

That is plain simple CommonSense.

[sarothra]

Originally Posted by Kritters

TC,
I think you are probably (unfortunately) correct in that they lie dormant. It must be able to contain itself somehow since the skin and other cells of our bodies are constantly renewing. I'd like to know where it was hibernating. good news, the biting has stopped. Interestingly, when I kept applying the hydrogen peroxide, welt-like bumps showed up. Just a few and a few inches from each other. I guess that could have been anything, but....I dunno. this has me thinking about Sarothra's theory about the nematodes just lying there. Could actually be feeding off of dying cells, for that matter.

I think the statement regarding wanting to have lesions back to get tested was only meant to say at least there would be something someone could actually use to be tested and let this nightmare go away. If I still had the lesion stage I'd go myself since that's the only VISIBLE manifestation which can be used. If it means having them back to serve the purpose of possibly being healed, I'd be happy to have them for the hopefully short time it would take to be studied, you know?

p.s. It's also interesting that I was REALLY sweaty when the biting started again, but then, I've been REALLY sweaty throughout this summer many times.

this all so sucks.
Kritts

Since I believe we have an undiagnosed nematode infection as the primary cause of Morgellons, I continue my research in this area, including researching other forms of filarial (worm) infections.

When you talk about the nematodes just lying there, yes, I think they are often asymptomatic (no symptoms) I think when they move you feel the biting sensations - I do believe that a nematode infection can persist without one's knowledge. It is common for filarial infections to last for decades. Here is a link from the Merck Manual: (medical manual) on filarial infections in humans:

Filarial Nematode Infections: Nematodes (Roundworms): Merck Manual Professional

The larva become encapsulated in the MUSCLE tissue - our immune response does try to encase them. My theory is that the tough skin is our immune system trying to surround and inhibit the nematodes. If we're lucky, in time, the larva and eggs become encased in a CALCIUM deposit - our bodies ARE TRYING TO FIGHT THIS, but nematodes have had many thousands of years to evolve ways to bypass our immune system. Adults live intramuscularly, feeding off muscle tissue, which explains our persistant loss of muscle tone in some cases (I know for myself) -

Nematode infections can be VERY DIFFICULT TO DETECT. One of the primary methods of diagnosis is by MUSCLE BIOPSY. I would love to have one, but my doctor refuses to do any more tests on me. The muscle biopsy shows the encapsulated nematode larva in many filarial infections.

SKIN PUNCH BIOPSIES DO NOT GO DEEP ENOUGH TO DIAGNOSIS A NEMATODE INFECTION. THEY LIVE IN THE MUSCLE TISSUE.

The adult nematodes produce microfilaria which circulate in the blood.

ANYWAY, these nematodes can live for as many as 20 years. Ivermectin, mebendazole, etc. are better at killing the microfilarial forms (the minute larva) but are notoriously ineffective at killing the adult worms. These adult worms range in size from 2 to 4 inches, exactly the size I see when the some of my scars have revealed the entire worm.

Some sites say DEC (diethylcarbamazine) will kill some adult worms but the side effects include possible encephalopathy, coma and death.

I think one of the key ingredients missing in Morgellons research is the MEDICAL ASPECTS. It is one thing to study viruses, bacteria, nematodes, fungi, etc. outside of the human body. It is entirely something different once these pathogens enter the body.

One can't assume that a biofilm, for example, is part of the pathogen - it could be part of the host's immune response to the pathogen. Or, as part of the complicated interconnections between a parasite and its host, inflammatory reactions and biofilms could be the host's immune system response which ends up working in the parasite's favor.

What I mean is, when our bodies surround a larva with a layer of skin to keep it "contained", that can work in the larva's favor by providing an environment in which it can grow and develop. Many parasites use the host's defenses to further their survival.

The future is so bright I still have to wear shades - in spite of all this, we can prevail,

sarothra

[sarothra]

Thanks for the info on the new study.

I'm not able to travel, and my doctor says I don't have a parasite even though I KNOW THAT I DO.

I know most people here just don't believe me or ridicule, but I have seen four inch long nematode evidence on my body. These are the ways I KNOW I have a nematode infection:

1. I made a poultice of well cooked rice and red wine. I put this messy mixture on my arms and after about 15 minutes observed forms rising up in the poultice. These forms appeared obviously because they were exchanging gases (I would assume oxygen and carbon dioxide) through my skin. This gas exchange made the places where nematodes were living intramuscularly "show up" as raised "forms" in the poultice. Someone on this forum asked me once why I didn't send this 4 inch nematode for analysis. It wasn't the nematode itself that I had in my possession! It was the "image" of it, created by the gaseous exchange taking place in my body.

I know it sounds really strange, but imagine you had a living worm living deep inside your skin. This worm had to exchange oxygen and carbon dioxide (in other words, breathe) - Imagine that you put something on top of this worm that it had trouble "breathing" through, like a mud pack. You can imagine how you might observe holes in the mudpack because the worm is trying to breathe through it. These many holes from the gas exchange start to look like the outline of the worm because the holes only form where the worm's body is. This is what I'm talking about.

2. I did the same experiment with shaving cream. The same "forms" - very strange and scary looking, trust me. You could observe the back, the head, the tail, and some sort of appendages on the sides of it's body (one on each side) - After doing research on nematodes, I found a picture of exactly what the forms looked like on my skin:

Photo E shows the nematode with the modified fins or what I call the appendages.

ENTOMOPATHOGENIC NEMATODES

3. I used a hair dryer in the beginning days of my experience with this condition. Where the nematodes were living under my skin, there would appear red marks, again, forming the shape of the 3 to 4 inch nematode.

4. My final confirmation (this proves all this to myself, I realize, no one else) - I decided to try to kill these things by pushing on them. After seeing what they looked like and realizing that the location of the lesion was not the head, but rather the "belly" area, I started to push on the surrounding areas around my lesions, covering 2 to 3 inches around from the lesion. When I got to the "head" of the nematode, I could feel a "lump", which was it's head. When I pushed on the head, there would be excruciating pain. This pain, I believe, is the result of crushing it's head and teeth. The teeth are very painful to crush. I used to dig at the lesions all the time, and I never got anywhere doing that. They would just keep coming back. But when I started crushing the heads I started getting better. At least in terms of the lesions. I have had no new lesions since I started doing this. I know I still have some adults living intramuscularly, but whenever there is the slightest suggestion of a new lesion trying to form (they start really small) - I feel around it for the head and start to push on it. You'll know when you're pushing on a head because the pain is excruciating.

The sad thing is Dr. Wymore's office tells me they have ruled out a nematode. It's like getting bit by a dog and having someone tell you there's no dog. No, you can't produce the dog (because it ran away, for example) but you know what you saw.

I do not have any history of psychiatric problems. My doctor tried to get me to take Orap and I refused. I asked him "Have I ever done or said anything that would indicate a psychiatric condition?"

He said "No. I don't understand why all the sudden you think you have "worms"."

I didn't respond. There would have been no point. I think I have "worms" because I do.

And there's no shame in it. Millions of people in the world suffer filarial infections. If they are lucky , they get treatment. If you're unlucky, well...you get by, anyway....

I still plan on getting better and better.....


In truth,

sar

[Sadsack]

Sarothra -

It's too bad that your doc won't help you get into this program - even though I know you can't make the trip (are you in the UK??)

My position on this is that there are many expressions, or manifestations, of this affliction, and I am neither convinced of any theory nor do I completely rule out anything.

I believe that Dr. Wymore's research showed what he said it showed....on the subject(s) used in the study. Doesn't mean that it doesn't exist with others. The same thing occurred with the Collembola study in OK. An entomologist visually confirmed the presence of Collembola in a group of subjects, but dna analysis showed no evidence of their presence in a later study.

Again, these were different samples from the original study. Does that mean only some get these "infections"....or worse, that what visually appears to be is not what it truly is.

Are these things that we see some strange kind of replica? I.e, do they have the same morphology but are not at all the same, maybe not even true life forms (ala Dr. Staninger's work)?

I think it is far too premature to form solid conclusions about much of anything. The only two things I really believe is that agrobacterium is found in Morgies, and that the fibers are completely unknown to science. Oh - and that this is a completely real and unbelievably bizarre and debilitating condition.

My own position is that research needs to continue in all possible directions. If the NIH might yield a piece of the puzzle, then it should be pursued. Even apparent contradictions (if scientifically based) may eventually prove to merely be different aspects of the same Hydra.

As far as what eggs I put in what basket, that's no one's business but my own. I'm a grown up woman who does not need unsolicited advice about my personal decisions regarding what research to support.

SS

[posey]

I agree with alot you said SS but I have an addition.

I absolutely no longer believe in Science Fiction.

There is way too much going on that we know about and I firmly believe there is MUCH MORE behind closed doors.

Many in the world have too great a love for Money and Power and they will go to any length to achieve it.

Sadly, we live in a world of Narcicists, and lack of empathy. It is only going to get worse.

And That's A Fact Jack. (not intended for any personal inplication to anyone. Just an old cliche')