Cryptostrongylus Pulmoni - A new kind of Nematode

[Jo]

Hey Griffin,

Thanks for the pm. I'll get back to you shortly.

In the meantime, the reason why I have doubted crypto in myself is mainly because I took very heavy doses of Ivermectin before being tested (17 days @ 12mg).

Then blood is examined- the test was positive for something thought to be Crypto (using high microscopy, dark field at ~ 10000x)

So Im told to take heavy doses of Ivermectin (12 days @12mg) and I get tested again and this time its negative - so is a fellow morgies results.

And I got a gut feeling about it. I think Crypto exists but I'm not sure it ties directly with the cause of morgellons disease....like I was being led to believe. For one, Dr Harvey's observations dont tie up with the physiology of Crypto.

I could be wrong. Maybe in a few months it will show up again in my blood? Its possible.

Maybe its cuticles are the blue and red fibres we find coming out of our skin, but I doubt it, because the lengths dont match up.

Please keep me posted on your progress and treatment, will you Griffin? Wishing you success.

Angie - any chance you could go into details and share more of your experiences with Morgellons? And I'm intrigued to know where were you (city and place) when you got it?

I find I am affecting others with this and my environment is apart of the problem. I'm facinated that your experience is very different. Maybe you dont have Crypto

Jo xxx

[Griffin]

Originally Posted by Jo

I think Crypto exists but I'm not sure it ties directly with the cause of morgellons disease....like I was being led to believe. For one, Dr Harvey's observations dont tie up with the physiology of Crypto.
<snip>
I could be wrong. Maybe in a few months it will show up again in my blood? Its possible.

Thanks for the explanation of your experience with tests and treatment of Crypto. All makes sense to me. I also think Crypto exists but not enough is actually pinned down yet.

I think it may be harder to clear than is suggested. Just my opinion, but I do wonder if, assuming one has it in the first place and treats it, initial follow up tests will be negative, but it may just be it's "hiding" - too low levels for detection, in some cases. Given current state of knowledge and treatment, even with proper trials, it would be years before we would have any stats on that kind of thing.

I also think it's relationship to the kinds of illness experienced probably needing loads more evaluation. While I believe there is a link with CFS I don't see any evidence of it being directly causal in all cases rather than a complicating factor. In some cases it may be directly causal of symptoms, and those symptoms being common in CFS, and treatment would therefore "cure". For example, in the 63% quoted from the trial, there's no analysis of their actual problems, just that they fit the CDC definition for CFS.

I find I am affecting others with this and my environment is apart of the problem. I'm facinated that your experience is very different.

Seems to me this is common to all this range of diseases. Attitudes vary so enormously. I find denial the hardest to deal with. Hopefully, in the long term, this will improve as more is known and understood. Meanwhile, it is a struggle and doesn't help!

Re. immune system - goodness knows. I've just had the ANA test and it was positive so I now know I have an autoimmune problem - but which ? and whether it has any link to my CFS is still completely unknown. It's taken 6 years for any doctor to actually come up with the idea of doing this test, despite various specific indicators and doctors saying I probably have. As I said, it is a struggle

[Kritters]

Hey, anyone ever hear of this cool dude?

NPM's WebLog

".......If your going to "cure" someone with medicine, you should at least know why the medicine is working. Psychiatrists don't know... they don't want to know because they'll realize how utterly full of **** they are once they start asking questions.....

..Meanwhile, Chronic Fatigue is clearly linked to a parasite -- Cryptostrongylus pulmoni -- over a decade ago... Others have discovered the clinically significant presence of HHV-6 and when treated with
valgancyclovir, their symptoms improve....."

HUH!!! I like him.
Kritts
p.s. just a note here: valgancyclovir is prescribed foremost for the treatment of cytomegalovirus, which is a form of herpes.

Dictionary: cytomegalovirus (sī'tə-mĕg'ə-lō-vī'rəs)

n. (Abbr. CMV)
Any of a group of herpes viruses that attack and enlarge epithelial cells. Such viruses also cause a disease of infants characterized by circulatory dysfunction and microcephaly.

One day we will be able to put all these things together. herpes, lyme, cryptostrongylus, MORGELLONS

[tcmgpt13]

Hi Kritts,

This is what my doctor is saying too about parasites and herpes viral infections. Clear up reactivated herpes lesions or just plain reactivated herpes infections and the parasites and the morgellons symptoms will clear up, at least in his opinion it will. He says that the relationship among the various herpes infections/reactivated infections and the various parasites is still not completely understood. It is possible the parasites are cleaning up in the body what the herpes reactivated or newly active infections are leaving behind in the body. It is also possible they all have a symbiotic relationship for survival in the body. Clear up the infection and the parasites will leave.

My doctor said he has treated at least one other morgellons patient and the lesions and symptoms cleared up with the extended use of acyclovir. I can say since taking the acyclovir I am no longer noticing whatever I used to see around me on the floor. The lesions on my back are gone over about four months. There did not seem to be any signs of parasitic involvement in those back lesions.

I am still treating one lesion on my leg which showed signs of parasitic involvement with my herbal salves. This lesion came to the surface with the use of ivemectin, but so far it is the only one that has surfaced since using the anti-viral medication. Since I am using the herbal salve I still have not used the albendazole he most recently prescribed. The salve is quite potent and I do not want to use both at the same time as it is too hard on the body IMO. I did see parasites exit with the use of ivermectin he prescribed at first and will be interested to see what happens next with adding a course or so of albendazole, even perhaps some additional ivermectin.

I also feel that many of the herbal medications I have used in the past for worms and other symptoms have helped and continue to help in recovery from morgellons symptoms. Only more time will tell how effective this is, but so far I continue to see some improvements, even at times having more energy, though this is still up and down improvement.

My reactivated herpes were not the HHV type, but probably it would be impossibly expensive to test for every type of reactivated or active herpes infection. The medications so far used on herpes can only quiet the infections so I assume that they could start up again, which is why I guess it is important to be vigilant and pay attention symptoms in the future. One piece of information I would like to share is that many of the fish, dolphins and even some oysters (I believe this was in France) have been dying in various areas in unusual numbers. Many of them are found to have viral infections, particularly herpes simplex 1 and 2 and another type which can cause cancer and lesions. It may be quite possible to pick up viral infections and even parasites from eating effected seafood. Certainly in my case this was true.

[Jo]

Yo,

Kritts, can you tell me about the photo you posted on this thread?? ...the bottom one. Who's is it?

I dont think it looks like crypto...unless crypto has mated with a longer skinnier threadworm??? I wonder.

Jo xxx

[Kritters]

Hey Joey,

I think (pretty sure) that came from Dr. Klapow's info pool. And believe it or not, I have seen the threadworm pics and I have both looking back at me from the other end of the scope. It looks like the whip, thread, whatever can turn into the crypto or viceversa.
all I know is, I see both and sometimes they look like they were born in deliverance country where innerbreeding is common (a healk a healk ....you probably have no clue about this joke since you're in the UK ;-) But the flat shaped, semi-clear ribbon, sometimes crinkled, sometimes studded with growths, but always end in either the male or female shape are coming out of every freaking crevice of my body.

What can I tell ya?

xoxoxo
Kritts

[Griffin]

Kritters, I'm assuming you only see the evidence with the scope ? Or is there any tangible way on your body of telling? (I realise your not going to just happen to notice an individual worm less than 0.5mm).