steroid question

[jeanlong]

has anyone here who is M sufferer used synthetic steroid eyedrop treatment?

My eye doctor wants me to douse one eye for a couple of days with steriods then taper to daily use. I'm very reluctant to comply because I read that it might knock down eye's natural immune response. Maybe that's paranoia on my part? I'm recovering from an accident and mostly am almost back to normal but one eye doesn't do well in sunlight. Doctor thinks steriod drops will resolve this in a week or two. My eye is improving too but is not 100% yet and so present solution is to wear dark glasses outside. that's not horrible but I'm leaning towards no steroid drops.

Anyone with M with either a good or bad experience with this type of tx please let me know what happened for you.

[Baraka Obam]

Because of the problems I got from using steroids I feel there should NEVER be any long term used of them, these things can easily do more harm than good.

If you are smart you will look up the side effects and google the drug for more from users.

The steroids destroyed me, I feel I would have been standing on the sidelines without huge involvment in this mallady if I never took them.

I have some funny idea that if steroids are taken and to turn off inflamation (stop immune responce) that is actually the perfect time to use the antibiotics. You may want to google (why use antibiotics with steroids) Then ( why shouldn't I use steroids with antibiotics)

Here is my idea, when the immune responce is shut down by steroids there is also a chance that the steroids work the same way on our invader, it may shut down their protection and then the antibiotics will have a better chance of a result, but again it has to be both the right steroid and the right antibiotic or other type of drug to do work.

I just do not think we know, what the answer is yet

Here is a few sites saying sort of what I just assumed but now know it to be true, the drug combination of steroid and antibiot is a hard one to choose.

Steroid Antibiotic

In this artical you can see where the author talks about steroids as not CURING any disease just stoping immune responce. They are really talking about treating animals in this article but it is a good rundown on what steroids do and actually what antibiotics do and why they are dangerous.

Antibiotics & Steroids

The doctors dam near killed my mother with prednisone, and I think they did kill her with procrit.

She was not well, but giving such powerfull drugs to a woman that is not well is just looking for problems.

[Bustercat]

Hi Jeanlong, your reluctance to take steriod in your eyes sounds very reasonable to me. When I came down with morgies, my doctor proscribed them while the morgellons was still chewing away on my vocal cords. I was running from one specialist to another, and their answer steriods, it didn't work and I think it made matters worse for the retention of fluids. I lost my voice for longer than six months. I dont see steriods as a miracle drug, way back in the sixtys when they said I had ms, I was on heavy duty steriods for at least a year. It didn't work, I was still seeing double, blurred vision, muscle weekness. It didn't change my gait, or balance. Quite possibly gave me many additional problems to add to the pot. Go slow. good luck Bustercat!

[tcmgpt13]

Jean, doesn't the liver function open to the eyes? Couldn't you just use some strong liver support herbs to heal your eyes? Right now I am using (in between my TCM herbs) some strong liver support herbs (a mix from the Western herbalist) and milk thistle. I feel whatever we have is in the liver and weakens it a bit which could explain why some folks have problems handling drugs and alcohol after getting M. Anyway, I sometimes had been having eye pain and decided to try these formulas. These grown in the USA herbs are wonderful and seem to be working a lot of the gunk out of my eyes (mornings are such fun. LOL). Anyway just a suggestion to help your eyes internally by treating the liver. Also there's a formula by Western herbalist which can be diluted and used in the eyes to strengthen them over time. I have posted this information in the past and it can be found on the eye thread (where I tried to bunch all information and suggestions from various members for the eyes).

Eye treatments--Member suggestions (permalink 1)

Originally Posted by jeanlong

has anyone here who is M sufferer used synthetic steroid eyedrop treatment?

My eye doctor wants me to douse one eye for a couple of days with steriods then taper to daily use. I'm very reluctant to comply because I read that it might knock down eye's natural immune response. Maybe that's paranoia on my part? I'm recovering from an accident and mostly am almost back to normal but one eye doesn't do well in sunlight. Doctor thinks steriod drops will resolve this in a week or two. My eye is improving too but is not 100% yet and so present solution is to wear dark glasses outside. that's not horrible but I'm leaning towards no steroid drops.

Anyone with M with either a good or bad experience with this type of tx please let me know what happened for you.

[jeanlong]

tcm

thx - yes am doing so but because eye is not 100% back to normal pupil reaction the MD idea is to treat for fast results using these drops. Personally yes am taking TCM herbs for the eye pain and pupil problem and feel it is all working, but doctor thinks faster is important.

I am not objecting because it's not a TCM idea and do not rule out using conventional treatment if risk is acceptable but if this M illness is helped by healthy immune response, then I am afraid to jump into anything that might risk suppression of immune response. mostly I was thinking someone M sufferer here might have had a particularly good or bad experience with a steroid drug I'd like to know.

best regards
Jean

Originally Posted by tcmgpt13

Jean, doesn't the liver function open to the eyes? Couldn't you just use some strong liver support herbs to heal your eyes? Right now I am using (in between my TCM herbs) some strong liver support herbs (a mix from the Western herbalist) and milk thistle. I feel whatever we have is in the liver and weakens it a bit which could explain why some folks have problems handling drugs and alcohol after getting M. Anyway, I sometimes had been having eye pain and decided to try these formulas. These grown in the USA herbs are wonderful and seem to be working a lot of the gunk out of my eyes (mornings are such fun. LOL). Anyway just a suggestion to help your eyes internally by treating the liver. Also there's a formula by Western herbalist which can be diluted and used in the eyes to strengthen them over time. I have posted this information in the past and it can be found on the eye thread (where I tried to bunch all information and suggestions from various members for the eyes).

Eye treatments--Member suggestions (permalink 1)

[MeaganM]

I have some funny idea that if steroids are taken and to turn off inflamation (stop immune responce) that is actually the perfect time to use the antibiotics. You may want to google (why use antibiotics with steroids) Then ( why shouldn't I use steroids with antibiotics)

Here is my idea, when the immune responce is shut down by steroids there is also a chance that the steroids work the same way on our invader, it may shut down their protection and then the antibiotics will have a better chance of a result, but again it has to be both the right steroid and the right antibiotic or other type of drug to do work.

It's funny you said that because my doctor wanted to give me steroids yesterday and after I turned pale, I explained that I had read steroids and Morgellons was not a good mix. He explained that steroids alone is not good but taken with the antibiotic, it allows the body's inflammation to calm down and let the antibiotic do it's job. I have still decided to wait a little while before taking it. At least until all blood test results are back and I know for sure that I don't have any co-infections like strongylodosis or something.

[janedoe]

anytime something doesnt feel right in your gut, a second, or third opinion is in order.. never take just one dudes word, but from what i know, steriods are helpfull, but like baraka says, not for long term.
listen to your guts, listen to your doc, ask questions!!!
personally, id do the steriod thing for temp, but only because you mentioned an accident? your body may need that boost, but listen to your guts.. ask questions...

[KiraErikson]

I had just discovered the steroid Clenbuterol for weight loss about a year before getting Morgellons. I found very quickly, that just one Clenbuterol pill would make my Morgellons explode and multiply exponentially (although sometimes the effect was delayed by a day or so).

I really think steroids feed Morgellons big time.

Fortunately, I have now reduced the morgies to a point that about once a month I take Clenbuterol (to lose weight) and then have to take massive amounts of Ivermectin to reduce the resultant more morgies. Not healthy but I'm vain about staying thin as I want to date and have a super low metabolism (can't have more than 800 calories a day or gain 1/4 lb. for each 100 calories extra).

It's the super low metabolism that made my immune system so low that it couldn't fight off Morgies after I was sprayed by an overhead plane spraying for mosquito control.

In general, I don't fully subscribe to the theory that when one is killing the morgies they come out in swarms, so keep using that treatment. Sometimes they do come out because one has taken a medicine they don't like -- but mostly it seems they become much more noticeable when one is feeding them with a treatment that doesn't really kill them but makes them more obvious.

To the extent a treatment causes a hexing affect, the morgies suddenly appearing should taper down within a couple of hours, and thereafter one should feel much better for a few days -- one should not keep seeing more morgies after the treatment. At least, this has been my experience.

[jeanlong]

ok thank you everybody for input, I do appreciate your thoughts.

Think sticking to the TCM herbs as they are helping, there are no complications, and the steriods idea - well - evokes a bad gut reaction to avoid them.

[jonsi]

I don't think pharmaceuticals work in the long run... they aren't gonna make the "M" go away.

jeanlong, I think natural medicine works best

In the white light,
~jonsi