My Treatment Experience

[columbinemarie]

I have been using a nutritional supplement, containing 3600 ppm of silver in distilled water, to treat my symptoms for nearly five months, and have met with some very favorable results.

However, in my first month of treatment, I discovered that topical use, while relieving most of my symptoms, spread new infection. *I started using the supplement both topically and orally, adding 10 drops to an 8 oz. glass of water three times a day. *When I stopped topical application, the spreading and appearence of new lesions ceased.

I continued with the daily oral dosages and within the first two weeks, my lesions began to heal, no spreading of new lesions was occurring, and the presence of fibers eventually diminished altogether. *Among other symptoms, joint stiffness and pain, lower back pain and swelling in my hands and feet actually subsided within 24 hours of the first day. *Crawling and "pins and needles" sensations in my arms, hands and feet were absent by the end of day one. * * *

In the fifth month of using the supplement, over a three-day period, I increased the amount I was taking to 7.5 ml (approximately 200 drops) in 4-6 oz. of water three times daily. *On the first day, approximately 10 hours after taking my first dosage and shortly after taking *my third dosage of the day, I experienced my first reaction which lasted for a period of about 1.5 hours. *Each following reaction occurred every several hours with the same sequence of symptoms. *I experienced and observed symptoms that resulted in purging and elimination through skin, scalp, mouth, tongue and lips, nail beds, tear ducts, and bodily waste.

Although the experience was painful and exhausting, I have had some positive results:

* * *- lesions healed faster and many were free of residual callus bed
* * *- remission was more stabilized and free of occasional "tweaks and twinges"
* * *- the burden of chronic fatigue lifted
* * *- the duration of symptom recovery was restored to normal or better overall
* * *- had a greater feeling of well-being
* * *- evidenced less scaring due to accelerated healing
* * *- fibers and other visual symptoms were absent

Additionally, my complexion and extremities are less riddled with tunnel/lesion scaring and discoloration as result of more aggressive healing. *I am no longer burdened with depression, hopelessness, chronic fatigue and brain fogging. *Intense sensations of crawling/pins and needles, chronic nasal congestion, blurred vision, and ringing in my ears have vanished. *I have seen improvement in my physical and mental health, as well as the quality of my life.

[Franky]

Well I am glad you are doing so well. Are you still on the NutraSilver or have you been able to get off it yet? Do the side effects lessen or do they persit?

[columbinemarie]

Thank you Bubba and Frank for your positive feedback and support.* I am doing very well right now and am continuing a maintenance level with the NutraSilver as a preventative measure.* I have not noticed any real symptoms since the purging and am keeping my fingers crossed.*

[pogue]

Hi, am new here but have been dealing w/ our syndrome for the past 7 years. Have used colloidal silver for 10 years as a mouth rinse and topcal antiseptic (it is one of the few natural substances that kill everything: bacteria, virus, and fungi).
Versus "morgellons", do not know.
If you are consuming large amounts of silver be sure to supplement at a different time of day with probiotics (the yogurt gang: Rhamnosus, Bifidus, Acidophilis et. al.) as it can weaken your "good" intestinal flora.

Waiting for that CDC report and not holding my breath!
Be well.

[columbinemarie]

Thanks very much for your input, Pogue. I am a fan of yogurt and have it added to my regular diet. My present maintenance dosage of the colloidial silver supplement is 10 drops in 8 oz. of water 3 times daily.

[pogue]

It isn't so much the yogurt (though the calcium is beneficial), but what ferments it. For years thought I was being healthy by eating Stoneyfield Farms Organic but, while it is the best grocery store-bought yogurt, it is now made from powdered milk!
Healthy eating is a pain in the arse these days...
Good health food places have nice yogurt (sometimes) and, perhaps better, are probiotic capsules. If you haven't heard of it, mercola.com is a good health site.
Be well.

[pogue]

Hi Bubba, thanks for the welcome.
On our "syndrome" -- well no relief from the gang that couldn't shoot straight: the current medical profession
(was always unenthusiastic about doctors since I had my tonsils out at ten).
I used to be the first one at the beach or pool or lake or whatever, but not with this. Main problematic areas for me are stomach, back of neck, top of head. The intense fibers come and go, but the red marks are always somewhere.
On my first and last visit to a dermatologist, when I explained about the fibers, got a smirk that really made me want to belt the guy one!
Be well.

[Franky]

Originally Posted by pogue

Hi Bubba, thanks for the welcome.
On our "syndrome" -- well no relief from the gang that couldn't shoot straight: the current medical profession
(was always unenthusiastic about doctors since I had my tonsils out at ten).
I used to be the first one at the beach or pool or lake or whatever, but not with this. Main problematic areas for me are stomach, back of neck, top of head. The intense fibers come and go, but the red marks are always somewhere.
On my first and last visit to a dermatologist, when I explained about the fibers, got a smirk that really made me want to belt the guy one!
Be well.

Welcome pogue, yup it probley one of the worse things about this disorder. You look for help and Docs smirk and lol behind your back. My close friend was told he had a metal disorder.

[columbinemarie]

Hi, Pogue,

I certainly understand your plight in seeking relief. I have traced my symptoms as far back as 1995 and possibly even earlier. I started with intense itching and burning on my upper right arm and later on my left arm not quite as intense. Thinking I had developed some kind of any allergic reaction, I tried everything I could think of. Eventually I had to refrain from wearing long sleeves, anything binding, stay out of the sun and away from warm environments, and I couldn't put any pressure especially on my right arm (llike sleeping on my right side). My entire routine began to change over a period of time. No more hot water in the shower and I had to change soaps, laundry detergents, skin care products, and the list goes on. I was treated with steriods (family doctor) and prescribed three different antihistimes which I took for over 2 years. Spent a fortune on remedies and medical advise to no avail like everyone else.

It was a mixed bag when I finally discovered that some of my symtoms were specific to Morgellons disease. My mother had e-mailed me an article in the local newspaper which described symptoms unique to the disease and specific to mine. I was overwhelmed and, at first, greatly relieved that I finally had an answer to my affliction. In the months to follow, in my quest for help and treatment, I still fought with fear, anxiety, felt isolated, hopeless and wondered to myself a lot of times if I was going crazy.

This disease is certainly not delusional, however, I can see (and have experienced) why some of us might think we are going crazy or feel frantic. For me, the craziness was not so much a result of the disease, but mostly because I met with a great deal of disbelief and found I had no support or resources in my community.

The last specialist I saw insinuated I was self-mutilating and wouldn't acknowledge the fiber samples I offered. I walked away insulted and angry with little relief, and thought if anything would make me crazy, it would be the fact that no one believes the truth!

In eight months of research, I have discovered only one other case of Morgellons in my area. Doesn't mean there aren't more.

My prayers are with you.

Originally Posted by bubba

found out that they are sending a task force of three to four different types of doctors to california

Hi Pogue,
Glad you joined the site.
7 years is a long time. How are you doing now? Have you gotten any relief?
Unfortunately, I am not holding my breath for the CDC, either.
Maybe someday soon....
Take care!