Have you been instructed to see a psychiatrist?

[Ahopeful]

no need to shout.

I was told by the dermatoligst there were no bugs, and that my lesions were folliculitis. I said why the itchy skin and biting sensations and he said "some people just have itchy skin." Hardly a satisfactoy diagnosis and my only treatment was antibacterial wash.

In his letter to my GP (i'm in the UK) he concluded my sympoms are "consistent with morgellons syndrome" and that if there is no improvement pimozide (an antipsychotic) may help. Many dermatologists without question categorise morgellons as synonimous with delusions of parasitosis. Because I had mentioned bugs I did not get a proper evaluation as he had pre diagnosed DP, so agree that mentioining symptoms only is a better way to proceed to avoid colouring a doctors view.

I have agreed to see specialists at a psychological centre and discussed my issues. After a long discussion they have not labelled me delusional but I went more for coping strategies. I am open to speculation on the cause of my symptoms and I would even consider trying their medicine just to see the outcome. The fact is many people with similar problems have been cured with these drugs and some people reading this will really have DP, and would have their life back if they complied. I'm not saying morgellons isn't real, just worth bearing in mind. I don't know what category I am in.

[zara cybele]

Kira, My heart goes out to you, for the poor way you were treated.

Eventually, they'll stop labeling people DOP when they see enough patients and start to get educated.
I went to a dermatologist last week and told him I felt itching, biting and crawling on me. He listened to my whole story and I think sympathized. I brought him an article to read which he glanced at.

He said, obviously you are more educated on this than I am, but I have nothing to give you to make it go away. What do you want me to do? I said, "I want you to talk with your colleagues, I want you to contact scientists, parasitologists and pathologists and get to work!"
He said to me, "There are many strange things out there like this disease where fibers..."
"You mean Morgellons," I said.
"Yes.
"And what do you think of Morgellons?"
"I just don't believe it."

I was flabbergasted. I wish I had my wits about me because I would have liked to ask just what he would say to the not quite 15,000 families registered with The Morgellons Research Foundation. ...I just don't believe you?!

He suggested I see the psych group of his organization and I politely declined.

I'm done with doctors.

[Enviro Girl]

I can only hope the AMA will someday ban Big Pharma from paying for doctors' continuing education training and there will be a hefty fine levied on any doc who misdiagnoses Morgies w/DOP. (no psych referrals, either!)

License Revocation would be nice.

Sorry for all the bad treatment by docs for you posters here...Glad you folks got yourselves better, anyway! Kudos!!!

[whrk]

yes, for the "sensations" in my head and for my anxiety. granted, i can be a high strung person anyway, but medicine is not going to make these feelings go away...but oh, how i wish it would.

[paddel]

Thanks kck for writing down your experience. It helps me to know that there are others that have had the same things happen as me. I

paddel

[belle9]

I was diagnosed by a Dermatologist with delusional parasitosis. I left her care the minute I felt that she was not taking this seriously. She did not suggest that but the partner of my primary doctor gave me anxiety medication after she read the first doctor's report. The DSM IV states that one must scratch marks but have NO sign of parasite infestation (paraphrased). If you have lesions caused from the bites, then you can't just make them yourself. Some doctors need to be educated, don't they?

Originally Posted by paddel

Hello all,

I was wondering if anyone here has been instructed by an md to go to a psychiatrist? Have you been told that you have delusions and need to talk antipsychotic meds. How should you proceed to talk to a psychiatrist without being taken as a mentally ill person.

paddel

[Enviro Girl]

From: U.s.: Been Unable To Work Since Morgellon's/want $?!!

Originally Posted by Enviro Girl

Social Security Disability Income/SSDI

If you are/were disabled from Unexplained Dermopathy A.K.A. Morgellon’s Disease, there is a national law firm that recently won a landmark case in Ocala, Florida:

John Weil, Esquire of the firm Crowe & Parody, LLC working with Trisha Springstead, RN on behalf of one of her patients recently won a retroactive settlement that paid SSDI benefits for years past!

We’d like to thank Judge/Justice Lantz McClain for saying Morgellon’s 4 times in court – that is progress unacknowledged and mistreated victims have been awaiting, for years!!!

Cases may be pursued in each & every U.S. State, Crowe & Parody has set up a hotline:

Ask for Yelinda (yo linda) 1-877-261-1947 x 8927

No up-front fee, they take a % IF your case wins.

If you have copies of your medical records, photos of extractions, lesions, sores, documentation/costs of treatment protocols/things prescribed over the years, call Yelinda and see what they can do for you.

You must have been employed at the time of disability/good work history prior and debilitated/unable to work due to ‘Unexplained Dermopathy’ A.K.A. Morgellon’s Disease.
*Must have been off work due to Morgellon's for at least one year.*
**PLEASE when calling there, stay calm, she will ask you the questions. No chemtrail talk or nanobots, please. We want to keep this law firm and do not want to scare Yelinda away or get them in the middle of a governmental quagmire. We want justice for sufferers, the more justice we receive for you, the more validation for everyone.**

Thanks and Congrats to Trisha, who’s been a warrior for and caregiver to Morgies, for years! Thanks to Crowe & Parody for going to bat for us!!!

[Dzana]

ahopeful .. what a news eh>>>

the thing is when I visited my 3rd derm he mentioned word bugs before me as in __ where r those bugs lets see>>>>>>>??????
they know they r just plain dumb I caught them lying how ?? it was simple -_ I saw 3 derms -- first took biopsy and saw me all in black specks circles etc i looked like bitten with 100000000 of bugs so no way she was telling me I was DOP they took instant biopsy and gave me Lymecycline -- she kept quiet about diagnosis ... second derm in another hospital accompanied with first derm gave diagnosis excorciated pruritus plus added some aquaous ( cant spell sorry) peppermint cream but thne it took 8 holy months to see Royal LOndon H. derms just to be told by psychiatrist working together with derm --- to take antipsychotic medc... my whole immune system is breaking down ------SO HOW CAN IT BE FROM LYMECYCLINE TO ANTIPSYCHOTIC DRUG LOL ... U KNOW SOMEONE THERE IN THAT CHAIN IS NOT DOING THE JOB PROPERLY but hey what comes round goes round..... or vice versa lol
i m trying to laugh but i m falling apart i dunno m i gonna wake up tomorrow so hell with all this NHS crap lying docs and garbage .........it is so sad very sad how human lifes r being taken so lately ___ THIS SHOULD ENTER GUINESS BOOK OF RECORDS -- MORGELLONS DISEASE AND THE way we r treated