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| Hi everyone. I am new to posting on the site but I have visited it several times in the past. I am in Canada. I have a working theory which I have developed over the last 3 years. I have involved several doctors, scientists and other professionals and have arrived at some conclusions. I based my own treatment on the research and have completely recovered and am now able to prevent any recurrence of the debilitating symptoms. I have been able to replicate my recovery in 3 other people which was effective in all cases and took approximately 1 month with no reccurrances to date. The problem I have is that only a total of four people have recovered form their afflictions with no recurrence but it has far reaching implications that cannot be proven without further data and assistance. I am asking for assistance in the form of information to prove this theory or at least move it forward so it can be better recognized in general as an illness that can be measured and cured. I have set up a separate email for anyone who may be interested in answering a few questions. Please email me at agneslewisinfo. It is a g mail address. I will check back to this site periodically but I am posting this world-wide over the next few weeks. Thank you. Agnes Lewis. |
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| Thank you for allowing me to be a part of this site. I posted the previous message about having a working theory that has cured me. I wanted to qualify my posting by saying that I have been suffering from this affliction for more than 3 years. I have been to see so many doctors that I lost count over a year ago. I had lesions, pains in my ears, itchy crawling feeling, eye discharge, panic attacks, felt like invisible bugs were biting me, vision changes, ringing in my ears, muscle pains, bumps and rashes everywhere, constant runny nose, constant flu like symptoms, insomnia, bleeding nose and ears, (more from lesions in the canal), genital issues, and so many more afflictions. I thought I was truly going crazy. No doctor was able to help me. In fact, I went through so many doctors, spent a fortune on medication, (anti-anxiety, tranquilizers, anti-depressants, sleeping medication, and much more), herbal treatments, lotions, vitamins, etc. I even moved twice, changed all my clothing, laundry detergents, etc. I followed all the advice found on the internet. During this entire time I kept a journal of everything. On those occasions when I thought I may be recovered I wrote frantically in my journal to see if a pattern would present itself. I am a research analyst. Nothing seem to cover all of the issues and no "cure-all" as advertised would work completely. I was so frustrated. About 6 months ago a came upon some new information. I looked into it further and found I had a possible explanation. With this possible explanation, I directed all my thoughts to investigating it further. I finally was able to conclude I was on the right track. When I started to feel better I pursued this even further and apply this info to myself. I never knew how feeling that good felt until I continued to improve. Today, I am at 100% with no recurrences, at all! I replicated the same path for three other people who were suffering and they are 100% today as well. I involved medical and scientific persons when I wanted to see if this could be replicated. I have kept excellent records of my findings, but I need more information. I do not want to be discredited before I can quantify this with more facts. I hope this is understood by all. If there was any other way to do this, I would. I do not wish this to be inflicted on anyone else nor those who suffer now to continue to suffer. What I want is to be able to present a Proven Theory of the cause, identification of the affliction, method of recovery and means to avoid recurrence. I want everyone to know that I would post this on the internet for all to see but I am hesitant because of the liability issues and not wanting to make others worse. I need to further investigate this matter. Your participation in providing me with information is so important. Thank you in advance. |
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| Hi, I do ask you to post this remarkable recovery protocol. Don't worry about liabilities. We are all adults here and take responsibility for our decisions. I find it difficult to understand where you are coming from and I am naturally skeptical with my guard up. Morgellons nearly wiped out my life in a very short time. All of my physical and mental abilities were rapidly declining. For many of us Morgellons sufferers, there may not be time to wait and so many are desperate and vulnerable like I was. Please stick around and help others like the rest of us do and please share what has helped you and the others mentioned asap in order to save lives. Thanks, cc btw. I am almost completely recovered in about 6 weeks using Dr. Staninger's Far Infrared and health protocol. I consult with her monthly and I want to share this with everyone. No secrets here. Healing Morgellons with Dr Hildegarde Staninger using FAR Infrared Last edited by ChatCat; February 20th, 2010 at 01:30 PM. |
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| What is the protocol you are using Chat Cat? Specifically, I mean. (I know you are using FIR. I am doing that too as are many others.) But what exactly are you saying you are doing that has just about cured you in 6 weeks? Thanks |
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| Hi Fracty, I am under the care of Dr. Staninger and using her F.I.R. When you work with her she will put you through an education that you never could imagine and pages and pages of nutritional hard work. It has cost me money but worth every penny. I spend 1 hr. daily in the FIR sauna and sleep on the pad also. The more you take excellent care of yourself the better the FIR will work. Also, I find that keeping stress level low is extremely important. I still have a few symptoms but now have hope towards getting my life back. How are things going for you? Are you feeling better? I hope so, cc PS. Here is a site that explains some of Dr. Staninger's products and use: fibers Her protocol is very involved and it is a lot of effort to follow but worth it. PSS. Here is some information that I found very helpful. Understanding what Morg is helped me to change my approach. This information is amazing and I believe very accurate: Dr. Hildegarde Staninger-environmental toxicologist Last edited by ChatCat; February 19th, 2010 at 01:58 AM. |
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| I want to mention that there are other protocols that work! I've never tried FIR, I've never talked to Staninger, Savely or anyone well known. I'm not comparing Staninger to Savely, I'd totally go with Staninger if I had to make a choice because... well ya'll know how I feel about pharmaceuticals. It also sounds fishy to me (too) when people "pop in" claim to have THE answer. Buyer, beware! itwl, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. Last edited by jonsi; February 19th, 2010 at 02:53 AM. |
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| Can we just give this person a chance before starting this again? How about realizing that some people might not understand how this forum works. Even older members had to take time to figure it all out. Please stop voicing your skepticism at least until after this person has had a chance to figure out how to post and see what she has to say? Give peace a chance. This is how it always starts and she hasn't even told us anything yet. PLEASE!!! Kritters |
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| Agnes, you can say what you think Morgellon's is about and what you and your pals did to make yourself better. I didn't spare on the details with my theory & allegations and ways to heal, as we know. We're all allowed to have our opinions and theories here. Tell us what ya learned, we're game...We've won the right to try to help ourselves, no worries! Welcome to the Forum - Happy Friday! Wishing global Butterflies!, |
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| Did I miss something? I was only expressing concern and my opinion. How would it "start something"? How did expressing my opinion have the potential to "start this again"? Can you please explain? Anyway, feel free to point out how you feel I am starting something and I will gladly change my post. I am happy to be a peacemaker while at the same time voice my opinions and concerns. Thanks, cc Last edited by ChatCat; February 19th, 2010 at 12:34 PM. |
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| I wasn't specifically referring to anyone, CC. I see concerns voiced in a cluster and I see trouble ahead. Why not just wait to see if there is something to be concerned about? Innocent until proven guilty, is all I'm saying. Kritters |
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