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| I think I have hit bottom. I have gone to a pool supply store and picked up a bag of Pool shock. Calcium Hypochlorite 78%. Then went to a health food store and picked up size 0 capsules. I filled one up about 3/4 way and set it on the bathroom counter. I drank two full glasses of water and waited about ten min. Then took the pill with a glass of water and waited three min. Drank another glass of water and put on some pajamas and am waiting to get sick. I too am at the end of my rope and have tried all the differant medical antibiotics I could take. Been at this going on five years. I am sick of being sick. I can't even get out of bed each day to get myself to work. I just want to lay down and give up. My body hurts everyday, my hair is falling out, I can't pee right anymore, my gut hurts like needles in the tissue, my spine hurts, my legs are in pain every day. It took me about four years of suffering before I bought a microscope and found the blue and red and black root system growing through my body. I say roots as it looks like plant growth or as they say agrobacterium. I don't really know what this is just like the rest of you but I do know it's tormenting me to the point I don't care to live like this anymore. It has robbed me of my personality, my friends, put me on the edge of bankruptcy seeking medical help and has jepodized my job. Whats the point of fighting so hard to hang onto a job to pay for a home if life as you know it was stollen away from you. I have read on the internet that the CDC knows what this is and it is 100% curable. Well if that were the case we would have been told by now and on our way to a normal life. I think they have not told the world what it is because they don't have a clue. Some may say they are lying or covering up something but I think they really have no clue as to what to do about it. So Pool Shock it is. They don't make the stuff for nothing. It's made to KILL. Might kill off what ever this is or it might kill me off but at this point I don't care. I halso read that the CDC will not release a statment until the end of 2010. Probably after elections. It makes me sick thinking about it. Another year!!!! |
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| LostinTime, I just prayed for you and will continue to do so. I don't want to say some false reassurance to you, but with all my heart I know that changes can happen very quickly. Things could change dramatically overnight. If even one person w enough public credibility comes forward to help us and to validate us, things could turn around 100%. Please know that you are cared about. Like someone said in the other thread, I am crying too just reading what you are going though. We have some bond to all be suffering through this together. I don't know if you believe in God, but I do and think He is very aware of what is happening to us. I think He is hurting with us too, but maybe He needed some of us to expose and stop what is going on. I wish there was something better I could say or do to help you, but I will continue keeping you in my prayers. |
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| Hi lost, You sound so very depressed to me. Is there anyone at all in whom you can confide? This disease is so very isolating to folks and I know we can be afraid to reach out to others. I hope you do have faith in God for as Fracty mentions this faith can help us along the hard path of Morgellons disease. God is always there, even when people fail us. I hope you will feel somewhat better soon. It is possible to feel better, even if not entirely well. best, tcm
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| Yes I am depressed, I am sick of fighting this with every doctor I have seen. I have central nervous system problems that are making me angery every day. It never stops and just won't leave me alone. No I do not have anyone to talk to about this except you people here. I have decided to go by way of pool shock as last resort. Nothing else seams to work. I have been a normal person my whole life and would have never thought of putting pool cleaner in my body for one min, but I just don't want to suffer anymore. Sitting around waiting for the CDC to come to my rescue does not sound like a very good plan. I know there are good people working for the CDC with good intentions at heart but they have dropped the ball on this for way too long. Something about this whole thing stinks and stinks bad! 1. How can something being seen by myself and doctors be delusional? 2. How can good medical doctors look at this knowing its not normal and dismiss it. 3. Why did it take some in Congrass to force the CDC to look into this? Thousands of people complaining of the same symptoms for several years, should have started an investigation long ago. The findings should not be held up or hidden from the public even if a solution was found or not. UNEXPLAINED DERMOPATHY????? Read the statment.... CDC continues to receive reports of an unexplained skin condition which some refer to as “Morgellons”. Persons who suffer from this condition report a range of cutaneous or skin symptoms including crawling, biting and stinging sensations; granules, threads, fibers, or black speck-like materials on or beneath the skin; and/or skin rashes or sores. In addition to skin symptoms, some sufferers also report fatigue, mental confusion, short term memory loss, joint pain, and changes in vision. DERMOPATHY???? Common!!! I can find it in my blood and semen with a $300 digital microscope at 40x and 100x. They can call it anything they want. They can blame it on global warming for all I care. BUT DON'T tell me im delusional and that there is nothing wrong with me! Yes I am angry and depressed. I needed to vent. Now its time for my pool shock pill. %#$@%$%# |
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| Dear Lostintime~ I can't believe I missed your posts. Be angry and be upset but don't give up. The rest of us have gone through this nightmare and are here to talk about it still only with hope and expectation that we will get through it. I am so much better now than I was last year. I was pretty much where you are now and it's an ugly place to be in. I was just watching a movie from Netflix called Griffin& Phoenix and it's about a guy who was just told he had 2 years to live tops. I'm only 1/3 into it but it gripped me so much I had to take a break and get back here to my Morgie family. I thought, so many people have cancer and their lives are over. We have this nightmare of a disease, but we are going to get better. It doesn't matter what the CDC comes up with....don't count on them. We need to be close to each other and research, share ideas and stories and our collective energy and intelligence will bring us through it. Hang in there with us and replace your anger with defiance and a positive mindset, okay? We WILL prevail and help others along the way. Kritts |
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| I totally agree w you LostinTime. Something is up w the CDC and others that they can totally ignore this when it is right there to see. Like you, I think there are lots of good ppl in the companies involved, but it only takes a few underhanded ones at the top to pull something off. I think they have conflicts of interests in cases and don't want to see the truth because it would be an inconvenience to them. Well, hang in there. I keep thinking things will get better for us soon. |
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| Hi all, L.I.T., We can all relate to what you are going through. My battle with Morg has taken over my body and brain but not my soul. My soul is in the hands of Jesus! My journey went from thinking Morg was a parasite and at that time I was using various methods to kill parasites. I tried NutraSilver and MMS1 and MMS2. They did help the lesions and brain fog. After speaking with several families who are completely recovered, I decided to consult with Dr. Staninger and use her Far Infrared along with her protocol to deal with Morg. I can now say that I have hope for full or close to full recovery. The activity in my nervous system and brain is the hardest, but I can tell it is diminishing. I also have Morg in my eyes. Things are getting much better and I can sleep now which I could not do before. I hope you will connect with Dr. Staninger. She is a very kind and knowledgeable doctor. She has helped many to recover from Morg. I have learned so much and now I know that Morg is manmade and not a parasite. Our opinions may differ about what Morg is and the important thing is that we improve or recover, not that we all agree. Please keep in touch with this forum. Great people here and you can improve as you connect with others here who have recovered or improved. God bless you, CC |
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