I NEED TO VENT: Doctors -- especially "experts"!!!!

[maryok]

Bubba,

I'm so glad you shared this -- I was actually going to email you tomorrow. I wanted to send the protocol to all the doctors I know for the sake of future Morgellons sufferers but wanted to check to see if it was ok first. Are we allowed to give Dr. H's protocol to people beyond our immediate doctors?

I so agree that THIS is the way we're going to have a major breakthrough. Just yesterday my mom had mentioned me to one of her doctors and he said he'd been hearing more and more about Morgellons and could he read Dr. H's protocol? It seems that in the past few weeks we've broken through a major wall.

Also, have to admit I'm going to get a GREAT deal of pleasure sharing this with the two doctors who diagnosed me with DOP!

[maryok]

Bubba,

I'm so glad you shared this -- I was actually going to email you tomorrow. I wanted to send the protocol to all the doctors I know for the sake of future Morgellons sufferers but wanted to check to see if it was ok first. Are we allowed to give Dr. H's protocol to people beyond our immediate doctors?

I so agree that THIS is the way we're going to have a major breakthrough. Just yesterday my mom had mentioned me to one of her doctors and he said he'd been hearing more and more about Morgellons and could he read Dr. H's protocol? It seems that in the past few weeks we've broken through a major wall.

Also, have to admit I'm going to get a GREAT deal of pleasure sharing this with the two doctors who diagnosed me with DOP!

[ladycolorado]

Originally Posted by bubba

I want to chime in here again...
Since I have gone back to work, several of the doctors that I asked to help me in the beginning of my illness were very shocked to see me back, healthy and lesion free. One of them walked up to me, threw his arms around me and told me he was so glad to see me back. Then, he pulled me aside and quietly asked me "what I had". I told him "I had the same thing that I told you about when I handed you the information for you to read 8 months ago". He looked ashamed and confessed that he never actually read the information. Rather than having a bad attitude towards him, I warmly told him that I had a new emerging disease called Morgellons and I went to a specialist to treat it. About an hour later, he came looking for me and asked me if I could give him copies of the paperwork I had given to him 8 months earlier. He said he had a few other patients that were displaying similar symptoms as mine. I immediately went to my computer and downloaded every piece of information I could get for him. He told me that he wanted to look it over and left carrying about 40 sheets of paper.

This is the way we are going to get the info out so that others behind us will have some help come their way. I am walking proof that this was a disease and once it is treated, I am back to normal. He was absolutely amazed at my recovery. I am certain that he will be contacting these other patients. He has made his way to see me nearly every day that I have been at work. He takes me to the side and "picks my brain".

I have been told other stories similar to mine from other members of this forum. PLEASE print out Dr. Harvey's treatment protocol, Letters from the MRF, and Ginger Savely's article and hand them to every doctor that you visit. They may not read them at the time, but they WILL later. This information will give them a guide to follow on how to best diagnose and treat Morgellons.

this is great news! bubba i am so proud of you. if possible, do you think i could have the links for the protocols and such via private mail or if could post them for me i would be eternally grateful. the reason being if my mother gets sick from sharing this environment her doctor, dr. walker is open minded to morgellons disease. i have instructed her that is she at some point in time does get sick, to tell her doctor to NOT get a referral, as i don't wish her to get a dop diagnosis. in other words, i wish to possibly see if mom does get sick to make good out of it and maybye get a good doctor to help us in Tennessee. have you found any good doctors in Tennessee? there is a member in here who has had this for twenty years and only has tenn care. if possible i would like to help her get treament from somebody compassionate. i think about her daily. you may pm me if you have found anything. i do think that like your friend who sheepishly admitted that they initially had not read the information you had provided, this is why we are having trouble. unfortunately we have a strange disease that is hard to believe in because of its strangeness. a vital lesson i have learned is that strange things happen with a low immune system. as far as the kind way you handled his confession and got him to finaly read the information, BRAVO! (LC) p.s. i am so hapy you are working and that your child is doing well too! hurray for the good docs!

[ladycolorado]

Originally Posted by bubba

I want to chime in here again...
Since I have gone back to work, several of the doctors that I asked to help me in the beginning of my illness were very shocked to see me back, healthy and lesion free. One of them walked up to me, threw his arms around me and told me he was so glad to see me back. Then, he pulled me aside and quietly asked me "what I had". I told him "I had the same thing that I told you about when I handed you the information for you to read 8 months ago". He looked ashamed and confessed that he never actually read the information. Rather than having a bad attitude towards him, I warmly told him that I had a new emerging disease called Morgellons and I went to a specialist to treat it. About an hour later, he came looking for me and asked me if I could give him copies of the paperwork I had given to him 8 months earlier. He said he had a few other patients that were displaying similar symptoms as mine. I immediately went to my computer and downloaded every piece of information I could get for him. He told me that he wanted to look it over and left carrying about 40 sheets of paper.

This is the way we are going to get the info out so that others behind us will have some help come their way. I am walking proof that this was a disease and once it is treated, I am back to normal. He was absolutely amazed at my recovery. I am certain that he will be contacting these other patients. He has made his way to see me nearly every day that I have been at work. He takes me to the side and "picks my brain".

I have been told other stories similar to mine from other members of this forum. PLEASE print out Dr. Harvey's treatment protocol, Letters from the MRF, and Ginger Savely's article and hand them to every doctor that you visit. They may not read them at the time, but they WILL later. This information will give them a guide to follow on how to best diagnose and treat Morgellons.

this is great news! bubba i am so proud of you. if possible, do you think i could have the links for the protocols and such via private mail or if could post them for me i would be eternally grateful. the reason being if my mother gets sick from sharing this environment her doctor, dr. walker is open minded to morgellons disease. i have instructed her that is she at some point in time does get sick, to tell her doctor to NOT get a referral, as i don't wish her to get a dop diagnosis. in other words, i wish to possibly see if mom does get sick to make good out of it and maybye get a good doctor to help us in Tennessee. have you found any good doctors in Tennessee? there is a member in here who has had this for twenty years and only has tenn care. if possible i would like to help her get treament from somebody compassionate. i think about her daily. you may pm me if you have found anything. i do think that like your friend who sheepishly admitted that they initially had not read the information you had provided, this is why we are having trouble. unfortunately we have a strange disease that is hard to believe in because of its strangeness. a vital lesson i have learned is that strange things happen with a low immune system. as far as the kind way you handled his confession and got him to finaly read the information, BRAVO! (LC) p.s. i am so hapy you are working and that your child is doing well too! hurray for the good docs!