i think i might have morgellons

[Newbiewilliam]

my name is william, i am 29 years old and i think i have morgellons.

right now i have the feeling of crawling all over my back, chest, head, and to a lesser degree legs. I have black and silver hairs coming out my body in some places, and when i tweeze them out they have like black specs attached, or black specs come out. I also getr black specs on my skin, and tiny red dots all over my body, not noticeable. I recently looked at the specs, and a hard thing i took out of my leg under a microscope and it look similar to pictures i have seen online, and the symptoms are similar too.

This past may or June I started getting this crawly feeling and intense itching and black specs with the feeling of being bitten, pain in my right shoulder, as well as red spots on my body and alot of what looked like ingrown hairs that i took tweezers to and thus had sores on my body. they were small enough that nobody can see them. At the time i went to the doctor, many doctors and was diagnosed with Scaies, body lice, pesticide poinsoning, and was even told teh crawling feeling was psychoscmatic. I woudl take samples to people, from my skin, even out of my temporary colsotomy bag, no one woudl look at them. I went to an er many tmes, but once i even went because i coudl see black things under my skin, theyy did not seem to care. Anxiety he said due to scabies. I did not know what to believe. I had been very tired and fatigued for some time, i figured it was teh anemia i have.

I had just had surgery in April as they found dysplasia in my colon and i had Ulcerative colitis for 11 years (removal of my colon, the 1st part of a 2-part surgery), had been spraying my aprt for bed bugs < i was doing it personal with some industrial strentgh stuff and definetly used too much> and due to teh uc had been using prednisone for years.

In my search for something to fit my symptoms, i was worried about everything from sand flys to stap infections, i turned to the website and found pictures and the MRF website. While my symptoms were not as extensive as someof teh pictures i became worried about having this. I would ask doctors about it and they woudl say that it is very rare, or not knwo about it.

i began taking cipro for a bacteria infection<more on that later> and acyclovair because years ago i had been diagnosed with shingles and some of teh feelings were the same, as well as permitherin for scabies, which was part of the pesticide poisoning as i used way too much of that too, i then used different staeriod cremes for the sores, they worked some and benadryl for the itching and creepy crawling feeling. I was in a rush to clear whatever i had up as i had to have another surgery in July. The perimethern hurt really bad when i put ut on, like a million bites, and i swear the first time i put it on it looked like things were moving and i woudl try and pick them out of my skin. The week of my second surgery i saw an infectious disease dr to clear for surgery, i asked about morgellons, he said the weird red lines on my skin was viruses and that morgellons he had heard of but was very rare, and that i did not have scabies at that time.

That week of my surgery I was ok, no itching, no creepy crawly feelings, no more black specs or haairs, but i did shave all teh hair off my legs and chest, and got a haircut alot shorter. so had teh surgery discharged in 3 days, and back in the hospital 3 days later, with a partial blockage, while i was there they found, after my begging for a test, a bladder infection. i was upset, this was my 3 positive test for a bladder infection, luckily the dr did some more research on my result, i had a MERSA staph infection in my bladder. so I took a 14 day tract of vancomycin and it cleared up. That was done early last month, 3 weeks ago at least. i mention this because that whole time and the weeks prior <roughly 1 month total> i was symptom free. i began to chalk it all up to pesticide poision and a mental issue with the bugs. I moved apartments and was living very nice, until i began to have some problems with my stools and skin on my buttocks and around my groin, but my dr gave me cipro, again now for teh 3 time this year, and a creme that has been working on teh rash and itching. i also increaed my metamucl intake and immodium. things were back on tract.

Then last week i started feeling the formication <creepy crawly feeling> and what felt like fleas jumping off my legs. But i was teh only one in my home who felt it. so i still had some lice wash used it and my skin felt better for a few hours, but i started to see alot of black specs, and the prvious week i had pulled this weird crystal like thing out of leg. put them both under a microscope, to my horror they looked like some stuff i have seen online as morgellons. my primary admittedlty does not know what to do, he doesnt say i am wrong, but he has no clue. Infectious disease dr's will not see me, my derm already said it was in my head, even the one who helped me for the mersa. I have one dr pending, at UM. we will see. i have read that some lyme disease medications can help.

i am very scared there is so much info out there, scary pictuires of people with lesions on their body. I am not there, but if this is progressive & me only being at maybe the 4 month at the longest have alot of painfully scary and uncomfortabel thinsg to happen yet. the loss of vision, worms and bugs coming out of you hairs out of my eye and issues with my brain.

I am back on ayclovair as it may have helped last time, i do not know, and take benadryl-doesn't help, right now my most annoying feature is the formication. i am scared that i have this disease/syndrome and that i will wind up like some of teh pictures i have seen. and there is nothing i can do about it. i woudl like to have a dr helping me with teh symptoms. i have never been a big person on herbal remedies, i am in south florida and so far the only dr i have seen that is morgellons literate or might be able to help is in tampa dr. cheryl reed. definetly considering seeing her, and going to a psychiatrist to see if i have delisonal pariositis, if nothing else to see if risperdone can help the formication. but i am scared of the rest that has not happened yet, and that my kids and wife can get this.

ps: the formication seems to be more bearable if i am not thinking of it. but obvioulsy this is all i can think of right now

[meowtron]

If i were you would defiantly not give up on trying to find a doctor that will really pay attention to you. I have come to find that today doctors don't listen to there patients. I think u defiantly have something wrong with you i really doubt that its all in ur head. I did some research on Morgellons and a lot of what you said sounds like u might have that or some other skin problem. Some of the symptoms you have might be because ur so freaked out but if ur pulling weird things out of ur skin then there's something wrong. plus i read that there are a lot of cases of Morgellons in Florida and that most people that have it are misdiagnosed most doctors just saying is psychological. trying doing what ever you can to make ur self more comfortable in ur skin. and i would say to try and disinfect ur house as much as possible vacuum everything and dust everything. i read that the bugs that come out of the skin can live in ur home they like damp areas like under sinks and what not, so maybe try to start there investigate any damp areas in ur home and cream them? maybe try cortozone cream for the itching? and u said u dont have lesions yet? well i read that it said most of the lesions were self inflicted from scratching so much. so maybe thats why u dont have any? I looked up home remedies for you scene u arnt getting any results from doctors here they are hopefully one of these will help you.

Morgellons is a skin problem that appears as either rashes or as lesions. When you have Morgellons you often feel sensations of bugs crawling, biting, and stinging around the affected areas. Sometimes you also have a problem with fiber like or crystallized stuff around the affected area or you may be able to pull them out of your lesions.



When you have Morgellons you may find that you can’t find a physician or a doctor that will treat it. This is because they don’t recognize it as an actual disease. It is fairly new, that’s why it is such a problem. Normally a doctor will treat you for Delusional Parasitosis or as an “infectious disease” instead.



Now don’t be discouraged, it is possible to treat them without a doctor. There are a few known Morgellons home remedies that can help you to control this terrifying skin problem.



First, you might try a parasite zapper. Though there aren’t really any conventional medications that you can take for these, low doses of electricity could possible neutralize the parasite that is causing your problems. This should give your body enough time to push the parasite out before it can cause more damage, this is the theory.



Alfalfa baths are another common treatment. It is reported that taking alfalfa baths can heal the morgellons lesions. In some cases the itching stopped, the feelings of bugs crawling on the skin stopped, the lesions and rashes healed, and it never came back.



In some cases a paste is made from some bentonite clay. People claim that their lesions clear up shortly after applying this paste.



Xango mangosteen juice is another thing that is recommended for Morgellons disease. It helps to treat many of the things that are common in the Morgellons skin disease. It is supposed to reduce the inflammation, clear the brain fog, relieve the muscle twitching, reduce the pain, and reduce brain damage.



Another thing used, as odd as it sounds, is mustard. Some people who concluded that their homes were the cause of their infections, so they spread mustard powder everywhere. The results were that once the lesions healed, they didn’t occur again.



There are also low pulsed electro magnet fields, or PEMF. They are supposed to be able to neutralize the causes of Morgellons. The big problem with these is that there is no specific way to apply it. If you were to do this wrong then there would probably be no results, but be careful because bad results are also possible. If you are interested in this you should do a little of your own research. The website EarthPulse.net has a device that can be used, but you should look before you decide.



With any treatment that you choose, you will need to watch for any bad effects. Though some of them are harmless and may actually have other health benefits, some of them can cause worse effects. You should also be careful about things like allergies and make sure that you don’t have one to alfalfa should you decide to take an alfalfa bath. Undergoing these treatments even when you are allergic to them could cause you to be worse off than you were before hand.

[Kritters]

The lesions are NOT self inflicted from scratching too much. People scratch BECAUSE of the lesions and what is in and under them.

[Jo]

Hey William,

Morgellons isnt necessarily 'progressive' - in fact most, if not all members here get heaps better not worse once they begin treatments (most of them natural remedies).

Meowtron - i get the feeling from your first post that you don't have morgellons?

Jo

[Baraka Obam]

Wait i will put my Morgellons hat on, it is a natural treatment hat. Keep on with the doctors and come close to DEATH. they brought me there and they have brought others there. I was not so quick to rant and rave about all the symptoms as they would label me INSANE!!!!! That I may be,LOL but I do not want a label. If you ask me your a classic case, most of your problems spured on by DOCTOR DRUGS get on board or watch as you get this then that then this then that again. Your wife will have it and most likely your child already, BUT your the one with the symptoms. This is a long term disease those red dots didn't pop up in one day. If I were you I would start taking some 2 box baking soda baths and rubbing your skin with GRAPEFRUIT SEED EXTRACT. Get some DMSO and go up and done the spine with it, the stuff lives in spinal fluid. You should feel some wild stuff going on in the back. Be careful with DMSO, just wet the skin all the way down the back up to the bottom of the hair line. You will see this puts them on notice,lay off worrying the whole family, you need their care not their fear. I have had this 38 years. It got worse 7 years ago, real worse.