Morgellons products that are working for me

[katie]

Hi,

I have been visiting this site as a guest for a while, but have been kind of shy about joining because I don't feel like I have much to contribute. I have had Morgellons for a long time, about 5 years. I don't know where I got it, but I am certain that its the same thing that others on this site are describing. I've mainly been dealing with painful skin sores with lots of fibers in them and extreme exhaustion. I am so glad that I found this site because I was terrified about what I was dealing with and I felt very alone. I want to thank the people who took the time to publicly share the products, treatment suggestions, and ideas that helped them cope with this disease. I have been using the MSM. It seems to be helping a lot. Thank you for posting this idea. I've also been using the peroxide and salt baths, they help my skin to heal when it is very bad. I was using Eco-Vie and DSP for a while, but I guess the companies that make it stopped for some reason. I also tried the diatomacious earth. I made a paste out of it by adding a little water and I put it on my sores. It helps dry them out. I recently started using another cream called No Mor Gellons cream and I think it is really helping my skin improve fast. Since I started using it, I don't have to use the other products as much, which is good considering I am low on money. Has anyone else tried this cream? I have not read any posts about it. If not, since everyone else has shared helpful ideas, I want to offer it as another idea to try. I hope its okay for me to post the name of the site where I buy it. I get it from Gene's All Natural Products.

I have learned a lot from the members here and I cannot thank you enough. I'm no longer frightened, instead I feel like I can beat this or at least keep it from getting out of hand. One more thing, I want to say a very special thank you to the person who made this site, I think his name is Franky? You have really helped me through some tough times by making this site available. Even though I have never met any of you, I consider you to be my friends. I am looking forward to learning more from you.

Thank you again,
Katie

[gigi22]

Hi Katie.. Thanks for joining and sorry you have to be with us in the first place, but thanks for letting us know what treatments are working for you. Don't feel you can't contribute.. just letting people know what treatments worked best for you will help someone else along the way.. obviously treatments work differently for different people.

I, too, was very terrified at first.. I had all kinds of uncertainties (is this contagious? would I still be able to work? would I ever be able to see my family again without fear of spreading this? etc), and with a significant other who was non-believing, it was really tough!

This was the first forum I joined, and everything got better from there.. You *can* get your life back! There are plenty of examples of it here on this forum. It helps to understand what others are going through to help let you know that you can get through it too....

welcome! Ask any questions that you want! we are here!

[katie]

hi gigi22! I have been browsing this site since I posted and there is soooo much more to it than I thought. Browsing it as a visitor does not give you access to everything. Thanks for your encouragement!

[katie]

I need to make one correction. I have been using MMS, not MSM. Sorry

[gigi22]

I know when I was reading that... I even though to myself.. "she must be talking about MMS...".. because I take MSM, and I wouldn't say that it helped me THAT much

[katie]

my bad!