Living with Morgellons-Treatment Suggestions

[sammy]

tcm. This was a great article. thank you sammy

[losing_everything]

I used a lice or nix peppermint spray. Ever since I used it my episodes have really declined that’s when I found the specimen. My grandfather (on his back) and my cousins boyfriend (on his chest) have unexplained rashes both docs sd they weren’t sure what it was so they had to go to derm who did cultures and sd that he should use head and shoulders or seltson blue from head to toe rubbed n like lotion and left on over night, which I don’t recommend the length of it bc it burned the crap outta my face but the rest of my body was a little dry but not burned. If you can handle the few days of discomfort then I highly recommend you use it.

Here’s a list of what I’ve used....
1.Cyanne pepper powder and apple cider vinegar in bath....burns quit a bit (no successful outcome for me)
2. peppermint liquid in warmed apple cider & splash of apple cider vinegar (no successful outcome for me)
3. Baking soda baths and baking soda paste applied before them (helped some)
4. Tea tree oil baths, shampoo & conditioner & lotions (nice outcome but dry skin while using it)
6. neem oil baths ( couldn’t tolerate smell made me vomit when even getting close to bathroom)
6. Fresh squeezed lemon & lime in water sprinkle of cayenne pepper (no successful outcome for me)
7. calamine lotion clear during summer when going outside pink in home it seemed to work better (once all over my body by morning nothing new but skin was easier to tear but did provide relief)
8. 1 a day womens vit (puking every time after)
9. Permethin spray around baseboards (no help)
10. peppermint enzyme spray from head to toe allowed to dry get n warm shower lather hair first then rinse pay close attention to bottom of tub for anything foreign then focus on each section of the body separately.
11. citrus people & pet friendly enzyme spray on furniture, cleaning, carpets, clothes before and after wearing them, sheets every night, hypoallergenic
12. vitamin b12 for blood & vitamin c for health and immune system
13. Head & shoulders rubbed in like lotion from head to toe starting at feet and go up blow dry when applied face last! (use your own judgment on length to leave on mine was 8 hrs) might give dry skin or even burn wash off immediately if u feel this I didn’t!
14. clean laundry in Laundry soap and 1/2 cup borax hot water high heat in dryer (i dont use fabric softner would rather wrinkles vs chance of irritation to skin)
15. use desitin on sores (foreign objects come out of sores & helps w/ healing if u can handle looking like a walking babys bottom of course only while at home

Well Ill tell u something helped!! whether it be antibiotics which I doubt it considering this is the 6 time n 6 mths I’ve been on 1 the 2nd time for this specific 1 and anti depressant or if it was the vits and head and shoulders

BUT I REALLY THINK I DID IT THIS TIME!!!!
Symptoms are very minimal. Surely the docs will believe me considering the scars and few healing sores left...UH OH maybe I should have waited but I didn’t have high hopes anything would help considering everything I’ve done before!

If I can figure out how to post pics I will get my pics up from then till now... thank you all for your support and advice hopefully someone else can find relief thru my story and independent treatments as well as from the rest of you as much as you’ve all helped me. As I’m sure this isn’t the end for me and I expect to have more episodes but I will continue with the daily vitamins and coming here for support. I pray the docs don’t turn a cold shoulder on me for trying to help myself and hopefully succeeding

[xiblanque]

Originally Posted by losing_everything

11. citrus people & pet friendly enzyme spray on furniture, cleaning, carpets, clothes before and after wearing them, sheets every night, hypoallergenic

That is Great Ellie!!!
I love how you've listed your treatments and written whether or not they had any positive effect.
This Citrus enzyme... is this the $3.00 per 32 oz bottle one you've written about? What is the name on the label? Sound great. Some big box Petstores have many different cleaning enzymes that read safe for pets and children. These may be cheap alternatives to namebrands available online. I have lingered in these stores doing spot tests on my wrists before and have used some. I like !Out International KPETS Pet Supplies| Dog, Cat, Fish, Bird and Small Animals
but my local Big Box stopped carrying it.
Nice Post
Xib
yeah...Neem is kinda stinky!

[losing_everything]

Originally Posted by xiblanque

That is Great Ellie!!!
I love how you've listed your treatments and written whether or not they had any positive effect.
This Citrus enzyme... is this the $3.00 per 32 oz bottle one you've written about? What is the name on the label? Sound great. Some big box Petstores have many different cleaning enzymes that read safe for pets and children. These may be cheap alternatives to namebrands available online. I have lingered in these stores doing spot tests on my wrists before and have used some. I like !Out International KPETS Pet Supplies| Dog, Cat, Fish, Bird and Small Animals
but my local Big Box stopped carrying it.
Nice Post
Xib
yeah...Neem is kinda stinky!

Citrus Magic is the name and they have it in powder form for litter boxes main ingredient is borax. I got it bc it was in the cat section and cats are very sensitive to most anything so i figured y not! it is nice! Just ran out and going to get more but the head and shoulders for the body I swear by it!!!!

Jess

[tcmgpt13]

Yet another agenda post. Sigh.

Originally Posted by kmtasich

Hi everyone!

First I would like to thank everyone in the morgellons comunity for all the advice, e-mails, phone calls, etc....

My wife and I both suffer from this disease, however she has suffered a lot worse than i ever have. Serious skin leasions,brain fog,severe joint pain,depression,and chronic fatigue (bedridden for 6 months). I spent hours on research and at first thought we had skin mites of some type. Of course treated with premethrin cream and no help, then ivermectin no help. Finally found a web site dedicated to stopping skin mites and decided to try some of the products she recommended. Plus she told me of a natural Dr close to my home who might help us also.

After reading several books by Dr Hulda Clark and Dr Overman I decided on a course of action that we are currently in our fourth week of treatment. Not only treating ourselves but our environment too. I was totally against any harsh chemicals and wanted to do everything as natural and chemical free as possible. We have a 12 year old son and 4 pets so I ddid not want to harm them in any way.

We basically are doing the same thing as most everyone here is by detoxing our bodies, boosting our immune system, we did decide to try a electronic zapping device( totally sold on this and think it works great ) again our choice not trying to sell or promote anyones products just sharing what is working for us.

We use arbonne body wash to stop the severe itching (works immediately!) then allow a light coating to dry on skin after shower. Then coat body with arbonne sunscreen it keeps anything from attacking the body. Foe lesions I start with cats claw tinture and a product called skin clear from precision herbs, then zap the body for 20 minutes. I then apply a coating of Cotz 58 sunblock to the lesions and lightly tap Gold Bond powder( Blue bottle ) to help keep coating in place. We do this twice per day and add any body wash as needed for itching. This works better than any other product we tried and tried them all from 5 different doctors and other recommendations nothing stopped the itching except the Arbonne body wash (at least for my wife anyhow I never itched like she did ). As of today her lesions are almost completely healed in 3 weeks time we have entered 4th week of treatment.

Also seeing Dr Overman and following his protocols for detoxing the body and boosting immune system. We each are on different protocols based on individual needs. We are very happy with results so far and are truly blessed that we can afford to do it.

We treated our home and clothing with cedarcide products which are 100% natural ans safe for humans and animals. We followed the protocol exactly as instructed and so far everything is working. Also use diotamascus earth as a natural parasite killer for our pets and ourselves too along with The Dr's recommendations. Our pets have stopped scratching the itching is gone and my wifes horrible lesions have almost completely dissapeared.

We intend on following through with Dr Overman untill overall health is as close to 100% as possible. We changed our house cleaning products to 7th generation. Plus altered our diet as suggested staying away from GMO and processed foods. No sugar! Basically and Atkins style diet with all the supplements needed for proper nutrition.

None of this would have happened for us if it weren't for everyones help and advice. We still not completely healed but I am very happy so far. My wife is up and moving around and starting to feel human again. I'm sure will take a while for her to get strength back 100% but thank God she is doing so much better!!! I am keeping a journal which includes everything taken and eaten on a daily basis so maybe someone could use some of the methods or find a less expensive alternative.

God Bless all of you, we will always have everyone in our prayers! We are truly blessed that because of people we have met on the internet with Morgellons led us to a treatment that is working for us. Thank you all so very, very much.!!!!!!!!!!!!!!!!!!

Kevin and Michelle

[morgellonsirl]

Hi Everyone,

Kmtasich, I am delighted you and your wife are better. Its great to hear what treatments have worked for people, especially positive feedback, as its hard to get an understanding of what Morgellons actually is, especially for newbies.

Regarding my own Morgies, I was hoping I did not have Morgellons as I was better for a while, but I did still notice the muscles spasms spreading throughout my body . Over the last few days the crawling sensations have come back over various parts of body, so now presuming the muscle twitching was the bugs or whatever they are spreading over my body and now the crawling is the hatching?!?! . We still have black and white specks and carpet lint type thing coming out of skin, but thankfully no new lesions, just little scabs appear and the odd burning sensation. The other thing is, I don’t see any fibers, which is symbolic of Morgellons. Are there other skin diseases that have the symptoms I have mentioned?

One other thing I noticed one time when I was having lots of twitching on my shoulder blade, I really focused on the area twitching and realised it was not just the muscle twitching, but I could actually feel the sensation of a few bugs or whatever they were, hopping on the muscle in that area causing the twitching. I know it sounds weird, but I am coming to the conclusion the muscle spasms are actually the bugs?!?!?.

Anyway would love to hear from anyone who understands what the muscle twitching is, to get an understanding of it?

Hope you all have a great New Year and 2011 brings some hope for Morgellon sufferers!!!

All the best,

Laura

[kmtasich]

The only agenda I have is to see my wife get better and to protect my family. Just sharing a few things that have worked for us. And believe me I was very sceptical about everything at first. But after seeing the results which basically are what everyone is doing I just chose a path of profesional help and wanted the best products I could find for my wife and to keep our family safe. We tried everything conventional dr's and dermatologist's wanted us to do anti-biotics every cream imaginable. Anti-parasite treatments you name it we tried it. Plus a lot of things I saw on websites. Then i stepped back read some books and found what I consider reliable advice and came up with a plan for treatment and it is working. So say what you will my wife is out of bed after spending 6 months there. And that is all that matters to me. There is nothing you or anyone can say to me that will change what I am doing. And I am not promoting anything! Just sharing what is working for us. Unfortunately it is not cheap because insurance does not cover it. But if I did not have insurance regular dr's and prescriptions would cost a lot more then what we are doing now. So to me worth every penny. I would spend my last penny trying to cure my wife, fortunately that is not going to happen. Who knows maybe will come back someday? I don't know, but I will do whatever I can to prevent that by making lifestyle changes,diet, etc...

It is truly sad that just because I am new here automatically some people assume I am promoting something. I am just following what I have read by the Morgellons community(not just here). Dr clarks on natural healing methods and using totally organic cleaning products and the best organic pest control I could find. And it's working for us so far.

I still will continue to pray for everyone with Morgellons and hope they will actually come up with it's root cause and formal course of treatment for everyone. I think it is a man made issue caused by many different factors so we may never know and I'm not waiting on them to help my wife and family. I know a lot of people don't have a lot of money in these tough times, we are blessed after working for 30 years we accumulated a nice nest egg towards retirement so I guess it is easier for us to do it the way we are.

God Bless everyone and hope everyone gets well soon!!

P.S. I have plenty of money so I don't have to sell anything or promote anyones "snake oil"

[Dzana]

the thing about TCM is that she wont even apologize she keeps on and on .......


she needs this to justify her own vision... and her vision creates division........... we have seen these personality traits all over the worldddddddddddddddddddddddddddd lol ........ hey check out this tune..... by SLovenian group Laibach it is in German ......... alle gegen alle.........


all against all......... everyone against everyone....... and u gotta spot personality trait that supports that.......TCM is indeed ..........


wot a life........ sooner or later it becomes obsession when person cant even recognise own failures and mistakes....... in order to justify oneself..........in order to be UBER ALLES

[morgellonsirl]

Hi kmtasich and anyone new reading this,

I have noticed a lot of negative responces to peoples posts and being new to this site, was quite shocked that people were behaving like absolute bullies in a site that is supposed to help people. It seems there are a few people here who are very angry and who want to vent their anger at people. They are only a few and there are so many lovely people here too, who are going out of their way to help people, so dont give up on this site.

Its important for people just to ignore the "grumpy" people and if they get any negative posts in responce to their post just ignore them. Its important that everyone should feel free to express their feelings without being judged or ridiculled by anyone.

Laura

[tcmgpt13]

Yes, agenda, that's what I said. For someone who's recently ill, you surely have done a lot of different treatments with quick results. Oh, I bet you do have plenty of money.

Originally Posted by kmtasich

The only agenda I have is to see my wife get better and to protect my family. Just sharing a few things that have worked for us. And believe me I was very sceptical about everything at first. But after seeing the results which basically are what everyone is doing I just chose a path of profesional help and wanted the best products I could find for my wife and to keep our family safe. We tried everything conventional dr's and dermatologist's wanted us to do anti-biotics every cream imaginable. Anti-parasite treatments you name it we tried it. Plus a lot of things I saw on websites. Then i stepped back read some books and found what I consider reliable advice and came up with a plan for treatment and it is working. So say what you will my wife is out of bed after spending 6 months there. And that is all that matters to me. There is nothing you or anyone can say to me that will change what I am doing. And I am not promoting anything! Just sharing what is working for us. Unfortunately it is not cheap because insurance does not cover it. But if I did not have insurance regular dr's and prescriptions would cost a lot more then what we are doing now. So to me worth every penny. I would spend my last penny trying to cure my wife, fortunately that is not going to happen. Who knows maybe will come back someday? I don't know, but I will do whatever I can to prevent that by making lifestyle changes,diet, etc...

It is truly sad that just because I am new here automatically some people assume I am promoting something. I am just following what I have read by the Morgellons community(not just here). Dr clarks and Dr Overmans work on natural healing methods and using totally organic cleaning products and the best organic pest control I could find. And it's working for us so far.

I still will continue to pray for everyone with Morgellons and hope they will actually come up with it's root cause and formal course of treatment for everyone. I think it is a man made issue caused by many different factors so we may never know and I'm not waiting on them to help my wife and family. I know a lot of people don't have a lot of money in these tough times, we are blessed after working for 30 years we accumulated a nice nest egg towards retirement so I guess it is easier for us to do it the way we are.

God Bless everyone and hope everyone gets well soon!!

P.S. I have plenty of money so I don't have to sell anything or promote anyones "snake oil"