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  #11 (permalink)  
Old July 28th, 2007, 11:13 PM
2manyfibers has no status.
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

I'd never heard of comfrey so I looked it up. The main active ingredient is allantoin which appears to accelerate cell replacement. It appears to have many uses including treating wounds, ulcers and other things. It also is keratolytic which means it "peels" the top layer of skin (which is keratin) when used topically. One website said the little "hairs" were allantoin, but I suspect that may not be accurate since other sites didn't note that (I would guess they would be cellulose, but that's only my guess based on my reading). It did say that there is some evidence it can cause liver damage when taken internally, but it has also been used in Britain for centuries so it may be a question of moderation.

Most of my fibers have been translucent but a few have been black (and they seemed to be coarser than the translucent ones). I've not seen any of the colored fibers in my skin, but the way I use peroxide any colors may have been bleached away. I've read that some of the nerve fibers in skin can be blue. I think it's possible that in some cases, there could be some transferrence of dye from clothing to the fibers in the skin (and some of the fibers simply may be various colors). The first couple of years of my condition it caused significant pain to wear clothing (and still does to a lesser extent) - my flexibility was nil (although slowly coming back) and simply moving caused significant to severe pain because of the tightness of my skin (this has improved much in the last several months). I still have difficulty bending and can't raise my arms but about 90 degrees from my body. I've been a hermit the whole time and don't leave my house unless I have to - just sit around soaking in peroxide and in between do a lot of reading and research on the web. I'm still editing my book, but it has taken me about 2 years to write it because I can only type a few minutes before my hands and arms get numb (from being stretched out from my body - I rub my skin or use peroxide to relieve it temporarily). Temperature changes and sunlight also caused me a lot of pain (and the peroxide is no fun either). I'm more of an outdoor person so this has been difficult (I've had a couple of good neighbors that have mowed my grass because I physically can't do it). I have found a few long fibers (several inches and some over a foot long) on my furniture as well as pulling many directly out of my skin and I have a constant layer of dust which I'm sure to some extent comes from the lint-like fibers coming from my skin. I don't have pets (or a wife any longer) so I can't blame any of the fibers or dust on anyone else. For several years prior to this I had frequent sinus headaches, but this has improved greatly over time (haven't had one in a year or more) - I figured out the fibers and excess keratin had caused lots of problems in my nasal passages. I had also started having frequent migraine headaches toward the onset of this condition - they have relented and I figured out the fibers pulling so tightly in my head, neck and shoulders were the likely cause for them in my case.
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Old July 29th, 2007, 12:42 AM
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

Thank you for further educating me on the uses of comfry for skin and its characteristics,you are clarifying why I wanted to use it.
How long have you been only treating your self with peroxide? They told me do not even put in ears often, though it works
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Old July 29th, 2007, 12:48 AM
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

I was told do not take comfry internaly!
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Old July 29th, 2007, 02:17 AM
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

I've been using the peroxides for close to 3 years - probably about 250 to 300 gallons of hydrogen peroxide (good thing it's cheap). I had a dense, sticky coating on my skin and knew it was causing part of the problems. I tried everything I could think of to dissolve it (at least what I thought I could survive) - nothing would "cut" it including mineral spirits. After figuring out it might be keratin, I researched on the web and found that alcohol and peroxide were known solvents. Out of desperatation I tried burning some of the fibers around my eyes with a cigarette lighter initially - I could only get part of them out of the skin and they would burn very quickly, but I read that eyelashes don't grow back so I stopped even attempting burning the fibers (and it hurt when the fire hit the skin).
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Old September 11th, 2007, 01:24 PM
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

I have a question 2mf and Michelle--do you think that if a chitinase enzyme could be made to take internally it might help dissolve the morgellons chitin (which I am assuming is that tough biofilm it is putting out)? I know that research has made some progress in developing chitinase products to dissolve the chitin exoskelton in bugs found on plants. Made from earthworms. The Chinese use earthworms in some of their herbal medicine (di long--wicked nasty taste and smell, esthetics not great either). I do not believe using TCM earthworm formulas alone would be concentrated enough to dissolve all the chitin generated by this sydrome--seems like an enzyme to take and one in a spray to put on the skin might help. Probably we do not have enough chitinase enzyme in our bodies or maybe not the right chitanase enzyme (evidently more than one chitinase enzyme). Here are two intriguing references:

http://news.bbc.co.uk/2/hi/health/6575435.stm

http://gateway.nlm.nih.gov/MeetingAb...102195679.html

So this may be why the enzyme products we are using are not totally dissolving this stuff. Sure hope this is looked into when people start to figure out what morgellons is. Is the question we should be asking of everyone the following: Do you have any known allergies? Especially to any type of mold (though not limited to it)? Maybe just having a tendancy towards allergies would make one more genetically suseptible to morgellons, as it could indicate a deficient enzyme state in the body.

best,

tcm
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Old September 22nd, 2007, 11:17 AM
carla is a bit itchy
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

Hi Everyone , I was going to wait a few weeks longer to post this but cannot keep it to myself any longer .
After reading a few post by 2many I thought he made so much sense that I asked him what supplements I should be taking . Going on the information I gave to him , The fact I was a lifelong vegertarian, My age(21, don't laugh kritts ) weight (i not telling you guys), and what foods I was eating at the time he sent me a list of the supplements he thought I should be taking . .Also info on how to make sure they were all natural supplements.
Altogether they cost me £25 for a couple of months worth. Thats about $70 dollars I believe. Cheap compared to what I d spent on the countless other treatments that I'd tried. Going on the strengh of the supplements I 'd brought 2many told me to take a little less than the RDA on a couple of therm and I started to follow his advice . It's only been a few weeks and I am doing so much better already that I can't resist posting on my progress.
Within a week the improvements started .First of all I noticed my nails stopped cracking whenever they got to a certain lengh. Then my hair stopped falling out . The whites of my eyes are losing the yellow hint,said to be a sign of liver problems .And the most amazing of all is that the horrible scars that had been under my skin irritating me and going nowhere for years had grown out of my skin in a matter of weeks. I have had a couple of herxs too which lasted about 3 days ,half the tiime of the ones I had on antibiotics and a lot milder too.
My energy has shot up,My brain fog has eased, and the stomache problems have been gone for a couple of weeks too. I was suffering from that bloated thing and unable to swallow food about 50% of the time.
I am on no other medications apart from the salt/vit c thing which I thinks works but the progress is really slow..
i dont know if this is what someone who eats meat should be taking . I would pm 2many for his advice.


Amino acids
zinc
a good natural multi vitamin
flaxseed oil
vit c
natural rock salt
garlic

I will keep you informed on my progress .I ve never had better progress than this even on powerful antibiotics .


Thanks Johnny bravo I ll have to stop beating you up sorry I take back everything I ve said regarding your redneck qualities

love carla Xxxxxxxxx




It become a habit of mine,over the years , to mess with this little patch of hard skin on my shoulder.I cant sit still for 5 minutes with out starting it .I noticed it getting smaller over the last week I went to do it this morning and its gone completely .. Heres the original post .
-------------------------------------------------------------------------------------------------------------------
d#

quote author=2manyfibers link=topic=2120.msg10920#msg10920 date=118550
Hi all. I'm new to the board (at least as a registered user - I've read much as a guest so I feel like I know many of you though) and wanted to introduce myself. I've sufffered from severe Morgellons-like symptoms including fibers and lesions for almost 3 years. I've explored many of the web boards and always find myself reading this one most frequently because of the quality of the people (gratuitous flattery but quite true). I've done a great amount of medical and biological research and reached the conclusion that nutrition caused my problem. I only ran across the term Morgellons several months ago, so most of my research was independent of the disease or condition itself. However, I see many strong similarities between my condition and Morgellons. I also see many "common threads" in some of the treatments used by many sufferers. I've often wanted to jump into some of the messages on the board and put my 2 cents worth in, so I decided to register so I could. I've posted a document on line at the following address that provides information on my research and why I so firmly believe that nutrition and human biology may play a large role in explaining Morgellons for many:

https://home.comcast.net/~morgellons..._Cause_web.htm

Some of the things I cover include how the human body naturally produces millions of fibers in the skin, how vitamin chemistry can explain why vitamin C and sulfur (MSM / garlic) seems to help the symptoms, why I think peroxide provides some relief and a good deal of information on the nutrients required by the body to produce and maintain skin (and everything else) in the human body. I invite anyone who is interested to read it (I'll warn you beforehand that it is pretty lengthy, but well worth the read). Although I am admittedly may be a tiny bit biased, I think it contains a lot of valuable information that could potentially help people suffering from Morgellons and help them understand more about how nutrition can explain or at least impact the symptoms (although I can't say that it does for everyone) and possibly help them in their long-term recovery. Feel free question me on anything I've stated in the document. The only way I gathered all this information was from asking myself questions about the incredible symptoms I was suffering from. It's amazing what you can learn from the internet when you're driven to solve a problem that no one else seems to be able to help with.

My compliments to everyone for the overall tone and attitude of the board and I look forward to typing with you in the future.

[/quote]
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  #17 (permalink)  
Old September 22nd, 2007, 02:34 PM
Tootsie is confirming chatcat is known to be deceptive in the MRSA community
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

Carla thats excellent news! ive been a vege too since I was 15. No fish either but I doeat dairy products. Ive been meaning to talk to you about your sugar intake........its one of the worst things you can do for morgellons and your body. Try stevia instead.
Your way too sweet as it is anyways
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Old September 22nd, 2007, 02:39 PM
carla is a bit itchy
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

Thanks thats one of my problems Friski . Giving up the sugar. I need it for energy.
Also smoking but you know I can't be perfect. I ll have to settle for 99% perfect
carla xx

I don't eat anything with a face
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Old September 22nd, 2007, 06:51 PM
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience

hi carla its good to here you are doing so well i am so happy for you thank you for posting your good news and sharing what has been helping you gumball
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Old September 23rd, 2007, 11:58 AM
carla is a bit itchy
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Default Re: Nutritional factors can cause Morgellons symptoms from my experience



Thanks a bunch Gumball . I love that expression you use.I think everyone should be taking supplements now. Especially if meds are working for them.
carla xx
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