Validity of this site

[michelle]

Hello all,
Do you realize what you write represents all of us with Morgellons! I use to find comfort being associated with this site. Standing With Fists I use to respect your thoughts and opinions. You have totally disrespected Franky's site and all he is trying to do to help those afflicted with this. You are making a mockery of this affliction and all of us that have it. Not all of us are ex drug addicts or just recently quit using. I know you are not someone that Is to be reckoned with and I do not want to be in any confrontation with you. Everyone has tried to support you. Look at the big picture!
If any of you on this site want this to be taken serious you better speak up.
Because the way this is being represented is not good!

[suzzie38]

I frequent this site because it is packed full of valuable knowledge, I love the supportive attitudes I find in so many of you..Mary,Michelle,Lindalu,Llifpton,(hope I spelled that right),chester,gator,Redibooks,Carla,hummungbird,h illy,chester, friski, LC,Lindalu,Linnysue,brenda,safrey,and franky....to be so positive..your negative posts are so far and few between, and when you are down, I admire you soooo much because you get right back on the horse, dust yourselves off..and back to healing again..but these repetitive daily negative posts from certain individuals must stop..it does not promote healing..if anything it even causes ME to have brain fog - and I fortunately don't have morgellons - I thought long and hard about whether or not to write this..but Michelle is right and MelissaJ spoke her mind the other day saying the same _ I'd like to spend my time being supportive and finding ways to combat the affects of this illness..that is so important to me..My Family is all I have in this world..and many on this very site, have become just that..part of my family..so I in no way mean to sound disrespectful, for I do appreciate all Franky has supplied for us..can we please be appreciative and end this daily ongoing, repetitive, saga of depression for I find it not only distracting but down right depressing..I would like to remain part of this site..and I miss Michelles,Carlas, and MelissaJ's posts they were inspiring and knowledgeable..I have said it over and over again..We choose to be a survivor or victim..I feel in Michelles words that these posts are also negatively affecting her healing process...so I'm sending her positivity..suzzie

[sally]

Hi Michelle...You're a brave soul

As you know I'm fairly new to this site. I've been battling this disease since last yr and recently the last couple of months my symptoms have changed quite dramatically. I had no idea and am still unsure of what the heck I'm battling which is why I came here for support, which I've gotten from many. I had nowhere to turn..no doctor to confide in out of fear that he or she would think I was crazy, no immediate family to lean on, I'm not or ever was a drug addict (I respect those who are healing from that addiction) so I agree...Morgellons needs to be taken seriously, otherwise we'll be suffering in silence. None of us want that. I will say that some of the stuff I've been reading here lately has been a bit scary and has left me somewhat confused.

Michelle I have those fibers flying around me all the time. Some days are worse than others...like yesterday when I was getting my teeth cleaned...I was mortified, but managed to ignore them and luckily had no cavaties. It is a strange, heartbreaking, tick you off kind of disease...but there are good days as well. What I do now is open all windows in my car and watch those suckers disappear with a good gust of wind, somehow that makes me feel better. I excercise daily and am trying very hard to hold onto me regardless of what is happening inside and out. I have to.

Anyway, I just want to say how thankful I am for this site. It is invaluable to those of us who are new to this illness...who still have questions, fears etc and know that a shoulder is close by to lean on if need be.

Thanks

Sally

[michelle]

Thank you Suzie and Sally,

When I first came to this site I was looking for a life savior.
I did not need to be scared by what I read, I was afraid enough.
I did not need to be confused more than I was already.
I needed someone to help me understand what was happening and what I could possibly do!
I needed to know I was going to be alright,

I was lucky bubba and many warm wonderful people were here to help. They were there for me, through my most traumatic moments of my life! My family and I would not have grown and become better from this if not from support here. Bubba has her own site now to help ones in need. Here is where someone is suppose to get a personal welcome from ones who understand it .
Anyone see the movie called pay it forward? You put the kindness forward to really help another. If you have been unfortunate enough to experience a bad case of Morgellons and you make it past the acute stages. You would do anything to keep another from experiencing anymore discomfort than they had to. You would realize that others are going through what you are and you need to help be positive. I thought I would leave this site rather than speak my mind. That will not help us that are afflicted it will only let this continue to be confusing and dismissed. How could I pay it forward















b

[suzzie38]

Michelle,
Too funny, that movie made me think the same thing..go into members lounge and read my post there..I brought up that same movie and along the lines of how I can pay forward all the kindness I've received thru the trials of this disease? Have you been reading my mind?..glad you're back...so where is everyone else who has not posted much lately..carla, hilly, the Lindas, LC, Linnysue, Lindalu...and by the way I have found chester (Nancy) to be a very sensitive, intelligent, warm person, thank you all for your friendship..suzzie

..Morgellons.

[Tootsie]

This site is like a slice of heaven.......or a bowl of sweet cherries. Sometimes theres a pit. Dont swallow or gag on it just spiit it out. :P

I think your being alittle harsh on these people Michelle. Nobodys perfect and we will all stumble in life and need to be picked up gently and not thrown to the curb.

Yes I agree we need to stay positive and help others to be too. And I do see your point.

I dont know what goes on behind the scenes here but thats between the admin and whoever and there seems to be a mode of tolerence, more than I could ever posses thats for sure but its admirable and kind.

Other boards can be just darn right cruel and vicious and this board is a safe haven in comparison.

[carla]

Michelle, Will you pm me and let me know which post you mean.
I have not posted a lot lately because I have been too busy cleaning the house to protect my little boy from any more sores and rashes.But I do log in a few times a day.I have not noticed much negativity lately t although I am a little bit preoccupied.Anyway let me know and I will check it out.I agree with what your saying about keeping the site positive but if anyone has a bad day they are entitled to tell us about it .The lovely replies they receive outweigh any negativity. love carla xxx

[Lisa]

.

[linnysue]

I'm sorry I haven't been posting here much lately. I'm mostly a silent member now. I drew back in April when the stability of this site was threatened.

Some of you know where to find me.

Linnysue

[standswfist]

Quite alright, Michelle and Suzzie. You are totally entitled to your own opinion. Last time I checked, it was still a free world. Not for long, though. It matters very little to me, whether or not you respect me. I give you facts and I lay mine down for many to read. I take a huge risk, by doing this. Either you FULLY understand this, or you are another with your head in the sand.
I understand the conspiracy that lies within. Do you?

What we deal with are two sides of a fence. Victims who fell short to this disease (plague) and those who know EXACTLY what is going on. What I have yet to figure out, is what side of this fence, you both are on. But then again, I don't even try to figure that one out. I have come to learn that true colors shine bright, in due time.

What you are probably referring to by "no respect" for me, is the days when I am angered at this damned world for what they have done to innocent people. Am I not entitled to my opinion, just like you?

NOBODY here is better than another. NOBODY. I post about my drug addiction to give people a good "heads up" on what is going on here. Things have happened to me, that you are TOTALLY CLUELESS about. I would hate to "freak" anyone out, more than they already are, so I just leave it for me to know and nobody else to find out. This, you will need to find out for yourself, all on your own. What I post, is things that will help you figure it out. There is a "big picture" here. Took me 7 years to see it. What year are you on?
and~what side of the fence ARE you on, anyways! ? ? ? ? !