The results are in... it's a parasitic biofilm.

[MeaganM]

Hi all,
I just received a call from the doctor today that specializes in Chronic Illnesses and Morgellons. He examined my blood and the results showed that I had a blood parasite similar to malaria that contains a biofilm around it. The biofilm is like a gel substance that contains bacteria, viruses, fungus, and other parasites.

In my previous posts, I wrote about how he explained that when I took the Albenza and Doxy, the medication was breaking the biofilm too quickly and caused a major Herx Reaction. The result was the "worm" crawling sensation under my skin, in my sinuses, and my throat issues as well as the white rings, lesions and red streaks in the skin. He said that wherever blood flows, the symptoms would be exacerbated on medication. He explained that the fibers and stuff coming out was the biofilm in my blood/blood vessels breaking up and coming out of my skin. This happens all the time even without the medication as the parasites die and/ or relocate.

Biofilm is like a mini city where the parasite builds it around itself for protection and other organisms live inside safely where all live and feed off each other. Biofilms connect to each other through tunnels which I believe is the lines, streaks and indentations that I get under my skin. I believe the tunnels are breaking down. The biofilm can come through or live on the skin which attracts other parasites and bacteria to the body. I think the goo everyone sees is the biofilm.

Anyway, I just wanted to let you all know what I discovered. I really like this doctor. It's the first answer I've had since I became sick with Chronic Fatigue 6 yrs ago. He put me on low dose antibiotics with a no-fat diet and believes that within a year, I should be completely symptom free.

[sammy]

megan, Its wonderful when you find a caring doctor. what type of doctor is he/she and what kind of antibiotics did they prescribe thanks sammy

[sammy]

Megan I guess I should have asked what kind of blood work did you have , or what test. I think i just had everything tested and zero nothing. sammy

[MeaganM]

Hi Sammy,
All my other blood test have come back normal as well until now. He put me on Zithromiacin (Sp?) starting with 250mg every other day to work my way up to 500mg daily. Here is an interesting website that explains biofilms.

Biofilms and human infection - an introduction

[MeaganM]

Oh, he is an MD and a microbiologist who specializes in chronic diseases.

[janedoe]

Originally Posted by MeaganM

Hi all,
I just received a call from the doctor today that specializes in Chronic Illnesses and Morgellons. He examined my blood and the results showed that I had a blood parasite similar to malaria that contains a biofilm around it. The biofilm is like a gel substance that contains bacteria, viruses, fungus, and other parasites.

In my previous posts, I wrote about how he explained that when I took the Albenza and Doxy, the medication was breaking the biofilm too quickly and caused a major Herx Reaction. The result was the "worm" crawling sensation under my skin, in my sinuses, and my throat issues as well as the white rings, lesions and red streaks in the skin. He said that wherever blood flows, the symptoms would be exacerbated on medication. He explained that the fibers and stuff coming out was the biofilm in my blood/blood vessels breaking up and coming out of my skin. This happens all the time even without the medication as the parasites die and/ or relocate.

Biofilm is like a mini city where the parasite builds it around itself for protection and other organisms live inside safely where all live and feed off each other. Biofilms connect to each other through tunnels which I believe is the lines, streaks and indentations that I get under my skin. I believe the tunnels are breaking down. The biofilm can come through or live on the skin which attracts other parasites and bacteria to the body. I think the goo everyone sees is the biofilm.

Anyway, I just wanted to let you all know what I discovered. I really like this doctor. It's the first answer I've had since I became sick with Chronic Fatigue 6 yrs ago. He put me on low dose antibiotics with a no-fat diet and believes that within a year, I should be completely symptom free.

ok, that makes sense, its a good piece to the puzzle anyway. so thats a start!
keep working with this doctor, sounds like hes good. find out how they exist in the enviorment, if you can, like that makes sense of what happens in your body, but where do they live when not in your body? i think that will be piece number 2 to the puzzle..
thanks for posting!!

[tcmgpt13]

I would love to know what kind of research is behind all these declarations. Is this the same person who has said there is an unidentified protozoa with the lettered and number name skylark99 posted about yesterday? It is rather a co-inincidence that suddenly at least three people are coming to the forum just to mention this "research" into the unknown parasite with letters and numbers instead of a name. When such research comes from just one researcher I start questioning it. Good research has to be replicated by others, so has this research been done by others as well? Or is it just eminating from one person who happens to also own the lab who does the testing for the "unknown" parasite?

We have had so many false trails here before and when I hear these kind of unsubstantiated claims I get kind of tense about it. John Martin and his "stealth" virus come to mind. All of this speculation usually leads to people paying hundreds of dollars and coming up in the end no better than before, that is if they are fortunate and do not end up worse.

While I have long suspected that whatever we have may be acting like malaria, this does not make it a fact, at least not until more than one person has replicated such findings of an "unknown" parasite and a biofilm.

Oh, and John Martin had a lot of degrees too, but that did not prevent him from losing his research license. More than one Morgie went to his "testing" site in Arkansas (run by others) for tests which led nowhere and for which, as test subjects, they were expected to pay something like $600 or more.

A quote from this article which should be read by everyone who is thinking about becoming a test subject for something which is so far unproven:

"Martin preyed upon patients who were desperately ill, telling them that he
knew what they had (a "stealth" virus) and only he could save them from their
"fatal" disease. His therapeutic regimen included antibiotics, antivirals, diet and vitamins, neurontin, and other medications, including anti-depressants, that have all been tried before and are not new. What was different, was that he wanted you to be "monitored" closely which includes lot of tests that he does and not "to conclude a lack of long term benefit" for at least 4-6 months.
He thoroughlyfrightened many by telling them that without funding for him, they had no chance. One person who had been diagnosed with "CFS" scoured every area to find donors, raising hundreds of thousands of dollars. As a single mother of a young child, she was frightened that her child would be left alone in this world. But then she found out facts that angered her and made her regret all the efforts she had made to raise funds for Martin. She, single-handedly, found out the truth about W. John Martin and is working to expose the truth.

Dr. John Martin stripped of License - National CFIDS Foundation Forum

Originally Posted by MeaganM

Hi all,
I just received a call from the doctor today that specializes in Chronic Illnesses and Morgellons. He examined my blood and the results showed that I had a blood parasite similar to malaria that contains a biofilm around it. The biofilm is like a gel substance that contains bacteria, viruses, fungus, and other parasites.

In my previous posts, I wrote about how he explained that when I took the Albenza and Doxy, the medication was breaking the biofilm too quickly and caused a major Herx Reaction. The result was the "worm" crawling sensation under my skin, in my sinuses, and my throat issues as well as the white rings, lesions and red streaks in the skin. He said that wherever blood flows, the symptoms would be exacerbated on medication. He explained that the fibers and stuff coming out was the biofilm in my blood/blood vessels breaking up and coming out of my skin. This happens all the time even without the medication as the parasites die and/ or relocate.

Biofilm is like a mini city where the parasite builds it around itself for protection and other organisms live inside safely where all live and feed off each other. Biofilms connect to each other through tunnels which I believe is the lines, streaks and indentations that I get under my skin. I believe the tunnels are breaking down. The biofilm can come through or live on the skin which attracts other parasites and bacteria to the body. I think the goo everyone sees is the biofilm.

Anyway, I just wanted to let you all know what I discovered. I really like this doctor. It's the first answer I've had since I became sick with Chronic Fatigue 6 yrs ago. He put me on low dose antibiotics with a no-fat diet and believes that within a year, I should be completely symptom free.

[MeaganM]

He said that he believes that they live inside a vector such as fleas, ticks, mosquitoes, etc... He doesn't believe it's contagious unless both people or pets get bit by the same vector or one right after the other which happens with families and pets living together. But, he is currently doing research on the makeup and genetics of the actual parasite.

In my case, if you look at the link on biofilms that I just posted, it makes total sense. I believe that the biofilm has attached in my skin cells, my muscle cells, lungs, and heart. When I took the medication, the biofilm literally came out of my intact skin when I took baths. There was always a gel coating floating in the water. I would feel movement under the skin and see two indentations in the skin. I think this was the colonies breaking down and the tunnels that connect them and the fibers and granules where the fungus etc... in the biofilm. I may ask him to do a muscle biopsy and I will definitely ask him to look at the gel goop coming out of my lungs and sinuses. I see him again in a few weeks.

A few weeks ago, I thought I was going to die and at the time, wished I had. Now, there are some answers for me and my family and they no longer think I am crazy nor does my regular doctor who is at a loss for words and is finally willing to do anything to help me including any medication I may need. I am hoping that this will help some of you. I do believe it's another piece of the puzzle. At least with these results, I have something in my hand to tell doctors that I do indeed have something going on.

[tcmgpt13]

Please read my prior post before embarking on any expensive unproven testing. I have added more information about W.John Martin who also had a lot of credentials, but who fooled many people with chronic fatigue and with Morgellons as well into spending a lot of money.

What anyone does is up to each individual, but at least become aware of all the facts before you spend money which may or may not lead you to better health. Please try not be snowed by credentials but by facts. Ask for the facts which back up this "research" and which comes from a researcher who is not connected in anyway to the first researcher making these claims. Remember research has to be published in a peer reviewed medical journal to be taken seriously. So far I hear a lot of claims, but I hear no facts whatsoever to back up these declarations of an unknown malaria like parasite covered with a biofilm. It could be true, sure it could, but so far there is no real published proof. If there were factual proof I am sure it would be posted here already. Speculation and claims are not proof.

[sammy]

Originally Posted by MeaganM

Hi Sammy,
I went to Dr. Stephen Fry and he tested my blood at Fry Laboratories. He talks about the biofilm on his website. All my other blood test have come back normal as well until now. He put me on Zithromiacin (Sp?) starting with 250mg every other day to work my way up to 500mg daily. Here is an interesting website that explains biofilms.

Biofilms and human infection - an introduction

Megan, One more question sorry. what area is dr frey in or what state. tks sammy