Summeries of some of the recent *HOT* new theories & speculations

[beverlybdmd]

This is in response to trying to go back and find the posts for MaryOK that I had referred to when mentioning what we had discussed here on this newsgroup;

Here is a summery of what I found interesting and thought provoking, but perhaps may have been somewhat disturbing to some, if they read it in the wrong location, or context.
It is all re-peats of what has been here before, and much of what is still here:

Single Cell clone/multi-cell animal issue:

http://www.morgellons-disease-resear...sg2455#msg2455
http://www.morgellons-disease-resear...sg3420#msg3420

See the second above for my post that explained in detail what I have said more than once about the single cell clones being
part of a large colony animal, like a "choral" wrapped in a fibrous sheath: That this is why when the specimens sent to the
lab to be examined, there is nothing except cellular "debris"and loose nondescript "fibers" --when the cells all
disassociate from each other. And explains the differences between the microscopic sizes becoming visible sizes.

[Well, I still have cognitive difficulties finding things; I can make poor conclusions based on faulty data, and then I have the typical affect & mood disorders that we have ALL seen with this disease. I humbly apologize to all.]
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~
Quoting our friend Bakunin:
And these "what ever to call them" are probably using Quorum sensing. A kind of bacterial communication which sounds even
more like science fiction. Quorum sensing is the ability of bacteria to communicate and coordinate behavior via signaling
molecules. You know, almost every time i wash my face, my lower legs start itching like crazy - that's probably Quorum
sensing in actions.

- http://en.wikipedia.org/wiki/Quorum_sensing

"This "quorum sensing" is NOT something that I have ever discussed with someone who does not have Morgellons, but it is a
well-known phenomenon w/i our community. The clones of the same parasite-colony can communicate across DISTANCE and
actually recruit each other, to join back into the "multi-cellular form" in order to help an injured or dying cell from
that clone-family. That must have had something to do with how I could tell when you opened the jar in your clinic, back
when I was SO sensitized by these things--the trapped ones immediately start "calling" out to the ones in my body...
Fortunately there are times when we don't always have to "listen in" on their sensing of each other--we can get DE-sensitized."

Remember Melissa's mouthwash story? that's an example of "quorum sensing." The "killing jar" technique works on that principle in some fashion as well.
http://www.morgellons-disease-resear...sg4501#msg4501
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Lastly there is an amazing new study out by Stanford about Chronic Fatigue--one of the major components of Morgellons &
certainly one of MY problems...That Bubba posted all about, as below:
This study focused on patients suffering from debilitating chronic fatigue syndrome (CFS). This study found that most
patients suffering from CFS were actually exposed to some type of viral infection (flu, herpes, CMV, etc) that triggered
CFS. The study indicates that many of the sufferers of CFS are actually infected with some or many forms of a
virus...specifically, the Herpes viruses (keep in mind that there are many forms of herpes...it is not necessarily a
sexually transmitted disease...for example...shingles, fever blisters, etc..).

The patients were placed on a long term dosage of a new anti-viral medication (you can click on the links to read more
about the actual drug). This anti-viral medication targets and eliminates the heavy viral load in the CFS patient's body.
This viral load weakens the persons immune system and can cause all sorts of other illnesses to take over and make the
patient even sicker. CFS may actually be another type of disease that is causing significant problems with a person's
immune system.

After treatment with this medication, the patients responded favorably with increased stamina, energy, etc. This drastic
improvement happened in as little as 4 weeks. Since the treatment, they have not had a relapse and they continue to improve
their quality of life.

This study may help the doctors target and treat the actual underlying cause of CFS...a virus that brought down a person's
immune system and made them susceptible to other infections such as Morgellons. If the underlying viral infection is
treated, a person will potentially overcome Morgellons symptoms as their bodies strengthen.

Dr. H shared this information with Bubba. He is currently testing his patients for viral antibodies and treating them with
anti-viral meds as well as antibiotics and anti-fungals.

Stanford is looking for volunteers that live in the San Francisco Bay area to help them with a second research study. I am
not sure if they have already started this study or not.

http://mednews.stanford.edu/releases...y/montoya.html
http://www.msnbc.msn.com/id/16635440/
http://www.stanfordhospital.com/sear...etail?doc=1072
http://www.vicd.info/index.html
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~
The Morgellons fibers that leave our body contain bacteria or mites or the infective cells that are capable of feeding on
just those fibers alone for up to MANY months (such as in clothing, rugs, mattresses, even dust.) and are still capable of
RE-INFECTING us, through simple skin contact, unless we have radically changed our internal immune status.
Almost no doctors believe or understand this principle, but it is an absolute true fact, proved so many times by trial and
error, and documented over and over, until nearly every Morgellonite simply accepts it as already known & understood.
These are MUCH more infective than pinworm eggs, because they don't need to be swallowed. I believe that they are activated
either by the heat, the moisture, or the CO2 of our body's respiration; and then they burrow into the skin and begin a new
cycle.

That is why I do NOT think it wise for me to take Saunas at your facility, and encourage the driving-out of the Morgellons
parasites and "purging" of what may still be viable infective matter into the environment of your clinic, where you see
many immune susceptible Lyme patients. Please re-consider before you ask ANY Morgellonite to take a treatment IN THE CLINIC
that will cause immediate purging of their infective agents. At least the rife treatments at your clinic, seems to attenuate and weaken them, or actually dissolve them, NOT cause any "fleeing" or "purging." Until we have actual proof about how Morgellons is
transmitted, I feel that it is better to be safe than sorry.

These fibers may only be capable of re-infecting a person who has already had this particular clone-colony well-established within their body and household; but the fact that simple skin contact alone is all that it takes to start up a re-infestation, from a particle that has been sitting in an inert, un-fed, un-hosted place for such a prolonged period of time, is still extremely provocative and new to most of western medicine.

[beverlybdmd]

This is in response to trying to go back and find the posts for MaryOK that I had referred to when mentioning what we had discussed here on this newsgroup;

Here is a summery of what I found interesting and thought provoking, but perhaps may have been somewhat disturbing to some, if they read it in the wrong location, or context.
It is all re-peats of what has been here before, and much of what is still here:

Single Cell clone/multi-cell animal issue:

http://www.morgellons-disease-resear...sg2455#msg2455
http://www.morgellons-disease-resear...sg3420#msg3420

See the second above for my post that explained in detail what I have said more than once about the single cell clones being
part of a large colony animal, like a "choral" wrapped in a fibrous sheath: That this is why when the specimens sent to the
lab to be examined, there is nothing except cellular "debris"and loose nondescript "fibers" --when the cells all
disassociate from each other. And explains the differences between the microscopic sizes becoming visible sizes.

[Well, I still have cognitive difficulties finding things; I can make poor conclusions based on faulty data, and then I have the typical affect & mood disorders that we have ALL seen with this disease. I humbly apologize to all.]
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~
Quoting our friend Bakunin:
And these "what ever to call them" are probably using Quorum sensing. A kind of bacterial communication which sounds even
more like science fiction. Quorum sensing is the ability of bacteria to communicate and coordinate behavior via signaling
molecules. You know, almost every time i wash my face, my lower legs start itching like crazy - that's probably Quorum
sensing in actions.

- http://en.wikipedia.org/wiki/Quorum_sensing

"This "quorum sensing" is NOT something that I have ever discussed with someone who does not have Morgellons, but it is a
well-known phenomenon w/i our community. The clones of the same parasite-colony can communicate across DISTANCE and
actually recruit each other, to join back into the "multi-cellular form" in order to help an injured or dying cell from
that clone-family. That must have had something to do with how I could tell when you opened the jar in your clinic, back
when I was SO sensitized by these things--the trapped ones immediately start "calling" out to the ones in my body...
Fortunately there are times when we don't always have to "listen in" on their sensing of each other--we can get DE-sensitized."

Remember Melissa's mouthwash story? that's an example of "quorum sensing." The "killing jar" technique works on that principle in some fashion as well.
http://www.morgellons-disease-resear...sg4501#msg4501
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Lastly there is an amazing new study out by Stanford about Chronic Fatigue--one of the major components of Morgellons &
certainly one of MY problems...That Bubba posted all about, as below:
This study focused on patients suffering from debilitating chronic fatigue syndrome (CFS). This study found that most
patients suffering from CFS were actually exposed to some type of viral infection (flu, herpes, CMV, etc) that triggered
CFS. The study indicates that many of the sufferers of CFS are actually infected with some or many forms of a
virus...specifically, the Herpes viruses (keep in mind that there are many forms of herpes...it is not necessarily a
sexually transmitted disease...for example...shingles, fever blisters, etc..).

The patients were placed on a long term dosage of a new anti-viral medication (you can click on the links to read more
about the actual drug). This anti-viral medication targets and eliminates the heavy viral load in the CFS patient's body.
This viral load weakens the persons immune system and can cause all sorts of other illnesses to take over and make the
patient even sicker. CFS may actually be another type of disease that is causing significant problems with a person's
immune system.

After treatment with this medication, the patients responded favorably with increased stamina, energy, etc. This drastic
improvement happened in as little as 4 weeks. Since the treatment, they have not had a relapse and they continue to improve
their quality of life.

This study may help the doctors target and treat the actual underlying cause of CFS...a virus that brought down a person's
immune system and made them susceptible to other infections such as Morgellons. If the underlying viral infection is
treated, a person will potentially overcome Morgellons symptoms as their bodies strengthen.

Dr. H shared this information with Bubba. He is currently testing his patients for viral antibodies and treating them with
anti-viral meds as well as antibiotics and anti-fungals.

Stanford is looking for volunteers that live in the San Francisco Bay area to help them with a second research study. I am
not sure if they have already started this study or not.

http://mednews.stanford.edu/releases...y/montoya.html
http://www.msnbc.msn.com/id/16635440/
http://www.stanfordhospital.com/sear...etail?doc=1072
http://www.vicd.info/index.html
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~
The Morgellons fibers that leave our body contain bacteria or mites or the infective cells that are capable of feeding on
just those fibers alone for up to MANY months (such as in clothing, rugs, mattresses, even dust.) and are still capable of
RE-INFECTING us, through simple skin contact, unless we have radically changed our internal immune status.
Almost no doctors believe or understand this principle, but it is an absolute true fact, proved so many times by trial and
error, and documented over and over, until nearly every Morgellonite simply accepts it as already known & understood.
These are MUCH more infective than pinworm eggs, because they don't need to be swallowed. I believe that they are activated
either by the heat, the moisture, or the CO2 of our body's respiration; and then they burrow into the skin and begin a new
cycle.

That is why I do NOT think it wise for me to take Saunas at your facility, and encourage the driving-out of the Morgellons
parasites and "purging" of what may still be viable infective matter into the environment of your clinic, where you see
many immune susceptible Lyme patients. Please re-consider before you ask ANY Morgellonite to take a treatment IN THE CLINIC
that will cause immediate purging of their infective agents. At least the rife treatments at your clinic, seems to attenuate and weaken them, or actually dissolve them, NOT cause any "fleeing" or "purging." Until we have actual proof about how Morgellons is
transmitted, I feel that it is better to be safe than sorry.

These fibers may only be capable of re-infecting a person who has already had this particular clone-colony well-established within their body and household; but the fact that simple skin contact alone is all that it takes to start up a re-infestation, from a particle that has been sitting in an inert, un-fed, un-hosted place for such a prolonged period of time, is still extremely provocative and new to most of western medicine.

[maryok]

Beverly, this must have taken you a LOT of time and effort to compile. Thank you so much for doing it -- I can't wait to read through it all!!

[maryok]

Beverly, this must have taken you a LOT of time and effort to compile. Thank you so much for doing it -- I can't wait to read through it all!!

[ladycolorado]

actually communication between insects is not far fetched at all. in my youth, at 18, i was a beekeeper. the bees have a "hive mentality" they communicate through pheromones. ants also have a hive collective type brain, as do termites. it has been theorized that the fibers associated with morgellons disease release pheromones as well to attract available insects, arthopods and i guess even arachnids available and can even change their normal behavior to aid the disease. this is why folks sometimes have strange things like snowfleas bothering them, when they normally do not molest man. the key stated, to stop being molested, is to raise the immune system. this is why i am on antibiotics instead of anti-parisiticals, to raise my immune system high enough to get better, at least that is the hope and shall take a long time. this is nothing to panic over, it is just understanding the nature of the "beast" which afflicts us. understanding ones adversary is the way to defeat it and achieve victory (LC).

[ladycolorado]

actually communication between insects is not far fetched at all. in my youth, at 18, i was a beekeeper. the bees have a "hive mentality" they communicate through pheromones. ants also have a hive collective type brain, as do termites. it has been theorized that the fibers associated with morgellons disease release pheromones as well to attract available insects, arthopods and i guess even arachnids available and can even change their normal behavior to aid the disease. this is why folks sometimes have strange things like snowfleas bothering them, when they normally do not molest man. the key stated, to stop being molested, is to raise the immune system. this is why i am on antibiotics instead of anti-parisiticals, to raise my immune system high enough to get better, at least that is the hope and shall take a long time. this is nothing to panic over, it is just understanding the nature of the "beast" which afflicts us. understanding ones adversary is the way to defeat it and achieve victory (LC).

[cd3girls]

Originally Posted by beverlybdmd

This is in response to trying to go back and find the posts for MaryOK that I had referred to when mentioning what we had discussed here on this newsgroup; and THEN discovering, just like STANDSwFIST, that those very posts that I thought were SO significant, had been deleted.

WELL--ALL
of those posts have been carefully deleted from our oh so politically correct & pristine board, because they MIGHT scare
the newbies, and they weren't in the "wild theories & speculations section..."
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~

Beverly,

With the most respect (and I mean that!) and very humbly......let me say this
I originally came to this site for support and for good/sound advice to hopefully get well and get my life back.
There are plenty of sites out there that are willing to entertain speculations as to how all of this got started.
Many folks here (and if I remember correctly, yourself included) - believe that the focus should be on finding a way to get healthy,
if not out-right cured.
Our biggest risk as a community is wild speculation, or worse, any focus on the need to find someone, something or some organization that
we can blame for this. that will get us nowhere!! As a group - we cannot risk being perceived as more interested in finding
something to blame than we are in getting well. We MUST be witnessed, by the media - the medical community - by everyone,
as a group that is interested in healing. Otherwise - we may scare our supporters off.

This, I suspect, more than anything, may be why some posts have "gone missing". We need to be rational, we need to be united
and we need to be supportive of one another.

'Nuff said

[cd3girls]

Originally Posted by beverlybdmd

This is in response to trying to go back and find the posts for MaryOK that I had referred to when mentioning what we had discussed here on this newsgroup; and THEN discovering, just like STANDSwFIST, that those very posts that I thought were SO significant, had been deleted.

WELL--ALL
of those posts have been carefully deleted from our oh so politically correct & pristine board, because they MIGHT scare
the newbies, and they weren't in the "wild theories & speculations section..."
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~

Beverly,

With the most respect (and I mean that!) and very humbly......let me say this
I originally came to this site for support and for good/sound advice to hopefully get well and get my life back.
There are plenty of sites out there that are willing to entertain speculations as to how all of this got started.
Many folks here (and if I remember correctly, yourself included) - believe that the focus should be on finding a way to get healthy,
if not out-right cured.
Our biggest risk as a community is wild speculation, or worse, any focus on the need to find someone, something or some organization that
we can blame for this. that will get us nowhere!! As a group - we cannot risk being perceived as more interested in finding
something to blame than we are in getting well. We MUST be witnessed, by the media - the medical community - by everyone,
as a group that is interested in healing. Otherwise - we may scare our supporters off.

This, I suspect, more than anything, may be why some posts have "gone missing". We need to be rational, we need to be united
and we need to be supportive of one another.

'Nuff said

[ladycolorado]

true, very true about being rational never good to panic. which i am not doing. understanding the nature of a disease is good as long as one keeps a level head. not much is known about morgellons it is like we go on a journey of discovery each day. it is also why this message board is here. i do not think a theory about a collective mentality is too far out there since it is true of the insect kingdom in many cases. symbiotic relationships are also scientific fact. my main motivation is getting well and for others to do so as well and become more funtional. understanding our adversary, however can be helpful in fighting it on a more competent level. (LC).

[ladycolorado]

true, very true about being rational never good to panic. which i am not doing. understanding the nature of a disease is good as long as one keeps a level head. not much is known about morgellons it is like we go on a journey of discovery each day. it is also why this message board is here. i do not think a theory about a collective mentality is too far out there since it is true of the insect kingdom in many cases. symbiotic relationships are also scientific fact. my main motivation is getting well and for others to do so as well and become more funtional. understanding our adversary, however can be helpful in fighting it on a more competent level. (LC).