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  #101 (permalink)  
Old November 9th, 2009, 08:10 PM
Kritters is a fungus magnet
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This is information that we need about testing.
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YES! MMarsha! Thanks so much!
Kritts
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  #102 (permalink)  
Old November 9th, 2009, 08:25 PM
lamb has no status.
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Thank you MMarsha!! Finally some helpful, tangible info! Not that I don't appreciate everything everyone does but we NEED proof and this is great step. Could you please explain how you cultured your Pro Lab kits. I don't have lesions and I am at a loss.
Thanks!!
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  #103 (permalink)  
Old November 10th, 2009, 03:55 PM
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Originally Posted by lamb View Post
Thank you MMarsha!! Finally some helpful, tangible info! Not that I don't appreciate everything everyone does but we NEED proof and this is great step. Could you please explain how you cultured your Pro Lab kits. I don't have lesions and I am at a loss.
Thanks!!
Hello Lamb, you can use anything that you have consistently seen as something suspicious since you have been ill. And you may want to do an open air test. Where you leave the agar open to air for 24 - 48 hours. I used things in home like blk specs and the white skin looking flakes that seemed to always be laying around my house. I also used some lesion debris, and some of us have roots of our hair that look funny, you could test this if you are unfortunate enough to have this problem. I hope this has helped. There is an excellent site about mold and getting help as a lot of people are pursuing legal avenues to get help and reimbursed for medical bills and pain and suffering for those of us that rent. Answers to Mold Sickness Black Mold illness The Health Effects of Mold and how to get help It is very informative and I have spoken with one of their representatives over the phone and they were very willing to answer questions and offer advice. Good Luck Lamb!!
mm
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  #104 (permalink)  
Old November 10th, 2009, 05:19 PM
Sadsack is Praying for a Miracle
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mmarsha -

I have a couple of questions.

First, regarding the lab test. Did you do this? How is it conducted? Sounds like you would have to go to a doctor and have the blood drawn and sent to them? I called the company but got a voice mail. Will try again tomorrow.

The other is the home testing kit. I've had a kit in the closet for about 4 years and never used it. That was before I knew I had Morgellons, but shortly after moving to FL. Had heard so much about mold problems here. I guess I will use it.

I think there may be a connection between Morgellons and mold, but I dont' think that mold causes Morgellons. I think it is an infection that can weaken us and overwhelm our ability to fight other things off.

I am only bringing this up because I think that people are concluding that if mold grows on a Morgellons scab, then that is diagnostic (things I saw on LB). Mold spores are everywhere, as you pointed out. Just as bacteria is everywhere (over 300 species are commonly found on the average human body). We can't conclude that any one of these microbes are responsible for Morgellons.

Obviously, if we are sick with anything (besides Morgellons) we should do everything we can to get better from it. Stands to reason we'll feel better overall and be more able to fight Morgellons.

That said, I am going to try to get that mold panel done. Thanks for bringing it to the board.

SS
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  #105 (permalink)  
Old November 10th, 2009, 06:01 PM
mmarsha has no status.
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Quote:
Originally Posted by Sadsack View Post
mmarsha -

I have a couple of questions.

First, regarding the lab test. Did you do this? How is it conducted? Sounds like you would have to go to a doctor and have the blood drawn and sent to them? I called the company but got a voice mail. Will try again tomorrow.

The other is the home testing kit. I've had a kit in the closet for about 4 years and never used it. That was before I knew I had Morgellons, but shortly after moving to FL. Had heard so much about mold problems here. I guess I will use it.

I think there may be a connection between Morgellons and mold, but I dont' think that mold causes Morgellons. I think it is an infection that can weaken us and overwhelm our ability to fight other things off.

I am only bringing this up because I think that people are concluding that if mold grows on a Morgellons scab, then that is diagnostic (things I saw on LB). Mold spores are everywhere, as you pointed out. Just as bacteria is everywhere (over 300 species are commonly found on the average human body). We can't conclude that any one of these microbes are responsible for Morgellons.

Obviously, if we are sick with anything (besides Morgellons) we should do everything we can to get better from it. Stands to reason we'll feel better overall and be more able to fight Morgellons.

That said, I am going to try to get that mold panel done. Thanks for bringing it to the board.

SS
You're welcome Sadsack and yes it is still up in the air in my own mind but I will say this; I know that after i was treated for a mold fungal infection and left the environment I was living in that i got better and fairly fast considering that i had been trying for 2 and a half years. I left my home for 3 weeks and took the antifungal and several lesions on legs cleared and my neck that was a big lesion and had nest or knots behind ears that I am sure had fly larvae or collembola one in them all cleared. And now when I go back to my house I can immediatley tell that it is mold as my breathing becomes harder and I feel like something is on my face. It does not do this at my moms... I talked with the mold testing place today they will call you back and will help you get an order if your own doctor will not write one but of course it is more money. My doctor wants me to have the test and it was just a matter of finding a lab to do it and they luckily for me have a local lab that they contract with right here in my town. So as soon as I can scrape together the money I am going to do this. I was going to do another test called pcr but I can not find a local lab to do it.
WE MUST BE PROACTIVE IN GETTING SOME HELP!!! And get the right medicines to get better. I wish you luck SS
mm
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  #106 (permalink)  
Old November 10th, 2009, 06:17 PM
Sadsack is Praying for a Miracle
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MM -

Pcr is genetic testing.

I was horribly sick - I mean I really thought I was going to die - started giving away valuables, the whole nine yards. Anyway, I started getting better in the same enviroment, but "completed" my current level of wellness somewhere else. But I returned to the same house and have been back about 16 months and have not relapsed.

It is very confusing. Some people have taken antifungals without success. I WISH it were "that simple", i.e., that it IS a fungus, or more than one, and clearing your system would cure you, but that just doesn't seem to be the case.

I know that Ginger Savely, Dr. Schaller, Dr. Uppal, Dr. Kolb, and probably others all use anti-fungals in their protocols, and I only know of one "cure" (one of Ginger Savely's patients has been symptom-free for 3 1/2 years).

I truly believe that getting rid of co-infections that are diagnosable and treatable is VERY IMPORTANT. I think they - like Lyme, or babesiosis - will make Morgellons worse.

MM - do you think there is a possibility that you actually have fungal infections (only) and not Morgellons??? Wouldn't that be awesome??

SS
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  #107 (permalink)  
Old November 10th, 2009, 06:19 PM
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. Fungi that can cause life-threatening infections in people include Aspergillus fumigatus, Candida albicans and Cryptococcus neoformans.
THESE ARE THE THREE THAT CAN KILL YOU! I just found this home test for candida, I don't know if it has ever been posted so forgive and move on if it has,
Try this Fast and FREE Candida Saliva Test!

When you awake in the morning, before you put anything into your mouth, work up some saliva and spit it into a clear glass of water. Within 1-30 minutes, look in the glass. If there are strings coming down from your saliva, or if the water turned cloudy, or if your saliva sank to the bottom, YOU MAY HAVE A CANDIDA CONCERN!

Healthy saliva will simply float on the top!
(You may want to put out a glass of water in the bathroom or on the nightstand the night before you wish to do the home Candida Saliva test, just to remind yourself not to brush your teeth prior to spitting into the glass.)

Why does this work?

Candida overgrowth begins in the colon. Over time, as the fungal yeast multiplies it begins to migrate through the digestive tract, moving up into the small intestine, then the stomach (bloating, indigestion), up the esophagus and into the mouth. If it becomes strongly entrenched there you can see a white film on your tongue and inside your cheeks. Once it has moved up to the mouth and you spit into a glass of water the yeast will sink because it is heavier than water. If there is no yeast it will float on top.
Candidal folliculitis Any hairy areas of the body that are frequently covered or occluded by clothing Small pustules at the base of the hair follicles

Last edited by mmarsha; November 12th, 2009 at 12:55 PM.
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  #108 (permalink)  
Old November 10th, 2009, 06:29 PM
Sadsack is Praying for a Miracle
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I used to breed birds - bred 100's of them. Whenever I had the death of a bird, I always had a necropsy done (if I wasn't sure of the cause). I wanted to make sure there wasn't something going on in my population that could wipe them all out.

I had one baby cockatiel die one time. The cause was aspergillosis!! I always randomly had various birds to the vet to check for anything. Not once before or since did I had any test positive for aspergillus.

It was very mysterious, but evidently it only takes a few spores for the immune-compromised to develop it.

SS
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  #109 (permalink)  
Old November 10th, 2009, 07:09 PM
Kritters is a fungus magnet
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MMarsha (and o course Sadsackster)

I have posted responses to other posters (one in particular who has a website...(I so wish I had the power of recall.....) and the spit test absolutely is right on. Mine dropped like the ball on New Year at the NYC Rockafeller Center.

Kritts
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  #110 (permalink)  
Old November 10th, 2009, 07:57 PM
mmarsha has no status.
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Quote:
Originally Posted by Kritters View Post
MMarsha (and o course Sadsackster)

I have posted responses to other posters (one in particular who has a website...(I so wish I had the power of recall.....) and the spit test absolutely is right on. Mine dropped like the ball on New Year at the NYC Rockafeller Center.

Kritts
You're so funny Kritts!!!
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