Estuary Associated Syndrome in N.C.

[Kritters]

I don't know if this was a re-run from 2001 or not, but this was a very interesting topic. It relayed the stories of people with lesions who were affected by Pfiesteria piscicida which caused lesions on hundreds of thousands of fish in North Carolina & Maryland.

What amazes me is how ignorant the doctors are we go to for help of just how prevalent and ubiquitous diseases are which are manifested in skin lesions. The ignoramus 'infectious disease' doctor here in my area I went to for help was clueless, and didn't even want to take a biopsy. The moron gave me a scrip for soothing cream. (I have her name on record for the class action suit) I will also be sending her a jolting letter when I find out what this is. In fact, I'll be sending one anyway, no matter what, informing her that she wasted her money, time and the hopes of her patients by going to medical school when she would have been much better off investing said funds in stuffing potato chips and pepsi into her fat stupid face. (do I sound hostile? oh, sorry)

http://health.discovery.com/tv-sched....85806.17146.x

Anyway, if you're interested, follow all links to this story and it looks like protozoa is a major player.

Kritts

[tcmgpt13]

Yes, Kritters, this has been posted before on the forum, not this particular TV story but the fact that Pfiesteria might play a part in the symptoms of at least some who have morgellons. I believe Bubba mentioned she was treated for this, using the Shoemaker protocol, although it was not the total cure for her. And treatment for Pfiesteria may not be the total cure for most who have morgellons, although for some it may be a part of the picture. Somehow my personal feeling is that this is a complex problem when there are so many describing different symptoms. Some do not live near the water, so I doubt if Pfiesteria is a part of what they are experiencing. What will be interesting is learning just what is the common denominator in this cluster of symptoms, what symptom and what disease organisms will prove to be the unifying thread underlying the differences being reported from person to person. Harvey seems to believe it is chlamydia pneumonia at this time. At an earlier time I think he thought it might be lyme. What is not known about morgellons seems to remain greater than what is known. This is why I think everyone is so frustrated by it.

Most doctors unfortunately remain body mechanics, and most of them are not even very good at it. Most of them are also afraid to go beyond AMA approved protocols, even some of the lyme doctors who say they treat morgellons. They may be a bit edgier than most doctors, but many of them are still fairly conventional. I recently went to one who seemed only to use antibiotics for morgellons. This is something which sometimes works with lyme, but is not enough for morgellons IMHO. In my estimation not even close to treating morgellons symptoms if it does not include at least dewormers and whatever else Harvey has been researching to control symptoms (control being the operative word IMHO for what has been accomplished so far, control and not cure).

Well, guess that all we can do for now is hang on and hope for a published protocol which goes beyond what most doctors are willing to tackle. They need permission, just like little children it seems, to do anything very different. Otherwise they fear losing their licenses by being hounded by state medical boards. Or they fear us, threatening to sue. I am not crazy about doctors, but I guess in some ways I can see their plight. Unless they become braver as a group the majority of patients will be left depending on the few docs who are brave enough to be different. This is why so many who have unusual diseases are often without the care they need. Which unfortunately includes us.

[Kritters]

Hey TC,

Yep, we're bound to cross-reference here since there is no archive per se to research. That episode aired tonite and I know it refers to before 2000, which is why I am so incredulous why the medical profession isn't more aware at this point of the devastating ramifications of micro-organisms jumping from animals to humans from some form of contact or consumption. Anyone can eat a fish infected by a disease, as you know and contact it, so actually Phiesteria could be implicated in at least some of us. The Red Tide was around my area way back and who knows how long the critters can lie dormant before wreaking havoc or morphing into something that adopts us as a host.

I agree that what we all encompass under the 'morgellons' umbrella are most likely different things, as I've stated before in other posts. I don't know that we will find a common denominator in specific classification of 'bug' since they don't even know what to do with the ones they think they already know of. A general classification is probably as good as we'll get, as symptoms are so similar for such a broad range of parasitic organisms, whether fungi, bacteria, protozoa, virus etc. Most manifest with cutaneous lesions. The fibers could also even be hyphae of our immune system at work.

Dr. Harvey thought before it was Lyme and now chlamydia pneumonia, huh? That pathogen could have had its inception anywhere in the body and is a secondary bacterial infection, which is common with any disease. It may very well HAVE been Lyme and still may be along with the chlamydia pneumonia. The pathogen makes its way through the body and when it reaches the lungs renders them useless. this may even by why we have brain fog (just musing here) because our brain is getting less oxygen as is our blood. Bacteria are responsive to antibiotics, but virus is not and we have no idea what we are dealing with. It could very well be a virus. the virus is dna or rna and will use ours for it's survival. Until they isolate the pathogen, they can't come up with a cure.

My beef is that all this information is there in the medical community. Once the samples are studied they will know. Question is why they are dragging their feet and when they will stop dragging them.

Kritts

[tcmgpt13]

Hi Kritters,

Just thought I would put this link up to an old post I made about pfiesteria. There is a two part article about Shoemaker in this link as well as some pubmed information and a list of helpful sources for those with chemical sensitivities. I believe many have chemical sensitivities which means generally we do not excrete toxins that well from our bodies. This is something enlightened doctors, such as those who treat children with autism are beginning to understand and try to address when treating patients. I am sorry, but besides broken links which I have tried to repair today (05/28/09) I also cannot make the links direct exactly to the posts, but I have posted the permalink to find it on the current thread:

Bryozoan Hypothesis (Permalink 37)

Several links are in this post which you might be interested in. Some are about Shoemaker's treatment of pfiesteria and others are about pfiesteria itself.

What is interesting to me about this next article is that Chlamydia pneumonia in certain forms is labeled as a bacterial parasite and is described as putting out a biofilm. Dental plaque is a common biofilm (has anyone else noticed that plaque is heavier since getting sick with morgellons). I think you will enjoy this article about Chlamydia from the Townsend Letter, although any current connection to Morgellons seems have been called into question (comment added 05/28/09):

New discoveries in the successful treatment of Chlamydia, parasites and biofilms | Townsend Letter for Doctors and Patients | Find Articles at BNET

I think the brain fog might be exacerbated by biofilm after reading this article. Biofilm is something I and others see on the lesions. I feel the parasites/fungi may be feeding on this or else they are coexisting with it. One of the things which I do constantly is treat the gall bladder with a TCM formula for gall stones. I now see that this biofilm (and I think also possibly parasites/fungi) hides in the liver/gall bladder as I have been suspecting (this is also the thought of Shoemaker with his treatment for pfiesteria). No wonder this is so difficult to treat. Anyway, I have a lot of improvement from treating this area of my body.

For newbies I am reposting this link to a post by 10meters, an actual interview this member did with Dr. Harvey which discusses many of these issues (really interesting post too, thanks again 10meters):

Harvey interview posted on drstressdoc (permalink 1)

This one also by 10meters discusses morgellons/lyme and has a lot of information and links in it:. Be forewarned it is very long, but I think if one takes it a bit at a time it is informative:

morgellons-lyme treatment medical approach (permalink 1)

I think that the medical profession is similar to a large ship just slowly cutting through the waters. Suddenly a large rock looms ahead and the captain has to turn ship away from it. And yet, it will take time to do that. Too sudden a turn will capsize the ship. So in their time, doctors are plodding as fast as they can, given their medical machine which carries rules, insurance, regulation, lawsuits and very little innovation and new thinking. The government is even worse when it meddles in medical affairs. If it were not for Harvey and others working with him we would be so much further behind than we are. So I try to say a quiet thanks to these pioneers. I also hope for some of the more natural cures mentioned by Paul Yanick Jr, author of the above Townsend article.

tcm

[Kritters]

Hey TC,

Thank you SO much. You know I did save all that and when my puter crashed last week I lost everything so now I've a good start compiling info again. Talk about a bummer, huh? (if you notice, right under your post I thanked you THEN LOL!

Hey I have a quick question for you. Do you know if the treatment for gall stones would work for kidney stones? I know a few people with very painful ones.

thanks again,
Kritters

[tcmgpt13]

Yeah, Kritters I saw your thanks on that post, but here trying to get everything together about this subject in one place. Also I thought that 10meters had a terrific post with the Harvey interview plus wanted to repost Niels blog and put a lot of good info in one place. There is so much out there and it is easy to miss things when they are scattered in so many places. It would be great if Niels added some information about pfiesteria in his blog, as it could be part of the picture for some with morgellons too. So many do live near the water and the red tide.

Gall stone formulas are different from kidney stone formulas in TCM, although some herbs are the same (gold coin for one). The herb chanca piedra means break stone in Spanish, and you can find a formula using that from Raintree Nutrition. Think I have posted it before, KDY-CL (short for kidney cleanse). This got out some large parasites from this area a year or more ago.

http://www.rain-tree.com/amazon-kidney-cleanse.htm

Gravel root is another herb that is good for kidney stones. Better if used in a formula along with other herbs to support the kidney. Diuretic herbs may deplete needed electrolyes if used constantly. Either replace minerals (electrolytes) or do not use these formulas for prolonged periods.

A tea for chancra piedra using raw herbs is obtainable from:

http://www.wholeworldbotanicals.com/...reakstone.html