Update on What's Working

[FindACure]

Update from my previous report. I found that the protocols I listed worked to turn the sores into raised scabs, instead of open sores. However, it just seemed that they went underground a bit. I could still pull (a) nit(s) (have to do it every day and 2-3X a day) out of that raised bed scab. Also, there always seems to be a "runner" that emerges from one side of the scab/sore so it becomes a teardrop shape, more or less, dot at the top. I have to dig that "dot" out, that nit out, which is always attached to a fleshy, crescent shaped, crustier side of the scab. So even though the sores are now dry and not open, I still have to pick the nits and larger larve (?) sacks out. Someone here had this, and I heard from a friend that she said the only thing that is working for her is ANTIBACTERIAL Dial soap. I instead tried Cetaphil, a soap that Walgreens and places like that have, for both scalp and body (makes the hair nice), and have had amazing progress in 3 days (after 4 months of dealing with this!). But we'll see (some nits and sores still seem active, so no miracle cure here; but may work out to be helping. Seems that it is.
I think the reason these soaps may work? might have something to do? with my friend, who got bitten at my previous jungle home, and had two sores on her forehead. They were the same, crescent crust on the side, open, with a tear drop "dot" on the edge trying to make a new sore. She went to a doctor who said it was a rare form of staph, and gave her antibiotics with SULFUR. Her sores healed right up. Now maybe she didn't have the "unnatural layer on the skin" like I had. But her doctor wouldn't take new patients. So I went to a doctor who agreed to try sulfur antibiotics to see if it worked. And that's the tie-in to the dial soap and the cetaphil; both have sulfur ingredients. I figured I'd use it for a short while, since they both have many toxics, if it works. And so far the soap is doing alot. Just starting the sulphur antibiotics today.
For me, it could be staph related, but only if the staph had set up a condition for the moths' larve to enter my skin. Because as I said above I found a fully formed moth folded into a piece of scab, and could see it all: head, antena, wings, legs. Shocking. See morgellonsuk.org.uk for stories about small flying insects under the skin. By the way, that doctor said that he's been seeing more and more people with this disease in his office here in Hawaii. I knew of two others, and of a family on Big Island.
I know that there is very little information on small white moths and morgellons, in the US at least. However, not only did I find the formed one inserted and folded crescent shaped in a scab, (triangle-looking head, forked (2) antena; and not only did the pest control man identify it as a tiny moth (and with the larve sack just above the leg); but I have been bitten, say on the forehead, and then saw the tiny moth fly away that very second. Exactly on the spot of the tiny bite, which I can see, is a bigger sore, the same kind, with a few hours (that takes months to get rid of). These things are tiny, you can barely see them except in front of the tv or so close that they are flying off your arm or forehead or something.
The other way new bites show up is that the moth flies over the head and "drops" larve sacks and nits. Nits show up on my clothes and they are very sticky. Also when I wash, the wash cloth dislodges nits and unknowingly the end up elsewhere. I have seen the tiniest nit, picked off the side of a scab where a lot of nits fall off, immediately re-insert itself into my finger flesh if I happen to leave it for a moment or two after picking it off. Or one drops on a fleshy area, I'll have to dig it out realizing I went into the skin already. The larve sacks, about the size of a flax seed, are dropped by the flying moths on my floor. Get this: they enter into the tile and stay there, inside the tile. Incredibly resiliant, tenacious things.
Well, that's all I know for now; in case someone else encounters this problem and suspects the white moth, I post this. Best wishes to us all~ May this pass finally and completely from your body and from the Earth.

[Baraka Obam]

Do you have any pictures of these Moths, Nits, Larva, antenna wings and legs, I have to ask, if they are so small you can not see them unless they fly in front of a TV in a dark room, I have to wonder how it is you can identify them?

[janedoe]

its bugs.. im telling ya, once i got this house rid of old paper,carpet,cleared plants aways from house ( youd be shocked how old flowerbeds get moldy, then bugs grow)
what were seeing is bug body parts and poo. thats what were pulling out of our skin! once the home is clean, youve got to then break the cycle, like getting rid of fleas... its hard work, but my skins finally clear..

[janedoe]

it also helps to switch products, like from hydrocortizone, to neosporin.,etc.. get rid of standing water outside.space bags for everything your not useing at the moment.once you get a room clean, dont recontaminate it by wearing your yard clothes in, take the dirty clothes off in the garage! keep your car spotless, windows always rolled up! ( even inside my garage, my windows are always up) dont mix laundry with other people.keep laundry done.put bugcovers over all mattresses! peel ll old wallpaper and paitn with mold resistant paint.. get rid of or put in space bags all old books.these things get into the backsides of your drawers,cabnets, etc.you must pull out everything, then wash or toss or store.they get into electronics, so a can of air spray is good.look behind your old stereo speakers, i found one woffers completly chewed! i was shocked, no clue what did that.
when in doubt, toss it out!!

[MeToo]

Really good advice. Maybe some people would want to wear a dust mask for cleaning attics or basements.

Originally Posted by janedoe

it also helps to switch products, like from hydrocortizone, to neosporin.,etc.. get rid of standing water outside.space bags for everything your not useing at the moment.once you get a room clean, dont recontaminate it by wearing your yard clothes in, take the dirty clothes off in the garage! keep your car spotless, windows always rolled up! ( even inside my garage, my windows are always up) dont mix laundry with other people.keep laundry done.put bugcovers over all mattresses! peel ll old wallpaper and paitn with mold resistant paint.. get rid of or put in space bags all old books.these things get into the backsides of your drawers,cabnets, etc.you must pull out everything, then wash or toss or store.they get into electronics, so a can of air spray is good.look behind your old stereo speakers, i found one woffers completly chewed! i was shocked, no clue what did that.
when in doubt, toss it out!!

[tcmgpt13]

I am just now feeling as if I have any energy at all so when I read about all the cleaning I sigh as I have gotten so far behind in the years I have been sick. Mostly I have been in a survival mode. I realize now that I am having a break (how long?) from the overwhelming fatigue I have experienced that I need to get started on all of that cleaning up. Just a corner at time. Mostly I have stuck with getting the wash done, the dishwasher started and some kind of food to eat when I have not really felt like eating. At times I have been so sick that it was an effort to just walk around. The brain fog was often severe. So I agree with fac here that sometimes drugs for a short period may bring those of us with severe symptoms to a level which permits us to function more normally. Anyway thanks to fac and Jane for sharing their thoughts here.

[Baraka Obam]

Originally Posted by janedoe

its bugs.. im telling ya, once i got this house rid of old paper,carpet,cleared plants aways from house ( youd be shocked how old flowerbeds get moldy, then bugs grow)
what were seeing is bug body parts and poo. thats what were pulling out of our skin! once the home is clean, youve got to then break the cycle, like getting rid of fleas... its hard work, but my skins finally clear..

Jane do not worry about speakers, they over time disintegrate all by themselves. Has something to do with the nature of the material. You can buy new speakers for cabinet's online cheaply, You can even by repair kits for speakers, you see its that common, look on ebay.


I am so so so interested in all these bugs, I want to see them all, I want to see them coming out of the skin, I want to see them in the blood, I want to see pictures of them.

Of course doctors can not see them when inspecting people, so I have to wonder why they go away when the doctor looks.

I am definitely not a proponent of doctors, I just have to wonder why all the doctors are blind.

It just makes me mad, if we pool all the VIDEO'S and pictures we have of living bugs coming out of skin wiggling all over the place, we will have a better idea of just what kind of bug this is.

I have found one living bug in the urine but not one other bug item on the skin with both kind of microscope, handheld digital and a good regular type, magnifying glass, I even put on my glasses.

Also my house is kept clean and I do not see any bugs, no bugs, I guess to prove these bugs are a problem we may have to come up with some proof, the doctors will be no help, they are ALL blind.

Its like the doctors have all been hypnotized, how is that.

Is it not funny that they can not see.

[FindACure]

Just posting that the two rounds of (month of) Sulfur antibiotics only got rid of the bites that had turned into boils and the staph that had come from digging mites out of sores (and living in Hawaii, where staph and mercer is very common). Started using Sulphur soap (precipitated) from Dermisil, now changed to Naturosil or somthing like that. Two bars have helped with sores that have been around for months, but still getting new sores.
So all my previous optimism that I'd find a cure is gone many times over, yet I keep reading here, and am going to try mineral oil or olive oil. And definitely need to get a mattress plastic cover and for chair, ran out of money from all this a while ago. As you know, it can ENTIRELY change your life. !!!

Someone posted to me about "body too alkaline not good, stay at 7.5" Okay. got it. Being 7.5 alkaline is almost impossible (for me at least) so not to worry about that one. Thanks.

Also B.O. asked about "how can you see the moths..." well, they are tiny, and I see them: on the floor spread out fan like, and when I pick them up, about 20 immensely tiny nits are there with them. Also, I have felt a bite on my face many times, and then at that close distance, see them flying off my forehead. Not only that, but found originally "the tiny bug" that had been landing on me, and eco-pest identified it as a moth, and showed the larve sack on it's leg (tiny). I find those larve sacks on my floor, and nits everywhere (including the laundromat where I go, and the grocery store), get onto my bed, by my sink, in my tub, all over my floor over and over all day and night, I pick them up, later there are more. I have the tiny moths fly in front of me when sitting outside, and then later they seem to come from the back and land on exposed body parts, feel the bite and see them fly away.

That tiny sore every time turns into the typical one, oval shaped, with a nit inside, with a "lead" nit making the second sore off the first one, and the weirdest thing STILL is that one sore will produce nit after nit after nit for months, and I spend two hours a day digging them out of 30 sores on my body and forehead scalp area; still they are back, a new one surfaces an hour later, more the next day.

Have you ever heard of biting moths? These moths don't make holes in clothes either. The one under my skin fully formed, a sore I'd not been able to get to that got big, which I saw with high-powered magnifying magnifying glass had that larve sack by it's leg. I could draw it for you, I looked and looked since I couldn't believe it, shocked beyond belief. But it had two antena, and was folded on it's side, a pyramid shaped head (back of head base of pyramid, front of head, point of pyramid), folded wing on the side it was laying tucked into the side of the sore, crescent shaped, with two legs. It was unmistakable. I got rid of it (I was horrified and threw it into the Diatomaceous earth powder;guess I thought it wasn't the only one I'd see, but there is no doubt in my mind, I looked and looked and tried to imagine it was just skin or fibers, but it was as clear as anything, that little body. Thank God it's the only one I ever saw. But you can research England particularly, Morgellons, and find many stories of larve from flies, and moths, also Australia, so it is not unheard of. God knows people think I'm crazy and the doctors, too, when I speak of tiny moths. But I'm telling my story as I bet it will come up later for others about the moths.

I must say, something has changed recently. There used to be a crust along the edge, now there is simply a recurring nit along the edge of the sore. Some of the nits keep digging deeper and deeper by the day, when I pull off the scab, there is a hole under where the nit was, and it goes deep as if it's trying to get into the blood, like what staph does. That didn't used to happen.


I have just reached the 6 month point!!!!!!!!!!!!!! Frustrating beyond belief, and the fultility mounts, as you probably know. Just take it moment to moment and try to keep myself as happy as possible with enjoyable things.

And yes, they like water and electrical equipment; I find the nits around my sinks; also by my cell phone, computer, lamp, and a bunch of nits will show up around those areas, ALWAYS if more than one nit, there is a "dust ball" fiber thing by it. I sweep twice a day, and there's very little in my small house anymore with fabric to cause dust balls, but they are always there, loose and woven and curled into long strips, those dust balls, and always by nit areas.

I have moved out of the moldy jungle and am now in a clean, new little home in a very sunny area; but the same moths are everywhere around here, actually more than over there at the old house; more nits on the floor, more tiny moths outside and in my house...

But I hear it has to do with the skin condition; how the immune system is compromised or this wouldn't have happened, overtoxicity or whatever. All I do is smoke American Spirit cigs, drink some coffee, which I balance with alkaline, healthy food; otherwise have been very healthy so I'm just trying to get my immune system stronger and hanging in there, like you all.

Thanks for the tip about mattress and pillow cover, maybe one of those bug-nets (mosquito type) that are made for bed bugs. And going to try to mineral oil next...

Good luck to you all.. to us all... Somebody, Find A Cure...

[annesco]

Wow, I am so sorry to hear that you're still battling these things. Have you considered taking antiparasitics? Like Ivermectin?

And, not to sound like the mom/grandmom that I am, you might want to consider quitting the cigs, even if they are American Spirits. Also, start replacing the coffee with green tea...

Just a thought...

Originally Posted by FindACure

Just posting that the two rounds of (month of) Sulfur antibiotics only got rid of the bites that had turned into boils and the staph that had come from digging mites out of sores (and living in Hawaii, where staph and mercer is very common). Started using Sulphur soap (precipitated) from Dermisil, now changed to Naturosil or somthing like that. Two bars have helped with sores that have been around for months, but still getting new sores.
So all my previous optimism that I'd find a cure is gone many times over, yet I keep reading here, and am going to try mineral oil or olive oil. And definitely need to get a mattress plastic cover and for chair, ran out of money from all this a while ago. As you know, it can ENTIRELY change your life. !!!

Someone posted to me about "body too alkaline not good, stay at 7.5" Okay. got it. Being 7.5 alkaline is almost impossible (for me at least) so not to worry about that one. Thanks.

Also B.O. asked about "how can you see the moths..." well, they are tiny, and I see them: on the floor spread out fan like, and when I pick them up, about 20 immensely tiny nits are there with them. Also, I have felt a bite on my face many times, and then at that close distance, see them flying off my forehead. Not only that, but found originally "the tiny bug" that had been landing on me, and eco-pest identified it as a moth, and showed the larve sack on it's leg (tiny). I find those larve sacks on my floor, and nits everywhere (including the laundromat where I go, and the grocery store), get onto my bed, by my sink, in my tub, all over my floor over and over all day and night, I pick them up, later there are more. I have the tiny moths fly in front of me when sitting outside, and then later they seem to come from the back and land on exposed body parts, feel the bite and see them fly away.

That tiny sore every time turns into the typical one, oval shaped, with a nit inside, with a "lead" nit making the second sore off the first one, and the weirdest thing STILL is that one sore will produce nit after nit after nit for months, and I spend two hours a day digging them out of 30 sores on my body and forehead scalp area; still they are back, a new one surfaces an hour later, more the next day.

Have you ever heard of biting moths? These moths don't make holes in clothes either. The one under my skin fully formed, a sore I'd not been able to get to that got big, which I saw with high-powered magnifying magnifying glass had that larve sack by it's leg. I could draw it for you, I looked and looked since I couldn't believe it, shocked beyond belief. But it had two antena, and was folded on it's side, a pyramid shaped head (back of head base of pyramid, front of head, point of pyramid), folded wing on the side it was laying tucked into the side of the sore, crescent shaped, with two legs. It was unmistakable. I got rid of it (I was horrified and threw it into the Diatomaceous earth powder;guess I thought it wasn't the only one I'd see, but there is no doubt in my mind, I looked and looked and tried to imagine it was just skin or fibers, but it was as clear as anything, that little body. Thank God it's the only one I ever saw. But you can research England particularly, Morgellons, and find many stories of larve from flies, and moths, also Australia, so it is not unheard of. God knows people think I'm crazy and the doctors, too, when I speak of tiny moths. But I'm telling my story as I bet it will come up later for others about the moths.

I must say, something has changed recently. There used to be a crust along the edge, now there is simply a recurring nit along the edge of the sore. Some of the nits keep digging deeper and deeper by the day, when I pull off the scab, there is a hole under where the nit was, and it goes deep as if it's trying to get into the blood, like what staph does. That didn't used to happen.


I have just reached the 6 month point!!!!!!!!!!!!!! Frustrating beyond belief, and the fultility mounts, as you probably know. Just take it moment to moment and try to keep myself as happy as possible with enjoyable things.

And yes, they like water and electrical equipment; I find the nits around my sinks; also by my cell phone, computer, lamp, and a bunch of nits will show up around those areas, ALWAYS if more than one nit, there is a "dust ball" fiber thing by it. I sweep twice a day, and there's very little in my small house anymore with fabric to cause dust balls, but they are always there, loose and woven and curled into long strips, those dust balls, and always by nit areas.

I have moved out of the moldy jungle and am now in a clean, new little home in a very sunny area; but the same moths are everywhere around here, actually more than over there at the old house; more nits on the floor, more tiny moths outside and in my house...

But I hear it has to do with the skin condition; how the immune system is compromised or this wouldn't have happened, overtoxicity or whatever. All I do is smoke American Spirit cigs, drink some coffee, which I balance with alkaline, healthy food; otherwise have been very healthy so I'm just trying to get my immune system stronger and hanging in there, like you all.

Thanks for the tip about mattress and pillow cover, maybe one of those bug-nets (mosquito type) that are made for bed bugs. And going to try to mineral oil next...

Good luck to you all.. to us all... Somebody, Find A Cure...

[FindACure]

Thanks everyone for your input. The sulfur soap helped a bit, but 7 months later, I still have almost as many sores. Just trying GSE (grapeseed extract) and it's helping a bit (dilute per instructions). Frustrated that they took morgellons com and morgellons org OFF the web ! I had a doctor (mandatory appt) today who was actually willing to look into it (even though he said "that's a dilusional disease" and I had to inform him. Makes me wish there was another name for this NEW disease. Damn frustrating to not have those potent sites FULL of information unavailable now. As if it's not hard enough to get credibility. Being one of the most optimistic, uplifting persons I know, this last 7 months has radically changed my life. But still hoping against hope for a cure, and wishing you all the best. God knows we need all the help we can get.