BOLD STATEMENTS PART OF DISEASE??? Such as CURE or KILLED.

[Baraka Obam]

Here comes a warning, a warning to all members, to beware of strong suggestive statements of treatments of cures or diagnosis without any form of testing ability to kill things that have not been proved to be part of a disease, nor have they been proved to be alive.

Very bold statements of knowledge of what makes this disease work, or how to CURE the disease by people without a laboratory would seem to be more Napoleon Complex than truth.

It is hard to discuss this fact with these sort of people, they will over time jump from one cure to another and make some fantastic claims about every one of them.

Everyone will have a tad of hope ladened diagnosis but in time these normal people will let go of the everything I use is a CURE and everything I say is written in stone.

EVERYTHING ANYONE HERE SAYS IS WRITTEN IN THE SAND, one should be carefully about who you listen to and what you do to address any part of this issue, Caustic agents, salves, sprays, poison's, drugs, treatment, especially ones that doctors assure you that many have taken with no ill effect could be pressed by a drug company culture with no true testing results.

Some doctor drugs will kill you and have killed many other's quickly, look for black box warnings on line for drugs you may try.


When inquiring about the length of a persons treatment with anything ASK HOW LONG THEY HAVE DONE THIS TO GET RESULTS, ask HOW HAVE YOU TESTED TO BACK UP YOUR STATEMENTS.

People that have a need to be right may become mad, so what, who cares at least they do not run from one thing to the next suggesting to do this and do that with no REAL LASTING change in symptoms at all.

It is more lip service, a service for them to hear themselves talk, we used to call them OVERPOSTERS, their posts would fill the page every day with useless banter aimed at their huge egos a need to hear themselves talk and little or nothing else

You could not read any posts about anything else as they would BURY those with new treads about either things that had already been posted OR threads of useless banter.

Just a word to the wise, some of the treatment literally come from people that have issues.

If you do not believe me have a phone conversation to talk about the suggested ideas.

I have a funny feeling there is something strange going on lately, there is a old personality here with us, LOL, sort of like a ghost. A Neapolitan Complex ghost. LOL.

[sportsman1969]

Greetings!

Clinical diagnosis by dermatologist.

2012 ICD-9-CM Diagnosis Code 692.9 Contact dermatitis and other eczema unspecified cause

Unspecified cause

Hmmmmm

Yes, I was clinically diagnosed for the above IN WRITING.

TREATMENT AND EVALUATION Ongoing pending further evealuation.

Hope this helps!

Godspeed!

[Baraka Obam]

This thread is about peoples need to find help and others need to blurt out stories of instant healing, sort of like faith healing.

The ease of healing is not in our grasp as of yet.

It is not only my opinion, but the opinion of all long time sufferers to be more than skeptical of exaggerations, manifestations of the word cure or just plain outright lies used by unscrupulous sales people.

What spurred me on to post this, a new member suggesting going into his bath room and injesting all of the stuff in there including the mouthwash, I am just sure he is well now, I am sure everyone will be well now, I am sure man will never start wars again because of his fantastic idea.

The one thing I am not so sure about, how many are gonna die from this kind of assumtions.

I look around and it seems everyone is grasping to believe the only qualifications that the bathroom doctor needs is a loud mouth, insistance and the fact that they are still alive.

Then while we contend with lesions, pain, suffering in so many horrible ways, then we have the instant avid all knowing cure specialists appear.

I thought I had seen it all, and I probably have but did not recognize the situation for what it was.

The chances that so many, so many spending multi millions on doctors and treatments and doing homework that the simple minded will never understand, getting results that range from semi good to nothing, then they with the luck of the Irish know literally all the answers, instant morgellons specialist.

Does it not dawn on them that there are able people, with abilitys greater than their own.

There are very few people like this, so bold to imagine such a thing.

This idea is the same universally shared by University students all over the world, they fail to understand.

Graduation does not qualify one as being great, it merely puts them in line to understanding, their imagined greatness is quite often destroyed. It has to be destroyed, if it is not they will NEVER be able to learn.

Many of these types will go from job to job finding that everyone is against them, the people are all stupid and nobody understands them. What they fail to take into account is the percentage of probability, let me see, 10 jobs, 200 people that are unfit to stand in my shadow, why don't they understand that. LOL

The law of probability says, problems do not follow this type of person, they bring issues with them.

This post is not about any one certain person, it is more about the rush to diagnose conditions and the demand to know who can deliver a cure, so far the numbers of so called cures are in the 0% category.

Hopefully we will find one soon that delivers, until then all the (THIS JUST IN headlines are just hype)

The idea that I am the expert I started this morning, in the words of that same type of person, well, ITS JUST NOT FAIR, LOL.

[skylark99]

Although I am really busy at the moment with obligations (Sunday being no exception), I popped in on my lunch hour to see how everyone was doing.

This thread caught my attention, and I want to express my personal opinion about this topic.

The use of the word "cure", the use of phrases such as "kills Morgellons" and "Morgellons is (insert your own organism/entity/conspiracy theory here) are very misleading --in my opinion.

For any newcomers out there or new people stopping by to read posts and threads looking for information, I would like to share a few personal opinions:

At this time there is no known cause or cure for Morgellons.

Not all people who identify themselves as having this illness have exactly the same symptoms. Therefore, not every protocol or doctor-supervised therapy will work for all people.

Unless you have some medical qualifications or education or understanding, and know what you are doing, the wise patient will always seek advice from a qualified medical practitioner before any treatment is attempted. Most medical or alternative practitioners will not treat themselves, but seek advice from other professionals in their (or other) fields.

Please be aware: this is a message board on the internet, it is not a doctor's consulting room or an ER/A&E. As far as I know there is no one here who is qualified or licensed to diagnose or treat other posters or readers.

Although a bother sometimes for me and time-consuming, I try and provide factual, verifiable and documented links to any medical information that I post. Posts and threads by tcmgp13 are a good example of how this is done.

Finally, in respect of the site owner, please have a care for any issues of liability or legalities, regards what is posted on the message boards. This site is an act of caring and compassion by the owner, whose intention is to help and support those suffering from Morgellons. Likewise, this site is viewed by people of all ages, please be sensitive to the fact that young people sometimes read what is posted here.

I appreciate the opportunity to post in this forum and to express my opinions. For the record, I would like to point out that there is a good crew of members here who are already aware of, and consider the above when posting. I appreciate them and the site owner, too.

Thanks for listening.

[tcmgpt13]

I agree with what you have said in your post here Skylark. Great post. Especially this:

quote=skylark:

'The use of the word 'cure', the use of phrases such as 'kills Morgellons' and ''Morgellons is (insert your own organism/entity/conspiracy theory here) are very misleading' --in my opinion.'

I would like to add that such comments about cures are sensationalistic and indicate that more than a little snake oil might be going on behind the scenes here. And in more than one way when reading some earlier posts.

Sky, I have noticed your posts often present factual information which also adds a lot to the discussion of this mystery we all live with...I know we both wish there was an easy cure to M, but so far despite the combined efforts of many posters, attempts to treat (and cure) using more natural methods or even Western medicine there has so far been no cure of M. Improvement? Yes. Remission? Sometimes. A cure remains as elusive as it ever has.

Curing an unknown organism is very difficult. Until there is a proven cause for M, unfortunately snake oil cures will no doubt continue to be promoted by the unscrupulous to those who are desperately seeking renewed health. A profession which I suspect is as old as the oldest profession.

It seems though that some here do protest too much. Ironically some who protest the loudest about this latest bout of 'cure' promises have been the ones who trounced upon anyone who expressed doubt about the latest unproven M 'cure.' At least while they were busy suggesting it would work. Here is an old thread which might help newbies from becoming overly swayed by the recent discussions of 'promised cures' by whomever starts to make them:

morgellons-disease-research.com/Morgellons-Message-Board/complementary-alternative-therapies/6431-mathematical-model-why-snake-oil-sells.html

[Pollyringworm]

I agree that using the word "cure" may be a bit premature. And we have to remember that not everything has worked for everyone. Please remember that if you havent even tried it, you cant debunk it. Why cant it be listed as a possible treatment to alleviate symptoms?

You can imagine sportsmans excitement as his suffering decreases every day. Nothing hes promoting hes developed himself, so hes not profiting from it.

I willingly accept this protocol as a successful treatment. And i hope it works for all of us.


Eliminating the lint alone is a miracle. I cant wait to get my moldstat.

[Baraka Obam]

The senstionalism around new treatments is just that in most cases, the word cure posted here is a lasting and most likely unproven and some times dangerous.

New forms of wonder treatments have been here before, they will be here again there is no patent on the idea.

The fact remains, I myself am on a protocal, the best that I feel able to deliver after 6 weeks is it looks very promising. There could be alot more to say, but then I would be responsable for the spread of a possible let down, maybe even dangerous, early bold statments give hope to others that may be misleading to say the least.

What I have to wonder now is how did this thread turn into sportsmans protocal

Polly good luck to you and sportsman in your TRIAL of his protocal, hope it delivers all that you expect in your search for complete recovery..

[annesco]

Originally Posted by Baraka Obam

The senstionalism around new treatments is just that in most cases, the word cure posted here is a lasting and most likely unproven and some times dangerous.

New forms of wonder treatments have been here before, they will be here again there is no patent on the idea.

The fact remains, I myself am on a protocal, the best that I feel able to deliver after 6 weeks is it looks very promising. There could be alot more to say, but then I would be responsable for the spread of a possible let down, maybe even dangerous, early bold statments give hope to others that may be misleading to say the least.

What I have to wonder now is how did this thread turn into sportsmans protocal

Polly good luck to you and sportsman in your TRIAL of his protocal, hope it delivers all that you expect in your search for complete recovery..

I am in agreement with the use of the word "cure". I don't believe that it will come anytime soon, and certainly not without the aid of more professional, medical and government-sanctioned sources. That being said, when I read posts from individuals who are now "symptom free", and have been for a sustained length of time, it gives me hope. When I first began displaying the acute symptoms of this condition, which happened right after the bird mite infestation, I was sure that there was no hope, and had a serious crisis of faith, etc. I considered that it might be better not to live than to live with such horror.

Since that time, and having experienced sometimes 3 - 4 days of almost complete "normalcy" at a stretch, I can see that it may be possible. Will I have to observe a strict protocol? Yes. Strict diet? Yes. Will it be for the rest of my life? Almost certainly. However, I will do all of that and gladly in order to regain a semblance of long-term "normalcy" and good health. That is why I read and note all of these posts, from senior members as well as newer ones. We all seek a cure, and we all crave the relief of symptoms.

I will also submit that I believe every single one of us has gained an entirely new appreciation and perspective on Life through this experience. It's amazing how I can function daily, go through the motions of living, experience joy and gratitude for those around me whom I care for and love, and have the shadow of fear ever looming over me. I do not have the bad lesions (yet?), and am afraid of getting them, or of something comparable that will upset the delicate balance that I have attained, with my life and work.

If we don't share new concepts/ideas, we won't learn. I have no lab nor will I ever build one. I don't even have a microscope, and will probably never get one for this. I merely try to build and enhance my immune system, hoping to get to a point where I become stronger than this disease and beat it down. Whether it is a fungus, bacteria, chemical, biological, makes no matter to me. There are people out there who are either never infected, or are so strong that their systems keep the symptoms at bay. This is what I strive for. This is what I will settle for for now. Maybe I'm a coward, and maybe I am selfish, but I think that it's really what we all want.

[tcmgpt13]

I would like to point out that just because someone has not created a product it does not necessarily mean that said person is not selling a product. There would not be many products for sale if only the person who created a product sold it.

And when some seem to promote and/or sell products it does not mean that those products being promoted and/or sold are safe or even work. Some products and/or protocols which have been advanced over the years for M could be dangerous or have proven to be dangerous to some. So one could easily say that not only do some products not work for some people, some products which work for some people are dangerous for others. Frequently those who sell will only present the good side of what they are promoting and/or selling. All warnings, dangers and cautions about what they might be selling and/or promoting are omitted and/or removed from their discussions. Reminding people to do their research or showing research which says something different than what another person is saying about a product or protocol is not debunking a product or protocol. It is however providing needed information so that people can make informed choices.

Sometimes people promote products for money and others do this simply for attention. Or some just do it because a product has worked for them, but they are not selling anything (easy to spot because these members do NOT keep mentioning a product, claim bogus cures or declare only 'they' know the 'cause' of M and keep mentioning all these over and over again, thread after thread, statement after statement ad nauseam).

Another thing many sellers do is claim that they are not profiting from what they are discussing. It is a red flag.

Moldstat products are also available at LOWES, either online or in the store. So there is more than one place to buy it. It is available in my area, so some stores do stock it locally, but if not it may be ordered online from LOWES.

quote=Pollyringworm;85835]I agree that using the word 'cure' may be a bit premature. And we have to remember that not everything has worked for everyone. Please remember that if you havent even tried it, you cant debunk it. Why cant it be listed as a possible treatment to alleviate symptoms?

You can imagine sportsmans excitement as his suffering decreases every day. Nothing hes promoting hes developed himself, so hes not profiting from it.

I willingly accept this protocol as a successful treatment. And i hope it works for all of us.


Eliminating the lint alone is a miracle. I cant wait to get my moldstat.[/quote]