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Old December 16th, 2010, 11:17 PM
Doc Holliday is ............ why.....I'm your Huckleberry
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Smile woman Warrior

felt a need to share this,.seeing we all have been there & for some still,.take care xx to all,..and merry Christmas,..hope every one has a good Holiday's
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Last edited by Doc Holliday; December 17th, 2010 at 03:16 PM.
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Old December 17th, 2010, 09:49 AM
Baraka Obam is FEARLESS LEADER
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Default Sktlark

I am in nned of a corrector also, it seems us men may not be the best at speeling after all we have to worry about being warriors!

I mean we usda had to drag dead saber tooth tigers back from the field while you all sat back in camp next to the fire.

After the nukes fly we will be back to that.

Still I have to wonder if she was a wArrior or a wOrrier
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Old December 17th, 2010, 11:36 AM
Doc Holliday is ............ why.....I'm your Huckleberry
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Smile this gal is making a point via youtube & I like her style

ok guy's,..I get it,.like we all never had a speeeeling deficit LOL,..my brain is a strained,.Hey Bam!! what up dude you too syk I'm really bad for typos,..need a bigger keyboard,.I start my own language playing poker & chatting,.Dang typo's galore this just shows how I can get,..ya need to remember,..I had C.F.S. before Morgs. thinking at times is a challenge,.take care all, one more out of five I think.
YouTube - TheRedline333's Channel the thing I like the most about these video's is Tina's spirit,.and your right Robin,,seems familiar, doesn't it,.the stammering & stuttering searching for words,.this is, at times what I and others deal with,..is that more clearer
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Last edited by Doc Holliday; December 19th, 2010 at 02:07 PM. Reason: stuttering & stammering
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Old December 17th, 2010, 12:57 PM
Robin is around
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Hey all,
I can truly feel her pain! not only is our disease completely devastating physicaly it also does affect us emotionally the fears and frustrations do consume you.i've been there for a couple yrs now but thankfully the clearer my skin got it also helped me emotionally its getting alot better this last month! after an extremely deep struggle with it. it is just like any other chronic illmess it gets progressively worse.it needs to be removed! Thanks Doc it def shows another aspect of this disease!
Be Well!!
Robin
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Old December 17th, 2010, 02:49 PM
Doc Holliday is ............ why.....I'm your Huckleberry
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Quote:
Originally Posted by Robin View Post
Hey all,
I can truly feel her pain! not only is our disease completely devastating physicaly it also does affect us emotionally the fears and frustrations do consume you.i've been there for a couple yrs now but thankfully the clearer my skin got it also helped me emotionally its getting alot better this last month! after an extremely deep struggle with it. it is just like any other chronic illmess it gets progressively worse.it needs to be removed! Thanks Doc it def shows another aspect of this disease!
Be Well!!
Robin
hey Robin!,.so good to see you round,.take care thanks you guy's
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Last edited by Doc Holliday; December 17th, 2010 at 03:17 PM.
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Old December 17th, 2010, 07:38 PM
Baraka Obam is FEARLESS LEADER
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Default The real deal for this woman

The real deal for this woman is this, what is swollen has a tumor under it and most likely it will open to show a lesion, then it may heal over and have never ending situations in the spot including scars, YUP.

She looks good right now, real good considering what she could look like.

Last edited by Baraka Obam; December 17th, 2010 at 09:53 PM.
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Old December 17th, 2010, 08:03 PM
Doc Holliday is ............ why.....I'm your Huckleberry
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Smile I had the same thing years back

Quote:
Originally Posted by Baraka Obam View Post
The real deal for this woman is this, what is swollen has a tumoe under it and most likely it will open to show the horrible mess under the skin, then it may heal over and have never ending situations in the spot including scars, YUP.

She looks good right now, real good considering what she could look like.
hey Bam,.I had that problem but not so pronounced,.I have no scares or problems from it,.had lots of swelling in my eye's,.lesion's under the eye's nose,& inside my nose,.. all better now tho. good to see ya round,.take care & yip we all are Bam,.that's why I posted it,.we all been there. love all you guy's,..itsá no easy sometimes,.but we do it!
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Last edited by Doc Holliday; December 17th, 2010 at 08:11 PM.
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Old December 18th, 2010, 12:28 AM
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Hey Guys

I can relate to everything that Tina is saying there, This site is absolutely great, but I find that the more I try and read about this, the lower I get, so I try to avoid reading too much. Apathy at its best I guess.
I'm 46, worked pretty hard all my life, nurse/midwife - I have a business, a large country house with a chunk of land. Even when I was sitting in the evenings I would be knitting, sewing, busy with something all the time.
I played back gammon at grand master level, enjoyed going out, going on holiday, keeping my home clean being with my 3 girls and husband, life was always pretty darn good, I've been really really lucky. Professionally, I got where I wanted to be. More than anything, I used to enjoy going to music festivals and going away on holiday
In common with most everyone on the site, that's all changed now. early 2009 I began to feel strange, but I think everything started way before then. In July 09 I started to feel the biting and stinging and the itching in my scalp was driving me crazy, I would be going through my hair with a nit comb and surprised when I found nothing, I soon started to notice lots of black specks in my emptied tea cups, of course at first I thought it was tea dregs - then I compared it to other peoples empty cups, Soon the lesions started, I went to the doctor and got scabies treatments, went to ER when things got really bad, was almost laughed out. I began looking with a magnifying glass, and seeing the tiny white fibres, and the black speck, noticed my gums receding all the things that everyone else notices. Went off sick from the job that I loved at the end of July 09, was daft enough to list the things that were going on with me and of course they've never let me return to work. Like everyone, Ive trailed around lots of doctors and now have been diagnoses as u guessed it, DOP coupled with "depressive disorder" (not sure where they got that one from) Well, since then it's been a downwards spiral, paid what now must be thousands of pounds trying to get help and answers, to no avail. My life is now consumed by this, every minute of every day. My face is never free from the ugly lesions, Ive aged 10 years in the last year so much so that people notice, I really feel very aware of this and try to avoid seeing people that I haven't seen for a while.
I tell you all this not for sympathy, or sorrow, just that my plight seems to be typical.
I can no longer concentrate on any projects, I lack the motivation to clean the house, I have great difficulty even setting up a game of back gammon and as for playing well, it just doesn't happen. Going out is a huge ordeal and thats if I manage to go at all. My life is passing me by, and for the last 18 months I have basically sat around and achieved nada. My husband goes from being a little helpful to crazy mad at me - he understand that there is something wrong, but really has no idea of the gravity of it all, I get the usual pull yourself together kind of remarks, truth is, I cant blame him, I am aware that I cause chaos in the house, when I try to clear up, I get into such a muddle I just make everything so chaotic and messy. He has forgotten that I was once dynamic and the main breadwinner and now sees that I am just I suppose you would say a burden.
I am aware that no matter how well I plan a visit to a doctor, with lists of what I want to say, I just underpin the notion that I'm a fruit-loop. I admire those on here that are helping themselves and self-healing, but I seem to lack the where-with-all to even do what is right for me, forgetting to take suppliments, eating crap. There just doesn't seem to be a way to just ignore this and get on with life. I've seen and cared for people with HIV/AIDS that don't react to their illness in this way. I could cope with it better if it didn't mess with my head so much, if I could get the odd day where it didn't steal every minute, but I don't.
Again, I only write this just to say that this it what it is doing to me and countless others. It seems to have made me very selfish in that it is so all encompassing that nothing else gets done grrrrrrr!!!!!
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