Hello - my story

[jpdonnelly@iprimus.com.au]

In February 2010, hubby, due to much skin irritation, itching and skin lesions, after being in the Depot and on the buses where he worked, went to the Doctor who gave him his first misdiagnoses, heat rash, this eventuated in him giving this to me.

Once we both had it, we went back to the Doctors who diagnosed scabies and then we used loads of scabies treatments etc. We did not doubt this at the time, as hubby on his first shift ever, with this large Government Bus Company, back in 2008, was bitten in a Depot bed and was diagnosed with the same thing.

This was probably the first vectoring, we had no idea at the time, he was going to be the host of whatever bug, probably bird mites and their passengers, for the next two years, I will explain this later re: the bird mites, and how this work place was harbouring such unhealthy filth, if anyone is interested.

When this didn't clear and we were sent to a Skin Doctor, who did not test in any way shape or form and simply put his hand up in the air and turned his head away from us, about 5 minutes after arriving in his office to beg for help, he said he would not waste his time, as we were delusional. (both of us)? We, by then were on the path to realising we had to diagnose and treat ourselves.

Because it is "not in the book of diagnosable diseases" due to the CDC, as quoted by 3 ID Doctors, they could not write any medical certificates, so we were both out of work with no income coming in.

After about 6-8 weeks, hubbies internal symptom became obvious and he became very sick, he was passing out, his legs were going from under him and eventually he got atrophy so bad in his right leg, because the Morgs were in his muscles etc, that the ID Doctor agreed to give him the antibiotics we had told him to prescribe, (this information was given to us by other Morgies sufferers, we found here in NSW Australia), not a single medical person we went to offered any help, assistance or advice, probably about 14 by then as well as many rushes to the local hospital.

We followed a protocol that these two guardian angels hand given us and we have added to the protocol from much of our own research, hubbies atrophy and excruciating pain etc went, our joint pain went, our CFS got much better.

However, hubby has never been able to rid himself of the crawling and we avoid our family, because of the fear of infecting them, how could you risk infecting two baby granddaughters with this, when you know they will be misdiagnosed and receive no assistance from the Med. People and will be treated like freaks and avoided, but told there is nothing wrong with them, at the same time.

We spend everything we do have on house cleaning, bug eradication and supplements, I believe this can be beaten and we are on the road to proving this, however the lack of support and the constant exacerbation of our illness, due to the arrogance, ignorance and lack of care from the medical people, (have you read the H/oath, it is a farce), makes this take much longer than it has to take.

Our hearts are damaged so badly, from not being able to nurture our children and grandchildren, as that was our life before this and before those maggots, (not those growing in our bodies but the ones who exacerbate them) for taking that away.

Bombbazzled Jo (BBJ)

[carla]

I'm glad you found how to post your own thread Jo.
lt makes me so mad that Doctors can be the same the world over.
l got exactly the same treatment here in the Uk.
Everyone here has been through it.
Thank God you have each other and keep fighting.

[jpdonnelly@iprimus.com.au]

Hello Carla

I will keep fighting, if not for me, for my children and g/children and everybody’s children, my kids have ongoing chest, throat and ear problems nowdays, so as much as it pains me to say and I pray I am wrong, even though we mostly stay away now.

We were around them constantly previously, before we knew this evil existed, so the horse may already be out of the stable.

We do not have lesions, hubby still crawls, I rarely do, we wouldn't go near them without complete skin coverings and we would not exchange kisses etc, no skin contact, if we can help it, this is unbearable as these beautiful baby girls run up to us with their arms open, with their massive beautiful eyes and we have to be restricting.

Their mother wants us to stay with them for a week while they go away in October, the option is to leave them with somebody else, which we have never done before, and I think I am more scared of leaving them with someone else.

This is why I am battling the decision to keep my distance, they have many issues due to nanny and poppy being so evasive now days, and it would be such a shame to avoid them for no good reason.

What do you think?

I have been making a lot of noise here in Australia about Morgies, sending several ID Doctors much researched information and giving them pictures of the fibres, under hubbies skin etc, i am probably one of their biggest pains in the bum here and I have only just begun.

Please tell me about you?

Luv Jo

[Robin]

Hi Jo,
I just wanted to say we cannot protect the world when the evil has alredy been unleashed.i used to feel exactly the same way.but look around it is in alot of people who don;t even realize it yet!unfortunately! but i believe its been with us for many years so if so they are no more at risk now then they were before we realized we were infected.but on a positive note i truly believe it takes many years to grow to the extent it does and the minor complications our children are experiencing can be taken care of and treated before it can get them to the point we are at! we are going to figure this out! enjoy your grandchildren don't isolate yourselves it will make you severely depressed.i know i did that!
Robin

[belle9]

Jo,
It is good that you found us. There are people from Down Under here. I have had arthritic and muscle weakness in my feet for a while. I'm a teacher, so I thought nothing of it. Then came the torn up immune system with the jumping biting things, fibers, and things that cut their way out. The itching all over (not caused by the jumpy things) is the worst for me. I can't eat any carbs. We've almost gone broke financially as well. I do have a doctor who is treating me but she doesn't know a lot about morgellons. She said that's what I must have but the tests aren't showing up things. I see my grandchildren all the time. I think this is contagious too, but by bodily fluids (I hope). I hug them and hold them and give them very quick kisses. I try to avoid that though. I agree that it is very difficult. Welcome to some really good support and info.

[easytalker]

Originally Posted by Robin

Hi Jo,
I just wanted to say we cannot protect the world when the evil has alredy been unleashed.i used to feel exactly the same way.but look around it is in alot of people who don;t even realize it yet!unfortunately! but i believe its been with us for many years so if so they are no more at risk now then they were before we realized we were infected.but on a positive note i truly believe it takes many years to grow to the extent it does and the minor complications our children are experiencing can be taken care of and treated before it can get them to the point we are at! we are going to figure this out! enjoy your grandchildren don't isolate yourselves it will make you severely depressed.i know i did that!
Robin

Robin you are spot on I think you need to share with belle she is confused,,and you know what, if you know this is probably contagious belle why would you quick kiss the grandchildren...that makes no sense whatsoever

[kckc]

Welcome Jo,

I agree with Robin, don't give this evil time that cannot be replaced. Love up your kids and grandkids... try not to worry about things that are out of your control.

I know the constant movement.. crawlies was the hardest thing to live with.. it almost sent me over the edge many times. Have you tried detoxing at all? I am at a point where the crawlies are gone, but I do get a flutter here and there.... taking herbal regimens.....
Glad to know your not gonna give up!!!! God Bless.
Love, kc

[belle9]

Please don't flame me, easytalker. I come here for support. To answer your question--I suspect contagion from bodily fluids like AIDS. I can't very well tell the babies that Nana won't kiss them. My brother died of AIDS in '92 and I hugged him and kissed him on the cheek. I was a nurse and the time and also helped my mother care for him at times. You can't not touch the ones you love. You might as well be dead.

Originally Posted by easytalker

Robin you are spot on I think you need to share with belle she is confused,,and you know what, if you know this is probably contagious belle why would you quick kiss the grandchildren...that makes no sense whatsoever

[JimDoe]

Originally Posted by belle9

Please don't flame me, easytalker. I come here for support. To answer your question--I suspect contagion from bodily fluids like AIDS. I can't very well tell the babies that Nana won't kiss them. My brother died of AIDS in '92 and I hugged him and kissed him on the cheek. I was a nurse and the time and also helped my mother care for him at times. You can't not touch the ones you love. You might as well be dead.

Belle9 pay that freak no mind, Franky may soon see through and dis this sorry SOB. He,s nothing more than a hurtful thing. Belle I,m sorry, you,ve been through so much so many losses due to death.I feel your sorrow, I really do.I share it with you.We can,t let **** like him play our role.Sorry but it pisses me off to. Maybe it brings out the best of emotions in me.Maybe not.

[janedoe]

evil is everywhere, but so is good. everything must balance.and the smart ones learn to make evil work for them..hehe