Update

[Seasprite]

I have been on this site for almost two years now. Joined to help a friend who thinks he has Morgs. I didn't believe him. I started experiencing wierd derm symptoms (massive itchy outbreaks on my head) that lead me to scratch and get staph infections. I have had them many times. I eat certain foods (or different foods, can never tell) and my head will break out again. I have seen white fibers coming out of my pores. From very tiny, thinner than sewing thread, bright white, to thick cotton thread. (maybe 30 at once coming out of my face, the thin ones) and one or two at a time of the thicker ones coming out of my thigh. only 3 instances total. I have been to 3 dermatologists. Lotions and cremes. The staph infections are real. I have shooting pains, joint pains, etc. Cramping, etc. Lots of brain fog. This is complicated by the fact I also have a brain injury, unrelated! So when I started to get more foggy and worse, I just thought it was my aging brain injured brain, and not something NEW.

Seeing that morgs is common with lyme + patietns, I got tested. PCR from Igenix and their western blot was positive. My CD 57+ was 27, 26 and down to 24 in the last 18months (normal range is 60-360) for Natural Killer cells.

I was treated w antibiotics for 5 months (Doxy and Amoxy) now I am going to do a 5 day urine test Igenix Lyme Dot Blot test. I have to take Doxy Amoxy and Flagyl for serveral days and collect the urine. I have to look this all up. I am doing Porphyrins test right now.

My lyme doctor believes Morgs is real and that it is related to Lyme. I had him do all the test for the Mold Warriors guy (for get his name, fogggy) but now he doesn't want to talk to him. Saying his work has no scientific proof. I'm discouraged, especially since I got alot of tests done including HLA tests which did show up some genetic stuff. Is there anyone out there who knows how to read HLA results??

I have been doing herbal treatmetns for lyme, they made me as tired and achy as the antibiotics did. I had to move out of my apt, (4 story walk up) because I coudl not do the stairs any more when I was in treatmetn. So tired and achy.

I am continuing to remain positive. The biggest impact this has had has been on my social life as I am afraid to get close to people if this is contagious. My mom has itching on her head now, my sister's kids have rashes, and my sister was hosptialized with lung problems. (clamydia pneumoia? they never tested as far as I know) none of them believe I have affected them, which is good, and I pray that is true yet fear they are in denial.

I dont' know if I got this from my friend. (several of his other friends also have symptoms)
He feels really bad, I try to tell him I got bit by a tick that was unrelated to him. And that peopel can contract this from many places and that he doesn't have to be the casue, it could just be "out there"

I have had problmes figuruig otu how to log in here which is why i have been away. Also my doctor did not want me to dwell on this too much to not make me MORE depressed.

I am trying to do laughter yoga to make my NK count go up. If you laugh you actually increase your natual killer cells.

I keep you all in my hearts, and pray you may have the courage to over come this obstacle of this body wiht ease and grace.

Love, Sprite

[fracty]

thank you for the wonderful post SeaSprite! I was not here when you wre here b4, but it is nice to meet you now. (Sorry under these circumstances.)

I love that you are doing Laughter Yoga. I do not practice that style, but I am very familiar w it. I actually teach and practice yoga myself. Even tho I got rid of many of the symptoms that you can SEE, I still am not back to normal. But I have been trying to practice some of the intensive kinds of yoga I used to practice. Boy is it tough!

I just went again tonight to a level 3, and even standing there at the beginning I felt so wobbly.. just standing. I wanted to take child's pose right then, lol. Then doing things like chataranga, etc are so tough for me now. partly because I am so tired, and partly because I gained a lot of weight from this. I know it has made me strangely wobbly.

WEll, I manage to slide by when i attend classes. And when I am teaching it is always ok because I dont necessarily do everything w them. I tend to do more adjustments, etc. So it works out great.

But yoga is WONDERFUL! I am sooo thankful for it.

And so is the laughter. Sometimes since I have been sick w this, I just sit in frotn (or collapse in front ) of the TV and watch funny old movies or The Office. Those things always get me laughing.

Thanks for sharing the inspiring info.

[jonsi]

Hi Seasprite,

I loved your post, thank you!

I've been wanting to take some yoga classes. That's a great suggestion.

I know I feel a lot better after a good laugh. When I was really sick with "M" I never went out & I know how hard it is to motivate oneself to go out the door. But getting out and laughing with others is one of the best things we can do for ourselves. Finding some "M" phone friends really helps too.

I don't think I've ever been contagious.

Peace & love to you Seasprite, (ttysoon)

In the white light,
~jonsi

[Seasprite]

Laughter Yoga is not verymuch like traditional yoga there are some breathing exercises, but most of them are laughing exercisees!

Laughing is one thing that brings up the Natural Killer cell count. Another is Samento, aks Cat's Claw.

[fracty]

Agreed, it is different than many of the styles that are most well known. But I love all the kinds of yoga. Many of the styles I practice do not involve any "poses" whatsoever. Even in the paths w the poses, the poses are actually just a starting tool to take you to the deeper things.

Again, I think doing Laughter Yoga is a great idea for anyone, but especially for ppl battling M.

[fracty]

Also, in addition to Laughter Yoga, I think just about any type of yoga will help ppl in our situation!! There is sooo much healing in yoga.

The only thing I would avoid, and this is just my opinion, is to stay away from the classes where the instructor plays music w words OTHER than Sanskrit chanting, etc. Most instructors do not know, but words have a HUGE impact on your mental and physical health. Ultimately, when you are practicing yoga you are in a meditative state so you are taking things in and storing them more deeply. IMO it is not healthy to have the words going in.

There is a big trend here to play rock, gangster rap, etc. Although it might make it seem more fun, you are missing out on some of the best healing parts of yoga. Even the teachers who play the romantic "love" songs are often using lyrics w negative impact.

I try to avoid taking any class where the instructor uses lyrics (once again other than the Sanskrit).

[dragonfly2]

Prior to the onset of Morgellons I taught Hatha Yoga for 20 years! Yamas Niyamas Meditation Pranayama etc.

[Kritters]

I've intended to begin yoga for a while...

One benefit I believe, is the deep breathing...bringing that oxygen into the lungs and utilizing more alveoli...

When I get palpitations (rarely now) I usually bring the beat back to normal by inhaling and holding the air in my lungs and exhale very slowly.

Kritts

[Enviro Girl]

Hi Sprite!
I know of a Morgie who said he thought he had outbreaks and felt sicker when he ate GM foods. Corn Chips, he said, in particular. Any chance it's junky stuff like I eat that makes you feel icky?
Wishing global Butterflies!,

[fracty]

That's awesome Dragonfly!!!

Kritters, I agree the breathing is very beneficial. I can't help but wonder if that is not one of the reasons I have not had the anxiety or bursts of anger some ppl experience.

I do know though, that my breathing rate increased after the onset of M. I tended to breath much more slowly than most ppl. A healer/friend pointed it out to me when he was giving me a treatment - that my breathing was not as deep as he would have expected. Then I started noticing it too!! I breath much more rapidly now.

That is common w parasites, and I assume w nanotech as well. So, whatever this is, it seems to have increased my breathing rate, and I think it increased my pulse/blood pressure as well.