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| To my dear Morgellons friends I hope to make, I desperately need your help. I am very very ill. Six years ago I began to become ill with different sorts of illness and then I was DX with Rhuematoid arthritis. So much pain until this day! Then my neurologist (of six years) DX me with Fibro. I also have chronic headache. Almost all of my TEETH have fallen out! I had cataret surgery last month on both eyes due to all the prednison they were feeding me. I am not recovering well....It seems like my eyes are swimming I have a fiber on my left eye that is driving to nausea! I have had tar come out of my hand and foot. Lesions, with fiber, one with two white plastic things. I had..please excuse me...a huge silicone (clear gel) worm like thing come out of me in the beginning when I first started to use silver. I had these these silicone chips, fibers, specks and esp silver sparklies come off me in large numbers. This week was the worst. I HAD TO GO TO THE ER because I had coughed up alot of bright red blood. I took a letter I had printed off of the Charles E Holman website. It is a letter written by a dr to other drs. This Dr barely read it and thrusted back into my purse(I was in bed barely able to move) and said, "You know what this means right?" "I most certainly do/"I said. She looked at me hard, then said," You have delusional parasitisis." "I do not! Please look on the CDC! They are investingating this!" She snarled at me I was delusounaol and was going to have a chest Xray taken and blood work. NOW I am in the ER and NO moniters were put on me. My blood pressure is usually low but it was 171/90. I had trouble breathing and I was so weak I could not call for help. I just laid there in a bed. I quickly had the test done, was told I was fine and free to leave. I knew this Dr was not going to take care of me. In the mean time I am getting sicker and sicker. If you have had lung problems, please tell me what to do?! |
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| Hi Julia K, I'm so sorry that you are going through this. Welcome to the club. One of the worst parts of this "M" is to be called "delusional". Every time I gathered the courage and documents, prepared to present facts to a new "MD" I knew the "doctor" would listen to ME. I'm not crazy, I'm not delusional. I felt so deflated after every one of those "docs" called me delusional. Natural medicine works for me. There's no quick fix here. Ask questions, look to old posts. I have no suggestions for lung problems. My teeth are affected too. In the white light, ~jonsi
__________________ There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this. |
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| Once again where do they get these EVIL people from, are doctors so anal or are they just ignorant. What kind of monster attacks the ill, crazy or sane. We know this disease is real, but it CAN and will make you crazy. the funny thing about it, well it is not funny at all, is all the people you counted on, most all of them damage us, right along with the INSANE doctors. makes me really angry. I will repete this as many times as I must, you can not trust anyone but other people with this affliction to dive comfort, your friends, doctors and family do not NEED to be included in the wild stuff you see. Repackage it, lets see, a big buch of red gory lesion/tumors, I have a skin affliction, lyme disease, whatever, stop sounding crazy and people will be more receptive to you. There is NOTHING they can do for you, on the other hand there is alot they can do TO YOU!!! Get on board here and learn, there is so much here to help on this site and YOU are the one that will need to take part in your recovery!! |
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| Hi JuliaK, I had Lung Worms/ Heart Worms. I could hardly breath or swallow. All sorts of symptoms. I did 2-3 months of a parasite colon cleanse. Within the first week or two I felt better. This type of cleanse pulls mucus from everywhere, not just the colon.I recommend DrNatura, but there might be another brand ? This brand is sold in kits of pills,senna tea bags and psyllium drink mix. The only health problem a have now still is lesions on my face. I had lots of aches,brain fog,heart palpatations etc. I thought I was going to drop dead before that. I could go on and on about that product, but the more I do am afraid it will appear I'm selling it. I'm not. Go to their web site and check it out. |
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| Hi Bee, Just wanted to let you know I have used Dr. Natura, too. I agree with you it is an excellent product to help clear the system of parasites. Here is an old post where I mentioned it along with some other products I have used to help my symptoms. I truly think it is important to periodically use some type of colon cleanser. There are many colon cleanser products out there. I am not selling any of these products either: internal antifungals and Chinese herbs best, tcm
__________________ "Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake." Victor Hugo, French dramatist, novelist, & poet (1802 - 1885) |
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| Julia - It is too bad you are so far away from Tampa. We have a support group that meets there monthly (a year and a half now). Today we are discussing effective protocols.... I've posted many times how incredibly healed I am! Just a little residual that I can easily live with. As Baraka said, stick around and make friends. And learn ways to get better! Have to leave for the meeting now... SS |
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| Hi Julia, I'd recommend you start taking NAC (N-acetylcysteine) - it protects organs (including lungs) and is sulphur based, which these nasties hate. 600mg a day. Make sure you take Vit C daily (1000mg +), if you do take NAC. Two other things - Gwen Scott ND, advises Morgies to boil a mug of water and add a few drops of teatree oil - then inhale (helps lungs). Finally - Opaline Dry Oxy tablets, may help lungs and breathing. You can buy them here: Opaline Solutions Finally Finally lol - get a flash light and check your air quality inside your home. Consider purchasing an air purifier, again to help your lungs and sight!! I would highly recommend you start salt and peroxide baths to draw them out. Some more tips here: Morgellons UK - Awareness Campaign 2010 - Morgellons Disease - Support: Skin Cleansing God Bless you my fellow Morgellonite! Jo |
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| also baking soda baths, draw a real nice hot tub, fill a lage plastic bowl with two boxes of dollar store baking soda, that comes to $1 they are .50 each there. what you do nex is add enough water to make a paste, wash your whole body and then lay in the baking soda rich tub, you can do this soak several times BEFORE you pull the plug on the tub. If you have GSE make a rich solution 30% GSE to 70% water and rub your whole body, including the top of your head. Watch out for your scrotum MEN, women I am not sure but you may want to be careful arond your Volvo, I mean vulva. |
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| Julia - A new lady came to our meeting today. She came from Daytona Beach, and had to leave her house at 5:45 a.m. to get there by bus! Maybe you live near her? It would be super if you could car pool for the March meeting (3/7/10). She's a member of this group but hasn't posted yet (though reads). Think about coming and I can put you two in touch with each other. SS |
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| Hi Julia,I have found recently the use of Mosquito magic soap works wonders for ones on the scalp, lather good and leave sit for 1 Hr. wash body w/ it let sit 1 or 2 min. rinse all off good,. wash w/ reg. shampoo.Also 5 drops of peppermint oil in handful of shampoo let sit 1 hr. shampoo out .1/2 capful of peppermint oil in very warm water up to ankles for 1/2 hr. foot soak also helps drive them out . You MUST get on an immune booster right away, I use epicor, 1 cap a day.Also a good digestive enzyme, there are many, they help boost your PH levels which must be kept in an Alkaline state 7.0 is good. Olive Leaf extract caps do so many good things I can't count them all here, I take 3 a day. Have had morgy for 1 1/2 yrs.Remember to take time to listen to favorite music or whatever to relax and calm yourself it's important, it rejuvinates your system and spirit for this ongoing battle so take the time to enjoy the things we can. there is no magic bullet but maybe someday there will be, we are Warriors in this , god bless, Izzyluv3 |
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