my morgellons story new person here

[RWashburn]

hi my name is robin make a long story short believe i have been suffering with this for at least a year my family thinks im losing my mind and so do the doctors i just came home from the hospital 2 days ago because it had gotten so bad my eye was swollen to the point where i could not even open it and i had severe pain in my head they took acat scan and biopsied it i was told it was mrsa and i am going everyday for intravenous antibiotics but ihave all the symptoms of morgellons and i am scared to death my children have it also the doctors have never heard of this i live in worcester massachusetts i really need some help im losing it thanks for listeningto my story

[jano]

Welcome to the site, Robin. You will find many supportive, caring people here. There have been excellent results with Bubba's post for morgellons treatment steps. I have had very good results with them and I've had this for 11 years, since I've been on this board for the past 7 months, I have had more positive results than I ever have had in all 11 years. I'm glad you found us!

[Franky]

Jano thank you for jumping on this one. As jano as said welcome Robin there is a wealth of information here organized for your viewing. Try to read up on a few threads to get a idea on morgellons. Feel free to ask any questions you might have along the way. It might help us understand more if you let us know what some of your symptoms are.

[RWashburn]

hello everyone,
thank you for your warm welcome i think this started about 2 years ago it started with a small lesion on my eyebrow that kept coming back my friend tweezed it for me for about 2 hrs she said it had tons of little gray hairs in it it went away for afew months then igot another lesion under my nose i treated it with neosporin it eventually went away over the next i went through alot of drama in my personal life i was severely depressed being a single mom of 4 there ages at the time were 17,14, 10 and2 i could not function i had no energy and was physically exhausted all icould do was sleep ijust couldnt stay awake went on prozac that didnt help ended up losing my apartment my 10 yr old went to her fathers it was only supposed to be temporary he turned around and filed for coustody i didnt have the energy to fight it so that made me more depressed then my 17 yr old went to stay with afriend because he didnt know how to deal with me my14yr old daughter was being atypical 14yr old so what little energy i had i would have to put my 2yr old son in my carriage and hunt her down nightly a friend of mine took us in then she passed away at38 yrs old
on my birthday her husband started hitting on me before she was even buried but even when ilived with her for 2 months all i could do was sleep i was 41 yrs old at that time i have been a barber -stylist for25 yrs but due to carpasl tunnel icould no longer work then imet a guy whom i had known many years before just from him coming in the shop i worked in he told me his wife had passed away from lyme disease that was misdiagnosed for 2yrs i ended up moving in with him and my 2 children at the time ive been with him for 2yrs its been hell physically and mentally but i just really never felt good struggle to get through each day doctor put me on meds for add and pain meds percoset ended up becoming addicted to themm i checked myself in and have been off them for 6 months so over the summer istarted getting alot of infections in my face i would go to the doc and she would put me on antibiotcs ive had about 6 or 7 infections off and on but over the last month and a half it was out of control i have never had skin n problems of any kind in my life until this but inoticed my skin felt weird and my scalp was all bumpy and scaly thought maybe i had psoriasis soi started treating myself for that then the strangest thing started happening iwas washing thew dihes and all kinds odisgusting stuff was coming out of my fingers showed my 19 yr old son who is back living with me he saw it but didnt want tro acknowledge it im talking black stuff that looked like little rocks and brown scaly stuff istarted noticeing that i would stuff like that every time idid anything like cook or clean it was driving me insane the doc sent me to adermatoligist it took 34 wreeks before i could see her i was thinking thank god someone will finally help me well she sat back listened to my story dint even put gloves on to look at my lesions told me it was all in my head sent me home with an antideppresant and asteroid cream was very dissapointed because my boyfriend told me see i told you you were crazy within the next went back to my docs she was on vacation the doc filling in put me on another antibiotic formrsa then aweek later my eye was swollen shut docs office told me to go to emergency room they admittted me then for 4 days were giving me intravenous antibiotics they werent working they stuck aneedle in my eye 2 days later told me i had mrsa but it still wasnt healing they put me onvancomysin sent me home next day i have to go to hospital for next 10 days for intravenous antibiotic i happened to find this site and ihave all the symptoms and now my 17 yr old and19 yr old have it also please helkp me im losing it bigtime

[carla]

Robin, What a terrible time you have had .I became very emotional reading your story. I know what`s it`s like to have the mixture of teenagers and toddlers.My children are same ages as yours.It`s a full-time job dealing with teenagers,never mind having a toddler.
It`s the fact that you`ve been through all this and have got that evil MRSA that upset me.I know it can take a long time to recover from this.
If you follow the treatment steps they really do work,I promise.You have taken the first step by finding this place and Bubba.Everyone here will want to help you.Carla.I will send you a PM

[linnysue]

Robin, I'm glad you found this forum. Welcome!

My heart just broke reading your story. I'm so sorry for all that you've been going through. I believe there's a light at the end of this dark tunnel for you. Do try the treatment steps mentioned, and keep us posted on how you're doing. There are doctors also who can help and bubba will work hard to find you one.

[deluded]

Robin...It sounds like you have been through the ringer and back...I am sorry that you are having to deal with all that you are going through...We all know what it is like to be alone in this madness...but you have found the light at the end of the tunnel...lots of good valuable information and good quality people on this board...I had a great uncle that lived in Worcester...His name was Milton Pollock...been dead for a long time, but famil still there, I think...seems like he might have had auctions or something...I used to live in Weston, Wayland, and even Waltham when I was real young...a matter of fact, I am going to visit relatives in Weston and Wayland and Peabody next week...haven't been in 16 yrs...love the east coast...it is too bad there are fibers and such there too...not funny, I know...
If you will try the treatment steps and stay with them, I think you will find that it is a good way to rid yourselves of a lot of "stuff" that you don't want on your body...not a cure, but most definitely will help your situation...If you run into any trouble or questions, just ask, because someone is usually on here, and will always try to help out...we don't know all the answers, but we think we do...just kidding...no, but we will try to help out all we can...Good Luck to you and welcome aboard....Kentucky haze

[jano]

Robin, My goodness you have gone through alot. God Bless you and your children. I know you will find much help here. Hang in there!

[MELISSAJ]

Robin, many of us can truly empathize with your situation. The experiences that you've gone through are similiar to many of ours. I personally have had the problems with my hands and the many small white hairs in a pimple on my eyebrow and nose was a long lost memory until I read your post.

The MRSA is something that I just learned of because a close friend's sister had it and it was originally thought that a brown recluse caused the problem until others around her in a hospital also had it.

Please follow Bubba's treatment steps. It may be overwhelming at first glance, but most of my problems occur when I am not consistent. This is often a problem for a single parent without the proper support system which often occurs when you have an unusual illness and you withdraw.

I am also a single parent and my improvement is tremendous since I started Bubba's steps. Take everything step by step and please get your teens to assist. Our families should be a team and you and I are the coaches. God entrusted us with these children and we have to trust ourselves. You can do all things.

I will keep you in prayer tonight. I promise that it gets better.

Welcome to a great place where we all will know your name.

Melissa

[beverlybdmd]

Robin,
You are also in the middle of "Lyme Disease" country, there in the lovely New England/ North East of the country. If you haven't had a GOOD test, either done at Bowen's lab or IGenix labs, you definitely need to consider getting tested (or RE-tested) for Lyme. It has a very high rate of association with this illness.

Good luck to you, finding your path on this healing journey.
-Dr. Beverly