Is it morgellon if I dont have open sores? What to tell doctors?

[pleasehelp_lintbugs]

DO I HAVE MORGELLONS?
I have all the symptoms, red/blue/black fibers, brain fog, joint aches, black specks, invisible crawling, pin pricks, bites, red blood blisters, scalp issues, etc.. in addition to the lint/dust bugs on body, on clothes, on eyebrows, chased around by gnats, fruit flies, and tiny white bugs, affecting anyone who is around me... I am experiencing everything EXCEPT that I do not have the open lesions. I am beginning to get weird cysts on my back that do not pop per se. However, they are not the open lesions where white fibers are visible as many people talk about. Do I have morgellons or is it something else?


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WHAT TO TELL DOCTORS?

I have been to 5 doctors? 1 urgent care, 4 derm 1 primary care: 3 told me it was hives, allergic reactions, 1 told me it looks like some kind of allergy but is not sure and another told me it was bird mites.

The other day I broke down at work and then asked my family to really listen and help me because I really needed help. I am ready to quit work as my coworkers have told me that I need to go see the doctors as there is something on me that is affecting them as well. (I guess they have been talking and I wholeheartedly agree. If I were in their shoes, Id ask the same of the person. However, I have seen many doctors who have told me that it is just allergies/hives/etc... and that I dont have anything contagious.) I know that is not the case, but doctors dont seem to agree... I have been keeping away from family and friends because I saw that they were affected when around me.

In any case, one of my family members has contacted a friend who is a retired doctor. When I spoke to her on the phone, she made me feel like this is a delusional type of deal. When I explained to her the methods I have been using out of desperate measures, such as Roach Prufe and borax baths and internals, she told me that is prob the reason I have my symptoms. Then, she asked me over and over if I had high anxiety etc... I asked her then why would it affect other people. Her reply was it might all be in my head. Remember my coworkers asked me if I had some kind of infestation. She did not understand. In any case, she called the hospital she used to work for, and they are setting up an appt for me. They "say" they will do all the tests available to find out what is causing this infestation. Reading all these forums, esp the morgellon, apparently it doesnt show up on blood tests or whatnot. I dont know how I am going to approach this. Any suggestions?

The retired doctor friend has advised I stop all the holistic approach I have been doing. However, I am still keeping up with the vitamin c/salt and the sulfur masks on my body, which seems to really help. Doctors appt is supposed to be Weds. I will keep you updated. Till then, please advise on how I should approach this doctor, and what tests I should ask for?

Thanks!


I feel like I am running out of options and want to quit everything....

[Kritters]

Lookit, Pleasehelplintbugs...here's the deal.

You can't go in and tell the doctors what you think you have. Especially in this case, because most doctors have not even heard of Morgellons. Forget Morgellons. The best thing you can do is give them your symptoms and ask them to figure it out.

Then, after they tell you they have no clue, you just keep researching and reading like the rest of us and make your own decisions.

If you think you need some type of medication, then what you do is google the medication you have found through your own research might help, and find out what the symptoms are of whatever that medication is supposedly going to fix, and tell your doctor that you have those symptoms. Don't forget to flirt and compliment the doctor, because that's what works in most cases. It's a proven fact. Make sure you look really attractive when you go into the office.

Bottom line....it's all up to you to find the cure through research. Sad but true.

kritters

[Sadsack]

Lint bugs -

You can say that you've been researching your symptoms and have found others that have the same experience. Tell them that these people seem to have high levels of CMV & EBV (cytomegalovirus and Epstein-Barr virus), and many have Lyme disease.
If you can be tested for those three things that'll be helpful. I will bet you have high EBV & CMV, and maybe Lyme. At least if they find some positive results, you won't be treated like a total wacko.

SS

[Kritters]

Originally Posted by Sadsack

Lint bugs -

You can say that you've been researching your symptoms and have found others that have the same experience. Tell them that these people seem to have high levels of CMV & EBV (cytomegalovirus and Epstein-Barr virus), and many have Lyme disease.
If you can be tested for those three things that'll be helpful. I will bet you have high EBV & CMV, and maybe Lyme. At least if they find some positive results, you won't be treated like a total wacko.

SS

There ya go SS! Epstein-Barr (herpes). Herpes and Lyme. It's beginning to sound like a law firm.

Kritts

[Sadsack]

And not having lesions is a good thing, because they would just accuse you of making the sores yourself.

SS

[Kritters]

PHLB....
Where do you have fibers? How big are they?

I'm sorry my post to you must have sounded ignorant and cold, but it wasn't meant to be. sorry.....

I can understand why that retired doc would tell you to stop what you've been doing. borax is not usually suggested no matter what. On the other hand, a phone conversation with a retired doctor is not what you need right now.

And if that doctor is setting up your appt., I wouldn't want to go that route. Esp. after she expressed her thoughts on you being psychotic.

I'd start fresh with a doctor and just ask what they think, given your symptoms. That's the best thing at this point I think you should do. If you can find a naturopathic MD...an Integrative medical practice, I think THAT would be your best bet.

Kritters

[Baraka Obam]

You have told people in the office you HAVE SOMTHING, now YOU are to blame for everything. It seems the more spectacular people speak of their disease the more revolted other people get. When are people gonna understand, EVERYONE is NOT your FRIEND. READ MY LIPS, KEEP YOUR MEDICAL HISTORY, YOUR MEDICAL BUSINESS, not gossip. You do not have to convince anyone about your feelings, sickness or anything for that matter. YOU have just become YOUR OWN BEST FRIEND. God gave you a mind now read the forum, and yes my dear I think , KNOW your are a Morganite!!! Tell all the A holes at work you have tested positive for Lyme disease and it is not contagious, so they had better go and get checked up themselves or focus on the one that is saying you ought to quit your job that has animals and say, the doctor said it may have been caused by a coworker with animals, maybe she brought in a tick, LOL. People do NOT quit your jobs, this is widespread, and the symtoms are also wide spread. If the workplace trys to fire you for having a illness they could be sued. Keep records learn to use your phones recorder. Keep times and dates any co worker harrasses you, and who it is. This kind of crap makes me mad, especially seeing that we don't have anything, LOL!!!!!

[lamb]

We do NOT all have the same symptoms. I have the same as you and I made the mistake of telling the truth and being labelled DOP. Don't stop trying, Doctors are useless, shoot for an antibiotic. Tell them that you have read that their lyme's tests are inconclusive. I did the Igenex test and came up negative. I was reading a thread last night that veered off into the past to sanitizing with UVC light (A wand thing I got at cost... nothing at cost.. is good, it's all made in China!) anyway I was doing my sheets this AM with the wand as my husband gets inflamed when I wash every day...and by God I could see these really minute little f'er's jumping out of the sheets .. hopping like mad! When I realized how small they were I knew I would never prove it to anyone but dang nabbit I am determined to catch me some. These are the famous black specks. I have no lesions or fiber yet, just the bugs. So does my dog which doesn't help!
Best wishes...claim prophylactic antibiotics for Lyme till your test comes back..
then when they call with a negative you can tell them it took a while but you are actually seeing some minor improvement.. Can you get a refill please?

Good luck and be cool...I was not and am paying the price.

[lotr]

Hello, Pleasehelp lintbugs.

I agree with Baraka Obam. Guard your privacy. Get a note from your Dr. stating that what you have is not contagious and everyone should calm down. It sounds like a small bout of hysteria at your work! This cannot be passed to others via casual contact. I have had this illness for 14 years and no one I have ever come in contact with has it. My husband sleeps in my bed and he does not have it. Each persons symptoms are different so the manifestation you have may not sound like someone else's but the causal organism is the same. I believe families are all getting infected because they were all exposed to the original causal organism. I was sick long before I met my husband and lived in a different state. He was never exposed. You cannot give this to your co-workers. Don't talk about it ever again at work and when you go to the Dr. don't talk about your skin symptoms, talk about your systemic symptoms. The will be much more eager to do tests and give you medications that ease your suffering. You may also have other abnormalities in your tests that can be treated such as EB or positive ANA. Believe me; I have a lot of experience. My story is on the introductions page and my personal treatment protocol is on the treatments page if you want more info about my long struggle with this 'bug'.

Grace.

lotr

[Sophia de A]

I've been reading the posts and I am surprised at so many similarities to my experiences since being exposed to the Morg contagion.

I DO have open sores some have remained for 6 - 12 mths, I have the black-brown flecks, and a leading-edge on the sore. Although, I have what I call "white plastic plugs" - cone shaped hard white plastic plugs. Some have been up to 5mm long (1/4 inch).

When a new growth is starting to form it feels itchy like the beginnings of a cold-sore (herpes). After a few hours a white plug begins to form and if I am able to pull out the first plug which I call a "mother-plug" then the sore heals in a few days. If not I am in big trouble and the pain is indescribable!!!

I didn't realize the consequences of touching the open sores and was picking at them with my long nails. After 6 months all my fingers became infected and at times I have wanted to chop my fingers off!!! Terribly painful. Some days I can't even pick up a piece of paper!

My commiserations to you all.  Keep your chin up. Reading your stories continues to give me courage to fight on. Thank you for sharing.
Hugs.
Sophia