really long post

[hilly]

The Breakspear Hospital is in Hemel Hempsted and yes, seriously expensive... they do believe in Morgellons tho'...

[Dzana]

so either way is expensive - whether is Staningers treatment or Breakspear hospital we r destined to die cos we r too broke at the end of the day is all about being rich

[carla]

Whrk ,These modern high powered sunbeds are not good.
If you can get an old type one they help your skin make vit D.
Dzana, Try to eat fresh veg etc everyday and get out in the sun.
Thats my treatment and it actually saves me money.

[carla]

Everyone who avoids the sun or wears sunscreen needs to watch this.

YouTube - Dr. John Cannell on vitamin D

[Dzana]

Thank You Carla - regarding the sun there is something really strange going on here in London by the way it is my own opinion very often the day starts with the sun and then over sudden u get this loads of fake dark clouds to cover it all - and u can feel that it is something not natural we cant even get proper Uv light any more

dzana xx

[belle9]

WHRK, I hope we will all get someone to treat us soon. I am very ill, too. I still love my family. My sister does not believe me, but I didn't expect her to do so. She works for doctors and believes everything they tell her like they are omniscient. I have not told my PCM that I suspect Morgs. I told her my list of symptoms. She is doing tests. I need to take the laundry list of blood tests to her. I'm afraid it does tend to dominate my life since I am very ill, my white count is dropping, and the stress at work is making it worse. My hubby (wonderful man) is taking care of me, believes me, and listens. He said that if he was going through what I am, he would be a little obsessive about it, too. We haven't been married thirty years for nothin' He is afraid, too.
BTW, we met when I was six and he was eight. I have never loved any other guy. It took him 17 years to catch on though. LOL

[tcmgpt13]

Belle, what a wonderful love story. That's good to hear in this world which often seems to lose it's way. I am so glad you have someone like that to offer you both love and support. He sounds a wonderful guy.

tcm

[whrk]

wow, its been nearly a year since i've written that...i was looking at the title and going wow, that looks familiar, haha. well i havent been cured yet, but i have gotten married, i do have a little one on the way, and i have started seeing a private doctor, so im crossing my fingers that things will get better soon...and as a friend of mine said recently, i must do those things which push me in the direction of life, and i dont think that any of us can really afford to do any differently.


belle that really is a wonderful story and youre very lucky to have a man like that. and carla really is right--a good diet and sunlight really do make a difference. and its hard not to let this dominate your life because quite simply, its your life thats being dominated by this disease.

carla-thanks for the note about sunbeds. luckily, im not a fan of them, as going out in the sun on a hot day makes me burn like nobody's business, so getting into one of those things would be like a suicide mission waiting to happen (and yes, i did use some kind of tanning thing at one point-not a good result...).