Some of my story

[stillhere]

Hi,
I am new here and I am not sure if I am doing this correctly but here it goes. First off, I know the hell of this disease/fungus among us or whatever it is. I woke up for a business meeting 2/13/02 and my face was so swollen I had to put frozen spoons on my eyes to make them look ok. ! I had previously had two massive migraines that made me slur and throw up in the months prior. On this day I went to the meeting and the lights in the office were offensive and I remember apologizing to these people and under my breath saying "I feel like I have been poisoned".....My horrid journey of misunderstandings, frustrations, accusations, defenses and begging and pleading to be heard began. 33 years old at the time. Lookin' good, in shape, yoga, softball regularly and in outside sales. Did I mention a single mother of a then, 3 year old with no support of any kind? So I got thrown into the "stress" box first. "Here's paxil. Read the insert and you will see you meet all the symptoms" doc says. "I can't take the pain in my head and why is your floor vibrating? That must be a symptom! I am stressed but s[b][i]something[b][i]is wrong with me!" I say. Doc gives me blood pressure med for the pressure on the optical nerve which must be causing the vision problem. I must say briefly I felt better than ever. No tests were run as my insurance company had pulled out of the state and I was left with a new company which excluded my head due to preexisting migraines after giving birth to my daughter. Within a couple weeks, my vision becomes distorted completely!! I panicked. Threw the meds away, went for massages and water and anything else that was natural. I still could not see right. Then came the lesions across my face! WTH? The pain!! Girls at my office thought I had a stroke due to the swelling and I think I was talking strangely from the pain. Called all doctors I knew. My gyno said they would culture if I could come in. I went in looking more in pain than when I gave birth to my daughter (really)! I believed these lesions were the answer to the rest of the problems. They only tested for herpes! I couldn't believe it! Negative of course. Went to derm and she said shingles since it appeared to follow a derm nerve path. That at least got people to accept the level of pain I was in. Went to eye doctors, ENT's, dentists in the next 8 months. The sores stayed and scarred my face. The vision came back after 5months. Did I mention in the beginning, I couldn't mentally track even a simple microwave cooking instruction? I thought I had a stroke. Couldn't figure it out. Sales are down, money running out and if it wasn't for my daughter I would have killed myself and I know it. Afraid to drive cause I couldn't see and nobody understood it was making me crazy like they thought I was. Somehow (God) it went into remission but I knew, it was still there. Had aches and pains and strange bruising feelings on scalp, face and various other places. It was probably end of 2002. 2003 not sure what to think and tried to do everything right. June 2004 eyes started going again. WTH? NO!! Ran to the doctor and begged them to help me for my daughters sake if nothing else. They ran a battery of tests (blood). UAed me for drugs and stuff. Nothing wrong??!! Lump appears in my breast July and by August 4,2004 hospitalized for the first time with massive migraine, sores on face, vision etc. This time I lost the ability to distinguish color! Blue Green Black and Brown. ?? At least I got state assistance health coverage at this point and was in hospital 4 days. Came out with a diagnosis of 'chroni cluster migraines' and 'chronic ocular migraines'!! They put me on anti seizure meds which left me in a vegetative state. A sore popped up on brow which I am sure to this day seeing the scar was directly related to the visual problems. I believe these lesions were under the skin at this point. It caused swelling in visual path somehow and took 6 months to go away and/or pop out. I could at least see again. Went to a naturalpathic doctor w/all info and said HELP ME! She gave artery strengthening, liver cleansing and lyme/puncture wound tincture and docs put me on pain meds. I went for more testing, MRI's of brain, stomach/digestive. Everything showed inflamation. Brain malformation, biliary tree dialated 3x normal. No known cause but wants to do decompression surgery on brain and biliary. NO! This was 2006 now. I decided to since I could see and lesions are at bay, I need to work. So I did. May of 2008 lesion on face showed up. Just one. By Dec. 2008, all over face again. Vision ok but my health is failing. My body is run down and I can barely fake that I am ok. My lesions present very similarly to meg280 which is why I registerred on this site. My daughter has one lesion on her arm. Did I mention I quit kissing my baby out of fear of giving this to her and there have been a multitude of funny yet not stories throughout of things that have happened during all of this. I believe/d whatever this is, is alive. The lesions would seem to heal and then come back with a vengence. I have bought all the creams, medications, blah blah to try to kill it and have been accused of drug useage either silently or out loud and dillusional picking or whatever. I am not crazy...........yet! I can only hope I am not dying. The lesions this round were 14 on my face mainly and are currently calm with a couple inflamed and angry. Put iodine on them which seemed to help. Yesterday I started drinking organic apple cidar vinegar. I plan on purchasing DE and praying a lot.
Sorry such a long post but I just typed what I recall. I would really like to read others stories. I could tell some funny stories of these ego maniac doctors who sent me home with a cookie and words of non wisdom. I don't talk to anyone about this as it is socially unacceptable and my family is well....useless. Scary stuff and glad I found this forum.
TD123-stillhere

[Kritters]

How did you like the play?

Welcome to our Morgie family, Still here. I'm the one here with the sick and untimely sense of humor.

Your story is very, very similar to most of ours. Thanks for filling us in. You've suffered a very long time. My heart goes out to the single parents who have this with no help, belief, understanding or anyone to talk to.

Well, you have us to talk to now,and the good news is I think we are close to figuring this out or at least finding out the best things to help us rid ourselves of this or live better with it.

We've got some great peeps here!
Kritters

[Katinka]

Hi Stillhere, and welcome to this forum.

Sounds like you've been through alot. This is what we all have to deal with, sadly but as Kritters said we think we are getting real close to answers here.

We have found so many treatment tips to help cope with this disease and most of them really work!

Please feel free to ask any question we are glad to help.

And yes! Those ignorant doctors aren't making this easier either but at the end they will see they were WRONG!

Katinka

PS: Has anyone else noticed that many members here are single parents?
Just wondering if there is a pattern?

[stillhere]

Kritters and Katinka
Thank you both. I am so thankful for this forum. When I originally looked around in 2002 I felt alone. I am not a mean person and believe in karma but I have thought about these non-believers living this hell.
I am also grateful every day I didn't have these surgeries. I would not be any better and my body would be even weaker.
I don't know how many single parents are here but I do know it taxes the immune system and I also believe when our little tikes are in daycare and slobbering all over everything, we are exposed to a multitude of things. My daughter had several unknown rashes during those years and the many new diseases. Fifths disease comes to mind. There was foot and mouth and others too. I never heard of that stuff before so who knows what we could have contracted.
I feel very hopeful from reading the forums here. Thank God! I don't know anyone elses attempts yet for lesions but I tried everything. Thought it was in the wart family maybe but providine iodine seems to have calmed them down for me. They could just be taking a week long break only to start throbbing with a vengence next week but I am hoping I am going into remission again. This bout has lasted 10 months, going on 11. I get so tired.
Frustrating.
Thanks for being there. REALLY!
stillhere

[Dove]

I don't know why we are bothering with doctors, when we should be looking for a good exorcist.

[Sadsack]

Dove -
My friends asked me if they should find an exorcist for me. I am not kidding. They got Holy Water from the church for me.
This is definitely a physical disease....but it is EVIL.
SS

[carla]

Stillhere, Welcome to the Forum .
Theres a lot of single parents here,including myself.
It is a complete nightmare.
As for the non believers I think they are all in this nightmare with us already .They just haven't realised yet.
Have you tried DSP for the leisions yet?

[stillhere]

Hi Everyone.
I'd be willing to try exorcism if there is a chance of success. I think one of the reasons I wasn't diagnosed as completely crazy is because I kept telling the doctors "if this is a nervous breakdown, I am fine with that! Just tell me that is what it is." Well of course that made them never commit to the diagnosis. If I came up with it, it had no credibility. I really think the way this nightmare presents, can make you crazy. I remember thinking "what did I eat? What did I drink? What did I use? Where did I go?" I would go through this with the changes during my original episode. Everything and slowly everyone was suspect. (including the animals) LOL
Carla, what is DSP? I don't know all the terms yet. Sometimes my brain can't remember my own initials and then sometimes it is working fine.
I just heard about the baking soda. I never tried that one.
sh

[carla]

DSP,Divine Skin Palm is a creme for Leisions.
Most of us have found it brilliant .
I think you have to register to get into the site now but it only takes a minute.

Support Morgellons S-M-G Organization DSP products