don't know where to turn

[jtkslilcc]

Hi! I don't even know where to begin. For over two years and too many to count doctors and tests I am still suffering and without a diagnosis. I am becoming so discouraged that I will never have an explanation for all this. I am new to all this web stuff so if anyone could help me even figure out how to post a message or how to communicate through this board. Thanks

[jano]

Hi jtkslilcc - welcome to the board. I know what you mean about how discouraging this disease is. I, too have been to many doctors for the past eleven years. The treatment steps posted by Bubba have been working very well for me as well as others on the board. I was thrilled to learn last July that this disease actually had a name and that I wasn't alone in the endeavor to fight it.

There are many good, kind, caring members here. You can ask anything and I am sure someone will have an answer to you. You will always be able to vent, cry and laugh here.

[ladycolorado]

hi the first thing you need to look at is the treatment steps. to get some relief. we do care and soon in here will be like a duck taking to water. and you will feel much better. to tell your story, post under morgellons syndrome section. also look at frequently asked questions, and that will get you up to speed. thanks, (LC)

[carla]

Hi jlst You are in the right place.This site has helped a lot of people come to terms with morgellons and the treatment steps bubba has devised are cheap and very effective. If you would like to send anyone a personal message click on their name and scroll down
Bubba is the person you need most right now.
Carla

[Franky]

jtkslilcc you seem to be doing fine now, computer wise I mean. Anyhow could you share with us your symptoms, a little on your sickness background?

[linnysue]

Originally Posted by jtkslilcc

Hi! I don't even know where to begin. For over two years and too many to count doctors and tests I am still suffering and without a diagnosis. I am becoming so discouraged that I will never have an explanation for all this. I am new to all this web stuff so if anyone could help me even figure out how to post a message or how to communicate through this board. Thanks

Hello, jtkslilcc, welcome to the forum. It looks like you figured out how to post. The forum is user friendly, and has many helpful features. You can check the "Notify me of replies" box when you post a message, and an email message will inform you that you have replies. You can also receive private email on this board. On the home page, you can scroll down and see the newest topics and also who's online at the time.

You have come to the right place. When I first discovered this board, I felt the same as you have expressed. I started the treatment steps, and for the first time in 18 months, I have hope. Do you think you could be dealing with Morgellons or Lyme disease or both? If so, there are a few doctors you could see. Bubba has a list she could email you. Do try the treatment steps. They have saved my life.

http://www.morgellons-disease-resear...php?topic=30.0

I wish you well and success in your healing journey. Keep us posted to let us know how you are. Feel free to ask as many questions as you'd like. This board is a tremendous resource. We have a doctor and several nurses here.

[jtkslilcc]

Almost 3 years ago I got chiggers or so I thought, at the same time I recently had a new baby, and refinished our basement, and about 9 months after my daughters birth (9/23/03)I had breast augmentation, so I have tried to tag my symptoms to one these things but to no avail. My symptoms are as followed: continous feeling of bugs on me, continous feeling of hairs moving underneath my skin everywhere(like there is a ingrown hair tunneling my whole entire system, horrible cysts with fibers or hairs in them, fibers in my eyes, fibers undermeath my nails, there is like this tract of almost fishing line texture of hair that meets at the top of my head, lesions won't heal, horrible joint pain,muscle fatigue, and most of all I can not for the life of me keep focused on anything. So needless to say I can't even figure out exactly what triggered all this,I had a lot of changes going on at the time.

[linnysue]

Here's a link to an excellent post from "bubba" to someone who is experiencing similar symptoms:

http://www.morgellons-disease-resear...opic=408.0;p=7

I think it may help you figure out what's going on.

[ladycolorado]

jtks, here is an excellent post lindalu put up in here i think shall explain things very well to you talking of Lyme disease and its co-infections: http://www.defeatautismyesterday.com/lyme.html . it really explains alot, and also tells why many test negative for lymes even though sick with it. it also discusses treatment and can download treatment protocols for free. hope this helps, (LC).

[ladycolorado]

jtks, here is an excellent post lindalu put up in here i think shall explain things very well to you talking of Lyme disease and its co-infections: http://www.defeatautismyesterday.com/lyme.html . it really explains alot, and also tells why many test negative for lymes even though sick with it. it also discusses treatment and can download treatment protocols for free. hope this helps, (LC).