symptoms and treatments

[Kritters]

Hi fellow Morgies....
I had this thought today. There are so many of us here and we don't all have the same symptoms or combinations thereof. Some of us have found treatments that help us, but we don't always know which treatments are helping which symptoms.

I thought it might be a good idea to have each member have a list of their exact symptoms and in some kind of order, whether they still exist or have changed. Then also document which treatments helped with each individual or collective symptoms.

There are so many products and treatments, I think people might get confused about which to use.

Am I making sense? It would really help me to keep things in a cross-reference. Also, if we could all note when or how we think we might have acquired this disease.

Maybe in our profile? Maybe a 'click here to see details' ????

I wonder how many people really have fibers and if they do, where are they and what do they look like.

Maybe a checklist or something. I dunno. I'm not that organized to help.

That way, when someone posts something that has helped them, there is a way to look at that person's profile/symptoms and put things together.

If someone joins for the first time, (as well as current members) they could fill in a questionaire that is basic for everyone and we could click to see what it is. Including what environment they live in, do they live near water treatment plants, water, do they have mold in their homes, do they have herpes (including common diseases which really are herpes), do they have Lymes...

Kritts

[megluth72]

I like the idea. I do like putting it in our profiles because some, many, of the treatments get lost so fast in all the posts. I suppose though it would be hard to find the info in our profiles too without clicking on everyone's profile. There has to be a solution someone creative will figure out. I'm too under the weather right now or I'd help. Love the idea though!

[Kritters]

thanks Meg,

Yes, I thought the 'click here' to see each person's detailed profile would be the best thing. I'm sure it can be done.

Sorry you're under the weather, Meg. Sing a happy song in your head. I am trying that. Also, when I get anxiety, I just say, "no need to be anxious here! No more than anyone else in this world...." that totally undermines the parasite's ability to control our minds.

(here's a funny for ya... it's black outside and my computer screen is bright so a little flea type bug just meandered across the screen SIDEWAYS. So funny to watch! Critter doing the sidestep!)

Then I squashed it.

;0)

xoxo
Kritts

[megluth72]

Ok, the "squished it" about made me wet my pants. Thanks!

[hilly]

Kritts.... I think your idea is great, but like you said, I'm afraid I'm not up to organising it. I think it really would help, both for newbies and also for research. Well done.
Hilly xx

[Kritters]

Hills,
I'm going to contact Franky about it. I know he has a lot on his plate, but this may serve to facilitate and expedite the process for us all. It also would save us from having to do return posts to new people asking what their symptoms are....why they think they have Morgellons. It's just mumble jumble right now to me.
xo
Kritts

[hilly]

Great Kritters.... will wait to hear.... how are you getting on with buying DSP etc ? I'm finding the stardust really good as well, and the special DSP...... I no longer have to put it all over my body, just face, neck and shoulders.... Hilly x

The special cream healed up a sore I had on the end of my finger in three days. !

[jonsi]

I'm not ignoring your request Kritters!

The info is here, just like you said. Retyping and categorizing our personal treatments is the difficult part. Maybe a newbie or someone wanting info should click "profile" and view the posts of the member going through similar symptoms to see what has worked for the member who's posts can be viewed.

Whew... did that even make sense?

Itwl,
~jonsi

[Kritters]

I'll get in touch with Franky to see if it would be difficult to have a form to fill out and apply as a profile. That way, people won't have to go through our 5,000,000,000,000,000,000,000,000,000,000,000,000 individual posts. ;-)
xo
Kritts

[Jo]

Its a superb idea Kritts!!! I like it...alot ;o)

The devil, unfortunately, is in the detail. We need to get all our fine detailed symptoms and stuff to work for us.

If symptoms and treatments are put in people's profiles then, then people can get more targeted help for the symptoms they see in themselves....and can pm members for direct advice etc....I think that could work good...if its possible on here???

This stuff also makes me think we should crack on with doing a big survey on symptoms/aetiology/circs

I did try to contact Dr Kilani, because he said they were gonna do one...havent heard back. Also asked Chocket about the CDC questionnaire she had to fill in, but she couldnt come up with the goods.

So...should we attempt to construct one in the name of research? I was thinking about using google docs to make it online. Got some draft ideas....anyone wanna help?

If anybody does, I'll start a new thread...

cheers

Sleepy Jo xxxxxx