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  #21 (permalink)  
Old June 28th, 2008, 11:09 PM
jonsi is a mountain hippie chick, sincerely!
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I thought I would post something that makes me feel good whenever I hear this man, Robert Mirabal, sing.

He is Native American and is from Taos Pueblo, NM. His songs ~word, music, spirit ~ inspire me to get up and do something! Even if it is to dance by myself. I dance to dance, I dance the dance.

YouTube - Robert Mirabal - The Dance

In the white light,
~jonsi
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There is a reason I have "Morgellons". Helping and teaching others how to survive in our toxic world may be the reason. Hang in there everyone who has this.
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  #22 (permalink)  
Old June 29th, 2008, 05:50 AM
hilly is fighting on all fronts
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Hi all.... been a bit depressed and weepy lately which is one of the reasons I have'nt posted must. I think the worst thing about this is that other people have no idea how we feel and how bad it is... Either you just don't tell them and they think you're OK or just a bit pathetic or you do try to explain and they look a bit blank.... it would be so much easier to have both legs and both arms in plaster and people would be more caring and kind I'm sure. I'm the same with having to ring people and answer letters etc.. I'm just a bit lucky in that often I can get my hubby to do it for me ( I just say, 'it's man's work !' ) Sometimes it works.. lol... Anyway, good to talk to you all again. Keep going somehow, and we'll get there... Hilly xxx
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  #23 (permalink)  
Old June 29th, 2008, 07:51 AM
carla is an ex-morgie .
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Hilly,Sorry your not your usual happy self. I ve meant to e-mail you every day but something keeps coming up and distracting me .
Ill write this afternoon .
carla xxxxxx


Robin , Hi I'm the same with the phone and let it go to answering machine if I'm in on my own .
No wonder no one can organise a protest about this
carla xxx

Last edited by carla; June 29th, 2008 at 08:06 AM.
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  #24 (permalink)  
Old July 1st, 2008, 05:41 PM
weredIgo has no status.
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Hi everyone,
I'm supposed to be getting in the shower. For hours now. I piddle around doing other things,useless things,unproductive things. I can relate to every one of your posts. My mind races,but thats all that does. All of this is on my mind ALL the time. So many questions and hardly any answers. There is no getting away from this. I cannot seem to concentrate or get tasks done. Procrastination,forgetfulness,lateness,lack of organization. I'm so tired I can't get out of my own way. Funny though, don't sleep well. I used to not be like this,actually quite the opposite. I keep chugging along but have lost interest in pretty much everything. My mind wants to but the body does'nt. I'm nodding off doing this,unbelievable. I GOTTA get in the shower.BYE-BYE C
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  #25 (permalink)  
Old July 1st, 2008, 06:45 PM
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Here you are!!!! ;-) Here's where you went!

With US!!! And welcome.

Welcome to one of the best forums with some of the best people on earth.

Yesterday I walked intot he kitchen and realized I left the burner on from breakfast even after all the dishes & pots and pans were cleared.

It's really amazing, isn't it? Just today (all day) I had to lie down to nap several times, because just focusing was too tough for me.

So each time, while lying down and never napping, it took me five minutes to have a good talk to myself and say, "you will not let this creature control you for its own purposes it really probably doesn't even know it has. You didn't get this far in life only to give in to something this much smaller than you. Life is tough enough and after dealing with it for 60 years, you're going to lie down for a parasite???? I don't THINK so!!!!"

So I get up and piddle around some more, and think, "okay what can I focus on that makes me happy? Just do that right now and don't worry about anything else. Just now, just today" And I do, and here I am reading and researching to gain more knowledge.

In bed this morning, I swear I think I had signs of an imminent heart attack. I'd been having some major palps for about a year every so often, and I know it's because of the critter/s invading my body. So I thought it might be a good idea to get my things in order so my kids don't have to go through the task of finding my relevant stuff. It's a good idea anyway, so why not now? I'm not saying this to depress anyone, but to say that it gives me more impetus to be strong and research and hopefully gain some insight to anything that will help.

I'm re-reading the book DNA and taking notes, because I've made a majorly brilliant friend in the field of biology who has so patiently tried to answer my questions. I have so many more.

Back to the subject, though.

I think when you're alone, the key is to gather things around you to make yourself happy in the moment. Hopefully you can. I have to make a living and now more than ever, but I just trust the benevolent power that is to bring me through this, and I hope you do as well.

Just.....breathe. relax. enjoy.
xoxo
Kritters

Last edited by Kritters; April 30th, 2009 at 08:18 PM.
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  #26 (permalink)  
Old July 1st, 2008, 07:01 PM
carla is an ex-morgie .
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Can you imagine feeling like that Kritts and having two children under five to look after all day,every day .
Its a wonder I'm not crazy. Oh yeah I am .I Forgot
carla xx
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  #27 (permalink)  
Old July 30th, 2008, 01:52 PM
carla is an ex-morgie .
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I don't know if its a symptom of my Morgellons or not but time seems to go quicker all the time.
It could have something to do with my Dazed state of mind
which is a morgs symptom. Does anyone else wonder where the last year went. Christmas seems like a few weeks ago to me. I wonder if it has something to do with my memory fading away.
carla xxx
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  #28 (permalink)  
Old July 30th, 2008, 05:27 PM
tcmgpt13 is "status viatoris."
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Okay, knock on wood here...knock, knock. Still looking from side to side. Nothing headed this way so far. Throwing caution to the wind here.

I think I am getting a glimmer of some energy from what I am doing to treat morgellons lately. I feel wide awake during the day. It has been rainy the past week and it is not making me feel worse. Something I have not felt in quite some time. I am not sleeping as much and my sleep is less interrupted. And the breathlessness I was getting seems to be abating. Is it too soon to say this will last? Probably, but I feel something changing inside. I will have to be careful this winter and try not to catch any flu to avoid restarting anything again (if I can). Yet somehow I am feeling gradually better over the last four months since first seeing the new doctor. Am I hopeful? Yes. Sure it is permanent? Not yet. Am I well? No, but better.

My memory though does not seem that much more improved so far. It is time to restart the ginkgo. And stay on the thyroid medication (amazing how much low thyroid can effect memory--I can actually tell when the medication is wearing off as it effects my memory immediately).

Yes, Carla, I do notice time is passing more quickly. Has been for years for me. Still it is said that when time passes quickly that is a sign of aging which we are all doing. This is something my dour pastor used to remind us all about in Bible studies. He was nearly medieval in reminding us of our mortality. At the age of only twelve we became quite aware of that fact thanks to this cheerless reminder.

Kritts, if you run cold pm me. I know of a Chinese formula good for the heart that is also good for treating parasites (how it works depends on when you take it). It is a very warming formula though. Still it helped the palpitations I had off and on at the beginning of morgellons. I have not noticed any in quite a long time now. You will have to probably order this formula through a practitioner. Or go to one, as you say you may. I hope you can do that and also can find a decent doctor to work with you.
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  #29 (permalink)  
Old July 30th, 2008, 08:51 PM
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Quote:
Originally Posted by Carla View Post
I don't know if its a symptom of my Morgellons or not but time seems to go quicker all the time.
It could have something to do with my Dazed state of mind
which is a morgs symptom. Does anyone else wonder where the last year went. Christmas seems like a few weeks ago to me. I wonder if it has something to do with my memory fading away.
Carla xxx

Carla you sure your just not aging at a rapid pace?
Just kidding but this could be a symptom for you at this point. But my sick friend had the opposite reaction though, he seemed to be in a constant state of daze. He use to tell me that it felt like it would never go away. Everything seemed to move at a crawls pace for him. But then again that was him at his worse.
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Old August 28th, 2008, 06:06 AM
hilly is fighting on all fronts
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IJK331

Is it possible for you to write in English please. ? Apart from the alphabet that is ..lol Hilly

Last edited by hilly; August 29th, 2008 at 02:33 PM.
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