Delusional Parasitosis-Diagnosis Of

[megluth72]

Kritters - go to your doctor/clinic/hospital you've had any appointments with and ask for all records for whatever time period you want. Here they charge about 25 cents a page. It cost me $30 and it says everything in them. I couldn't believe how they even described my appearance, personality and income level. You'd probably be shocked at what is in your records. I know I was pretty pissed and am searching for new doctors now. It's worth the money to see what all the doctors see as the records get passed around. Take care all!

[niecy]

Crazy Diseases
POSTED BY Ebay's Hottest Dealsadmin on May 27 under Nonsense

Crazy Diseases

Morgellons disease

Type of Disease: Skin disorder
Crazy Because: The disease remains disputed; is it real?
Cure: ?

Sometimes you read about something so crazy that you just can’t tell if it’s real — such is the case with Morgellons disease, a disorder that expands the imagination. As it currently stands, the U.S. Center for Disease Control (CDC) claims that “the cause of this condition is unknown, and the medical community has insufficient information to determine whether persons who identify themselves as having this condition have a common cause for their symptoms or share common risk factors.”

And it’s no wonder why experts remain baffled — the symptoms are strangely horrific. According to the Morgellons Research Foundation, a nonprofit organization, some of the crazy symptoms include skin lesions accompanied by pain or intense itching, fibrous material in and extending out of the lesions, crawling sensations like insects under the skin who are moving, stinging or biting, and joint and muscle pain, among others. The disease is so bizarre that many physicians regard Morgellons disease as delusional parasitosis, but this opinion is neither conclusive nor unanimous.

Those affected with the disease, however, are deathly defiant against doubters. Former Oakland A’s pitcher Billy Koch claims to have the disease; in fact, it forced him to withdraw from baseball, and the former ace offered some choice words for the public in an interview with KTVU: “There’s no reasonable explanation for it. I’m not seeing things. l’m watching it happen. We’re pretty sane people,” Billy insisted of his family. The CDC is currently conducting a large-scale investigation to once and for all define the existence of this bizarre and crazy disease.



We are getting more and more attention, this from a google alert today.
Hope all of you are doing great today!!!

Deniece
xxxxxx

[jonsi]

Hi Deniece,

Did you get the opportunity to meet Brandy Koch (I hope I remembered her name correctly) while we were at the Austin Convention? She is very determined to keep up the fight for all of us that suffer from "Morgellons".

Is this new news from google alert? If so, I am happy to see that Billy is back in the "game"! If it is an old interview, that's ok too. Morgellons has really hit him hard. (I tried to think of words that didn't parallel baseball and there is no pun intended here. I know how serious "Morgellons" is and don't wish to make light of anyone's suffering.)

I wish the best of health to the Koch family.

In the white light,
~jonsi

[niecy]

Morgellons



"The neutrality of this article is disputed.
Please see the discussion on the talk page.(May 2008)
Please do not remove this message until the dispute is resolved."

http://en.wikipedia.org/wiki/Morgell...athophysiology

The 2007 Atlas of Human Parasitology states:

Many dermatologists refute the suggestion that this is an actual disease but instead indicate that many of these patients have psychological problems or other common skin disorders. Given the large numbers of individuals who feel that they have this affliction, it will be most helpful over the coming years to have a valid scientific assessment of Morgellons diesease and its possible etiology (or etiologies). One of the chief criticisms by many patients has been that they feel the medical community and other scientists consulted have not been open to the idea that there is possibly an as yet undescribed infectious or physiologic causation for the disease.


Hello all,
Do any of you know who these "many" expert parasitologists, entomologists, and other microbiologists are??
Have any of you had any of these kind of professionals to even give any of your lesions a good "glance", much less determine that biological organisms aren't present?

If you have, PLEASE reveal who these professionals are!!

Niecy :)


However it is certainly true that in fact many expert parasitologists, medical entomologists and other microbiologists have in fact carefully examined fibers and other materials expressed or extracted from such patients and found that biological organisms are not present.

Although an apparent association of the condition with the presence of Lyme disease has been reported (Savely et al, 2006, Am J Clin Dermatol, 7:1–6), further research will be needed to help resolve the validity of Morgellons disease. Until then, whether Morgellons disease is another name for delusional parasitosis or a real disease entity with a biologic or physiologic basis will remain up in the air.[31]


Environmental toxins

Richard Fagerlund, an entomologist who has a column titled "Ask the Bugman" in the San Francisco Chronicle, stated that he takes Morgellons disease seriously, and he receives letters from people with Morgellons symptoms daily. Twenty years ago, he got three to four letters like this a year. He believes the condition is reaching epidemic proportions and theorizes only a small percentage of cases are delusional parasitosis, while the rest may be caused by something else, such as pollutants, especially pesticides.[3

Treatment

[edit] Treatment for delusional parasitosis

Many dermatologists treat Morgellons as delusional parasitosis. After a thorough medical examination to rule out known organic causes for the symptoms, delusional parasitosis patients are typically prescribed one of several typical antipsychotic drugs.[40][41] In the past, pimozide was the drug of choice; in addition to antipsychotic activity, it also has antipruritic activity, meaning it inhibits the sensation of itching.[42] However, pimozide requires frequent electrocardiographic monitoring.[41] Currently, atypical antipsychotics such as olanzapine or risperidone are used as first line treatment.[41] Antipsychotics are effective at treating delusional parasitosis at doses as low as one-fifth to one-tenth the dose typically prescribed for schizophrenia.[41] It is common for patients who believe they have Morgellons to reject a physician's diagnosis of delusional parasitosis.

This next excerpt is the most maddening thing that I have read as yet, although I must say, I figured it was coming.....


It has been suggested that the term Morgellons should be adopted by dermatologists to enhance their rapport with their patients, allowing them to overcome this resistance.[43]

[edit] Treatment for infectious disease

People who say that they have Morgellons will frequently reject the diagnosis of delusional parasitosis[44] and, "report that their symptoms are not taken seriously."[17] There are medical practitioners that hypothesize Morgellons is an infectious process, including several associated with the MRF, who will listen to patient's symptoms, examine them, order laboratory tests, and treat Morgellons symptoms accordingly, including the use of antibiotics, antifungals, antiparasitic medications, herbal supplements, and light therapy.[45][18][46][44][6][19][47] Physicians associated with the Morgellons Research Foundation have reported that some Morgellons patients who test positive for Lyme disease obtain symptom relief using aggressive, long-term antibiotic treatment for chronic Lyme disease. However, if the treatment is discontinued the symptoms return.[27][17][28]

[niecy]

http://en.wikipedia.org/wiki/Talk:Morgellons

http://en.wikipedia.org/wiki/Wikiped...POV_dispute.3F




Check out all the references posted at the bottom of this link.......


Niecy
xxxxxx

http://en.wikipedia.org/wiki/Morgell...athophysiology

[hilly]

Morgellons, Lymes.... it's all delusional... while the doctors and experts fight over it, we just get sicker... makes you sick does'nt it ?


Baltimore Magazine - Tick Wars

[jonsi]

I hope this post will make the reader feel a little more hopeful...

Today I stopped by "Wild Oats", a whole foods type of grocery store. I asked an employee if he could help me find CoQ10 (the first time I've purchased it, I'll let ya'll know how I do in that thread).

Anyways, he went over the mg/pill/dosage and kind of questioned me what I was using it for. When I mentioned that I had Morgellons, he said that he knew about it and stressed good diet, organic foods, not overcooking vegetables, etc...

I was so surprised and happy to find someone that didn't doubt me and was knowledgeable about Morgellons!

We are being acknowledged. We are not delusional. We are smart and good people. We will get through this.

In the white light,
~jonsi

[hilly]

Anyone around to go and see this ?? Hilly

Date: Saturday, July 26th
Time: 12:00 p.m.
Place: Alamo Drafthouse Ritz Theatre
320 E. 6th Street Austin, TX 78701

Tickets: $10 online at Alamo Drafthouse Cinema - UNDER OUR SKIN



About the film:



Under Our Skin, an infectious new film about microbes, money and medicine.

"There's no medicine for someone like you."



It's bigger than AIDS, West Nile Virus and Avian Flu combined, yet most physicians don't recognize it or are afraid to report it. Insurance companies pay experts to say it's all in your head. And the mainstream medical establishment won't want you to see this film.

One of the most misunderstood and controversial illnesses in the history of medicine, Lyme disease is among the fastest growing infectious diseases in the United States. Yet each year tens of thousands go undiagnosed or misdiagnosed with such conditions as fibromyalgia, chronic fatigue and even autism, MS and Alzheimer's. This groundbreaking documentary investigates the human, medical and political dimensions of Lyme disease, an emerging epidemic destroying countless numbers of lives. Following the stories of patients and physicians as they battle for their lives and livelihoods, the film brings into focus a haunting picture of our healthcare system and its inabilty to cope with a growing terror under our skin.



Audience Choice Award Finalist – Tribeca Film Festival 2008

Official Selection – Silverdocs Film Festival 2008

Official Selection – Berkshire International Film Festival

Official Selection – Rhode Island International Film Festival

Best Socially Conscious Documentary Nominee – Fledgling Fund/IFP Market



Find out more and watch an updated trailer at Under Our Skin.

[niecy]

Some people think the CDC is wasting time and money researching Morgellons, this is very obvious by this article.


There is however some very good information posted in the article about fungus' and such.


Niecy


http://skepticdad.wordpress.com/2008...oc-genus-omne/

The CDC is spending a year studying the likely fabricated mysterious fiber disease Morgellons. Why wait for the government to disprove “unexplained dermopathy” when there are actual frightening diseases to worry about. I list here some rare and deadly microbes that may keep you up at night…


Brain Devouring Amoebas- These guys are so sneaky. N. Fowleri crawl up your nose through the olfactory nerve until they reach the all-you-can-eat buffet in your brain. They secrete enzymes and proteins that dissolve brain tissue, so that their little suckers can hoover up the sludge. And believe me, these guys can eat it all. You won’t know your brain is being devoured until you have a stiff neck, headaches, nausea, and then finally confusion, loss of balance and motor skills, and hallucination. Doctors can treat the problem if detected early, or else a quick death will follow. You might want to stay away from warm stagnant fresh water ponds and pools where these killers reside. Yeah, I know, that might be hard to do in the summer, but you can rest easy that only six individuals died from this last year.


Fungal Invaders - A gardener recently died after inhaling a cloud of rotting mulch particles that contained the fungus apergillus fumagatis. He quickly developed an aspergillosis infection sometimes found in HIV patients and individuals with weakend immune systems. His lungs were probably weakened from being a wielder and a smoker, or he could’ve had an immunodeficiency. His symptoms included sharp breathing pains, high fever, muscle aches, a worsening shortness of breath, and finally sepsis and kidney failure. Again, this is extremely rare. The fungus you want to worry about is zygomycosis, which can cause necrotizing fasciitis (flesh eating disease *shudder*).


Stevens-Johnson Syndrome - The parents of Sabrina Johnson are suing Macneil PPC because they believed that the company’s pediatric Motrin caused blindness in their daughter. After her parents treated Sabrina’s high fever with Motrin, she developed a sore and swollen mouth. By the next day, she was blind. Doctors have diagnosed her with Stevens-Johnson Syndrome, the main symptom of which is a mild form of toxic epidermal necrolysis, notably when the epidermus separates from the dermus causing cell death. The main thrust of the argument is that Motrin products do not provide warnings on their labels about the risk of Stevens-Johnson Syndrome. I’m not sure how this trial will work out, but the rare condition is no laughing matter and deserves further investigation.

Possibly related posts: (automatically generated)

• Lawsuit Filed Against Children’s Motrin That Caused Blindness In Young Girl

[niecy]

Just another small reason why DOP diagnoses should be illegal until properly tested.


Niecy





Epidemiological and clinical interaction between H...[Parasite Immunol.... www.ncbi.nlm.nih.gov/pubmed/15771684
1 of 1 6/16/2008 2:05 PM
PMID: 15771684 [PubMed - indexed for MEDLINE]
Epidemiological and clinical interaction between HTLV-1 and Strongyloides
stercoralis.
Carvalho EM, Da Fonseca Porto A.
Federal University of Bahia, Hospital Universitário Prof. Edgard Santos, Serviço de
Imunologia, Salvador-BA, Brazil. edgar@ufba.br
Strongyloides stercoralis is the most common human parasitic nematode that is
able to complete a life cycle and proliferate within its host. The majority of
patients with strongyloidiasis have an asymptomatic infection or mild disease.
However, when autoinfection occurs, a high number of infecting larvae can gain
access to the bloodstream by penetrating the colonic mucosa leading to a severe
hyperinfection and the development of disseminated strongyloidiasis. The human T
cell lymphotropic virus type 1 (HTLV-1) predominantly infects T cells and induces
spontaneous lymphocyte proliferation and secretion of high levels of type 1
cytokines. Strongyloides stercoralis patients with HTLV-1 co-infection have a
modified immunological responses against parasite antigens and co-infection has
clinical implications for strongyloidiasis. The high production of IFN-gamma
observed in patients co-infected with HTLV-1 and Strongyloides stercoralis
decreases the production of IL-4, IL-5, IL-13 and IgE, molecules that participate in
the host defence mechanism against helminths. Moreover, there is a decrease in
the efficacy of treatment of Strongyloides stercoralis in patients co-infected with
HTLV-1. Alterations in the immune response against Strongyloides stercoralis and
the decrease in the efficacy of anti-parasitic drugs are responsible for the
increased prevalence of Strongyloides stercoralis among HTLV-1 infected subjects
and make HTLV-1 infection the most important risk factor for disseminated
strongyloidiasis.
1: Parasite Immunol. 2004 Nov-Dec;26(11-12):487-97.