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| View Poll Results: Morgellons sufferers prepared to contribute towards documentary? | |||
| Yes | | 2 | 50.00% |
| No | | 2 | 50.00% |
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| Hello. i am writing from Summer Films. i posted last week about a documentary I am developing for Discovery about Moregllons Disease. Having spoken to Randy Wymore as well as others, I am now convinced that this is indeed very real and a story that needs to be exposed in the mainstream media. The problem is that the commissioners need convincing and have asked for evidence. I am writing to ask a big favour. Would any of you happen to have any photographs or better still film of your symptoms? I realise that the symptoms vary but I am indeally looking for as many pieces of evidence as possible so that i can present this to the commissioner. I am also asking people with video cameras to document their symptoms over the next week and then to send me the tape. Would you be prepared to do that or do you know someone who might? Clearly you might want to know more about me and the company before you commit to anything so please feel free to email naomi.zola@summerfilms.com or call 0208 996 5548 and i will assure you of our sincere intentions to make a documentary about a poorly understood medical condition. Best wishes, Naomi |
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| Hi Naomi, Carla, Robert and all I've been thinking about this over the last few days ALOT. One word springs to mind.....CREDIBLE - its got to provide a fair representation for the sufferers of this condition AND convincing enough to engage the medical community. Do you think this is possible? I hope so. Naomi, I'm still not sure what I can acheive with a camera. My symptoms are most visible with a scope cuz everything is on a micro level. I've got some photo type research to speak with you about, which I'm hoping will help. I really appreciate what you are looking to acheive and I will continue to help with this. All good wishes Jo |
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| Naomi, thank you very much for dropping by and the encouraging words. Yes this is real and yes people need help! I don't have it, but my once very close friend does, so I have been dealing with this for some years now. Problem is, you might not find to many people jumping to fast because they don't want to be screwed over and the disease in the media. I commend you in your quest and wish you the best. We need all the positive exposure possible. Hopefully you can find some level headed people to interview, sadly this disease leaves lots of people in a slight daze. We really need to belt the media out there, while the sparks are out there. If people need help and to talk, feel free to give us a plug. ![]() |
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| Good point about people being interviewed being in a fog. I've seen some videos of interviews and my thoughts while watching were that this should be more controlled. Interviews can't just be ad hoc, random, fly by seat of pants, impromptu. This is just too important to not make the effort to be as organized, prepared and well staged, coached and directed as we can. I'm not saying that anything other than the truth should be given, but I am saying that the manner of presentation should be considered as far as key information, perception of credibility and avoidance of any mention of delusions. JUST my two sense. (cents ;-) Kritts |
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| To anyone in the UK, This is the best chance we are going to get to put the media spotlight on this disease. Once this airs the media will be falling over themselves to report it. Please come forward if you can. carla xxxxxx |
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| Hello everyone. Thanks for the encouragement and advice. I am based in london and so it would be good to meet people in the South East. Any interested parties? Also my main priority for now is to get footage or photos of symptoms. I am not wanting to glorify the graphic nature of the condition - i simply need to assure the commissioners that this is a real illness. Otherwise there is a very real risk that this programme wont get made. Since this is a documentary they need to know what we are likely to capture on film. Is anyone prepared to film themselves for the next week and send me the tape? It wont be broadcast. i can send you an agreement outlining this. Also incase anyone is worried about appearing on tv, we are able to cover eyes and blur identities. I really hope to hear from people today. Best wishes, naomi |
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