Hi - New to the board

[FlowerDogsMom]

Hi there - I'm new to the board and I wanted to introduce myself and say thanks for all the excellent information you provide.

I started getting sores and fibers in Sept 07. I had skin hatchings and general misery which left temporarily only to reappear about 10 weeks ago again. In addition to the sores and fibers (which have taken over my house) I have "medusa" hair which never seems to stop moving. I'm having periodic trouble with one of my eyes. I have alot of movement in my ears.

I have a spouse who is going blind - and even if he weren't, he still would think I'm essentially nuts when I point out the moving fibers in our carpet or in our bed or floating in the air. I have been observing him - and his clothes - and his hair has started to move. His clothes are covered as well. I don't know how he doesn't feel all the bites and itching that I do...

What makes me perhaps the most sad is that my dog and two cats also have the disease. My dog has fibers growing from her toenails. Also, problems with ear and eye infections. One of my cats has hair that is 4 inches long growing from his toe pads. My other cat has moving and curling whiskers and unusual hairs growing on her legs. They all have lots of moving hair that comes out when I brush them. I know they are ill and I really want to help them.

I look forward to reading more of your posts. Take care, FlowerDogsMom (Katherine)

[Kritters]

Hello Katherine and welcome to the forum..........

I know you will find this place to be an oasis in a sea of despair. I did.

I had those medusa hairs on my forearm. I shaved them and they are gone now and haven't grown back, but I've also been using treatments which I know made a difference.

We will soon have answers and ultimately a cure. I hope you're holding up well.

Can you share your story regarding how you think you contacted this? Do you live near the water, near any waste treatment centers, do you eat sushi.........stuff like that.

And please contribute to the polls, two of which I will re-post to bring to your attention (animals and herpes) check out unread messages to see it.

Kritts

[FlowerDogsMom]

Hi there -

I have 2 theories about how this has happened to me - I'm not sure which is correct, maybe neither... but what's odd (or one of the odd things) is that I saw an Infectious Disease specialist in December and told him based on my research I felt I have some type of filarial nematode. Now that I'm reading more and more about Morgellons, I see that others may think this disease (or part of it) is right along those lines...

In 2002 I went on my honeymoon to Mexico. We were south of Cancun and also traveled inland. While I was there I sustained 3 bites by an unusual looking black and red fly. The bites were raised and lasted on my wrist for at least 3 months. At the time my husband and I joked about it because it always takes so long for me to heal... but even for me it went on and on. It never dawned on me to ask a doctor about it. When I read about the filarial nematodes, they can be transmitted by bug bites and they incubate for a period of time before symptoms start. This is my first theory.

My health has been declining and I've been home on disability since 2003 (I'm 37).

My second theory is that what I have is zoonotic and may have come from my dog or one of my cats. My dog swims in a local creek. Last summer there was evidently some contruction debris in the water after a flood and a boom let the debris go... after that my dog had eye and ear infections... and was just not right. She continues to have problems with her eyes and ears and fevers. I told the vet at the time that both of my cats were also unwell though I couldn't exactly put my finger on what was wrong - just lots of different symptoms at different times... things like periodic vomiting, fevers, lethargy, skin scabs... One night my one cat was picking something off her fur and I had the sensation that I breathed in a cloud of something... and not long after I could feel movement in my nasal passages... I had clear gel worms coming out of my eyes. I had skin hatchings and burrow marks and the start of my parasite odyssey.

I guess there is a third thing... I swam in a local lake (not stagnant and lots of people were swimming there). It was several days later that I felt the first skin crawling and had white egg like things in spots that I felt bites.... the creepy crawlies all over my body - especially over my eyes/eyelids, then a couple weeks later I had my first skin sores. The doctor assumed it was some type of mite and gave me miticide to use and told me to take my pets to the vet.

When I did, the vet said they were all clean (though I still really felt something was wrong with all of them). The vet looked at something that came out of a track on my skin and found something she'd never seen before... which lead me to call the county health dept... who called the state health dept. Eventually I was told I had a Chalcid Wasp - which is actually a parasitoid of a parasite - it can actually be a parasitoid of nematodes. While researching this I saw an image on Wikepedia of something just like the clear gel things that come out of my eye ... which is how I started reading about nematodes and then filarial nematodes...

I'm not sure what happened (I changed my diet, I worked on detoxing my body) but something caused the sores to disappear as mysteriously as they appeared. And then some other health problems got my main attention until about 10 weeks ago when I started with skin sores again.

Then I started to think about the things going on around me that I'd been ignoring due to other priorities... the fact that some type of fibers were growing out of the toenails of my dog, the fact that little white triangle things fly around me, the fact that strange fibers which all look identical (something like crinkle french fries) are sticking out of my microfiber couch, the fact that I have red and blue and black fibers often in that same shape on my body or in my ears, the fact that the little white egg like things which hurt have reappeared, also, the black specks, my hair is taking on a life of it's own... it falls out by the handful and it moves like Medusa - whether it's still in my head or I'm holding it in my hand or I'm pulling it out of my clothes - my long haired cat has the same thing going on in her hair. My husband's hair is also moving and he has growing fibers in his clothes even though he can't see them (he's going blind). One of the freakiest things is my carpet has fibers that seem to be growing... and my bedding has threads that are getting longer... Anyway, I started thinking about all of these things and the fact that fibers are coming out of my sores - I pull lots of them out with tweezers.... and I started reading again about Morgellons... and here I am!

So, like the rest of you I'm trying to do what I can to eradicate this from my home and family.

Take care, FlowerDogsMom, aka Katherine

[carla]

Hi Katherine ,
Welcome to MDR . I hope you get as much from this place as I do . My dog has got something too and keeps losing weight .
Carla xxxxxxxx

[Franky]

A official welcome from me too. Welcome to MDR and thank you for sharing you story and thoughts!

[Gator]

Hi Katherine,

Just joining the others in welcoming you to MDR. This has been an oasis for us all and a real learning experience. Thank you for sharing and we will be looking forward to hearing more from you.

You may want to check out the treatment steps, Jim Humble's product that is helping so many people (MM) Miracle Mineral Supplement and be sure to read back posts as you can. they are loaded with information.

Again, welcome,
Gator

[Lisa Lou]

Hi katherine, I am also new. My heart goes out to everyone with this disease. I need help.
I have been struggling with this for 1yr and 6 months. I just was diagnosed with lyme disease and have morgellons symtoms.up until I tested positve for lyme no one believed me.
I have gone to more doctor in last year than I have my entire life. I knew what I and don't what to do.
I just shaved my head. my scalp, neck and are the worst. I feel under and on skin. Just lately
it has moved to my face arms and legs. Last I started pulling up my carpet. The weird thing
we just built this house so I know all the contamination me and I am scared to death that my 9 year old daughter and husband will get this. my husdand I see things on him and clothing but does not feel what I feel. I want to move.
I have starting antibiotics for the lyme. I need help I don't better I feel worse.

I am having uncontrollable thoughts and I think I am starting hear things.
what do i do.
i have tried EVERYTHING>< does anyone have any suggestions. please
lisa

[jonsi]

Hi Lisa,

I also have a nine year old daughter (yes she has this too, but very slightly). I remember being glad that I was diagnosed with lymes because it was verification that there was something really going on besides the "DOP" diagnosis.

I understand "I am having uncontrollable thoughts and I think I am starting hear things.
what do i do.
i have tried EVERYTHING>< does anyone have any suggestions. please "

I'm glad you have found us. Please know that we will do anything and everything to help you get through this by sharing our experiences and protocols.

Stop eating fast foods (McDonalds et al), pre-packaged foods and deli-meats. This is a good start. Are you on the vanderbilt protocol for lymes? There is a section on this board on this protocol and one member "niecy" might be able to share with you on this.

Do you have a good air filter (ionic) in your home?

I don't want to overwhelm you, especially if you have a hard time processing thoughts (like all of us with Morgellons). Baby steps. You will start feeling better and will get through this. We are here to help you and each other.

Welcome Lisa

In the white light,
~jonsi

[Kritters]

Hi Lisa Lou,

Welcome to this forum.

Did you start having symptoms before or during the construction of your new home?

Is your home anywhere near a wastewater treatment plant?

You wrote: "we just built this house so I know all the contamination me......"

I didn't quite understand that....would you mind clarifying?

You say you've tried 'everything'. What is 'everything'?

Do you have any family pets?

Thanks,
Kritters

[nick]

Hi Lisa
Welcome to Franky's site If you go to Morgellons treatment step on this broad you can find a lot of helpful stuff there.

take care Nick