Dop you have a doctor who believes in Morgellons?

[Sadsack]

I screwed up. I misunderstood the instructions for the poll and need to do it over - I don't know how to correct it, so please ignore till I figure this out.

Trying to find out how to delete the thread.

SS

[posey]

My pain Dr., a D.O., knows it is real.

He is trying to help me the best he can for an illness where there are no guidelines. He has been researching mycoplasma, chlamydia pneumnia, etc. he has ordered his own testing things.

The big difference of him and most other docs, and I do mean BIG, is that he works for himself. He is not employed by an institution, clinic, hospital, etc. He has no higher uppers with the political correct b.s. in his business to answer to. He also doesn't have to worry about his year end review by any clinic in order to get a big raise nor does he have to worry about profit making for any company.

It is a firm belief of mine that this type Dr. is much more interested and compassionate in patient care. He will not work for any clinic, even though he'd make more money, because he cares about his patients more than his own pocket book. Every appt. I have with him is for an hour, even though it is medicare paid; which means a huge fee for services pay cut.

This I can testify to through my own experience.

[Dzana]

and the same NHS doctors ( and NHS medical staff) who are refusing to treat us or putting it all down to mental health issues are being paid out 1.5 M to receive private health care so that they can return to work asap and continue to "humiliate" us while we are stuck on a waiting list, and the same doctor who gets paid so much is telling me to either research disease myself or ask for help somewhere else ( I would if he could help me financially), so I just took it as a death there is nothing else I can do...so every time when I m at the surgery my doc will make sure that one more member of the stuff is present too as in to make him feel safe????? as in m I m agressive ????? lie after lies evrone knows me as non agressive person but when I objected to being treated like a black sheep in the surgery in front of all the patient in a verbal way thought not an agressive way - doctorr did not like that - so yeah some docs. have a power to make u that way and then they write on your medical file bunch of lies to clear themselves - I do not get it - why do we have to play hide and seek with doctors these day... where is humanity in their hearts - they r turning into non human production line workers - machine alike superficial souls - its is healthier to die than to be exposed to such a 'torture'

[Dzana]

and the same NHS doctors ( and NHS medical staff) who are refusing to treat us or putting it all down to mental health issues are being paid out 1.5 M to receive private health care so that they can return to work asap and continue to "humiliate" us while we are stuck on a waiting list, and the same doctor who gets paid so much is telling me to either research disease myself or ask for help somewhere else ( I would if he could help me financially), so I just took it as a death there is nothing else I can do...so every time when I m at the surgery my doc will make sure that one more member of the stuff is present too as in to make him feel safe????? as in m I m agressive ????? lie after lies evrone knows me as non agressive person but when I objected to being treated like a black sheep in the surgery in front of all the patient in a verbal way thought not an agressive way - doctorr did not like that - so yeah some docs. have a power to make u that way and then they write on your medical file bunch of lies to clear themselves - I do not get it - why do we have to play hide and seek with doctors these day... where is humanity in their hearts - they r turning into non human production line workers - machine alike superficial souls - its is healthier to die than to be exposed to such a 'torture'

[Sadsack]

Originally Posted by posey

My pain Dr., a D.O., knows it is real.

He is trying to help me the best he can for an illness where there are no guidelines. He has been researching mycoplasma, chlamydia pneumnia, etc. he has ordered his own testing things.

The big difference of him and most other docs, and I do mean BIG, is that he works for himself. He is not employed by an institution, clinic, hospital, etc. He has no higher uppers with the political correct b.s. in his business to answer to. He also doesn't have to worry about his year end review by any clinic in order to get a big raise nor does he have to worry about profit making for any company.

It is a firm belief of mine that this type Dr. is much more interested and compassionate in patient care. He will not work for any clinic, even though he'd make more money, because he cares about his patients more than his own pocket book. Every appt. I have with him is for an hour, even though it is medicare paid; which means a huge fee for services pay cut.

This I can testify to through my own experience.

That is fantastic, Posey. I really have to figure out how to do that poll for real...

I suspect there are far more doctors on board with this than there were 2 years ago. Of course, without a clue about what it is, they are really hog tied in terms of treatment.
But...in my opinion...validation is almost as important as effective treatment. Without it, the pain of being dismissed and mislabeled does so much damage to us it greatly contributes to our depression. When in a deeply depressed state, it is really hard to do anything and it affects our immune system.

SS

[Sadsack]

Dzana -

DO NOT GIVE UP. Your pain is palpable, but we all need to fight this together.

With so many sufferers in the U.K., I really wish you guys could get together if not physically at least as a lobbying force.

An intense letter-writing campaign to politicians finally resulted in them, in turn, putting pressure on the CDC to finally give in and pay some attention. What they "find" is another story, but one step at a time.

Every one of us is important in this, even if the only contribution we can make is our personal story and experience with the health care system. Your story makes me remember to be grateful, which is sometimes hard.

Can you take Franky's poll and become more engaged with us?

SS

[gigi22]

When I went to dermatologists, I did not reveal much to them, as they would not even consider I had an overgrowth of fungus/yeast on my skin.. I have no lesions and they just diagnosed me with dermatitis, even when I did tell them about the bugs I was pulling out of my skin. I'm afraid if I had pushed them further, I would have been diagnosed DOP.

My GP was sympathetic, and though I never mentioned "M", I did tell him about black things, specks and threads, coming out of my skin. I asked him if he could test me for lyme. He ordered a bunch of bloodwork, and referred me to another doctor who treats chronic illness. My GP described me as "complex" and not DOP. He could not help me, but referred me to someone who could. My GP has always been a wonderful doctor, but many GP's may not be this compassionate.

My new doctor is wonderful! I did mention M to her, and she thought she had heard of it, but googled it quickly, and was convinced that we are just a group of people with similar symptoms, and believes we are just suffering from undiagnosed illness. She is not reading up on Morgellons or anything like that.. she is trying to get to the root of my health problems (independent of Morgellons) with different types of testing, and then treating me according to the test results. My doc is an MD but primarily practices holistic medicine. She has been treating me with supplements,enzymes,minerals,probiotics,diet,etc and natural antifungals.

She is willing to prescribe me an antifungal, but prefers not to. She knows that I will be on a dosage for a long time.. this is not something that is going to clear up overnight. But I agreed to go with the natural antifungals as I have been doing... I prefer not to risk it with the pharmaceutical drugs at this time. I have been doing well with the regimen I have been on.

She has scoped the stuff I have pulled out of my skin. She at first thought it was probably skin or lotion, but after she looked under the scope, she said, "you are definitely not delusional.. this is an organism of some kind"... she had no idea what it is, but tried to give me more tips on stuff to bathe in and put on my skin. She is continuing to help me correct my hormones, thyroid, digestion, detoxification processes, etc and boosting my immune system. I really feel that we are on the right track. In the long run, correcting my terrain is going to get me my health back... it is not just the antibiotics, antifungals, and antiparasitics alone that can do this.

My advice to everyone is DO NOT GIVE UP looking for someone to help you. I delayed getting my doc for some time because I was so worried about being labelled as DOP. Keep looking, as there is bound to be someone who will help. Also, finding a naturopathic doc or osteopath is of upmost importance... someone who will recommend supplements at the correct dosages to give your body what it needs to work correctly and to boost your immune system. You do not want someone who will just prescribe an antibiotic.

[spotted dog]

Hi Skylark, I know how you feel I'm in U.K. & have had this disease for over 18yrs, although I did'nt know what it was until a friend recognised my symptoms from a newspaper aticle in Daily Mail, I visited 5 Hospitals, was sent to a shrink, I went as my GP said if I did'nt go I could be struck off NHS.

My last visit to my GP after a year was last week to ask for a months antibiotics to try & get me through Xmas, I said to him "I'm praying Doctors in U.K. will catch this disease, so that research will be done" his answer was " well don't wish it on me" It made me wonder if the message is getting through!!! on the QT I hope he does get it!!

I have just on Sat found a product called Salcura intence spray, it is expensive at £14.95 for 100ml but have found it very soothing, taking the itch out & cleaning the fibres out, so I've ordered 2 more also the hydrating cream, its all natural products, will let everyone know the results I get, to save people wasting more money, I've also ordered some oil capsules with sea something (cant remember name) if you google salcura you can read up on it, its anti fungal, anti bacterial & cleansing & the spray just soaks in.

I must add that my skin is full of calluses as I've had the condition so long
so am pleases to of found something which sinks into the skin...Spots

[Sadsack]

SD -

I just researched this and got excited. It looks like everything in it is natural, and it has things like aloe which help heal as well as detoxify.

Then what a let down! I don't think it is available in the U.S. .

For everyone in the U.K., I would definitely look into this:

Salcura Intensive

SS

[spotted dog]

Hi Sadsack... If you google salcura intensive spray & look up testimonials (sorry I just tried to put it on here but it has'nt worked, also I've just remembered what I've ordered to take internally its Sea-buckthorn, I think its quite a new thing, tried to put that on here but again has'nt worked,thicko that I am, must try & find my notes that I made & have a practice again, Sea-buckthorn gets rid of free radicals, don't know what they are but its supposed to heal lesions & very good for immune system, will let you know how I get on, its expensive £31.00 for 90 caps & you take 4 a day. since I'm too ashamed to go out & hardly spend any money on socialising I spend it on things that hopefully will let me be more sociable. trying to get through Xmas with this thing we all loathe...Spots