I think I have morgellons

[mmarsha]

Hi! I just found this site and I was so glad to read about things that have and have not helped other people with this terrible condition. I think I have morgellons , I have been treating myself for over a year and a half for parasites and mites trying to kill this thing that has invaded my body. As of right now I do not have fibers that I can readily see as fibers but when I sent samples to university for ID, he e-mailed me back to say that what I thought were bugs were white fibers. I have over the last year had several sores that would not heal for months, I have had the black specs in my skin pores and in my hair ,the crawling, biting, I am so tired that it is really all I can do to clean my house, I have lost muscle strength and I feel like I'm losing my mind. I used body wax on face to try and get out whatever was crawling, itching and gluing down on my neck and ears, I did get a lot of bugs out and some kind of worm looking things? Everybody say's that I am crazy and recently I have begun to wish that I were, "Ya know" wondering if that might be better than my reality. Sorry I don't mean to bring noone down. It's just that I feel like I am on my last nerve, "ya know" anyway thank you for the site. I now know that I'm not alone.
mmarsha

[jonsi]

Hi mmarsha,

From your post, it sounds like you probably suffer from "M". I'm glad you found this site. You have found a place that will help you as much as you will allow! Dig into old posts, ask questions, and please know that you have found a community that understands what you are going through.

We are here to help. Many of us are living normal lives again.

In the white light,
~jonsi

[gigi22]

Hi mmarsha -

I am new to this site as well. You are absolutely not alone. I only discovered this a few days ago. I am still trying to process all of this and all I can think right now is: THIS IS HELL. I know what you mean about "ya know". I had those thoughts this weekend... all my dreams feel crushed. It is so surreal.

But there are *so* many examples of people out there who have tremendously improved. Just keep up the fight!

The other positive thing is there is so much information out there from caring people willing to share what worked for them that we can benefit from... and then you have the good people on this forum looking for the cure....

[-----------]

Hi, MM - Welcome!

This site has some of the nicest people you'd ever want to associate with! Most folks are friendly and want to help you... just PM someone that you want to ask a question, or someone grab MM and help her out?...

This is your thread, you can use it to address to the group with personal questions, comments, etc. You can search on any subject with the 'Search' feature above...

Kritts, or someone, will you post the link to the 'Helpful Protocols' thread for MM?

I was bedridden for months, MM, it felt like I had a form of paralysis of the central and peripherial nervous systems, whether that is true or not, I don't have proof, I'm just telling you how I felt. I was incapicated for months... what helped me the most to get my strength back was to start drinking two shot glasses of apple cider vinegar daily for a week, and then I went to 1 shot glass per day for over a month after that, then weaned myself down to an occasional shot.

For some of us - there seems to be a period of time where we are affected this way in the beginning of the disease. I don't know if it was a coincidence that I started drinking the vinegar at month 10 into my evident illness, and by month 11, I was better? It could be the nature of this 'paralysis' would have ended naturally, anyway, we just don't know that much about this aspect, at this time. From what I understand, this 'posioned feeling' mostly goes away with time, approx. within 6 months, and doesn't seem to return.

Our motto is to bring no harm. The taking of the vinegar shouldn't hurt you, as a suggestion.

In another recent period, the Diatomaceous Earth - "DE" helped me quite a bit too, I would recommend this, here is the thread link for it:

Has anyone tried Diatomaceous Earth?

Some of us are starting to suspect that heavy metals or metal poisioning might be involved, that would sure explain this 'paralysis', you might want to start a metal de-tox chelation supplement, such as EDTA, Chorella, or "Heavy Metal Detox" by N.S., and the eating of cilantro also helps remove heavy metals.

[posey]

I've been here about 6 months MM. You will find compassion, concern, understanding, support and more here which is a great need for endurance of this horiffic illness.

I have chronic pain to begin with and my Dr. (D.O.)for this is a firm believer of "M". In fact, he is the one who told me about it. He has another patient with it. I'm fortunate that way because his validating my condition is a comfort but he does not have the answers. He is supportive as far as trying things though, i.e. antibiotics and such.

I've been having facial skin issues for 6 yrs. but the movement didn't start until last October. At first I thought it might be Demodex and even then the derms. totally dismissed me as a wacko. But when I saw my hair stand up on my head and sway back and forth like fungal hyphae does when it is looking for food and began to find and feel the fibers on me as well as ALL OVER MY HOUSE, I knew I had to do what I had been afraid to do; a search on Morgellons.

Contrary to what the gods in white coats say or think, the things which I had been experiencing, before I had even read any of "M" symptoms, were now right there in front of me on my puter. The words, the pics, it was all right there in front of me.

To say the least, I was horrified and grabbed a roll of paper towel on the way to my bathroom to sob in unbelief and horror. One thing that also bothered me was I could not understand how and why I could have another illness which Dr.s did not believe in. I had been through years of that with fibromyalgia!

Right now I have weakness in my spine/lower back. I can hardly stand up and never stand straight. I dn't have alot of the sores yet but they do pop up on my hands and I get lumps going from my elbows towards my wrists. I have found that putting grapefruit seed extract clears them up.. not grape seed but grapefruit seed.

Also, there is a thread somewhere about the Diatomaceous Earth - "DE" as Kammy mentioned but be sure to read the about the kind which ok for humans.

btw Kammy, thanks for the apple cider info. I read about this at Doug Kaufman's site and his phase 1 fungus diet but was unclear about drinking it. I'm going to do this now but am sure I'll need to take some ranitidine or my stomache will burn.

It's very hard MM and I can remember when I also wished I was delusional instead of actually having this. I'm going to talk with a counselor on an ongoing basis just to have someone to talk to becuase it helps to talk it out just as it helps here to type it out. Thee have ben times when I have felt like I just wanted to die.

posey

[-----------]

Hi Posey,

You're welcome. Kritts pointed out today that it should be Raw Unfiltered Apple Cider Vinegar for the best results.

You can PM me anytime, if you need someone to talk to...

[gigi22]

Yep. The Raw stuff - organic, unfiltered is the one you want. It should have sediment at the bottom. I was drinking some ACV when the candida was at its worst!!! It is soooo effective. I will probably start drinking it again.

I used to mix 2 tblspoons of ACV in an 8 oz glass of water. I would also add 1/8 teaspoon of baking soda to make it easier on digestion and the stomach.

[paddel]

Heavy metals play a part of morgellons for sure. A good way to get rid of these heavy metals is thru the heavy metal detox program on the rife software that I have linked on this forum.

paddel

[Kritters]

Originally Posted by paddel

Heavy metals play a part of morgellons for sure. A good way to get rid of these heavy metals is thru the heavy metal detox program on the rife software that I have linked on this forum.

paddel

Hi Paul

Would you mind putting the Rife information (link and some directions) and any other thing you want to include on the protocol link?


Effective Protocols for Morgellons

thanks in advance, I hope...
Kritts

[mmarsha]

Hi everybody, I sat here at my computer and cried as I read your post. Not because you think that I probably do have morgellons but because I have finally found some people who don't think I'm crazy and can identify with what i going through physically and more than that mentally. I have been suicidal for weeks. I have always been a strong person with strong moral values and 2 years ago I could of never imagined that I would ever even consider such a thing as doing my self in.But this suffering has been so bad and my own family has tried to drill it in my brain that I am imagining all this even though I have these sores and have been told on 3 different occasions by doctors that I had scabies but the treatment they prescribed didn't work and not because i didn't clean. I threw away my bed and couch, I have one chair left that is leather and a wood chair at my computer ,I also threw away my nice comfortable swivel chair that had a nice padded seat. I got me a small twin bed with no headboard and have encased it in several layers of vinyl zip covers. I still couldn't get rid of this what ever it is. I have poisoned my self daily with either lindane or premethrin cream. I am finding black fibers in my bra and i am starting to see red ones that look like some of the morgellons pictures I have seen. It is becoming more and more clear to me that I am very sick. Thank you so much for the encouragement and the helpful links of things that I can do that could possibly help me. Thank you most of all that even in your own suffering you are trying to help me. May your God bless and keep you . Please pray that he will give me courage to endure till we find a cure.
mmarsha