Morgellons Poll

[Franky]

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in
2. Inner City? Suburb? Country?
3. Do you live on a lake, by the ocean or pond?
4. Do you have city or well water?
5. Do you live in a heavily treed area?
6. Age at onset
7. Number of years affected
8. Any other family members affected?
9. Your occupation at onset?
10. Do you own pets? Cat? Dog? Other?
11. Have/had you traveled to California, Florida or Texas? Europe? Other?
12. Do you/have you garden, hike, camp or spend allot of time outdoors?
13. List your activities and hobbies.
14. Have you used a public whirlpool or pool?
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
16. Do you smoke?
17. Any medications you have taken or are taking?
18. Do you drink more than 8 cups of coffee a day?
19. As far as lesions, have you had more than 10 at a given time?
20. What part of your body did the lesions start?
21. Is there any area that they are most prevalent? If so, where?
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

[honeybuns]

1. Live in Texas
2. Small City, College Station when contracted.
3. Lived by a small creek, drainage ditch.
4. City Water.
5. Were a lot of trees near water. I parked under the trees a few days and noticed collumbola in my car quickly thereafter.
6. 40
7. 1 year 2 months
8. Thank God No, my 12 year old daughter visited on weekends and was bitten in my apartment and noticed the black "bugs" but not infected.
9. Home computer worker
10. Had a small dog at onset. Dog would notice bites in apartment also.
11. Live in Texas, Traveled to Eastern Europe Ukraine lived 4 months past year.
12. I like to be in sun and was working outside gardening at the time of onset and swiming in apartment pool a lot.
13. Mostly computer work and crafts.
14. Yes, public pool / steambath / sauna, and jacuzzi
15. Kidney Disease, Parathyroid removal, Dialysis, Shingles at time of onset.
16. Smoked pot 22 years, quit 1 year before acquired morgellons.
17. Prednisone, Tacromilus, Cellcept, Labatelol, Clonodine, Zoloft, Parasite Cleanse, Salt / vitamine C. Praziquantel / invermicin
18. I drink about 2
19. Yes, diastributed mostly on arms, some on back of neck and stomach.
20. Right Arm
21. Right ARm
22. Right Side Is one side of your body/face more affected than the other (i.e.: left vs. right)?
23. Brain Fog, Vision disturbances, headache, ringing in ears, traveling arthritis, hip hurt, fatigue.
24. Scabies, Purigo Nodulalis, DOP.. Dr. Schwartz Morgellons

[carla]

.!.UK (NORTH WEST)
2.suburb
3.a canal
4.city
5.no really but street is treelined (lots more were being planted at time of inset
6.35
7.3years
8.3 others affected
9.receptionist
10.dog, rabbit
11.never been to US
12.Always out on bike before time of onset
13.Hobbies;scratching,* pulling things out my skin, thinking ,(I did used to love gardening and bike rides )
14.never used public pools
15. stomach operation and 17 blood tranfusions
16.I smoke 10 a day
17.salt/vit c (woodworm/cloves/blackwalnut when I can )
18. About five cups
19.in the past
20.legs itched first
21.arms worst affected at moment
22.Right side always worse
23.weight loss fatique nausea vision disturbance brain fog teeth hurt,hearing sore joints ,headaches
24.scabies,ezcma,DOP,poor diet ,depression ,various allergies

[jano]

1. State - Minnesota
2. Suburb
3. Surrounded by wetlands, less than 1 mile to 2 lakes
4. City Water
5. Very heavily treed - live in a tree preservation area
6. 43
7. 10
8. No others
9. Insurance Underwriter for Broker
10. Cat
11. Born in Los Angeles, moved to Minnesota @age 10, travelled 32 states inlcuding CA, TX, FL - been to UK, Continental Europe twice (England, France, Italy, Switzerland, Austria, Germany, Belgum, Holland).
12. I garden lots and lots - spring, summer, fall gardening almost 7 days a week for at least 4 hours a day.
13. Gardening, guitar, painting, drawing.
14. Used to use whirlpool at my apartment complex 10 years ago. Some public pools maybe 1 x a year.
15. Kidney Cancer (left removed), Hypo-Thyroid, Heart Attack, pre-cancerous colong polyps last 3 years, allergies including dust, mold.
16. Yes
17. Zoloft, Prempro, Levothyroxin, Keraflex
18. Yes, probably 2 pots of coffee a day
19. 8-10 maximum, usually 2-3
20. Left side of face
21. Yes - left side of face.
22. Left side of face - always, down left side of chest, right arm, some on feet (tops of both).
23. Some fatigue, brain fog - although that seem to be in some type of cycle and only lasts a day - perhaps maybe one day a month. Pain and pressure under healed skin over lesions that become inflamed again.
24. Munchausens. Delusional Parasitosis, Picker's Nodule.

[ladycolorado]

1.colorado
2.suburb
3.no
4.city
5.yes
6.36
7.3mo
8.no
9.none
10.2 dogs ,two cats
11.born ca lived fl 1988 6 mo
12. have gardened
13.walking reading
14.yes
15.no diagnosis/labtest yet
16.yes
17.treatment regimine/cumin digest gold wormwood tabs
18.no
19.yes
20.back of neck
21.feet(not healed underneath) one on left arm one under armpit
22.left side (left handed)
23.lesions stinging biting crawling skin orifaces, word switching, chronic fatigue, weight loss, lack of appetite, eye infections ear infections,abdominal pain,sometimes nil sex drive,mood swings,jointpain,swollen feet hands,diharrea,occasional vomiting
24.dop

[deannbennett]

Originally Posted by bubba

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in Born: Colorado Now Live In Wyoming
2. Inner City? Colorado -YES Suburb? Wyoming _Yes Country?
3. Do you live on a lake, by the ocean or pond? I have lived by both
4. Do you have city or well water? City
5. Do you live in a heavily treed area? I have alot of elm tres and cottonwood trees
6. Age at onset. 23
7. Number of years affected-27
8. Any other family members affected? Yes. Husband, son, sister, her two boys
9. Your occupation at onset? Resident manager apaprtments
10. Do you own pets? Cat? I have owned many Dog? Owned many, now own 4 dogs Other? Birds
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Yes to all
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Yes allot
13. List your activities and hobbies. Gardening, fishing, animals, camping, rock hunting, Archeology DIGGING
14. Have you used a public whirlpool or pool? Yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). Gave birth to my son in 1979, very healthy up until then. I used what they called a "Sitz Bath" and became extrmely sick one month afet giving birth. I was in th ehospital for 10 days. I have been sick ever since. I have been diagnoised with occassional high blood pressure, hypothyroidism, fibromyalgia, arthritis, chronic dry eyes, depression, and the most recent is "DELUSIONAL PARASITOSIS".
16. Do you smoke? Yes
17. Any medications you have taken or are taking? Plenty,
18. Do you drink more than 8 cups of coffee a day? YES
19. As far as lesions, have you had more than 10 at a given time? YES
20. What part of your body did the lesions start? Head
21. Is there any area that they are most prevalent? If so, where? My head lesions are different then the lesions elsewheree. They are like hard bumps like dried skin that do not heal and itch and hurt. Then my arms have the second most, onto my back and then my lower legs and ankles. No bottom of feet or palm of hand lesions.
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? Definatley the right side
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) Brain Fog, confusion, weakened vision and hearing, short term memeopry loss, long term mememory loss, feeling like hais is in my throat which causes coughing, I often cough and sneeze at the same time, choke on food allot, sores on back of toung (doctor saif they are irratated taste buds. Well if I were a tase bud and was being attacked by abnormal invaders I would be irratated as well), toungue covered in a thick pasty substance, saliva thick milky to dark brown in color, muscas the same form my nose, do see some thick white to milky globular type build up in saliva consistant with being in circular to larva type shapes. I am extremly emotional if not on meds so much so that if I were not on them I would go crazy. I have extreme headaches, dehydration, constipation, diarrea, strong odor in urnine occassionaly, extreme lower back aches and pain in back lower kidney area, sometimes chest pains, lymph nodes swell occassionaly, chronic sinusitus, hair falling out around lesions or not growing back at all in some areas or at a slower growth rate, hair turning grey, and changing to a orangy tint, color and having ALOT of static electricity in hair, dry flacky skin, very seldon naussea, skin lessions that won't heal, that fill with a clear to milky liquid filling the potted (holes) type lessions, do not normaly appear as but can appear as pimples but more like when you scratch and the upper skin layer skin breaks which then in turns causes the liquid (serum) to mix with the blood which causes a crustation to appear simular to a scab but is clear to opaque in nature except for the deluted clor of blood mixed into it which makes it look like a scab, the clear liquid (possible) serum which is blood without the red blood cells) collects in the lesion and actually melts the surrounding skin it comes in contact with before it mixes with the blood and dries to a crustation, much like the streptococal bacteria, the lession penetrates all the (six) skin layers and remains a lesion for months, it calcites the surroung healthy skin and turns all six layers into a thick layer of dead cells that do not rejuvenate. The reson the lesions do not heal it because the inner most surface of the serum stays active with the bacteria and new healthy skin will not rejuvenate becasue of it. The dead skin and the crustatious scab provide hybernation for the parasites that can re-hydrate with showers, etc. The same process begins again. If you can prevent the serum from overcoming the lesion the chances of healing are better. Any dead skin needs to be removed bit the real threat is the crustation, beleive me each minuit layer is filled with either the parasite or the fibers (that is another story). I can go on but I am getting tired I will continue to up-date at a later time.The ;ast and extremly severe symptom that I have is calleed the I am sick and tired of of seeing worthless doctors syndrome.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? Folleculitis, hives, and all the others previously mentions. Thought I had MS. Lukemia. I have had emotional and neurological promlems.

[skittter]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in - Georgia
2. Inner City? Suburb? Country? - Suburb
3. Do you live on a lake, by the ocean or pond? - Lake across the street
4. Do you have city or well water? - City Water
5. Do you live in a heavily treed area? - Yes
6. Age at onset -44
7. Number of years affected - 12
8. Any other family members affected? - No
9. Your occupation at onset? - International Airfreight Specialist
10. Do you own pets? Cat? Dog? Other? - Cat
11. Have/had you traveled to California, Florida or Texas? Europe? Other? - Yes..CA. FL. Europe, Mexico
12. Do you/have you garden, hike, camp or spend allot of time outdoors? - Very active at onset..not so much anymore.
13. List your activities and hobbies. - Antiques, crafts, computer projects.
14. Have you used a public whirlpool or pool? - Yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?) - Thoracic Aortic Dissection (2) - Aortic Aneurysms, Connective Tissue Disease-Collagen Disorder, Hypertension, Fibromalgia, Hypokalemia (Potassium electrolyte deficiency), Fibromuscular Dysplasia (Renal Arteries), Acid Reflux, Rheumatoid Arthritis, Asthma, Post Traumatic Stress Disorder, Depression
16. Do you smoke? - At onset - Yes...Currently - No
17. Any medications you have taken or are taking? - Welbutrin, Sonata, Norvasc, Atenolol, Enalapril, Prednisone, Atarax, Prevacid, various anti-depressants
18. Do you drink more than 8 cups of coffee a day? - No
19. As far as lesions, have you had more than 10 at a given time? - No
20. What part of your body did the lesions start? - Face
21. Is there any area that they are most prevalent? If so, where? - Face
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? - Predominantly right side.
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) - Short-term Memory Loss - Fatigue, Mental Concentration, Depression, Lesions on Face, Muscle Weakness, short term memory loss, trouble swallowing.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? - folliculitis, picking at face due to nerves & stress.

[Snowlady]

1. State you reside in Ohio
2. Inner City? Suburb? Country? Suburb
3. Do you live on a lake, by the ocean or pond? Water in the attic so it would come into the apt when it rained.
4. Do you have city or well water? Always had bottled water to drink, but cooked and bathed in city water.
5. Do you live in a heavily treed area? My apt faced the East had a huge tree in front blocking any little sun to dry out the wood which was rotting away
6. Age at onset 48
7. Number of years affected Didn't know what it was until 2 years ago, but all together around 6 years
8. Any other family members affected?Yes, son, mom, brother, not all in same household.
9. Your occupation at onset?Had a small business where I built primitive furniture out of pine and barnwood.
10. Do you own pets? Cat? Dog? Other?None now, I had a cat at onset and he became sick with unknown disorders and died.
11. Have/had you traveled to California, Florida or Texas? Europe? Other? I haven't traveled since I was a lot younger.
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Had a vegable garden.
13. List your activities and hobbies.not much now, but I love crafts, flea markets, garage sales, swimming, step aerobics, reading, learning new things.
14. Have you used a public whirlpool or pool? Not for a long time.
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).Before I had tachycardia and mitri valve prolaspe. Since the disease, I've been diagnosed with fibromyalgia, chronic fatigue, shingles, folicilitis, possible scabies, arthritis, borderline sugar imbalance, low b12, "siezures", doctor said jokingly, I was a mess. I say I had a systemic disorder.
16. Do you smoke? No
17. Any medications you have taken or are taking? Tenormin,Ativan,Bactrim DS, Advil
18. Do you drink more than 8 cups of a day?No coffee, but I do drink pop
19. As far as lesions, have you had more than 10 at a given time?Yes
20. What part of your body did the lesions start? My back, the right arm, mostly was contained to the right side, but now all over.
21. Is there any area that they are most prevalent? If so, where? scalp definitely and upper arms and back
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?As stated above, definitely right but now both
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)fatigue,skin sores, fibers, other odd things come out of skin, pin pricks, weight gain in the beginning, low grade fever, diminished mental capacity (recall, short term, decision making, confusion, comprehension) vision going downhill, hair is getting thinner, vomiting, stomach pain, cysts on parts of body that get larger and smaller. Just to many to list them all
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? fibromalgia, Chronic fatigue, scabies, folliculitis, shingles, dementia, then psychotic or depression. The emergency room doctors never knew what I had, at least that was honest.

[mlc]

Originally Posted by bubba

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in
new hampshire
2. Inner City? Suburb? Country?
in town (small town)
3. Do you live on a lake, by the ocean or pond?
couple miles from lake
4. Do you have city or well water?
town water
5. Do you live in a heavily treed area?
no
6. Age at onset
50's
7. Number of years affected
4
8. Any other family members affected?
boyfriend
9. Your occupation at onset?
electric co.
10. Do you own pets? Cat? Dog? Other?
yes & parrots
11. Have/had you traveled to California, Florida or Texas? Europe? Other?
no
12. Do you/have you garden, hike, camp or spend allot of time outdoors
flower garden

13. List your activities and hobbies.
reading, shopping
14. Have you used a public whirlpool or pool?
no
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
protein c deficiency
16. Do you smoke?
no
17. Any medications you have taken or are taking?
warfarin
18. Do you drink more than 8 cups of coffee a day?
no 2 to 3
19. As far as lesions, have you had more than 10 at a given time?
no
20. What part of your body did the lesions start?
few small ones in neck area but they're gone now
21. Is there any area that they are most prevalent? If so, where?
no
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
no
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
brain fog, vision, mucus in my throat, swelling (retaining fluid), loss smell, crawling & itching
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? scabies

[Franky]

Thank you mlc for your first post and info!