Morgellons Poll

[veronicac56]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in
MINNESOTA
2. Inner City? Suburb? Country?
SUBURB
3. Do you live on a lake, by the ocean or pond?
.POND
4. Do you have city or well water?
CITY
5. Do you live in a heavily treed area?
NO
6. Age at onset.
.26
7. Number of years affected.
.3
8. Any other family members affected?
SOME SYMPTOMS
9. Your occupation at onset?
NURSING
10. Do you own pets? Cat? Dog? Other?
CAT..HAD ANOTHER DIE OF KIDNEY AND LIVER FAILURE
11. Have/had you traveled to California, Florida or Texas? Europe? Other?
CALIFORNIA AND FLORIDA
12. Do you/have you garden, hike, camp or spend allot of time outdoors?
CAMP
13. List your activities and hobbies.
PAINTING, LIVE MUSIC, ART, WRITING
14. Have you used a public whirlpool or pool?
YES
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
WAS AT THE MAYO CLINIC AND WAS DIAGNOSISED WITH FIBROMYALGIA
16. Do you smoke?
YES
17. Any medications you have taken or are taking?
NAPROXIN, EFFEXOR, GABAPENTIN, NORTRIPTLINE
18. Do you drink more than 8 cups of coffee a day?
SOMETIMES, NORMALLY 3-4
19. As far as lesions, have you had more than 10 at a given time?
YES
20. What part of your body did the lesions start?
HANDS, FORARMS, FACE, HEAD
21. Is there any area that they are most prevalent? If so, where?
FACE AND HANDS
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
YES RIGHT
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
WEIGHT GAIN AND LOSS MORE THEN 40 LBS, FATIGUE, BRAIN FOG, VISION, SPEACH, BALANCE, VISION, SWELLING OF THE HEAD, JOINT PAIN, SWELLING OF THE HANDS AND FEET, DROOPING EYELID
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?
THE DOC SAID I DIDNT MEET THE CRITERIA FOR MORGELLONS CUZ I HAD NO ACTIVE LEASIONS AT THAT TIME. MY PSYCHIATRIST SAID IT IS FIBROMYALGIA, AND IT WAS NOT DOP

[robertalouise]

I dont know how to answer these questions but will give this ago. I live in Auckland New Zealand. I live about five minutes away from a large lake and one fresh water creek and another tidal river. I cann't remember what the other questions are. I am more than happy to answer any questions. I am a 65 year old women who lives alone with her Newfoundland/Labrador cross dog. I am sure that I caught this disease from my other Newfoundland/labrador cross dog Ayla. She came from a farm and was permitted to eat rabbits and rats (which I think is disgusting) Well I got this from Ayla and then when I brought Kyra home she caught it from Ayla. My house is infected with this thing. I clean vacuum and wash everyday. Most of my money goes on disenfectant and cleaning products. I have used fly spray on my itches (helped a little) Hair spray (which also helps especially in the ears) but vaseline, anything with alcohol in it also helps. I hope that I am not repeating myself because I typed something similar last night. I am just not very confident in finding my way around Morgellons and lymebusters boards. Much love and best wishes to all. Roberta

[robertalouise]

I dont know how to answer these questions but will give this ago. I live in Auckland New Zealand. I live about five minutes away from a large lake and one fresh water creek and another tidal river. I cann't remember what the other questions are. I am more than happy to answer any questions. I am a 65 year old women who lives alone with her Newfoundland/Labrador cross dog. I am sure that I caught this disease from my other Newfoundland/labrador cross dog Ayla. She came from a farm and was permitted to eat rabbits and rats (which I think is disgusting) Well I got this from Ayla and then when I brought Kyra home she caught it from Ayla. My house is infected with this thing. I clean vacuum and wash everyday. Most of my money goes on disenfectant and cleaning products. I have used fly spray on my itches (helped a little) Hair spray (which also helps especially in the ears) but vaseline, anything with alcohol in it also helps. I hope that I am not repeating myself because I typed something similar last night. I am just not very confident in finding my way around Morgellons and lymebusters boards. Much love and best wishes to all. Roberta

[INFECTIOUS1]

1. AZ now, CA at onset.
2. 1.5 blks. from beach.
3. Ocean Beach in San Diego.
4. City???
5. No. Some Palm Trees.
6. 34ish.
7. Going On 7 Yrs.
8. N/A.
9. Fine Dining Waiter/Captain At Very Upscale/Exclusive Restaurants & Resorts.
10. No.
11. CA (resided).
12. Occasionally Sat On Seawall, Most Time Indoors.
13. Being Ill! Used To Bowl, Play Pool, Coin & Card Collections, Do-It-Yourselfer.
14. Not Really.
15. Toxic Mold Exposure, Recurring Staph. Infections & Impetigo, Fatigue, Memory
Loss, Brain Fog, Depression, Anxiety, Candida, Past Scabies?, DOP, Many More!
16. Never.
17. Countless Different Anti-B's & Topicals, Psych/Mood Drugs, Too Many!
18. BUZZZZ! HA! HA! Don't Drink It. Enjoy Caffine-Free Pepsi On Da Rocks.
19. Oh Yes! Very Hideous Looking! Couldn't Leave Apt.!
20. Buttocks??? Top Of Hands & Wrists, Face, Back & Shoulders, Legs.
21. Same As "?#20" Maybe More Upper Arms & Shoulders, Now. Almost Lost Leg Due
To Infection! Same Width From Knee To Foot. No Ankle!!!
22. Would Vary; But Mainly Right Side.
23. See Above. All Symptoms Ever Experienced Comprised Almost 2 Full Pages
In Small Print. No Body Area Not Ever Affected! At Onset Lost 35 Lbs. In 6 Wks!
24. Exactly! DOP, Folliculitis, Some YES-Some NO For Scabies, Self-Inflicted, etc.
25. Found "Springtails" In My Hair, Ejected Some Kind Of Insect From Eyebrow,
Confirmed "Book Lice" In Apt. & Living Inside Glass Shower Door Frame! NASTY!

[INFECTIOUS1]

1. AZ now, CA at onset.
2. 1.5 blks. from beach.
3. Ocean Beach in San Diego.
4. City???
5. No. Some Palm Trees.
6. 34ish.
7. Going On 7 Yrs.
8. N/A.
9. Fine Dining Waiter/Captain At Very Upscale/Exclusive Restaurants & Resorts.
10. No.
11. CA (resided).
12. Occasionally Sat On Seawall, Most Time Indoors.
13. Being Ill! Used To Bowl, Play Pool, Coin & Card Collections, Do-It-Yourselfer.
14. Not Really.
15. Toxic Mold Exposure, Recurring Staph. Infections & Impetigo, Fatigue, Memory
Loss, Brain Fog, Depression, Anxiety, Candida, Past Scabies?, DOP, Many More!
16. Never.
17. Countless Different Anti-B's & Topicals, Psych/Mood Drugs, Too Many!
18. BUZZZZ! HA! HA! Don't Drink It. Enjoy Caffine-Free Pepsi On Da Rocks.
19. Oh Yes! Very Hideous Looking! Couldn't Leave Apt.!
20. Buttocks??? Top Of Hands & Wrists, Face, Back & Shoulders, Legs.
21. Same As "?#20" Maybe More Upper Arms & Shoulders, Now. Almost Lost Leg Due
To Infection! Same Width From Knee To Foot. No Ankle!!!
22. Would Vary; But Mainly Right Side.
23. See Above. All Symptoms Ever Experienced Comprised Almost 2 Full Pages
In Small Print. No Body Area Not Ever Affected! At Onset Lost 35 Lbs. In 6 Wks!
24. Exactly! DOP, Folliculitis, Some YES-Some NO For Scabies, Self-Inflicted, etc.
25. Found "Springtails" In My Hair, Ejected Some Kind Of Insect From Eyebrow,
Confirmed "Book Lice" In Apt. & Living Inside Glass Shower Door Frame! NASTY!

[suzzie38]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in.....PA
2. Inner City? Suburb? Country?...country
3. Do you live on a lake, by the ocean or pond?...pond
4. Do you have city or well water?...well
5. Do you live in a heavily treed area?...yes
6. Age at onset....(filling this out for my parents) both in their 70's
7. Number of years affected....2-3yrs.
8. Any other family members affected?...yes,including the dog
9. Your occupation at onset?...both retired
10. Do you own pets? Cat? Dog? Other?...dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other?...no
12. Do you/have you garden, hike, camp or spend allot of time outdoors?...yes
13. List your activities and hobbies...they garden,church,family
14. Have you used a public whirlpool or pool?...no
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).,,father/cancer...mom/thyroid
16. Do you smoke?...no
17. Any medications you have taken or are taking?...b/p..synthroid..bladder drugs
18. Do you drink more than 8 cups of coffee a day?...no
19. As far as lesions, have you had more than 10 at a given time?...no
20. What part of your body did the lesions start?...head
21. Is there any area that they are most prevalent? If so, where?...scalp
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?...no
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)...wt. loss..itch..bugs..fibers..unhealing sores
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?..dop..unspecified dermatitis...(misdiag. with lice)..parasites ie.collembola & booklice

[suzzie38]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in.....PA
2. Inner City? Suburb? Country?...country
3. Do you live on a lake, by the ocean or pond?...pond
4. Do you have city or well water?...well
5. Do you live in a heavily treed area?...yes
6. Age at onset....(filling this out for my parents) both in their 70's
7. Number of years affected....2-3yrs.
8. Any other family members affected?...yes,including the dog
9. Your occupation at onset?...both retired
10. Do you own pets? Cat? Dog? Other?...dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other?...no
12. Do you/have you garden, hike, camp or spend allot of time outdoors?...yes
13. List your activities and hobbies...they garden,church,family
14. Have you used a public whirlpool or pool?...no
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).,,father/cancer...mom/thyroid
16. Do you smoke?...no
17. Any medications you have taken or are taking?...b/p..synthroid..bladder drugs
18. Do you drink more than 8 cups of coffee a day?...no
19. As far as lesions, have you had more than 10 at a given time?...no
20. What part of your body did the lesions start?...head
21. Is there any area that they are most prevalent? If so, where?...scalp
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?...no
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)...wt. loss..itch..bugs..fibers..unhealing sores
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?..dop..unspecified dermatitis...(misdiag. with lice)..parasites ie.collembola & booklice

[nick]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in Alerta Canada
2. Inner City? Suburb? Country? suburb
3. Do you live on a lake, by the ocean or pond? one mile from a river
4. Do you have city or well water? city
5. Do you live in a heavily treed area? no
6. Age at onset 48
7. Number of years affected 4.5
8. Any other family members affected? no
9. Your occupation at onset? truck driver
10. Do you own pets? Cat? Dog? Other? dog,rabbit
11. Have/had you traveled to California, Florida or Texas? Europe? Other? no
12. Do you/have you garden, hike, camp or spend allot of time outdoors? yes
13. List your activities and hobbies. family,work outside in grass and treed areas
14. Have you used a public whirlpool or pool? no
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). no
16. Do you smoke? no
17. Any medications you have taken or are taking? no
18. Do you drink more than 8 cups of coffee a day? 4or5 cups
19. As far as lesions, have you had more than 10 at a given time? no
20. What part of your body did the lesions start? butt lower back neck
21. Is there any area that they are most prevalent? If so, where? butt
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? left
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) crawling,stinging,burning sensations,small lesions,red pumps,red rash,brain fog,joint pain
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?
delusional paraitosis tested for lyme

[nick]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in Alerta Canada
2. Inner City? Suburb? Country? suburb
3. Do you live on a lake, by the ocean or pond? one mile from a river
4. Do you have city or well water? city
5. Do you live in a heavily treed area? no
6. Age at onset 48
7. Number of years affected 4.5
8. Any other family members affected? no
9. Your occupation at onset? truck driver
10. Do you own pets? Cat? Dog? Other? dog,rabbit
11. Have/had you traveled to California, Florida or Texas? Europe? Other? no
12. Do you/have you garden, hike, camp or spend allot of time outdoors? yes
13. List your activities and hobbies. family,work outside in grass and treed areas
14. Have you used a public whirlpool or pool? no
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). no
16. Do you smoke? no
17. Any medications you have taken or are taking? no
18. Do you drink more than 8 cups of coffee a day? 4or5 cups
19. As far as lesions, have you had more than 10 at a given time? no
20. What part of your body did the lesions start? butt lower back neck
21. Is there any area that they are most prevalent? If so, where? butt
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? left
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) crawling,stinging,burning sensations,small lesions,red pumps,red rash,brain fog,joint pain
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?
delusional paraitosis tested for lyme

[lindalu]

Originally Posted by Franky

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in Illinos
2. Inner City? Suburb? Country? City
3. Do you live on a lake, by the ocean or pond?no
4. Do you have city or well water?city
5. Do you live in a heavily treed area?yes
6. Age at onset 49
7. Number of years affected 2+
8. Any other family members affected?no
9. Your occupation at onset? retired- diability
10. Do you own pets? Cat? Dog? Other?cat
11. Have/had you traveled to California, Florida or Texas? frequently to Florida
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Had been digging in the yard alot that year
13. List your activities and hobbies. lately none, but had my own Harley and went to riverfront festivals and outdoor events, collected antiques and rehabbed houses
14. Have you used a public whirlpool or pool? Not public, but had been in both in Florida that same year
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). Fabry disease
16. Do you smoke? no
17. Any medications you have taken or are taking?
18. Do you drink more than 8 cups of coffee a day? no
19. As far as lesions, have you had more than 10 at a given time? probably had about 10 at one time, but not now. Now have a line of connected zig-zags and small sores
20. What part of your body did the lesions start? face
21. Is there any area that they are most prevalent? If so, where? right side of lower face
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? right
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) fog, sores, both weight gain and loss, but could have to do with med I have been on
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? acne excoria and we don't know!