Morgellons Poll

[ellie]

1. Illinois
2. Suburb
3. Creek
4. Well water
5. Yes
6. 37
7. approx. 18yrs
8. No
9. Hair (very few clients)
10. Had a dog
11. Many European Countrys, both coasts of Mexico, Florida, California, Many Islands
12. I use to garden. I spent my summers out doors.
13. I do crafts
14. I had a pool and still have a hot tub which has been shut down for 9 years.
15. Doctors (incl eye) labeled my systems as stange. I have Parkinsons, high blood sugar,
high cholesterol
16. Yes 10-17 a day
17. Actos, Ditropan, Mirapex, Aziect, Sinamet
18. 2
19. Yes
20. Arms and legs
21. Face and head
22. Started on the right. Now it is about equal on both sides
23. Cysts on the body that get larger and smaller. I saw a CAT Scan and my insides were loaded
with cysts, especially around the Liver, muscle pain and spasms, hands wrinkle up and turn
black, hair loss, ringing in the ears, a smell that change every so often, difficulty walking,
many more
24. Parasitic Infection, Fungal Infection, Delusional parasite, Parkinsons Disease, Fibromalgia

[sanwhite409]

live in n.c. small town, lake is about 8 miles away. have county water.no trees. mid 40's. 1 yr. just me and the dog.worked with disabled clients. have a dog. went to florida in 2002 and 2004. not much outdoors, do like walking when weather is nice.no pool. no med.roblems before this. do not smoke.took amitriptylinne for depression for many tears. drank 2-4 cups coffe daily.yes, mostly on scalp, neck,and back.fatigue, brain fog,nausea, lots of mucus in nose and mouth,50 lb.weight loss in 1 year,vision problems,itching and crawling sensations, difficult. sleeping. scabies,DOP,lice,mites,graves disease,etc.

[Franky]

Originally Posted by sanwhite409

live in n.c. small town, lake is about 8 miles away. have county water.no trees. mid 40's. 1 yr. just me and the dog.worked with disabled clients. have a dog. went to florida in 2002 and 2004. not much outdoors, do like walking when weather is nice.no pool. no med.roblems before this. do not smoke.took amitriptylinne for depression for many tears. drank 2-4 cups coffe daily.yes, mostly on scalp, neck,and back.fatigue, brain fog,nausea, lots of mucus in nose and mouth,50 lb.weight loss in 1 year,vision problems,itching and crawling sensations, difficult. sleeping. scabies,DOP,lice,mites,graves disease,etc.

Welcome sanwhite409 to the boards! Thank you for sharing your info.

[jovie]

Welcome sanwhite409 to the boards! Thanks for contributing.

[deluded]

Originally Posted by mlc

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in
Kentucky
2. Inner City? Suburb? Country?
in town (small town)
3. Do you live on a lake, by the ocean or pond?
20 miles from lake
4. Do you have city or well water?
city water
5. Do you live in a heavily treed area?
fair amount...one large one in front yard
6. Age at onset
46
7. Number of years affected
3+months
8. Any other family members affected?
I have seen signs, but they don't believe
9. Your occupation at onset?
disability-was an x-ray tech
10. Do you own pets? Cat? Dog? Other?
dog
11. Have/had you traveled to California, Florida or Texas? Europe? Other?
Florida and Texas in past 2-3 yrs
12. Do you/have you garden, hike, camp or spend allot of time outdoors
used to camp 2-3 yrs ago

13. List your activities and hobbies.
sew occasionally, make jewelry, but have lost interest lately
14. Have you used a public whirlpool or pool?
yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
thyroid, Fibromyalgia, Depression, IBS, Gastro reflux,
16. Do you smoke?
yes
17. Any medications you have taken or are taking?
List could be lengthy on what I have taken, because they have tried numerous drugs for my depression and for Fibromyalgia...but at present, Synthroid, Nexium, Zelnorm, Cymbalta, and Oxycodone liquid...my psychiatrist has had me on an antipsychotic med for the "bug" thing...risperadol consta shot...won't be going back again...i didn't read up on it first, which is not the norm for me...
18. Do you drink more than 8 cups of coffee a day?
no 2 to 3
19. As far as lesions, have you had more than 10 at a given time?
no
20. What part of your body did the lesions start?
few small ones on right upper leg, but they're gone now
21. Is there any area that they are most prevalent? If so, where?
yes
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
yes
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
brain fog, vision, mucus in my throat, swelling (retaining fluid), weight gain, crawling & itching, biting feelings, even if it doesn't show up
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? folleculitis, but mainly DOP



1. state = KY
2. small town
3. 20 miles from a lake
4. use city water
5. fair amount, large one in front yard
6. Age 46 at onset
7. Number of years affected is 3+months
8. I have seen signs from son, mother, sister, step-father-but they dont see it
9. occupation = disabled from Fibromyalgia/herniated discs, was an x-ray tech
10. own a Dog
11. Travel-Texas/ Florida 2-3 yrs ago
12. I used to camp a lot 2 yrs ago, but don't get out much anymore, except with dog to go out
13. I used to do a lot of sewing, making jewelry, lost interest
14. Have used a public pool/whirlpool-2-3 yrs ago
15. thyroid dz, Fibromyalgia, Depression, IBS, Gastro reflux, Herniated discs
16. smoker
17. Meds: Synthroid, Nexium, Zelnorm, Cymbalta, Oxycodone liquid, and recemtly on risperdal that my psych put me on for the bugs(antipsychotic) which I am not going back for...quack...the list of meds from past is too lengthy to list or remember
18. Drink less than 8 cups of coffee a day(2-3)
19. less than 10 lesions at a time
20. started on right leg
21. area most affected = right leg, , but several on buttocks too
22. even distribution of lesions right to left
23. extreme fatigue, nausea, neuromuscular problems (shakes, tremors), brain fog, vision disturbances, emotional upset, memory loss is worse, itching/crawling/biting feelings, even if no bites
24. previous diagnoses: DOP, but one biopsy showed chronic folliculitis...I believed scabies.demodicosis...don't know now what I beieve, except I have not been evaluated properly after taking specimen bottles in with me...they refused to do bloodwork, scrapings, etc, and still gave me meds and said that should have done it...

[commondreamer]

1. State you reside in texas
2. Inner City? Suburb? Country? outer city
3. Do you live on a lake, by the ocean or pond? 20 mi from lake
4. Do you have city or well water? well water, bad quality
5. Do you live in a heavily treed area? mostly cedar
6. Age at onset 44
7. Number of years affected 1
8. Any other family members affected? probably
9. Your occupation at onset? office work
10. Do you own pets? Cat? Dog? Other? yes, one of each
11. Have/had you traveled to California, Florida or Texas? Europe? Other? yes
12. Do you/have you garden, hike, camp or spend allot of time outdoors? not much

13. List your activities and hobbies. not many anymore, I used to workout daily
14. Have you used a public whirlpool or pool? yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). Poss, lyme. Liver abnormal
16. Do you smoke? quit 6 mos ago
17. Any medications you have taken or are taking? rather not say yet
18. Do you drink more than 8 cups of coffee a day? only tea
19. As far as lesions, have you had more than 10 at a given time? no
20. What part of your body did the lesions start? from a cut in my finger
21. Is there any area that they are most prevalent? If so, where? biting feelings in lower legs
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? right side
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
brain fog, loss of control of emotions, no appetite, depression, crawly feeling, lack of motivation, panick attacks, rapid heart beat for no reason, sensitivities to things never before, constant and never ending puritus, non tollerance to alcohol
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?
Possilbe Mastocytosis, indolent

[Franky]

Thank you for the info and welcome to the site commondreamer

Houston Texas 37 years old I think my husband has it but won't even go there. I just moved to conroe and bought a big house on larger lot with lots of pine trees. I am in the dental profession I do smoke and rarely drink coffee. I take nexium for ulcers and have battled IBS as well. achy joints lesions with fibers and hairs alot especially after I've had my nails done

Originally Posted by bubba

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in? OREGON, HOWEVER I RESIDED IN WASHINGTON WHEN I WAS CONTAMINATED
2.Inner City? Suburb? Country?HAVE LIVED IN INNER CITY AND SUBURB
3.Do you live on a lake, by the ocean or pond? WE HAVE THE WILLAMETTE RIVER AND THE COLUMBIA RIVER THAT LITTERALLY RUNS THRU OUR CITY. DIVIDES N.E, S.E. FROM N.W, SW. PORTLAND.
4.Do you have city or well water? BULLRUN WATER, WHICH I BELIEVE IS A LARGE RESORVIOR/ WELL WATER SITUATION, BUT ONLY IN S.E. PORTLAND
5.Do you live in a heavily treed area? ABSOLUTLEY. BOTH PORTLAND AND VANCOUVER ARE LOCATED IN THE PACIFIC NORTHWEST
6.Age at onset? 46
7.Number of years affected? THIS MONTH IN FACT IT WILL BE 2YRS
8.Any other family members affected? I SEE SIGNS ALL OVER MY SONS HOME AND HIS GIRLFRIEND AND FRIENDS
9.Your occupation at onset? UNEMPLOYED
10.Do you own pets? YES Cat? Dog? Other? I HAD TWO CATS AND A PARAKEET AAT THE TIME OF CONTAMINATION IN VANCOUVER, WA. AND HERE IN PORTLAND, OREGON I HAVE TWO CATS THAT ARE BOTH INFECTED AS WELL AS MY OTHER TWO.
11.Have/had you traveled to California, Florida or Texas? Europe? Other? CALIFORNIA THREE YEARS AGO, FRESNO AREA, AND TEXAS ABOUT 7 YEARS AGO, DALLAS FORT WORTH AREA AND EAST TEXAS, COFFE CITY, FRANKSTON AND TYLER.
12.Do you/have you garden, hike, camp or spend allot of time outdoors? USED TO LIVE TO GARDEN AND CAMP, BUT NOT MUCH A YEAR OR SO BEFORE THE INFECTION
13.List your activities and hobbies. NONE NOW. DONT HAVE THE STRENGTH, STAMINA OR GET UP AND GO FOR ANYTHING. MAINLY I NOW HAVE A SLEEP HOBBY
14.Have you used a public whirlpool or pool? BACK WHEN I WENT TO TEXAS. NOT THAT I CAN RECALL SINCE THEN.
15.Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). I HAVE HEP. C. WHICH HAS TURNED INTO LIVER CANCER.
16.Do you smoke? YES. AT LEAST A PACK A DAY.
17.Any medications you have taken or are taking? NO PRESCRIBED MEDS. AS HARD AS IVE TRIED TO QUIT I STILL CONTINUE TO USE METH. IN SMALL DOSES. ITS THE ONLY WAY I HAVE ANY ENERGY WHATSOEVER. WITHOUT THIS SUBSTANCE I'D BE BED RIDDEN FOR A FACT AND THE PAIN IN MALL MY JOINTS WOULD BE OH SO PREVALENT. SO PLEASE DO NOT JUDGE ME!!!!! i BELIEVE THERE IS SOPME KIND OF DIRECT LINK BETWEEN THE TWO.
18.Do you drink more than 8 cups of coffee a day? NO.
19.As far as lesions, have you had more than 10 at a given time? YES OF COURSE, CHECK OUT MY PICS. I LISTED MY WEBSITE ON YAHOO.
20.What part of your body did the lesions start? FACE, ARMS CHEST, STOMACH, BOTTOM AND LEGS. ALL AT ONCE AND I WAS COVERED.
21.Is there any area that they are most prevalent? If so, where? THE LEFT SIDE OF MY BODY, EXCULDING MY FACE AFTER THE FIRST INETIAL BREAKOUT.
22.Is one side of your body/face more affected than the other (i.e.: left vs. right)? LEFT.
23.Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) I STILL GET THE LEISIONS, ITCHING , CRAWLING, FUZZY FUZZ FEELINGS ALL OVER AND I WITNESS THE LITTLE BEAST COME OUT OF MY PORES LIKE LITTLE FUZZ BALLS AT TIMES, OTHER TIMES BLACK FLECKS, OTHERS LIKE VERY MINUTE PIEACES OF DIRT, SOMTIMES WORMEY CREATURES AND THEN THERES THE BLACK, BROWN AND WHITE HAIRS WITH HORRIBLE CRITTERS AT THE TIP OF THE HAIRS. THEY HAVE TAKEN OVER MY WHOLE HEAD OF HAIR. MY JOINTS HURTS SO BAD ON THE RIGHT SIDE, ESPECIALLY MY RIGHT ELBOW AND WRIST AND LEFT AND RIGHT PALMS. SO FATIGUED AT ALL TIMES, FLU TYPE SYPMTOMS. MY SKIN LOOKS DIFFERENT AND THICKER AND SCARRED FROM THE SORES. NAUSEA, LOSS OF SHORT TERM MEMORY, LOSS OF SELF-ESTEEM AND YES WEIGHT GAIN, ABOUT 20 PONDS FOR NO REASON AT ALL. ALSO WHEN EVER I GET A SCATCH OR CUT IT TURNS INTO A MAJOR INFECTION, WHICH PENCILLIAN IS THE ONLY ANTIBIOTIC THAT WILL CLEAR THE INFECTION UP. I BUY THEM BLACK-MARKET. i NOW KNOW WHAT IT MEANS TO BE OBSESSIVE/COMPULSE. I NON STOP CLEAN IN HOPE THAT THEY WONT SPREAD ANY FURTHER, BUT TO NO AVAIL AS ALL OF MY FRIENDS HAVE IT TOO. SOME AS AS BAD AS MYSELF, OTHERS NOT AS BAD.
24.What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? WHEN I FIRST CONTACTED THIS I WAS TURNED AWAY FROM THE THREE EMERGIE CARE HOSPITALS IN VANCOUVER, WA. AND THE COUNTY HEALTH DEPT IN WASHINGTON STATE. SO WHY BOTHER TO SEEK A DOCTOR OPIONION HERE IN PORTLAND AAS THERE A PART OF THIS CONSIRICY ALONG WITH PHARMACUTICAL CARTELS.

[carla]

Amy, I know what you mean about hubby.Mine would not even discuss it.
I`m his partner for half my life,mother to his children but he preferred to believe our GP than me . I think men are too scared to face up to it.Not all of them but a lot. He even wont accept that children are showing signs of it when the evidence is right in front of his nose.The constant tension tore our relationship to shreds. I could never take him back now because of that.