Morgellons Poll

[JinPA09]

1. State you reside in. Pennsylvania
2. Inner City? Suburb? Country? Suburb
3. Do you live on a lake, by the ocean or pond? Theres a pond a few miles away
4. Do you have city or well water? City
5. Do you live in a heavily treed area?Some what
6. Age at onset 37
7. Number of years affected 2 months, but started feeling tickling at night maybe a year or more ago.
8. Any other family members affected?No not yet
9. Your occupation at onset?Customer Service
10. Do you own pets? Cat? Dog? Other?No
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Florida, Gulf side
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Only to do yard work. Occaisional trip outdoors with family.
13. List your activities and hobbies.Karate, Working Out
14. Have you used a public whirlpool or pool? Public Pool
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).No other diseases that I know of.
16. Do you smoke?No. Quit 8 years ago.
17. Any medications you have taken or are taking? Ambien
18. Do you drink more than 8 cups of coffee a day?Used to. Only drink a max of 1 cup a day since the on set of symptoms.
19. As far as lesions, have you had more than 10 at a given time?No
20. What part of your body did the lesions start?
21. Is there any area that they are most prevalent? If so, where? Face, Nose, ears, groin, waist and ankles.
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? Maybe a little more on my left.
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) Itching/ tickling on face in nose and ears. Groin area and waist also affected. Floaters in eyes. And make other people itch around me. Have lost about 15 Lbs, but I attribute that to my change in diet. (alkaline). Bouts with depression.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?Have only seen my GP. Did not receive a diagnosis other then given a script for lexapro. He was hinting that I might need to seek Psychological help.

[jee]

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in - New York
2. Inner City? Suburb? Country? Inner City
3. Do you live on a lake, by the ocean or pond? close by
4. Do you have city or well water? yes
5. Do you live in a heavily treed area? no
6. Age at onset 46
7. Number of years affected 2 mo
8. Any other family members affected? No
9. Your occupation at onset? clerical
10. Do you own pets? Cat? Dog? Other? No
11. Have/had you traveled to California, Florida or Texas? Europe? Other? Yes to all, but a while ago. 8 years ago lived in FL, 1 year ago lived in California, traveled to Europe every 2 years.
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Did , yes but before the onset.
13. List your activities and hobbies. Languages, travel
14. Have you used a public whirlpool or pool? No
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). Lupus
16. Do you smoke? yes but no more ( 8 months)
17. Any medications you have taken or are taking? Ibuprofen
18. Do you drink more than 8 cups of coffee a day? No
19. As far as lesions, have you had more than 10 at a given time? Not yet
20. What part of your body did the lesions start? freckles on arms and upper body
21. Is there any area that they are most prevalent? If so, where? Arms
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?no, same on both
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) fatigue, vision disturbances, freckles and black specks, crawling sensations, bites but now more crawling sensations.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? none, fibrosis

[kiz730]

1. State you reside in: California
2. Inner City? Suburb? Country? Suburb
3. Do you live on a lake, by the ocean or pond? By the ocean
4. Do you have city or well water? City water
5. Do you live in a heavily treed area? No
6. Age at onset: 20
7. Number of years affected: noticed for min. of 2 years
8. Any other family members affected? Not at this point9. Your occupation at onset? Student
10. Do you own pets? Cat? Dog? Other? Yes, I own 2 Dogs
11. Have/had you traveled to California, Florida or Texas? Europe? Other? I live in California and I traveled to Florida once 9 years ago
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Not recently, but I grew up camping and many various outdoor activities13. List your activities and hobbies. School, bartending, bike riding, walk to the beach, sewing, painting/drawing,
14. Have you used a public whirlpool or pool? yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). Shingles, hpv, Scarlet Fever, Narcolepsy, Mersa Staph infection….I have always had a noticeably low immune system in terms of being ill, I often experience symptoms far worse and for much longer than the average person
16. Do you smoke? No
17. Any medications you have taken or are taking? Birth Control (yaz, depo vera at onset of morgellons symptoms), antibiotics for infections/ mersa staph, provigil,
18. Do you drink more than 8 cups of coffee a day? I do not drink coffee at all
19. As far as lesions, have you had more than 10 at a given time? yes
20. What part of your body did the lesions start? face, particularly the chin
21. Is there any area that they are most prevalent? If so, where? My face, especially cheek and chin
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? I definately affects both sides greatly
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) EXTREME fatigue, brain fog, vision disturbances, fibers/specks, short term memory loss, mood disorder/mood swings, loss of interest, depression/confusion, clumsiness, lesions, experience both pain and numbness near lesions
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? Only Morgellons

[HELPUS]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in LONG ISLAND NY
2. Inner City? Suburb? Country?SUBURB
3. Do you live on a lake, by the ocean or pond?OCEAN
4. Do you have city or well water?CITY
5. Do you live in a heavily treed area?NOT HEAVY
6. Age at onset 59
7. Number of years affected 6
8. Any other family members affected? HUSBAND (VERY SLIGHT)
9. Your occupation at onset RETIRED
10. Do you own pets? Cat? Dog? Other?NO
11. Have/had you traveled to California, Florida or Texas? Europe? Other?FLORIDA
12. Do you/have you garden, hike, camp or spend allot of time outdoors?GARDEN.STARTED WITH HANDLEING INFECTED PLANT (FUNGUS)
13. List your activities and hobbies.GARDENING
14. Have you used a public whirlpool or pool?POOL
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).LYMES,FIBROMYALGIA,CHRONIC FATIGUE,ARTHRITIS,ARITHMIA HEART.VERY HEALTHY UNTIL LYMES,NOT DIAGNOSED OR TREATED UNTIL NOW.
16. Do you smoke? NO
17. Any medications you have taken or are taking?PREVACID
18. Do you drink more than 8 cups of coffee a day?NO
19. As far as lesions, have you had more than 10 at a given time?YES
20. What part of your body did the lesions start? ARMS,HANDS, LOWER LEGS,SPREAD TO STOMACH.
21. Is there any area that they are most prevalent? If so, where? LOWER LEGS, ARMS,HANDS,SHOULDERS.HAIR
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?NO BOTH EQUAL
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)BRAIN FOG,FATIGUE,WEIGHT GAIN,CONGESTION, COUGH, SEEMS TO GO IN CYCLES,GAS BEFORE THEY RE APPEAR.ITCHING (ONLY AT THE VERY BEGINING OF INFESTATION,NON HEALING SORES.HAIR LOSS AND CHANGE IN TEXTURE.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

ALL OF THE ABOVE..I FEEL THAT I HANDLED THE ROTTING HOUSE PLANT AND ALL THIS FOLLOWED.

[Sadsack]

Kiz -

Did I understand you correctly? A DOCTOR diagnosed you with Morgellons? You are the second person I've heard of recently who was.

SS

[HELPUS]

I Was Told I Had Scabbies , That I Was Causing The Lesions Along With All The Other Symtoms. I Know With Out A Doubt , I Have Morgellons. So Tired, I Feel Like Im Living In Groundhog Day The Movie.stay Strong, Some Days Its Hard To But They Will Find The Cause And Cure...

[whypanama]

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. Country of PANAMA
2. Country
3. 10 miles from the Ocean
4. City Water
5. No
6. 65
7. 4
8. No
9. Retired
10. Dog
11. Retired to PANAMA in 2005
12. Garden and Flower Boxes
13. None
14. No
15. Diabetic, High Blood Pressure
16. Cigars
17. Avandia, Clonidine
18. No
19. Yes
20. Legs
21. Legs
22. No
23. No symptoms, just lesions on my chest, back, arms and legs
24. Dermatitis

Matthew Strociek

[Sadsack]

Matthew -

You're situation sounds so much like mine. I retired to FL four years ago and it was supposed to be my dream. Only it was my nightmare.

I wonder, though, if you could have something else, though? If you have no other symptoms than the lesions, it could be any number of things.

Maybe you can introduce yourself on another thread; I'll respond to you there.

SS

[shughes]

1. State you reside in
New Jersey

2. Inner City? Suburb? Country?
Infected in Jersey City. Believe 99% I got this from pigeons and their feces outside my window.

3. Do you live on a lake, by the ocean or pond?
No

4. Do you have city or well water?
City

5. Do you live in a heavily treed area?
No

6. Age at onset
26

7. Number of years affected
Past few months, roughly since Sept 2009

8. Any other family members affected?
Not yet

9. Your occupation at onset?
Grad student

10. Do you own pets? Cat? Dog? Other?
None

11. Have/had you traveled to California, Florida or Texas? Europe? Other?
Traveled in rural Kenya in 2004

12. Do you/have you garden, hike, camp or spend allot of time outdoors?
Spend a lot of time walking around New York City

13. List your activities and hobbies.
Antique/thrift shopping, reading, watching films, wasting time on the internet..

14. Have you used a public whirlpool or pool?
No

15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
Shingles 2006, Cystic acne 2007 (took Accutane), general anxiety for some time, family stresses, HPV both high and low risk diagnosed Oct 2009

16. Do you smoke?
Weed occasionally

17. Any medications you have taken or are taking?
Tazorac for acne

18. Do you drink more than 8 cups of coffee a day?
Nope but I do drink a fair amount of coffee

19. As far as lesions, have you had more than 10 at a given time?
Not yet

20. What part of your body did the lesions start?
back and sides of my thigh. Two clusters of 2 marks on the back of my thigh (right side), then one on the side of each thigh

21. Is there any area that they are most prevalent? If so, where?
legs so far, i started getting pseudo pimples on my face too that i know are not acne

22. Is one side of your body/face more affected than the other (i.e.: left vs. right)?
Definitely right side

23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)
Blurry eyes, muscle and joint pain, feet ache, black specks in stool, itching/crawling in anus (literally pulled out a sizable fibrous blue/white hairball on some toilet paper), black specks on skin, blue, black and red fibers on skin, constant hunger and not gaining weight, marks on my legs, random scratch marks on hands that literally appeared before my eyes

24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?
Ingrown hairs and rashes

[Sadsack]

shughes -

Are you still in school? Does your family know what is going on? I feel so bad for you, so young and just starting out.

I also had those "scratches", and saw one happen, like a "zip". The whole thing didn't appear at once, but started at one end and went to the other, lickety-split. Really bizarre.

If you have resources, Dr. Staninger's protocol is the most effective thing around. It is very involved and expensive for all the things you have to buy and do. Her rates are less than some of the more famous docs who treat Morgellons. You also have to have a slew of blood work done, so you must have insurance or lots of dough.

Many people have become symptom-free on her protocol - I have spoken to a few. I am close to it, and have been for about 22 months (I am a patient of hers).

Good luck.

SS