Morgellons Poll

[meg280]

Welcome Morgylady and Rick

There are many different links and threads with losts of information, take your time reading and if any questions come up that you can't seem to locate answers too feel free to ask and I am more than happy to try and help if possible.... since we don't have a lot, more suggestions or things to use as support are more available. Wishing you the best!

Xoxo,
Meg

[suzsis11]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in? louisiana

2. Inner City? Suburb? Country? city

3. Do you live on a lake, by the ocean or pond? within 2 to 3 miles of lakes

4. Do you have city or well water? city

5. Do you live in a heavily treed area? yes

6. Age at onset? 37

7. Number of years affected? 2

8. Any other family members affected? 1

9. Your occupation at onset? caregiver for teminally ill sister who is is a type 1 diabetic with many complications

10. Do you own pets? Cat? Dog? Other? yes, dogs

11. Have/had you traveled to California, Florida or Texas? Europe? Other? yes, florida

12. Do you/have you garden, hike, camp or spend allot of time outdoors? yes, i have manygardens and have been in the landscape business for years
13. List your activities and hobbies. garedening, projects i.e. organizing storage shed, building various things, reading history

14. Have you used a public whirlpool or pool? yes, but not in quite a few years

15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). was relatively healthy bf this affliction, donated kidney to my sister in 2000, 5'9 at 140 lbs., scoliosis, arthritis in hands, elbows ad back

16. Do you smoke? yes
17. Any medications you have taken or are taking? zoloft, adderall, vitamins and xanax

18. Do you drink more than 8 cups of coffee a day? no

19. As far as lesions, have you had more than 10 at a given time? no

20. What part of your body did the lesions start? scalp

21. Is there any area that they are most prevalent? If so, where? scalp onl
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? no

23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) extreme fatigue, brain fog, joint pain, edema in ankles, memory loss
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

ringworm, bedbugs, and pretty much discounted by dermatologist, i.e. had feeling she was saying i'm delusional without actually saying it

[meg280]

Hello!

Many have the same symptoms as you, so you and your family are not alone. There are several ideas for symptom relief under a protocol thread, as well as good information for you to get an idea of how you can help yourself and maintain a support chain through friends here...

I hope you let us know how you are doing through some of the threads!

Xoxo
Meg

[Slovenia]

1. State you reside in NOT IN US: IN SLOVENIA
2. Inner City? Suburb? Country? SURROUNDED BY VINEYARDS AND FORESTS
3. Do you live on a lake, by the ocean or pond? NO BUT HAVE DONE
4. Do you have city or well water? CITY BUT DOUBTS ABOUT PURITY
5. Do you live in a heavily treed area? MOST DEFINITELY
6. Age at onset 59
7. Number of years affected 6 MONTHS FOR SURE
8. Any other family members affected? NO
9. Your occupation at onset? BROADCASTER
10. Do you own pets? Cat? Dog? Other? NO
11. Have/had you traveled to California, Florida or Texas? Europe? Other? ALL EUROPE
12. Do you/have you garden, hike, camp or spend allot of time outdoors? VINEYARD & FOREST!
13. List your activities and hobbies. TRAVELING, DRIVING, DESIGNING
14. Have you used a public whirlpool or pool? NO
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). ONLY HEP B YEARS AGO.
16. Do you smoke? NO
17. Any medications you have taken or are taking? CLARI + QUINSYL
18. Do you drink more than 8 cups of coffee a day? USED TO
19. As far as lesions, have you had more than 10 at a given time? NO
20. What part of your body did the lesions start? NO LESIONS BUT SPECKS ON LEFT HAND
21. Is there any area that they are most prevalent? If so, where? HANDS
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? STARTED ON LEFT
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?) HAD BRAIN FOG, BLURRED SIGHT, FATIGUE, PALPITATIONS, LEG TREMORS - BUT NOT NOW. CURRENTLY: PAIN BACK OF HEAD (RIGHT SIDE), AND CONTINUED SPECKS IN SKIN.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? DERMATITIS, PARASITOSIS. ONE - A CENTRAL AMSTERDAM FAMILY DOCTOR EVEN PRESCRIBED DEATH!! YES: "WHY DON'T YOU KILL YOURSELF IF YOU FEEL THAT BAD. YES, GO ON KILL YOURSELF." OH, AND NOT EVEN IN THE SURGERY BUT THE WAITING ROOM!! I'd love to name her here but I think site protocol would prevent it!

[Kritters]

My God, Slovenia!! Please write everything down about that particular visit with the doctor and hold onto it for the future. What a disgrace!

I have a few questions if you don't mind? You also, Suzsis ?

1-Are you aware that you have any form of herpes ? (there are many...including chicken pox)

1-Do you have old plumbing in your home?

3-Have you seen any mold growing anywhere in your home?

4-Have you been directly exposed to any kind of wet mulch or rotting leaves that you remember?

5-Have you been operated on in any way, including teeth/gums?

6-Have you had fillings removed or put in? Any root canals?

thanks,
Kritters

[tcmgpt13]

Hi Barrie,

I think that doctor in Amsterdam sounds chillingly like what the elderly in the the US will hear if Obamacare is passed. I had a quote on yesterday discussing this issue and it is truly terrifying to just read some of what is being proposed in this "healthcare" bill. I never thought I would see western civilization have such an utterly low regard for life. Instead many in government seem to mirror other cultures in the world which view an individual's lifespan as totally unimportant. After all, there is always another person to replace the one who is gone. I am absolutely repulsed by what this doctor said to you.

tcm

[SweetCravings]

1. Reside in Sarasota, Fl
2. Gulf*Coast town.*
3. Lived next to apartment "pond" at onset.
4. City water.
5. Area heavily treated for mosquitos.*
6. Onset Age: 27
7. * * Affected 7 years
8. * * Affected Family: Mother (50), Father (54), Sister (29), Niece (4)
9. Onset Occupation: Disabled (IT Consultant)
10. At onset: owned rabbit & dog, Now: own the dog (7)
11. Traveled to Ca, live in Fl.
12. No, not too outdoorsy.
13. Activities and Hobbies: bike riding, swimming, computer stuff, scrapbooking, doggy parks, beach (rarely), Scrabble, Reading *
14. * Have used public hottub and pool (hotels mostly), and apartment pool. Used apartment hottub at onset.*
15. Peripheral Neuropathy in left leg with Complex Regional Pain Syndrome. Arthritis in hips, legs & back. Bipolar Disorder. Sleep Apnea. Hormone Replacement Therapy for hormone imbalance.*
16. Smoke 1 pack/day.*
17. * Meds at Onset: Celexa, Neurontin, Valtrex,*Kadian, Actiq. Treated Morgellons with: Ketokonazole, Diflucan, Ivermectin, Permethrin. Current Meds: Valtrex, Lyrica, Actiq, Avinza, Estrogen & Progesterone.*
18. Drink more than 6 cans of Coke a day.*
19. Had far more than 10 lesions at a time during first 3 years.*
20. * Lesions On: scalp, face, mouth, abdomen, neck, back, thighs/buttocks, shins/ankles/feet, arms, hands. *
21. * Most Prevalent: Arms, Shins, Scalp*
22. Right side of body more affected.*
23. Current Symptoms: Fatigue, Brain Fog. (Lost teeth)
24. Other doctors diagnosed me with: folleculitis (my dog too), Scabies, DOP - delusional parasitosis, Candida Albicans

Thanks for compiling this data! I hope my input is helpful.

Sincerely,
Sweet

[jonsi]

Hi Sweet

Many members will argue that "M" is not contagious. But your reply to question 8 spreads light on the fact that "M" could be contagious. I have a good friend that I met on this forum that is convinced that she and her entire family were infected by a mattress. She lives in a big city and doesn't get out in nature.

She has since left this board because no one believed her.

If you have time, will you please share why you believe so many of your family members also experience "M" and how you think you came in contact with "M".

Thank you, (lost teeth too)
In the white light,
~jonsi

[Vic]

1. State you reside in - Nova Scotia Canada
2. Inner City? Suburb? Country? City
3. Do you live on a lake, by the ocean or pond? Ocean
4. Do you have city or well water? City
5. Do you live in a heavily treed area? yes
6. Age at onset 28-29
7. Number of years affected 2.5
8. Any other family members affected? no
9. Your occupation at onset? none
10. Do you own pets? Cat? Dog? Other? no but hamsters at time of onset
11. Have/had you traveled to California, Florida or Texas? Europe? Other? no
12. Do you/have you garden, hike, camp or spend allot of time outdoors? enough
13. List your activities and hobbies. dont have time for much full time supervisor at call center and full time single mother.
14. Have you used a public whirlpool or pool? yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?).
16. Do you smoke? trigeminal neuroolgia
17. Any medications you have taken or are taking? was taking carbonazipine (sp) at onset for neurolgia that is now currently in remission, which if you check side effects can cause visual and auditorial hallucinations... dr wouldnt even listen after that. i then started wearing long sleeves and pants all the time and made myself ignore it. When it came back with a vengence (i dont think it went away at all...) 6 months later and i wasn't on the carbonazipine anymore my first thought was (happily - i knew i wasn't crazy)
18. Do you drink more than 8 cups of coffee a day? no
19. As far as lesions, have you had more than 10 at a given time? yes
20. What part of your body did the lesions start? first big one that i dug at - leg. they initially started "jumping" off my head when i treated my children for lice with Nix, they then "burrowed/"eroded" into my skin whereever they landed and then i could see a black dot and could not remove it.
21. Is there any area that they are most prevalent? If so, where? worst place - eyebrows, when i plucked them all out one by one with tweezers, it "went away" for like 1.5 yrs. It's back now bad, and i think i am going to have to do it again... (eyebrows have so many uses you dont even realize till they are gone)
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? right maybe slighly
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)memory loss, fatigue, nausea vomiting temperature changes, foggy,
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)? scabies that I almost killed myself with twice covering my whole body and head for wayyyyy to long. laughed out of 2 emergency rooms i will never go back...

[mmarsha]

Originally Posted by Frankybme

Please answer as many questions as you can. We are hopping to find some common patterns among the answers.

If there are any other questions you want included, just send them to me. Also you might want to quote this post and then just fill in the answers.

1. State you reside in?Tennesee
2.Inner City? Suburb? Country? I live in country
3. Do you live on a lake, by the ocean or pond? I live very close to water treatment plant and river is just a few hundred yards from my house.
4. Do you have city or well water? I supposedly have city water but have noticed that sometimes this water looks brown?? I am afraid to drink but i have to take bath
5. Do you live in a heavily treed area? minimal, more of farming environment.
6. Age at onset 39Yrs old
7. Number of years affected 2
8. Any other family members affected? no
9. Your occupation at onset? Veternarian Tech
10. Do you own pets? Cat? Dog? Other? yes
11. Have/had you traveled to California, Florida or Texas? Europe? noOther?
12. Do you/have you garden, hike, camp or spend allot of time outdoors? Yes, I garden and have alway's been an outdoors person.
13. List your activities and hobbies. gardening and before I got sick, swimming at lot of local lakes, hiking, camping, out doors events
14. Have you used a public whirlpool or pool? yes
15. Please provide your medical history (i.e.: do you or have you had any other diseases? Cancer, Lyme, Thyroid, AIDS, other?). Hep C
16. Do you smoke? yes
17. Any medications you have taken or are taking? Xanex, Loratab. Estrodial, supplements
18. Do you drink more than 8 cups of coffee a day? no not now but I used to drink lot's of coffee
19. As far as lesions, have you had more than 10 at a given time? no
20. What part of your body did the lesions start? head, and ear
21. Is there any area that they are most prevalent? If so, where? Ear's and neck
22. Is one side of your body/face more affected than the other (i.e.: left vs. right)? yes, right
23. Please list your current symptoms (brain fog? vision disturbances? fatigue? nausea? weight loss/gain etc?)all the above with adding to this list severe joint pain, and having a glue like substance that is almost like cement and VERY hard to remove.
24. What did other doctors diagnose you with (i.e.: folleculitis? Scabies? DOP - delusional parasitosis)?

scabie's 3 times lice twice and Dop

My most dominant symtom has been a glue type substance that had almost totally enclosed neck and ears. This glue was also on scalp, especially around edges of hair and skin.
mmarsha